THE PAIN....what should i do?? PLZ read if u can

July 12, 2005

Well, my abdominal pain is once again at a high 8-9. I went to the

ER last night (sunday night). The pain and nausea was starting to

get out of control. So i called the GI doc that was oncall and he

told me to go to the ER. So i did. He told me to tell the ER doc

that i have Chronic Pancreatitis, etc. The ER doc didnt like

hearing that i have CP, neither did he like hearing what sort of

pain medications im on. The ER docs have a tendancy to not listen

to the oncall doctor that sends you to the ER. The minute the ER

doc came into the room he asked me why im taking Oxycontin. I said

because i have Chronic Pancreatitis and it causes a lot of pain. He

then asks me..... whats the difference between the pain i have now

and the CP pain. I said to the ER doc...... well the difference is

that the pain is getting worse and worse and that the pain is worse

near my liver. Thats why i came to the ER. My goodness i swear i

wish i had a zapper where i could just zap people when they ask

really stupid questions so they learn to not ask them again LOL

(laugh out loud). Then all i kept hearing from all the nurses and

the ER doc was that i was simply way too young to have Chronic

Pancreatitis and they kept asking me how i got it. I swear the next

time someone says that im simply too young to have chronic

pancreatitis i think i might shove my foot up thier @#$. I have it

well documented that i have CP, what more do they want from me? BUT

ER docs are like that, so im really used to it. I dont expect much

help when i go to the ER. When they told me that im pretty young i

said to them.... well, diseases pick you at any age, no matter how

young or how old you are....not vise versa (unless you have a death

wish). Heck, i was born 3 months early and that happened because my

mom started to get sepsis. No one chose that to happen, only God

did.

Anyway... he started an iv and ordered blood work to be drawn. I

told him that when i was walking around our pool area (i was slowly

helping bring things from the outside to the inside because of the

hurricane) i felt something pop in my abdomen and the pain was so

intense that it brought me to my knees. I screamed in pain, thats

how horrible it was. Then it happened again about 15 minutes

later. The pain did subside after the second pop in my abdomen, but

then about 2 hours later.....the pain got horribly worse. The

nausea and the pain was just getting worse and worse and by early

Sunday morning i was crying and rolling around on my bed in pain.

So the oncall doc said to go to the ER. Once they got an IV in they

drew the blood and put IV Phenergan in. He didnt even run a saline

bag or anything. I nearly passed out soooooo many times because of

the dizziness and i felt so flushed and i was sweating. I told him

that i was getting referred pain and it was causing me chest pain

and shoulder pain. All he did was order blood work to check my

liver and pancreatic enzymes and he ran a CBC (not sure if it was

with diff. i think it was without diff.) I was glad though that the

Phenergan helped a lot with the nausea. Everything came back within

normal limits so he discharged me. He didnt even give me anything

for pain. I didnt want to be there in the first place so i was

happy as @## that he came into the room and said the blood work came

back within normal limits. I was just so frustrated and all i

wanted to do was crawl back in my own bed. The oncall doc told me

to call him if the ER doesnt help me, but when i got home i fell

asleep for 4 hours. I didnt go back to sleep after that..... i was

in such pain. The Phenergan helped me sleep that 4 hours. Then

monday morning the pain escalated so i called to make an appointment

to see my GI doc. I see him this Wednesday..... so tomorrow. I

forced myself to eat because i needed food in me. Every single bite

i thought was going to rip my body into pieces. It drastically made

the pain worse and i got the popping feeling back and my RUQ (right

upper quadrant) abdominal pain is pretty bad. I feel like all i

want to do (if i had the energy) is yell and punch something because

of the pain. My question is this.......

Has anyone had this happen, but their liver and pancreatic enzymes

are within nomal limits? Im dumbfounded as to what it might be,

other then the chronic pancreatitis pain getting worse. Which could

simply be whats going on. I see my GI doc this wednesday and i see

my Pain Management doctor this thursday. Should i talk to my GI doc

about maybe trying to let my pancreas rest for a week or so and not

take anything by mouth? BUT if i do that.... then how in the world

will i be able to do that successfully. The only thing i can think

of is if they place the PICC Line back in, but im not sure if and

what i should bring up with him. All i know is that the pain,

nausea, diarrhea, is simply getting worse. I also, just started

getting a lowgrade fever. I feel very miserable and totally run

down. I barely have energy to think. Im tired, but i cant sleep

because of the pain. So the no sleep is really making things more

difficult to get through this attack. If anyone has had an similar

experience or if anyone knows what i should ask my GI doc this

wednesday..... i would greatly appreciate it if you could throw out

as many suggestions as possibly and/or experiences. I just dont

know what to ask the GI doc. Im already on Pancreatic Enzymes and a

slew of other meds, but my intution really is telling me that the ER

doc missed something. And my intuition tells me that if i go NPO

for a few days, that it might help lesson the pain of this attack.

Thanks everyone for listening...... im just between a rock and a

hard place right now. I dont know what to do and i dont know what

to think anymore.

God bless you all greatly.

Much love, Karolina.

July 12, 2005

First I have been in so much pain like you. Yet, I have had it a bit

easier when talking to ER doc's. The Chronic panc. and being refered

by the GI doc should have afforded you and easier time with the ER

doc. But, I do understand.

You may want to try a clear liquid diet. You know juices, tea's, etc.

This is not as drastic as NPO, but leave that as an option if you need.

Walt

July 12, 2005

Karolina,

That is horrible but it has happened to so many of us! I have had it happen

to me. I am fortunate to have a hospital within an hour drive though that does

understand cp and they are great to me. My local hospital is like the one you

describe. I am willing to drive farther to get relief!

When I go to the other hospital they understand that cp attacks cannot be

determined by enzyme levels etc. Mine no longer go up with attacks and haven't

for 2 years. They give me dilaudid and zofran and I have been admitted if I

have an ileus or anything at all fishy looking in the bowel. The good hospital

is

University hospital in Augusta GA. They are wonderful, they have a wonderful

ER and a floor called the semper care hospital of Augusta that deals with cp

patients and diabetics. I have recieved wonderful care there!

I think going npo would be a good idea. It is a shame that you can't get any

pain relief. Can your doc call you in something? I go on fluids for a few

days after an attack but I have to be careful because of my diabetes. So I check

my blood sugar very frequently when I have to go npo. Try broth and clear

liquids, maybe some mashed pototoes. No butter! Keep the fat out especially

until

things settle down! Do you take enzymes? I usually increase mine when I am

having an attack.

I hope you are feeling better and I am so sorry that you are having to go

through that!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

July 12, 2005

callalily1983 wrote: