Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi all, Special thanks to Heidi, Karolina, Angie, , and others who prayed for my 7/13 discussion with surgeon. My wife and I came to conclusion that since scan shows my large pseudocyst has continued to enlarge, that i should proceed to surgery. Still a hard decision because surgeon says its entirely up to me, and I should base it on my symptoms which have been minimal since about Feb. Two weeks ago I began to suffer pain and swelling of abdomen again, and 30 minutes before my appointment this became intense. Much better today so I can't help but wonder if the enlargement shown by CT scan last week was only temporary . Perhaps the pain attack at the clinic was due to the stress of anticipating the meeting, but I tend to think it may have been a message from God telling me I better take action now while I'm in pretty good health otherwise. At 65 I'm sure some other problems may lie in wait for me. We did have a fairly good discussion of what to expect. He wil attempt to create a drain from pseudocyst into stomach if the cyst has close enough proximity. It sounds more likely that he will section my intestine (maybe the duodenum?), and connect the lower end to the cyst, and the upper end to an opening in side of intestine. He claims either method would be a " permanent " drain, that is, the opening to digestive tract would remain open indefinitely. He expressed unfamiliarity with the approach I've read of connecting the cyst to the side of the duodenum without severing the intestine, but I guess its best he use an approach he's familiar with. If he finds either method not feasible, he said he'd create an external drain which I'd have to deal with for at least a year, and then have followup surgery to remove. In any event, it all sounds pretty invasive (surgeon called it " major- major " surgery) and risky so I " m certainly not looking forward to it, including a week or more in hospital on IV feeding plus antibiotics and one of those yucky nasal tubes to pump out digestive juices until heals. ( Took them half an hour to replace one in 2004 when I had my acute attack--I just keep gagging.) Surgery is tentatively scheduled for Aug 2 if there is an OR opening, and if the UC nurses don't go on strike as now threatened. If it can't be Aug 2, Sept 2 is next date. Appreciate any advice and your prayers. Kurt (CA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Kurt I understand entirely how stressful it can be seeing the surgeon and making that decision. I have been in your shoes all too many times. However, I have never had pseudocyst to deal with. You have made the right decision. Please let me know if there is anyting I can help you with and know that you and your family are in my prayers. PS I cant believe nurses would strike. I am a nurse and would do anything to go back to work. Hopefully the insitution where the nurses are stiking will come to there senses and realize that they cant live without them. Warmly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Dear Kurt, My thoughts and prayers are coming your way. I hope your surgery goes well and that you are up and about quickly. I know what you mean about the nasal drain. When I had my pancreas surgery, I was given the choice of having the drain out my nose or through my abdominal wall. I chose the abdomin since previous nasal tubes were hard to get in me. I can't stand anything in my nose, even oxygen drives me nuts. When the tube was pulled, the hole did have to heal up. It healed fine. Just a thought, not sure if this could be an option for you. Talk to you soon. Love, w Wisconsin kurtk_13 wrote: Hi all, Special thanks to Heidi, Karolina, Angie, , and others who prayed for my 7/13 discussion with surgeon. My wife and I came to conclusion that since scan shows my large pseudocyst has continued to enlarge, that i should proceed to surgery. Still a hard decision because surgeon says its entirely up to me, and I should base it on my symptoms which have been minimal since about Feb. Two weeks ago I began to suffer pain and swelling of abdomen again, and 30 minutes before my appointment this became intense. Much better today so I can't help but wonder if the enlargement shown by CT scan last week was only temporary . Perhaps the pain attack at the clinic was due to the stress of anticipating the meeting, but I tend to think it may have been a message from God telling me I better take action now while I'm in pretty good health otherwise. At 65 I'm sure some other problems may lie in wait for me. We did have a fairly good discussion of what to expect. He wil attempt to create a drain from pseudocyst into stomach if the cyst has close enough proximity. It sounds more likely that he will section my intestine (maybe the duodenum?), and connect the lower end to the cyst, and the upper end to an opening in side of intestine. He claims either method would be a " permanent " drain, that is, the opening to digestive tract would remain open indefinitely. He expressed unfamiliarity with the approach I've read of connecting the cyst to the side of the duodenum without severing the intestine, but I guess its best he use an approach he's familiar with. If he finds either method not feasible, he said he'd create an external drain which I'd have to deal with for at least a year, and then have followup surgery to remove. In any event, it all sounds pretty invasive (surgeon called it " major- major " surgery) and risky so I " m certainly not looking forward to it, including a week or more in hospital on IV feeding plus antibiotics and one of those yucky nasal tubes to pump out digestive juices until heals. ( Took them half an hour to replace one in 2004 when I had my acute attack--I just keep gagging.) Surgery is tentatively scheduled for Aug 2 if there is an OR opening, and if the UC nurses don't go on strike as now threatened. If it can't be Aug 2, Sept 2 is next date. Appreciate any advice and your prayers. Kurt (CA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Kurt, I am glad that you seem to be guided in the right way to get some help for your cyst. It is painful and it seems that this surgery will help. It sounds like your doc knows what he is doing. I hope Aug. 2nd will be your date and that you won't have much pain until then! Cysts are nothing to play around with! When I had my gastric bypass surgery I had an ng tube for a week and it really was not that bad. The only thing that really bothered me was not being able to drink water. I wanted a glass of water so bad! I didn't have problems with it going in because I was asleep when they did it and when they took it out it came out easily. My thoughts and prayers go with you! Angie in S C " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Kurt, you will definitely have my prayers. Where are you having the surgery? Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 At UC in Sacramento by Dr. Hung Ho. > Kurt, > you will definitely have my prayers. Where are you having the surgery? > Kimber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2005 Report Share Posted July 17, 2005 Kurt, let us know when the sugery is and I'll at least call. If I can find a way to get there without a car, I'll try and drop by and visit, but I'll at least call. You'll have to give me your last name so that I can ask for your room though. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
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