questions for a newbie

[Guest guest]

Sheila,

Welcome! I am 38 and have a pancreas divisum that has caused my CP. I have

not tried any of the treatments that you mentioned so I can't really help on

that end but I wanted to say welcome and I know someone will be able to answer

your questions better than I can.

Take care,

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

[Guest guest]

Hi you guys,

I have read your posts enough I am starting to feel like I know some

of you guys myself and would like to be part of the group too!

My name is Shelia and I have SOD which of course has led to

chronic pancreatitis. So far I have only had one endoscopic

sphincterotomy although my doc is fairly certain I will eventually

require a sphincteroplasty? as there is ductal involvement as well...

I posted here once before and someone here, Heidi I think, helped me

to find Dr. Cattau here in Memphis and for that I will be forever

grateful, he is wonderful! I will never again let anyone else do

anything endoscopic to me but him!

I am back at work and doing really well but I still have some

questions for any one.

Before I was diagnosed with the SOD I was considered a heart

patient and had documented heart spasms that were recorded during a

heart cath. and during the spasms I have significant changes in my

EKG, we now know this is the panc spasming causing this but is the

heart stuff due to the pain, do you think, has anyone else had this?

I also have diastolic heart failure exacerbated I am sure by the

fact that I am morbidly obese, I thought to reach this stage I would

be skinny, does anyone else have a weight problem.

One reason I think I am so overweight is I have proven to my

husband and myself that I only have the horrible spasms when my

stomach isn't full... has anyone else noticed a corelation to this?

Has anyone else been given nitrates and calcium channel blockers to

help prevent spasms? My current medications were found to help the

spasms as they were given to treat the heart spasms and i don't know

if it is normal treatment or not? Just curios as it is working well

for me right now.

Does anyone else notice a correlation between ovarian type pain

during the not so good days? Mine is especially noticeable on the

right side but I don't think the cat scans or MRI's have detected

anything unusual there.

One more question and I'll quit,does anyone else take regulan with

their enzymes? I think this has helped me as much as the

sphincterotomy and can sure tell by my pain levels if I miss this?

I appreciate anyone taking the time to read this long post and would

really appreciate any input on any of this!

Thank you very much,

Shelia