Re: THE PAIN....(deedee, nancy, angie, everyone else)

[Guest guest]

Deedee, nancy, angie and everyone else whom has writen me back.

Thank you very much for the great suggestions and input.

Deedee, im glad that your daughter is doing better since she had her

surgery. I dont want to go that route yet because im not kosher

with the idea yet. I know that i will need the surgery in the long

run, but right now im just not ready for it.

and Angie...... thanks too for the input. Im currently on

Pancreatic Enzymes (Lipram...which is the generic form of Creon). I

wrote a bio about me. I believe its called, hello im new here....

or something in that sense. It was a few days ago when i wrote it.

I have Pancreatic Divisum, anomalous biliary tree at the left and

right hepatic duct bifurcation, reacurring scar tissue that has a

endless reason to keep growing, biliary stenosis secondary to

biliary statsis and spasms of the biliary sphincter. I also get A

LOT of sludge backup into my liver, etc. I have undergone multiple

ERCP's with stent placements and many sphincterotomies. My GI doc

that i have now said that i may need another ERCP soon. Im not

looking forward to it because i always get horrid attacks that keep

me in the hospital. Plus, it has to be done under general

anesthesia because i dont metabolize medications correctly. Im also

on Pepcid and Prilosec. I also take Oxycontin twice a day and i

take Oxycodone for breakthrough. I wish the Oxycontin wasnt so darn

expensive. Im also on a slew of other medications.

When i had my multiple ERCP's done... they ALL missed the scar

tissue thats inside and around my pancreas. I had to have a EUS

(endoscopic ultrasound) done to see if i did have CP and it turned

out that i do have chronic pancreatitis and its rather bad. He (the

GI doc that preformed the EUS... this was in Michigan) said that

many patients have gone undiagnosised of Chronic Pancreatitis even

with ERCP's. He said that the EUS is one of the best ways to

diagnosis CP because it looks at the entire organ...... at a near

360 degree angle. So thankfully i had the EUS done and i have a

proper diagnosis of Chronic Pancreatitis. I have been sick for

years upon years. It wasnt until August 2004 at Mayo Clinic that a

pancreatic specialist told me that i needed to have an EUS done. So

it was ordered and when i flew back home to Michigan i had the EUS

done. The doctor that did the EUS said that the CP was the cause of

much of my problems (i have been sick for a little over 5 years).

, you know thats a great idea about the note. I have a

wonderful GI doc here in town and infact he only specializes in this

so he knows what hes doing. Hes just a wonderful doctor and really

do respect him. Just as i respect my pain doctor greatly too. They

have been the two most wonderful doctors that i have had in a long

time. I know that when i was in the ER on Sunday.... the oncall doc

said that if i had any problems to have the ER call him and he would

order them to help me. The ER doc simply chose to not help me. I

will have my GI doc write out a letter stating what needs to be done

when i go to the ER..... like pain control, etc.

The pain is horrific right now. Really bad left upper abdominal

pain with nausea. If i lay on my left side it intensifies the pain

and omg does it hurt bad. Its so intense that it feels like someone

is stabbing me in my

left upper abdomen and straight through to the back. I also have

horrible left shoulder pain and chest pain with it (referred pain).

I have been shaking and i get so dizzy from the pain. Im trying to

just remain on liquids right now. So im drinking water and pepsi.

BUT even with the liquids only..... my pain increases big time. So

then i dont drink as much because anything i drink or eat makes the

pain worse big time. Im just glad that i see my doctor tomorrow!!!

And i see my pain doctor this thursday. I will tell you all how the

appointment goes, etc. Im just at a loss right now. And honestly

if i could addmit myself into the hospital...... I WOULD!!!!! Thats

how bad the pain is, but im really trying to tough it out and im

breathing through the nausea because once i start vomiting i dont

stop. And when i vomit that means a 100 percent chance im addmitted

into the hospital. I dont want to be addmitted, but i feel its the

best place for me right now. Gosh and i havent been to bed yet !!!

its about 1:10pm here, but i am going to try to lay down and try to

get a nap in.

Oh, can you believe that they didnt even worry about my vital signs

when i was in the ER sunday? Upon discharge, my BP (blood pressure)

was 145/96 and my pulse rate was 134 BPM. The ER doc didnt even run

a saline bag to try to see if the IV liquids would help decrease the

tachycardia (fast heart rate). I have Sinus Tachycardia with

inferior ischemia (i was also born with Patent Ductus Arteriosus

that was surgically fixed when i was about a day old). He honestly

didnt seem to be worried about my situation, nor did he seem

empathitic. Oh well...... all of this i will have to talk to my GI

doc about. The BP was high for me because my normal blood pressure

is about 110/54 (around there). I just dont understand certain ER

docs. I am going to discuss the ER visit with my GI doc tomorrow

and see if he can write me that letter so then the ER docs get

something concrete to look at. Thanks for the input everyone.

God bless you all greatly.

Much love, Karolina.