Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 I have CP and just found this support group. I would really like to hear from you, I really need help through this time in my life and I just know all of you understand and can help me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi assistant2pdg, and welcome to this site. I am new here as well but I can tell from watching and listening the people here are super and will help in any way possible... as will I if I have anything you can use you are certainly welcome to it! Glad you are here and come on back, Shelia > I have CP and just found this support group. I would really like to > hear from you, I really need help through this time in my life and I > just know all of you understand and can help me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi assistant2pdg, and welcome to this site. I am new here as well but I can tell from watching and listening the people here are super and will help in any way possible... as will I if I have anything you can use you are certainly welcome to it! Glad you are here and come on back, Shelia > I have CP and just found this support group. I would really like to > hear from you, I really need help through this time in my life and I > just know all of you understand and can help me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 > I have CP and just found this support group. ------------------------------------------------------------- Hi Welcome aboard!! I am so sorry that you had to seek us out but am very glad you found us. this is a wonderful group that has helped me out so many time. I only hope that I can return the favor in some small way. Where do you live? Maybe there are some members in your area. Also, whats your name..LOL. Ask anything you want; we talk about everything here and between us all we have gone through it all. Warmly, (SC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi Teal, Well, another hoosier, I keep telling you all there is something about the upper midwest that is associated with this disease. Again, an x-hoosier (but always there) Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Thank you. I am just glad to finally find people that understand. My name is Teal and I live in Indiana. I still work (where I am now). I am reading all your stories or questions and just cannot believe it, I have these problems and it is very nice to learn I am not the only one. I never really realized how alone I felt until I've been reading this. I will write more when I can (when I finish my task at hand), I will tell you my story and hope to hear yours. Teal wrote: > I have CP and just found this support group. ------------------------------------------------------------- Hi Welcome aboard!! I am so sorry that you had to seek us out but am very glad you found us. this is a wonderful group that has helped me out so many time. I only hope that I can return the favor in some small way. Where do you live? Maybe there are some members in your area. Also, whats your name..LOL. Ask anything you want; we talk about everything here and between us all we have gone through it all. Warmly, (SC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Teal I am from Indiana also. What part do you live in? Patty Duley Corydon, IN " --------------------------------- --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 I live in Madison County - I've never heard of your city, where is that? Teal > Teal > I am from Indiana also. What part do you live in? > Patty Duley > Corydon, IN > > " --------------------------------- > > > > > --------------------------------- > Start your day with Yahoo! - make it your home page > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi, Welcome. Come on in and share your story. I am Angie, I am 38. I live in SC. I have had chronic pancreatitis for 2 years (diagnosed!). I had surgery in ton to open up the ducts about 5 weeks ago. I have pancreas divisum. That is what caused my cp. Let us know your story and how we can help. There are some great people here with alot of info! Angie in SC " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Teal, The surgery was not to awful but it is not the easiest thing I have ever had either! It has helped some but I still will have chronic pain. It is not as bad as before so I will take what I can get! Ouch on the disk in your back being hit! That must have been horrible! I am going to a pain doc for the first time on Aug. 4th and I wanted one who did not do blocks right away. I want to get to know someone and research how they have done and their " track record " so to speak before I let them do anything to me! It is so frustrating not have a definite diagnosis. I went like that for 2 and 1//2 years and finally when I went to ton to the docs at MUSC they saw the divisum and said I needed surgery. They have been wonderful to me! I hope they can get some answers for you soon! Now speaking of rambling, look at what I have done! I am a horrible rambler! Sorry! Take care, Angie in SC " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hello - How are you doing since your surgery? I am married and 30 years old. I have had pain for most of my life however, just diagnosed in 2000. At this point in time, I am attempting to get a second opinion from a dr in Cincinnati. I am very upset lately b/c the dr told me that there was nothing more they could do for me. I have been told that my pancreas is misshaped but so many of the drs have used different terms and the term " divisum " is one they have used. I have had 2 Celiac Plexus Blocks which neither worked. The last one I had the drs " inadvertantly " hit a disk in my back, which caused more pain than I was in before I had the block! Sorry I am rambling. Teal Indiana > Hi, > Welcome. Come on in and share your story. I am Angie, I am 38. I live in SC. > I have had chronic pancreatitis for 2 years (diagnosed!). I had surgery in > ton to open up the ducts about 5 weeks ago. I have pancreas divisum. That > is what caused my cp. Let us know your story and how we can help. There are > some great people here with alot of info! > Angie in SC > > " The happiest of people don't necessarily have the > best of everything; they just make the best of everything that comes along > their way. " > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Angie: I am glad to hear surgery helped a little bit. You are right in this you take what relief you can get. The only reason they decided to do the pain blocks was b/c the pancreatic surgeon was not sure if surgery would help me b/c of how my pancreas " malfunctions " as well as how it is physically misshaped. The only definite diagnosis they have said was " idiopathic chronic pancreatitis " . During many of my ERCP's they have talked about the " pressures " being very high...now from reading and researching I think that means something else???? Idk I hope I can get into another dr very soon...I would like to at least get on with the thought of getting better, does that make sense? Also, I have went to one session with a massage therapist / energy therapist yesterday. I don't know if it has helped yet, she said it may take more than one session but it may help it may not...she told me to wait and see how I felt over the next couple of days. Now I am rambling again - sorry! Teal Indiana > Teal, > The surgery was not to awful but it is not the easiest thing I have ever had > either! It has helped some but I still will have chronic pain. It is not as > bad as before so I will take what I can get! > Ouch on the disk in your back being hit! That must have been horrible! I am > going to a pain doc for the first time on Aug. 4th and I wanted one who did > not do blocks right away. I want to get to know someone and research how they > have done and their " track record " so to speak before I let them do anything to > me! > It is so frustrating not have a definite diagnosis. I went like that for 2 > and 1//2 years and finally when I went to ton to the docs at MUSC they > saw the divisum and said I needed surgery. They have been wonderful to me! > I hope they can get some answers for you soon! Now speaking of rambling, > look at what I have done! I am a horrible rambler! Sorry! > Take care, > Angie in SC > > " The happiest of people don't necessarily have the > best of everything; they just make the best of everything that comes along > their way. " > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Teal, I have Botox, it works wonderfully! I know Baylor and s Hopkins does botox, but I am not sure who else, It is worth asking. It lasts up to 6 months. I got mine 9 March. So far so good. I get breakthrough pain, but it's not a big deal, I just yoga breath my way through that and I am good to go. -Kathleen assistant2pgd wrote:> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Kathleen - I am sorry but I don't understand what is the Botox for? Teal > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Teal, The massage therapy sounds wonderful, if nothing else than to relax and take your mind off of the pain for a while! I think I could go for that!! Angie in S C " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 It was very relaxing, I am not sure if it has helped my pain, it is something that will take some time but other than the cost I'd love to do it again. Teal > Teal, > The massage therapy sounds wonderful, if nothing else than to relax and take > your mind off of the pain for a while! I think I could go for that!! > Angie in S C > > " The happiest of people don't necessarily have the > best of everything; they just make the best of everything that comes along > their way. " > > > > Quote Link to comment Share on other sites More sharing options...
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