Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Okay, this is the way it is. My son's behavior is about to put me over the edge literally. My husband and I are both DESPERATE with a capital D. My son has NEVER had any stomach, stool, etc problem and only had antibiotics 3 times since he was born, so he shouldn't have much of a yeast problem, but you never know. So, I'm not ruling it out. This in our immediate desperation - our son's current behavior. He's very smart, very vocal but a poor communicator, HYPER, won't do anything you say, does small bizarre behaviors of ASD kids, have to repeat over and over and over and he JUST DOESN'T GET IT. . .and the list goes on. We have been doing CF and low sugar for almost 2 years. We are currently doing Feingold and have found out some of his triggers, but OBVIOUSLY not all of them. I think FG has been part of the process, but is obviously not THE entire answer. And that is what led us here. Will SCD or can SCD help any time soon with that plethera of behaviors i.e. social, tics, bizarre, disconnected, unaware (just too many to name and I'm probably not communicating them well - he gets it from me)? Or is that more of a long term thing? Or am I totally not getting the true purpose? I know it heals the gut and I know or think gut issues effect digestion which effects blood and brain, etc. Is there any hope here? And is there any IMMEDIATE relief anytime soon? Sorry so long winded. My son gets all his issues from his momma. We all are alike in my family tree; just some are more pronounced than others? My son will probably be pretty cooperative with the dietary changes. He wants to feel like a " normal " human being, be able to control himself and have friends. When he eats almost nothing at all, he's the sweetest, kindest, most cooperative kid. I'd really like to see that kid more often. Bonita un-dx'd ADHD, Asperger's arthritis husband, - brillant, normal, but with digestive issues son, 7 y/o = ADHD, OCD, Aspergers, highly salicylate intolerant CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 -hi there Do you mind me asking why you only took out casein and not gluten? The peptides are so similar aren't they that I thought it's no good taking one away without the other. My son was gf/cf for about 6 weeks with no changes to his behaviour at all, we saw progress straight away on scd. he has NEVER had antibiotics in his life and I didn't think he had yeast until I saw huge die off on scd and probiotics, His lab tests show that he has a big yeast problem going on in there and thats why gf/cf didn't help much. I think most of his behaviours weren't caused by gluten or casein but by the toxins produced by the nasties in his digestive system. Since scd he's a different boy unless we get a bit of die off, my son is also very very sensitive to fruit and some veggies so I do scd with lots of the ones he can handle. I'd recommend this diet for all asd kids as it doesn't just keep symptoms at bay it is actually healing and getting to the root of things. Toni mom to J scd 7mths -- In pecanbread , bftodd wrote: > > Okay, this is the way it is. My son's behavior is about to put me > over the edge literally. My husband and I are both DESPERATE with a > capital D. > > My son has NEVER had any stomach, stool, etc problem and only had > antibiotics 3 times since he was born, so he shouldn't have much of > a yeast problem, but you never know. So, I'm not ruling it out. > > This in our immediate desperation - our son's current behavior. > He's very smart, very vocal but a poor communicator, HYPER, won't do > anything you say, does small bizarre behaviors of ASD kids, have to > repeat over and over and over and he JUST DOESN'T GET IT. . .and the > list goes on. > > We have been doing CF and low sugar for almost 2 years. We are > currently doing Feingold and have found out some of his triggers, > but OBVIOUSLY not all of them. I think FG has been part of the > process, but is obviously not THE entire answer. And that is what > led us here. > > Will SCD or can SCD help any time soon with that plethera of > behaviors i.e. social, tics, bizarre, disconnected, unaware (just > too many to name and I'm probably not communicating them well - he > gets it from me)? Or is that more of a long term thing? Or am I > totally not getting the true purpose? I know it heals the gut and I > know or think gut issues effect digestion which effects blood and > brain, etc. Is there any hope here? And is there any IMMEDIATE > relief anytime soon? > > Sorry so long winded. My son gets all his issues from his momma. > We all are alike in my family tree; just some are more pronounced > than others? My son will probably be pretty cooperative with the > dietary changes. He wants to feel like a " normal " human being, be > able to control himself and have friends. When he eats almost > nothing at all, he's the sweetest, kindest, most cooperative kid. > I'd really like to see that kid more often. > > Bonita > un-dx'd ADHD, Asperger's > arthritis > husband, - brillant, > normal, but with digestive issues > son, 7 y/o = ADHD, OCD, > Aspergers, highly salicylate intolerant > CF > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Hi Bonita, My son is 8 years old, ASD & has been super-hyper, spacey & disconnected since age 2. We've tried cf/gf, Body Ecology Diet, Feingold, low salicylate and no diet has even come close to the changes that we've experienced in the past 3 months. My son has digestive issues (only confirmed through tests with his DAN! doctor) but they are not outwardly noticeable. The only way I have of knowing how he is doing is by his behavior. In the past it has seemed like he had no volition or control over his body--he has had to be constantly moving, stimming or engaging with some object in order to stop his movement. He is doing so well that we took away all of the electronic games that he used to calm himself--the repetition was quite soothing for him. Today we took his tv & videos out of his room--and he didn't even object. He is reading, initiating independent activities for himself, interacting with others, following directions (!) and noticing things that he was not able to perceive previously. It is nothing short of a miracle. Please do try the diet--and stick to it religiously. We saw results with 3 days of doing the diet. If you have any more specific questions, please feel free to e-mail me off list. I can certainly relate to your feelings of desperation--have been there myself. Keli mother of Ben, ASD 8 years old SCD 3 months even his salicylate sensitivity has dramatically decreased deperate mom of 7 y/o spectrum kid & questions Okay, this is the way it is. My son's behavior is about to put me over the edge literally. My husband and I are both DESPERATE with a capital D. My son has NEVER had any stomach, stool, etc problem and only had antibiotics 3 times since he was born, so he shouldn't have much of a yeast problem, but you never know. So, I'm not ruling it out. This in our immediate desperation - our son's current behavior. He's very smart, very vocal but a poor communicator, HYPER, won't do anything you say, does small bizarre behaviors of ASD kids, have to repeat over and over and over and he JUST DOESN'T GET IT. . .and the list goes on. We have been doing CF and low sugar for almost 2 years. We are currently doing Feingold and have found out some of his triggers, but OBVIOUSLY not all of them. I think FG has been part of the process, but is obviously not THE entire answer. And that is what led us here. Will SCD or can SCD help any time soon with that plethera of behaviors i.e. social, tics, bizarre, disconnected, unaware (just too many to name and I'm probably not communicating them well - he gets it from me)? Or is that more of a long term thing? Or am I totally not getting the true purpose? I know it heals the gut and I know or think gut issues effect digestion which effects blood and brain, etc. Is there any hope here? And is there any IMMEDIATE relief anytime soon? Sorry so long winded. My son gets all his issues from his momma. We all are alike in my family tree; just some are more pronounced than others? My son will probably be pretty cooperative with the dietary changes. He wants to feel like a " normal " human being, be able to control himself and have friends. When he eats almost nothing at all, he's the sweetest, kindest, most cooperative kid. I'd really like to see that kid more often. Bonita un-dx'd ADHD, Asperger's arthritis husband, - brillant, normal, but with digestive issues son, 7 y/o = ADHD, OCD, Aspergers, highly salicylate intolerant CF ________________________________________________________________________________\ ____ Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q&A. http://answers.yahoo.com/dir/?link=list&sid=396545367 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Thanks for your story. The more input I get, the better I feel. I suspected my son had a problem with milk when he was under 6 months old. I pumped breast milk and fed it in a bottle as he could not for an unknown reason suck well enough to sustain himself. I noticed he would scream and fuss constantly after I fed him when I had consumed milk. It was natural to suspect this as I had been lactose intolerant AND allergic to milk in the 90's. I also was allergic to an enormous variety of foods to the point it was getting dangerous to my health. My husband said he was worried as I was waisting away. (Well, let's just say I don't have that problem any more, lol.) I almost never introduced cow's milk when I stopped pumping and use goat instead, but did anyway. Bringing it down closer to the present. . .His behavior since he was a year old (when I introduced milk) has been horrifying and got worse as he got older. I met moms of lots of kids at different places on the spectrum and found out about GFCF. It wasn't unil school that I experimented with taking out milk to see if it was a problem. Well, I didn't see a huge difference as it was slow improvement and very gradual so I tried him on milk (after a few months of CF and he went NUTS, totally out of control and confirmed our idea. Honestly, the milk made the largest difference of anything we omitted from his diet. Sugar send him up a wall with hyperactivity, but milk makes him angry, buzarre, spacey, out of control, aggitated, etc. I tried omitting the gluten for a short time, but never really saw any differnce when I reintroduced it back. I have been keeping his gluten consumption down to a minimum as it is healthier anyway and substituting GFCF alternatives when possible - but he WOULD NOT eat GFCF bread of any kind. I know plenty of ASD kids that have a problem with one and not the other, either way. Don't ask me why. I guess one the enigmas of the human body. My deceased mother also had terrible undiagnosed food allergies and I know for sure she could not tolerate milk. Gluten has never had a bad history in my family that I know of. I wish my son only had problems with the nasties and we could see such a huge change with him and be able to eat dairy again, but I don't see it. Oh, also he CRAVED milk and milk products. All he ever wanted was cheese of any kind or mac and cheese. I knew that those cravings were usually a dead give away signaling a problem. I am happy for your success. I hope I can also have success. I have tried everything. Everyone I know has their " answer " but the more I searched the more frustrated I got because it didn't improve enough and no one could handle him lots of the time. And I'll admit I have been jealous that I haven't been able to get any sucess or just peace in our situation with our son. It seemed the more I sacrificed for him the more burned out I got and it was never enough. Our best friends has a boy 5 years older than my son and she has never really " tried " any of the diets or any other interventions. The have just medicated him and it has " worked " for his behavior, but he still has the learning disabilities, social issues (he's an outcast) and questions of his future. I don't fault her, we all make our own decisions and that has been her's whether I agree or not. It would have been very tempting to just " medicate " him also just to get him " managable " and not get to the source, but the side effects of the meds were too much for him. Again, sorry its so long. Thanks so much for the comments. Bonita un-dx'd ADHD, Asperger's arthritis husband, - brillant,partially disabled, normal, but with digestive issues son, 7 y/o = ADHD, OCD, Aspergers, highly salicylate intolerant CF > > > > Okay, this is the way it is. My son's behavior is about to put me > > over the edge literally. My husband and I are both DESPERATE with > a > > capital D. > > > > My son has NEVER had any stomach, stool, etc problem and only had > > antibiotics 3 times since he was born, so he shouldn't have much of > > a yeast problem, but you never know. So, I'm not ruling it out. > > > > This in our immediate desperation - our son's current behavior. > > He's very smart, very vocal but a poor communicator, HYPER, won't > do > > anything you say, does small bizarre behaviors of ASD kids, have to > > repeat over and over and over and he JUST DOESN'T GET IT. . .and > the > > list goes on. > > > > We have been doing CF and low sugar for almost 2 years. We are > > currently doing Feingold and have found out some of his triggers, > > but OBVIOUSLY not all of them. I think FG has been part of the > > process, but is obviously not THE entire answer. And that is what > > led us here. > > > > Will SCD or can SCD help any time soon with that plethera of > > behaviors i.e. social, tics, bizarre, disconnected, unaware (just > > too many to name and I'm probably not communicating them well - he > > gets it from me)? Or is that more of a long term thing? Or am I > > totally not getting the true purpose? I know it heals the gut and > I > > know or think gut issues effect digestion which effects blood and > > brain, etc. Is there any hope here? And is there any IMMEDIATE > > relief anytime soon? > > > > Sorry so long winded. My son gets all his issues from his momma. > > We all are alike in my family tree; just some are more pronounced > > than others? My son will probably be pretty cooperative with the > > dietary changes. He wants to feel like a " normal " human being, be > > able to control himself and have friends. When he eats almost > > nothing at all, he's the sweetest, kindest, most cooperative kid. > > I'd really like to see that kid more often. > > > > Bonita > > un-dx'd ADHD, Asperger's > > arthritis > > husband, - brillant, > > normal, but with digestive issues > > son, 7 y/o = ADHD, OCD, > > Aspergers, highly salicylate intolerant > > CF > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Hi there. I'm no expert in SCD as I just started it with my 3 year old ASD on Saturday. However, I came across a story I think on Elain Gottschall's website of a story of a ASD girl who did not have any noticeable digestive problems but benefited greatly from the SCD diet. This impressed me. It seems to me from what I'm hearing that all behaviors tend to get agitated before they get better after going on the diet. WE think we may be noticing it already with our son. However, we know that we have to bite the bullet and just do it. Quite honestly, this has been one of the toughest weeks of my life. My three year old, totally non-verbal child who never asks for anything to eat scrounging around the kitchen looking for bread products. Talk about a yeast problem. I think so. I am confident that he will get better. Also, just as a thought, I know of someone who had an ASD son with no digestive problems (although he had gas-burping) but benefited significantly from homeopathy. Let me know if you need any info on that as we are also doing that with our son. Hope this helps. P in FL --- bftodd <no_reply > wrote: > Okay, this is the way it is. My son's behavior is > about to put me > over the edge literally. My husband and I are both > DESPERATE with a > capital D. > > My son has NEVER had any stomach, stool, etc problem > and only had > antibiotics 3 times since he was born, so he > shouldn't have much of > a yeast problem, but you never know. So, I'm not > ruling it out. > > This in our immediate desperation - our son's > current behavior. > He's very smart, very vocal but a poor communicator, > HYPER, won't do > anything you say, does small bizarre behaviors of > ASD kids, have to > repeat over and over and over and he JUST DOESN'T > GET IT. . .and the > list goes on. > > We have been doing CF and low sugar for almost 2 > years. We are > currently doing Feingold and have found out some of > his triggers, > but OBVIOUSLY not all of them. I think FG has been > part of the > process, but is obviously not THE entire answer. > And that is what > led us here. > > Will SCD or can SCD help any time soon with that > plethera of > behaviors i.e. social, tics, bizarre, disconnected, > unaware (just > too many to name and I'm probably not communicating > them well - he > gets it from me)? Or is that more of a long term > thing? Or am I > totally not getting the true purpose? I know it > heals the gut and I > know or think gut issues effect digestion which > effects blood and > brain, etc. Is there any hope here? And is there > any IMMEDIATE > relief anytime soon? > > Sorry so long winded. My son gets all his issues > from his momma. > We all are alike in my family tree; just some are > more pronounced > than others? My son will probably be pretty > cooperative with the > dietary changes. He wants to feel like a " normal " > human being, be > able to control himself and have friends. When he > eats almost > nothing at all, he's the sweetest, kindest, most > cooperative kid. > I'd really like to see that kid more often. > > Bonita > un-dx'd ADHD, Asperger's > arthritis > husband, - brillant, > normal, but with digestive issues > son, 7 y/o = ADHD, OCD, > Aspergers, highly salicylate intolerant > CF > > > ________________________________________________________________________________\ ____ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. http://sims.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Keli, Thanks for the email. That's awesome about your son! I will probably be emailing you off list. Bonita > > Hi Bonita, > My son is 8 years old, ASD & has been super-hyper, spacey & disconnected since age 2. We've tried cf/gf, Body Ecology Diet, Feingold, low salicylate and no diet has even come close to the changes that we've experienced in the past 3 months. My son has digestive issues (only confirmed through tests with his DAN! doctor) but they are not outwardly noticeable. The only way I have of knowing how he is doing is by his behavior. In the past it has seemed like he had no volition or control over his body--he has had to be constantly moving, stimming or engaging with some object in order to stop his movement. He is doing so well that we took away all of the electronic games that he used to calm himself--the repetition was quite soothing for him. Today we took his tv & videos out of his room--and he didn't even object. He is reading, initiating independent activities for himself, interacting with others, following directions (!) and noticing things that he was not able to > perceive previously. It is nothing short of a miracle. Please do try the diet--and stick to it religiously. We saw results with 3 days of doing the diet. If you have any more specific questions, please feel free to e-mail me off list. I can certainly relate to your feelings of desperation--have been there myself. > > Keli > mother of Ben, ASD 8 years old > SCD 3 months > even his salicylate sensitivity has dramatically decreased > > > deperate mom of 7 y/o spectrum kid & questions > > Okay, this is the way it is. My son's behavior is about to put me > over the edge literally. My husband and I are both DESPERATE with a > capital D. > > My son has NEVER had any stomach, stool, etc problem and only had > antibiotics 3 times since he was born, so he shouldn't have much of > a yeast problem, but you never know. So, I'm not ruling it out. > > This in our immediate desperation - our son's current behavior. > He's very smart, very vocal but a poor communicator, HYPER, won't do > anything you say, does small bizarre behaviors of ASD kids, have to > repeat over and over and over and he JUST DOESN'T GET IT. . .and the > list goes on. > > We have been doing CF and low sugar for almost 2 years. We are > currently doing Feingold and have found out some of his triggers, > but OBVIOUSLY not all of them. I think FG has been part of the > process, but is obviously not THE entire answer. And that is what > led us here. > > Will SCD or can SCD help any time soon with that plethera of > behaviors i.e. social, tics, bizarre, disconnected, unaware (just > too many to name and I'm probably not communicating them well - he > gets it from me)? Or is that more of a long term thing? Or am I > totally not getting the true purpose? I know it heals the gut and I > know or think gut issues effect digestion which effects blood and > brain, etc. Is there any hope here? And is there any IMMEDIATE > relief anytime soon? > > Sorry so long winded. My son gets all his issues from his momma. > We all are alike in my family tree; just some are more pronounced > than others? My son will probably be pretty cooperative with the > dietary changes. He wants to feel like a " normal " human being, be > able to control himself and have friends. When he eats almost > nothing at all, he's the sweetest, kindest, most cooperative kid. > I'd really like to see that kid more often. > > Bonita > un-dx'd ADHD, Asperger's > arthritis > husband, - brillant, > normal, but with digestive issues > son, 7 y/o = ADHD, OCD, > Aspergers, highly salicylate intolerant > CF > > > > > > > _____________________________________________________________________ _______________ > Food fight? Enjoy some healthy debate > in the Yahoo! Answers Food & Drink Q&A. > http://answers.yahoo.com/dir/?link=list&sid=396545367 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 My son never exhibited any stomach or stool problems, or so I thought. I didn't realize that his tummy was bloated, I just thought it was a rounded toddler tummy. I didn't know his semi-loose stools were abnormal. He never had " diahhrea " as I know it. He never had antibiotics and didn't have a yeast problem on the testing, but he did have C. Diff (a bacteria). Sometimes you don't really see an outward manifestation of digestive issues. When we started SCD, he developed constipation, which he had NEVER had in his life. That resolved when we added some Magnesium Citrate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 , When you homeopathy, what does that entail? The more " alternative " types of medical treatment are usually not available in my area as we are the forgotten part of FL Bonita > > > Okay, this is the way it is. My son's behavior is > > about to put me > > over the edge literally. My husband and I are both > > DESPERATE with a > > capital D. > > > > My son has NEVER had any stomach, stool, etc problem > > and only had > > antibiotics 3 times since he was born, so he > > shouldn't have much of > > a yeast problem, but you never know. So, I'm not > > ruling it out. > > > > This in our immediate desperation - our son's > > current behavior. > > He's very smart, very vocal but a poor communicator, > > HYPER, won't do > > anything you say, does small bizarre behaviors of > > ASD kids, have to > > repeat over and over and over and he JUST DOESN'T > > GET IT. . .and the > > list goes on. > > > > We have been doing CF and low sugar for almost 2 > > years. We are > > currently doing Feingold and have found out some of > > his triggers, > > but OBVIOUSLY not all of them. I think FG has been > > part of the > > process, but is obviously not THE entire answer. > > And that is what > > led us here. > > > > Will SCD or can SCD help any time soon with that > > plethera of > > behaviors i.e. social, tics, bizarre, disconnected, > > unaware (just > > too many to name and I'm probably not communicating > > them well - he > > gets it from me)? Or is that more of a long term > > thing? Or am I > > totally not getting the true purpose? I know it > > heals the gut and I > > know or think gut issues effect digestion which > > effects blood and > > brain, etc. Is there any hope here? And is there > > any IMMEDIATE > > relief anytime soon? > > > > Sorry so long winded. My son gets all his issues > > from his momma. > > We all are alike in my family tree; just some are > > more pronounced > > than others? My son will probably be pretty > > cooperative with the > > dietary changes. He wants to feel like a " normal " > > human being, be > > able to control himself and have friends. When he > > eats almost > > nothing at all, he's the sweetest, kindest, most > > cooperative kid. > > I'd really like to see that kid more often. > > > > Bonita > > un-dx'd ADHD, Asperger's > > arthritis > > husband, - brillant, > > normal, but with digestive issues > > son, 7 y/o = ADHD, OCD, > > Aspergers, highly salicylate intolerant > > CF > > > > > > > > > > > _____________________________________________________________________ _______________ > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > http://sims.yahoo.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Hi Bonita, I understand about the forgotten parts of Florida. I'm feeling like this is a forgotten state in general. If my son doesn't have a full recovery in a couple years, we will be leaving for better services, probably up north. Anyway, that doesn't answer your question. In searching for the most non-invasive treatments, we are sticking with SCD and have researched homeopathy. We feel these are the best things right now. We have tried DAN! but were disillusioned with exorbitant prices, supplements that seemed to irritate his system and the trauma of IV chelation. I found a website www.recoveredfromautism.com that lead me to www.impossiblecure.com and discovered Amy Lansky's experience with her son and her work. After consulting the list of referrals, the one that made the most sense for us to see was Sally in Buffalo, NY. My husband is from Buffalo and we had family to stay with as we drove all the way their for our first consultation. However, she did not require that. She said that we could send a video/DVD of our child and that would be sufficient. Apparently, the other homeopaths on Amy's list will also accomodate you if you live far away. Anyway, we have given him his first remedy about three weeks ago and can't see much of a change. However, most homeopaths will be upfront with you and say they are not always right the first try. It may take several remedies before they find the right one. I have been in touch with Amy herself and she is wonderful and easy to get ahold of (email off webpage). The treatment itself is so non-invasive it's silly, remedies are tiny little capsules of diluted elements that you put on your child's tongue. My son actually likes it. Homeopathy treatment costs are of course not covered by insurance but the costs are so minimal compared to the thousands we dished out to the DAN! doctor that just made my son worse. I would read the testimonials on Amy's website also. Those impressed me. Hope this helps. P what part of Florida do you live in? bftodd wrote: , When you homeopathy, what does that entail? The more " alternative " types of medical treatment are usually not available in my area as we are the forgotten part of FL Bonita > > > Okay, this is the way it is. My son's behavior is > > about to put me > > over the edge literally. My husband and I are both > > DESPERATE with a > > capital D. > > > > My son has NEVER had any stomach, stool, etc problem > > and only had > > antibiotics 3 times since he was born, so he > > shouldn't have much of > > a yeast problem, but you never know. So, I'm not > > ruling it out. > > > > This in our immediate desperation - our son's > > current behavior. > > He's very smart, very vocal but a poor communicator, > > HYPER, won't do > > anything you say, does small bizarre behaviors of > > ASD kids, have to > > repeat over and over and over and he JUST DOESN'T > > GET IT. . .and the > > list goes on. > > > > We have been doing CF and low sugar for almost 2 > > years. We are > > currently doing Feingold and have found out some of > > his triggers, > > but OBVIOUSLY not all of them. I think FG has been > > part of the > > process, but is obviously not THE entire answer. > > And that is what > > led us here. > > > > Will SCD or can SCD help any time soon with that > > plethera of > > behaviors i.e. social, tics, bizarre, disconnected, > > unaware (just > > too many to name and I'm probably not communicating > > them well - he > > gets it from me)? Or is that more of a long term > > thing? Or am I > > totally not getting the true purpose? I know it > > heals the gut and I > > know or think gut issues effect digestion which > > effects blood and > > brain, etc. Is there any hope here? And is there > > any IMMEDIATE > > relief anytime soon? > > > > Sorry so long winded. My son gets all his issues > > from his momma. > > We all are alike in my family tree; just some are > > more pronounced > > than others? My son will probably be pretty > > cooperative with the > > dietary changes. He wants to feel like a " normal " > > human being, be > > able to control himself and have friends. When he > > eats almost > > nothing at all, he's the sweetest, kindest, most > > cooperative kid. > > I'd really like to see that kid more often. > > > > Bonita > > un-dx'd ADHD, Asperger's > > arthritis > > husband, - brillant, > > normal, but with digestive issues > > son, 7 y/o = ADHD, OCD, > > Aspergers, highly salicylate intolerant > > CF > > > > > > > > > > > __________________________________________________________ _______________ > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > http://sims.yahoo.com/ > --------------------------------- Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 We live in NW FL just 30 minutes or less from the AL border. We here affectionately call it LA (short for Lower Alabama) as we are more like AL than FL. My understanding was that this area was part of AL at one time. There's no DAN doc within hundreds of miles of here, so I couldn't waste my time and money there if I wanted to. There's also no Trader Joe's, Whole Foods, etc or ANY other chain healthfood store within hundreds of miles of here either. We do at least a descent coop health food store. I still order quite a few things online or make it myself. I make most everything myself. And with the addition of SCD, he won't be having potato chips, so the only things I didn't make that he eats will be gone. I've recently, since Feingold, started my own herb garden with a couple of vegetables an a fruit. I've also planted 2 pear trees and a lemon tree. That is so much fun. I've wondered about homeopath, which I don't think is available here either. I know you will find people who have had problems with all different kinds of interventions. I have heard a few problems with DAN doc's recently. I am definitely for the least expensive, most permanent and natural methods. Feingold was horribly expensive for me since I had to totally change everything I cooked and ho organic when possible. I hadn't done it before because we just didn't have the money. Does homeopath fit in well with SCD? Do you feel like it is experimentation or effective medicine? Thanks for the info. Bonita > > > > > Okay, this is the way it is. My son's behavior is > > > about to put me > > > over the edge literally. My husband and I are both > > > DESPERATE with a > > > capital D. > > > > > > My son has NEVER had any stomach, stool, etc problem > > > and only had > > > antibiotics 3 times since he was born, so he > > > shouldn't have much of > > > a yeast problem, but you never know. So, I'm not > > > ruling it out. > > > > > > This in our immediate desperation - our son's > > > current behavior. > > > He's very smart, very vocal but a poor communicator, > > > HYPER, won't do > > > anything you say, does small bizarre behaviors of > > > ASD kids, have to > > > repeat over and over and over and he JUST DOESN'T > > > GET IT. . .and the > > > list goes on. > > > > > > We have been doing CF and low sugar for almost 2 > > > years. We are > > > currently doing Feingold and have found out some of > > > his triggers, > > > but OBVIOUSLY not all of them. I think FG has been > > > part of the > > > process, but is obviously not THE entire answer. > > > And that is what > > > led us here. > > > > > > Will SCD or can SCD help any time soon with that > > > plethera of > > > behaviors i.e. social, tics, bizarre, disconnected, > > > unaware (just > > > too many to name and I'm probably not communicating > > > them well - he > > > gets it from me)? Or is that more of a long term > > > thing? Or am I > > > totally not getting the true purpose? I know it > > > heals the gut and I > > > know or think gut issues effect digestion which > > > effects blood and > > > brain, etc. Is there any hope here? And is there > > > any IMMEDIATE > > > relief anytime soon? > > > > > > Sorry so long winded. My son gets all his issues > > > from his momma. > > > We all are alike in my family tree; just some are > > > more pronounced > > > than others? My son will probably be pretty > > > cooperative with the > > > dietary changes. He wants to feel like a " normal " > > > human being, be > > > able to control himself and have friends. When he > > > eats almost > > > nothing at all, he's the sweetest, kindest, most > > > cooperative kid. > > > I'd really like to see that kid more often. > > > > > > Bonita > > > un-dx'd ADHD, Asperger's > > > arthritis > > > husband, - brillant, > > > normal, but with digestive issues > > > son, 7 y/o = ADHD, OCD, > > > Aspergers, highly salicylate intolerant > > > CF > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > _______________ > > Moody friends. Drama queens. Your life? Nope! - their life, your > story. Play Sims Stories at Yahoo! Games. > > http://sims.yahoo.com/ > > > > > > > > > --------------------------------- > Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 I'll let answer this, but wanted to warn that homeopathic pellets are made out of sugar (usually dextrose or lactose). - bftodd wrote: , When you homeopathy, what does that entail? The more " alternative " types of medical treatment are usually not available in my area as we are the forgotten part of FL Bonita > > > Okay, this is the way it is. My son's behavior is > > about to put me > > over the edge literally. My husband and I are both > > DESPERATE with a > > capital D. > > > > My son has NEVER had any stomach, stool, etc problem > > and only had > > antibiotics 3 times since he was born, so he > > shouldn't have much of > > a yeast problem, but you never know. So, I'm not > > ruling it out. > > > > This in our immediate desperation - our son's > > current behavior. > > He's very smart, very vocal but a poor communicator, > > HYPER, won't do > > anything you say, does small bizarre behaviors of > > ASD kids, have to > > repeat over and over and over and he JUST DOESN'T > > GET IT. . .and the > > list goes on. > > > > We have been doing CF and low sugar for almost 2 > > years. We are > > currently doing Feingold and have found out some of > > his triggers, > > but OBVIOUSLY not all of them. I think FG has been > > part of the > > process, but is obviously not THE entire answer. > > And that is what > > led us here. > > > > Will SCD or can SCD help any time soon with that > > plethera of > > behaviors i.e. social, tics, bizarre, disconnected, > > unaware (just > > too many to name and I'm probably not communicating > > them well - he > > gets it from me)? Or is that more of a long term > > thing? Or am I > > totally not getting the true purpose? I know it > > heals the gut and I > > know or think gut issues effect digestion which > > effects blood and > > brain, etc. Is there any hope here? And is there > > any IMMEDIATE > > relief anytime soon? > > > > Sorry so long winded. My son gets all his issues > > from his momma. > > We all are alike in my family tree; just some are > > more pronounced > > than others? My son will probably be pretty > > cooperative with the > > dietary changes. He wants to feel like a " normal " > > human being, be > > able to control himself and have friends. When he > > eats almost > > nothing at all, he's the sweetest, kindest, most > > cooperative kid. > > I'd really like to see that kid more often. > > > > Bonita > > un-dx'd ADHD, Asperger's > > arthritis > > husband, - brillant, > > normal, but with digestive issues > > son, 7 y/o = ADHD, OCD, > > Aspergers, highly salicylate intolerant > > CF > > > > > > > > > > > __________________________________________________________ _______________ > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > http://sims.yahoo.com/ > --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 They use drops - well, those that I know of any way. Never heard of pellets - oh those are the little round things at the health food store - that is not true / pure Classical Homeopathy that a Classical Homeopathy Practitioner would use. W. I'll let answer this, but wanted to warn that homeopathic pellets are made out of sugar (usually dextrose or lactose). - . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Homeopathic preparations come in drops or pellets. The drops usually have a bit of alcohol, the pellets are made of sugar. However, consult with your homeopath -- you should be able to dissolve the pellets or drops in water, give it a brisk stir about 100 times, and use the homeopathic water. You do not necessarily have to ingest the pellets or drops directly. Personally I have found homeopathy to be very beneficial if supervised by a good homeopath. Ed Wendell wrote: They use drops - well, those that I know of any way. Never heard of pellets - oh those are the little round things at the health food store - that is not true / pure Classical Homeopathy that a Classical Homeopathy Practitioner would use. W. I'll let answer this, but wanted to warn that homeopathic pellets are made out of sugar (usually dextrose or lactose). - .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Classical homeopaths use them too. There was some concern (brought up by Dr. Klinghardt) that the ASD kids have a lactose sensitivity that can cause the child to inadvertently develop an allergy towards the homeopathic substance, making it ineffective. On another note, there are very few Max Lanskys out there. I attended a lecture by a Dean at the only homeopathic school in the USA that is in the process of coverting to a fully accredited MD-Medical School (classical homeopathy). He had just come back from England where he had done CME work on autism and ADHD at the world's largest homeopathic institution. The findings he shared were that for ADHD, homeopathy as a primary intervention with nutritional/supplemental support often produced recovered ADHD kids, while with autism this was not the case. They found they produced the best results in ASD kids when they used nutritional/supplemental intervention as the primary intervention and used homeopathy to reduce some of the symptoms -- even though they were classical homeopaths. So although there are cases of kids who were cured by homeopathy, the world's largest homeopathic institution was disappointed in their attempts to cure ASD kids with a classical approach and were not recommending it as a PRIMARY intervention. I am sharing this info as it is a good thing to keep in mind when you are making your " autism budget. " - Ed Wendell wrote: They use drops - well, those that I know of any way. Never heard of pellets - oh those are the little round things at the health food store - that is not true / pure Classical Homeopathy that a Classical Homeopathy Practitioner would use. W. I'll let answer this, but wanted to warn that homeopathic pellets are made out of sugar (usually dextrose or lactose). - .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 The classical homeopath we saw did a 3 hour interview with each person and family members; then research for about a week or two and then we had a specific remedy made for each person, you had to thump or bang the bottle how ever many times he told you to and then dilute into various cups to get the prescribed dosage. Then after a while (a month or so) you'd do another short interview and he'd research more and then a different remedy would be given. There were no pre-made bottles of drops nor pellets - remedies were made specifically for each person - one remedy at a time after extensive research. He is the one that said he is what is called a " Classical " Homeopathy practitioner. That the ones who use premade drops/pellets are homeopaths but not classified as " Classical Homeopaths " . There are very few Classical Homeopaths - none in Kansas City - we had to drive to Denver - the closest to us. - who will say no more as this is off topic Classical homeopaths use them too. . Quote Link to comment Share on other sites More sharing options...
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