Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 We are on day 5, new to SCD, and I am still struggling with a food striker. It is at the point I really do not know what to do. He still refuses all drinks and foods offered and is only taking water. His vomiting has stopped for the most part. (The uncontrolled vomiting has stopped since around noon yesterday, but he will still reflexively gag and occasionally go on to vomit when food is shown or brought near to him) Although he is still very weak and laying around and sleeping alot, I feel at this point it is mostly just from lack of food and that the initial " die-off " has gotten better not only because of the change in the vomiting pattern but also just his general appearance and demeanor has improved ( although he still looks sickly from lack of food, he does not look " deathly " like before) Anyway- he is very stubborn and quite verbal about wanting his " junk food " and his " minute maid juice " and I am very afraid he can hold out longer than I can. Seriously- how long can a child go without anything but water before there are serious ill effects?? The questions in my mind are if I have to compromise on some level with him, how do I do this and what is the best level to compromise on? 1) I could give in on his previous juice but stay firm on the food decisions and offerings- ( he previously drank minute maid fruit punch and juicy juice fruit punch) By doing so I might be able to increase the chance of food acceptance by using behavioral techniques with the juice as a reinforcer ? 2) I could stay with SCD foods, but go with higher level foods that he might be more likely to try, in other words transition more to the " nut flour diet " and then maybe try to return to the SCD process later once he is comfortable with more of the foods 3) the third complicating factor is I have another son, 15 mos older than he is, who is doing great and going with the changes. I am afraid any compromise I make on the younger one will affect the attitude of the older one. What should I do? Wait longer - I seriously believe, behaviorally speaking, the " EO " or motivation for food is as high as gets at this point and waiting longer is not going to make him any hungrier than he is now, but will only make him sicker. If I compromise, how can I do it without giving up on the whole thing altogether? I refuse to go back to his routine of " SAD " starchy foods. I am very worried about my son- Please I welcome any and all advice and opinions on where to go from here- Thanks- Sheri mom of 11yrPDD-NOS & 9yroldASD SCD: 5 days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Hi Sheri. I'm not an expert at all. I've had my son on the diet for one month so this is just my very limited experience. When I started my son on the diet I took away his favorites and he did vomit as well. When I read it was rare on the website it scared me too. The vomiting lasted for my son a few days. He also looked awful. He laid around. Looked very pale. I was very concerned. My son did start to eat the chicken pancakes on the third day. By the sixth day he started to feel somewhat better, but I couldn't take it any longer so what I did was what you have as option number 2. My son loved smoothies so I made a smoothie for him with fruits that were allowed but at the later stages. I used the OJ that was allowed and mixed it with a very ripe banana and two frozen strawberries and put in SCD vitamins. He started feeling better immediately. I also made nut flour muffins which he loved. He's doing great right now and I may go back to the intro diet soon, but I went to the advanced foods in the diet because my thought was to get him used to eating all SCD foods and then tackle the intro diet later. I feel that my son has made great progress on this diet. I'm totally sold on the diet. I know doing it slowly is the key to healing the gut, but this is what works for me right now. Good luck. I hope your son starts to feel better soon. Christy > > We are on day 5, new to SCD, and I am still struggling with a food > striker. It is at the point I really do not know what to do. He > still refuses all drinks and foods offered and is only taking water. > His vomiting has stopped for the most part. (The uncontrolled > vomiting has stopped since around noon yesterday, but he will still > reflexively gag and occasionally go on to vomit when food is shown or > brought near to him) Although he is still very weak and laying around > and sleeping alot, I feel at this point it is mostly just from lack > of food and that the initial " die-off " has gotten better not only > because of the change in the vomiting pattern but also just his > general appearance and demeanor has improved ( although he still > looks sickly from lack of food, he does not look " deathly " like > before) > > Anyway- he is very stubborn and quite verbal about wanting his " junk > food " and his " minute maid juice " and I am very afraid he can hold > out longer than I can. Seriously- how long can a child go without > anything but water before there are serious ill effects?? > > The questions in my mind are if I have to compromise on some level > with him, how do I do this and what is the best level to compromise > on? > > 1) I could give in on his previous juice but stay firm on the food > decisions and offerings- ( he previously drank minute maid fruit > punch and juicy juice fruit punch) By doing so I might be able to > increase the chance of food acceptance by using behavioral techniques > with the juice as a reinforcer ? > > 2) I could stay with SCD foods, but go with higher level foods that > he might be more likely to try, in other words transition more to > the " nut flour diet " and then maybe try to return to the SCD process > later once he is comfortable with more of the foods > > 3) the third complicating factor is I have another son, 15 mos older > than he is, who is doing great and going with the changes. I am > afraid any compromise I make on the younger one will affect the > attitude of the older one. > > What should I do? Wait longer - I seriously believe, behaviorally > speaking, the " EO " or motivation for food is as high as gets at this > point and waiting longer is not going to make him any hungrier than > he is now, but will only make him sicker. > If I compromise, how can I do it without giving up on the whole thing > altogether? I refuse to go back to his routine of " SAD " starchy > foods. > > I am very worried about my son- Please I welcome any and all advice > and opinions on where to go from here- > Thanks- > Sheri > mom of 11yrPDD-NOS & 9yroldASD > SCD: 5 days > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 I already have a good, legal almond butter, so that is a good idea and I will give it a try. My mom is a retired home economics teacher and great cook and she is here as we speak trying to help me pull something together with the juice.... He's been sleeping all day and it is scary!! Praise the Lord my other son is doing well with this or I probably would have given up by now.. Please everyone pray my little food striker will come around!! Thanks- Sheri PS: regarding my other son, I am assuming it is still best to try to avoid giving him the other higher level foods right now even though we are having to try them with the younger one? Is that right?? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 It's always darkest before the dawn. You've gotten this far; don't give in now. Decisions re:food striker, NEW please HELP!! We are on day 5, new to SCD, and I am still struggling with a food striker. It is at the point I really do not know what to do. He still refuses all drinks and foods offered and is only taking water. His vomiting has stopped for the most part. (The uncontrolled vomiting has stopped since around noon yesterday, but he will still reflexively gag and occasionally go on to vomit when food is shown or brought near to him) Although he is still very weak and laying around and sleeping alot, I feel at this point it is mostly just from lack of food and that the initial " die-off " has gotten better not only because of the change in the vomiting pattern but also just his general appearance and demeanor has improved ( although he still looks sickly from lack of food, he does not look " deathly " like before) Anyway- he is very stubborn and quite verbal about wanting his " junk food " and his " minute maid juice " and I am very afraid he can hold out longer than I can. Seriously- how long can a child go without anything but water before there are serious ill effects?? The questions in my mind are if I have to compromise on some level with him, how do I do this and what is the best level to compromise on? 1) I could give in on his previous juice but stay firm on the food decisions and offerings- ( he previously drank minute maid fruit punch and juicy juice fruit punch) By doing so I might be able to increase the chance of food acceptance by using behavioral techniques with the juice as a reinforcer ? 2) I could stay with SCD foods, but go with higher level foods that he might be more likely to try, in other words transition more to the " nut flour diet " and then maybe try to return to the SCD process later once he is comfortable with more of the foods 3) the third complicating factor is I have another son, 15 mos older than he is, who is doing great and going with the changes. I am afraid any compromise I make on the younger one will affect the attitude of the older one. What should I do? Wait longer - I seriously believe, behaviorally speaking, the " EO " or motivation for food is as high as gets at this point and waiting longer is not going to make him any hungrier than he is now, but will only make him sicker. If I compromise, how can I do it without giving up on the whole thing altogether? I refuse to go back to his routine of " SAD " starchy foods. I am very worried about my son- Please I welcome any and all advice and opinions on where to go from here- Thanks- Sheri mom of 11yrPDD-NOS & 9yroldASD SCD: 5 days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Personally I would go to higher level SCD legal foods and juices rather than re-introduce illegal juices, which would undo all the work you've done so far. I would think you could do a legal facsimile of punch by using Welch's grape juice, Knudsen's Just Cherries or even Cranberry (highly diluted), legal apple juice, and saccharin for sweetener. You could get it the right color and taste by experimenting with the proportions. Saccharin tablets taste great in juice. Two will make it really sweet. With frozen strawberries and honey and a bit of juice, you can make " strawberry sorbet " in the blender. With 24-hour yogurt, you can make strawberry ice cream. The possibilities are endless if you decide to use more advanced legal foods to get him through this, and then come back to intro when he's ready. Mother of Virya, age 16, autism and LKS ABarberi wrote: It's always darkest before the dawn. You've gotten this far; don't give in now. Decisions re:food striker, NEW please HELP!! We are on day 5, new to SCD, and I am still struggling with a food striker. It is at the point I really do not know what to do. He still refuses all drinks and foods offered and is only taking water. His vomiting has stopped for the most part. (The uncontrolled vomiting has stopped since around noon yesterday, but he will still reflexively gag and occasionally go on to vomit when food is shown or brought near to him) Although he is still very weak and laying around and sleeping alot, I feel at this point it is mostly just from lack of food and that the initial " die-off " has gotten better not only because of the change in the vomiting pattern but also just his general appearance and demeanor has improved ( although he still looks sickly from lack of food, he does not look " deathly " like before) Anyway- he is very stubborn and quite verbal about wanting his " junk food " and his " minute maid juice " and I am very afraid he can hold out longer than I can. Seriously- how long can a child go without anything but water before there are serious ill effects?? The questions in my mind are if I have to compromise on some level with him, how do I do this and what is the best level to compromise on? 1) I could give in on his previous juice but stay firm on the food decisions and offerings- ( he previously drank minute maid fruit punch and juicy juice fruit punch) By doing so I might be able to increase the chance of food acceptance by using behavioral techniques with the juice as a reinforcer ? 2) I could stay with SCD foods, but go with higher level foods that he might be more likely to try, in other words transition more to the " nut flour diet " and then maybe try to return to the SCD process later once he is comfortable with more of the foods 3) the third complicating factor is I have another son, 15 mos older than he is, who is doing great and going with the changes. I am afraid any compromise I make on the younger one will affect the attitude of the older one. What should I do? Wait longer - I seriously believe, behaviorally speaking, the " EO " or motivation for food is as high as gets at this point and waiting longer is not going to make him any hungrier than he is now, but will only make him sicker. If I compromise, how can I do it without giving up on the whole thing altogether? I refuse to go back to his routine of " SAD " starchy foods. I am very worried about my son- Please I welcome any and all advice and opinions on where to go from here- Thanks- Sheri mom of 11yrPDD-NOS & 9yroldASD SCD: 5 days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Well, Ilene had a nine day food striker about a year ago, but he finally gave in. Are you still only offerring him intro diet foods? If yes, then I'd move on to stage one. The food itself doesn't starve out the nasty gut bugs. It is just the most easily digested, and provides nutrition for one's body during those first few days of starving out the gut bugs. I would begin trying to introduce new foods like ripe banana, homemade applesauce, cooked carrots, zucchini, spinach, or green beans, ect. Meleah Decisions re:food striker, NEW please HELP!! We are on day 5, new to SCD, and I am still struggling with a food striker. It is at the point I really do not know what to do. He still refuses all drinks and foods offered and is only taking water. His vomiting has stopped for the most part. (The uncontrolled vomiting has stopped since around noon yesterday, but he will still reflexively gag and occasionally go on to vomit when food is shown or brought near to him) Although he is still very weak and laying around and sleeping alot, I feel at this point it is mostly just from lack of food and that the initial " die-off " has gotten better not only because of the change in the vomiting pattern but also just his general appearance and demeanor has improved ( although he still looks sickly from lack of food, he does not look " deathly " like before) Anyway- he is very stubborn and quite verbal about wanting his " junk food " and his " minute maid juice " and I am very afraid he can hold out longer than I can. Seriously- how long can a child go without anything but water before there are serious ill effects?? The questions in my mind are if I have to compromise on some level with him, how do I do this and what is the best level to compromise on? 1) I could give in on his previous juice but stay firm on the food decisions and offerings- ( he previously drank minute maid fruit punch and juicy juice fruit punch) By doing so I might be able to increase the chance of food acceptance by using behavioral techniques with the juice as a reinforcer ? 2) I could stay with SCD foods, but go with higher level foods that he might be more likely to try, in other words transition more to the " nut flour diet " and then maybe try to return to the SCD process later once he is comfortable with more of the foods 3) the third complicating factor is I have another son, 15 mos older than he is, who is doing great and going with the changes. I am afraid any compromise I make on the younger one will affect the attitude of the older one. What should I do? Wait longer - I seriously believe, behaviorally speaking, the " EO " or motivation for food is as high as gets at this point and waiting longer is not going to make him any hungrier than he is now, but will only make him sicker. If I compromise, how can I do it without giving up on the whole thing altogether? I refuse to go back to his routine of " SAD " starchy foods. I am very worried about my son- Please I welcome any and all advice and opinions on where to go from here- Thanks- Sheri mom of 11yrPDD-NOS & 9yroldASD SCD: 5 days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. Meleah Re: Decisions re:food striker, NEW please HELP!! Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 What else does he like to eat? Would he eat an egg mashed with very ripe banana, pinch of baking soda, fry in olive oil like a pancake, drizzle with honey? jdhyorkman@... wrote: Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 That's a good idea too, I also use cashew butter and beat together with egg and baking soda to make a pancake, then drizzle with honey. What other foods does he like? I was lucky that my son actually loves chicken soup, avocadoes, applesauce, etc. robin wrote: What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. Meleah Re: Decisions re:food striker, NEW please HELP!! Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 His favorite pre-SCD foods were some specific GFCF chicken nuggets we ordered from Wellshire farms, pizza, grilled cheese, french fries, pretzels, corn chips, rolls, biscuits, basically anything bready and totally illegal!!! PS- I am new to this whole list thing as well, when replying is it best to reply " within the post " or on AOL just click " reply " like you would to any other email - I notice it goes through either way but one way sends it separately and the other attaches it to the previous comments- which is the preferred format?? Thanks- Sheri What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. > Meleah > Re: Decisions re:food striker, NEW please HELP!! > > Yes, we have been offering stage 1 foods since the third day and he is > refusing them. I am very worried about him. Eileen actually lives near me and I > know her. Her son went 9 days but I am pretty sure even though he was > refusing to eat, he was drinking the juice. How long can we go on just water? He > is so lethargic, it scares me? He was my bread/carb addict, is it too early > to offer something with the nut flour to get a baked product? > > ************************************** See what's free at http://www.aol.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Hi there, it looks like we started the diet for our son on exactly the same day (last Sat right). Well, we were in the same boat. Heis only three but was a huge bread fan. We went cold turkey on the intro diet and we were able to get him to eat some eggs, chicken and hamburger Sat night and Sun morning but he would NOTHING all day Sunday and all day Monday. WE tried EVERYTHING! Unfortunatley, he was also starving, lethargic and very crabby. I am on the same diet as I am nursing him and I can tell you it was brutal for me. I mean brutal. On Monday night we broke down and started feeding him banana pancakes. Over the past few days we have tried many, and I mean many different things and that is the only thing that we can get him to eat. He ate a few bites of pear sauce. Anyway, I believe he is having huge carb cravings and this makes sense that he would only crave the sweetest fruits. I am a little concerned over the high phenol content but have to continue feeding him bananas until we can move on. On the very positive side, today he finally had a normal BM that was very well digested. We were pleased. We will decide when to move on but my best advice is give him something that looks likes a bread, waffle or pancake, etc. Does he like waffles? maybe you could put them in a waffle maker instead. Good luck. , mom to Elijah (ASD) --- srbfree2b wrote: > We are on day 5, new to SCD, and I am still > struggling with a food > striker. It is at the point I really do not know > what to do. He > still refuses all drinks and foods offered and is > only taking water. > His vomiting has stopped for the most part. (The > uncontrolled > vomiting has stopped since around noon yesterday, > but he will still > reflexively gag and occasionally go on to vomit when > food is shown or > brought near to him) Although he is still very weak > and laying around > and sleeping alot, I feel at this point it is mostly > just from lack > of food and that the initial " die-off " has gotten > better not only > because of the change in the vomiting pattern but > also just his > general appearance and demeanor has improved ( > although he still > looks sickly from lack of food, he does not look > " deathly " like > before) > > Anyway- he is very stubborn and quite verbal about > wanting his " junk > food " and his " minute maid juice " and I am very > afraid he can hold > out longer than I can. Seriously- how long can a > child go without > anything but water before there are serious ill > effects?? > > The questions in my mind are if I have to compromise > on some level > with him, how do I do this and what is the best > level to compromise > on? > > 1) I could give in on his previous juice but stay > firm on the food > decisions and offerings- ( he previously drank > minute maid fruit > punch and juicy juice fruit punch) By doing so I > might be able to > increase the chance of food acceptance by using > behavioral techniques > with the juice as a reinforcer ? > > 2) I could stay with SCD foods, but go with higher > level foods that > he might be more likely to try, in other words > transition more to > the " nut flour diet " and then maybe try to return to > the SCD process > later once he is comfortable with more of the foods > > 3) the third complicating factor is I have another > son, 15 mos older > than he is, who is doing great and going with the > changes. I am > afraid any compromise I make on the younger one will > affect the > attitude of the older one. > > What should I do? Wait longer - I seriously believe, > behaviorally > speaking, the " EO " or motivation for food is as high > as gets at this > point and waiting longer is not going to make him > any hungrier than > he is now, but will only make him sicker. > If I compromise, how can I do it without giving up > on the whole thing > altogether? I refuse to go back to his routine of > " SAD " starchy > foods. > > I am very worried about my son- Please I welcome any > and all advice > and opinions on where to go from here- > Thanks- > Sheri > mom of 11yrPDD-NOS & 9yroldASD > SCD: 5 days > > ________________________________________________________________________________\ ____ Get the free Yahoo! toolbar and rest assured with the added security of spyware protection. http://new.toolbar.yahoo.com/toolbar/features/norton/index.php ________________________________________________________________________________\ ____ Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase. http://farechase.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Eventually you can make legal pizza, legal grilled cheese etc. Do you have the complete list of legal foods from the website? Cheddar cheese is legal, for example, but mozzarella is not. Would he eat cheddar cheese melted on a tomato slice? I guess it's a personal decision how fast you move. If it was my child I would probably start feeding him more advanced foods that are still legal, but others might not agree with me, but that's what I would do. srbfree2b wrote: His favorite pre-SCD foods were some specific GFCF chicken nuggets we ordered from Wellshire farms, pizza, grilled cheese, french fries, pretzels, corn chips, rolls, biscuits, basically anything bready and totally illegal!!! PS- I am new to this whole list thing as well, when replying is it best to reply " within the post " or on AOL just click " reply " like you would to any other email - I notice it goes through either way but one way sends it separately and the other attaches it to the previous comments- which is the preferred format?? Thanks- Sheri What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. > Meleah > Re: Decisions re:food striker, NEW please HELP!! > > Yes, we have been offering stage 1 foods since the third day and he is > refusing them. I am very worried about him. Eileen actually lives near me and I > know her. Her son went 9 days but I am pretty sure even though he was > refusing to eat, he was drinking the juice. How long can we go on just water? He > is so lethargic, it scares me? He was my bread/carb addict, is it too early > to offer something with the nut flour to get a baked product? > > ************************************** See what's free at http://www.aol.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Saying family prayers tonight for your son. Re: Decisions re:food striker, NEW please HELP!! I already have a good, legal almond butter, so that is a good idea and I will give it a try. My mom is a retired home economics teacher and great cook and she is here as we speak trying to help me pull something together with the juice.... He's been sleeping all day and it is scary!! Praise the Lord my other son is doing well with this or I probably would have given up by now.. Please everyone pray my little food striker will come around!! Thanks- Sheri PS: regarding my other son, I am assuming it is still best to try to avoid giving him the other higher level foods right now even though we are having to try them with the younger one? Is that right?? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Does this only work on tephlon? I am afraid to try it on iron or stainless steel. I have an enamel coated iron dutch oven and I wonder if the bottom of that would work best. - Lake wrote: That's a good idea too, I also use cashew butter and beat together with egg and baking soda to make a pancake, then drizzle with honey. What other foods does he like? I was lucky that my son actually loves chicken soup, avocadoes, applesauce, etc. robin wrote: What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. Meleah Re: Decisions re:food striker, NEW please HELP!! Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Here's some info on that question... If a person consumed only water and maple syrup without any additional vitamins, minerals, or nutrients, the first signs of health problems could occur after one to two weeks. Thiamin is one of the first nutrients to exhibit a deficiency, so it is the one I will concentrate on. Thiamine is needed in the metabolic process that converts the carbohydrate in the maple syrup to energy in the form used by the body. The intake of pure carbohydrate without the presence of thiamin results in impaired function of the nervous, circulatory, digestive, and endocrine systems. A study of men doing hard daily labor on a diet adequate in calories but deficient in B vitamins found that thiamin deficiency symptoms of fatigue, apathy, muscle and joint pain, anorexia, constipation, and deterioration of work performance began after one week. After the third week of restricted thiamin intake, the subjects lost all ability to eat. It was unethical to continue the study at this point without supplementation. If the subjects continued without supplementation, starvation and death would probably occur within a few weeks, depending on the fat and protein stores of the person. But back to the original question, if a person needed to survive on only maple syrup and water and could include a multivitamin supplement or a natural source of B vitamins such as brewer's yeast, that person could probably live for several months. The length of time would depend on the syrup supply and the person's body fat stores, energy level, and quality of diet before the restriction began. The person would want to prevent ketosis and spare protein loss from breaking down muscle and organ tissue for energy and for this purpose 150-gram carbohydrate or about ¾ cup of maple syrup per day would suffice. http://www.madsci.org/posts/archives/dec99/945923542.Bc.r.html So you might want to give you son B-vitamins and honey in his water and play it day by day. My now 3 YO (who does not have any delays) once refused to apoligize for something she had done (she was 2.5). I told her she could have breakfast once she apoligized (a simple " I'm sorry " to her sister was all that was necessary to get food). She would not apoligize, skipped breakfast and eventually every other meal and snack that day. The night before, she had fallen asleep early and missed dinner, so she must have been really hungry when she declined breakfast. She was lethargic, had a very noisy stomach and bad breath -- I did not feed her as she is my most head strong child and I needed to establish who was ultimately boss! The next morning she woke up said she was sorry and ate. I was really amazed how long a child was willing to suffer to win a battle. She did not have any food issues, just was willing to go 42 hours without food to attempt to win a battle. Now that being said, your child has a neurological condition and lacks judgement, so you have to take that into consideration and make the ultimate decision on what level to " give in. " Further, you have to make sure you are not overlooking a medical condition since lots of kids on the spectrum have one. I know a family with an ASD child who had a fatty acid disorder that had not yet been diagnosed. He was always striking and they later learned that due to his condition, he was not metabolically able to go without food for more than 2 hours as his brain was deprived of glucose, causing brain damage! He has an extremely rare condition, but the moral of the story is to not do what you do not feel is right for your child. What worked best for my son was to do SCD gradually. First we reduced carbs over the course of a month, then we were starch/sugar free except for a few items that contained possible hidden illegals until I figured out how to cook them from scratch, then we did only legal foods (but some that were too advanced), then we did the intro. I don't apoligize for not starving him initially, I didn't think it was necessary. I knew we would get there & didn't really care about taking an extra 3 months to get to the intro, since I considered the diet to be something we would do for years. Since that time, I have starved him here and there when he refuses to eat what is served -- which amounts to him missing half of a meal since he will eat any vegetable (only refuses protein). HTH, jdhyorkman@... wrote: Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 > > Does this only work on tephlon? I am afraid to try it on iron or stainless steel. I have an enamel coated iron dutch oven and I wonder if the bottom of that would work best. > > - > . I make nut butter pancakes often and use butter or oil in a stainless steel frying pan or thaten ameled heavy Belgium one (Le Creuset). I will not use teflon. It is toxic for people with chemical sensitivities. Carol F. SCD 7 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 I use stainless steel frying pans and put olive oil first. Rob or Sunseri wrote: Does this only work on tephlon? I am afraid to try it on iron or stainless steel. I have an enamel coated iron dutch oven and I wonder if the bottom of that would work best. - Lake wrote: That's a good idea too, I also use cashew butter and beat together with egg and baking soda to make a pancake, then drizzle with honey. What other foods does he like? I was lucky that my son actually loves chicken soup, avocadoes, applesauce, etc. robin wrote: What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. Meleah Re: Decisions re:food striker, NEW please HELP!! Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? --------------------------------- Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 I've taken the gradual approach too and been happy with the results. I have learned to take the gradual approach with my son because when his stress increases he has more seizure activity which in his case causes brain damage too. Slow but steady has worked well for us. Mother of Virya, age 16, autism and LKS Rob or Sunseri wrote: Here's some info on that question... If a person consumed only water and maple syrup without any additional vitamins, minerals, or nutrients, the first signs of health problems could occur after one to two weeks. Thiamin is one of the first nutrients to exhibit a deficiency, so it is the one I will concentrate on. Thiamine is needed in the metabolic process that converts the carbohydrate in the maple syrup to energy in the form used by the body. The intake of pure carbohydrate without the presence of thiamin results in impaired function of the nervous, circulatory, digestive, and endocrine systems. A study of men doing hard daily labor on a diet adequate in calories but deficient in B vitamins found that thiamin deficiency symptoms of fatigue, apathy, muscle and joint pain, anorexia, constipation, and deterioration of work performance began after one week. After the third week of restricted thiamin intake, the subjects lost all ability to eat. It was unethical to continue the study at this point without supplementation. If the subjects continued without supplementation, starvation and death would probably occur within a few weeks, depending on the fat and protein stores of the person. But back to the original question, if a person needed to survive on only maple syrup and water and could include a multivitamin supplement or a natural source of B vitamins such as brewer's yeast, that person could probably live for several months. The length of time would depend on the syrup supply and the person's body fat stores, energy level, and quality of diet before the restriction began. The person would want to prevent ketosis and spare protein loss from breaking down muscle and organ tissue for energy and for this purpose 150-gram carbohydrate or about ¾ cup of maple syrup per day would suffice. http://www.madsci.org/posts/archives/dec99/945923542.Bc.r.html So you might want to give you son B-vitamins and honey in his water and play it day by day. My now 3 YO (who does not have any delays) once refused to apoligize for something she had done (she was 2.5). I told her she could have breakfast once she apoligized (a simple " I'm sorry " to her sister was all that was necessary to get food). She would not apoligize, skipped breakfast and eventually every other meal and snack that day. The night before, she had fallen asleep early and missed dinner, so she must have been really hungry when she declined breakfast. She was lethargic, had a very noisy stomach and bad breath -- I did not feed her as she is my most head strong child and I needed to establish who was ultimately boss! The next morning she woke up said she was sorry and ate. I was really amazed how long a child was willing to suffer to win a battle. She did not have any food issues, just was willing to go 42 hours without food to attempt to win a battle. Now that being said, your child has a neurological condition and lacks judgement, so you have to take that into consideration and make the ultimate decision on what level to " give in. " Further, you have to make sure you are not overlooking a medical condition since lots of kids on the spectrum have one. I know a family with an ASD child who had a fatty acid disorder that had not yet been diagnosed. He was always striking and they later learned that due to his condition, he was not metabolically able to go without food for more than 2 hours as his brain was deprived of glucose, causing brain damage! He has an extremely rare condition, but the moral of the story is to not do what you do not feel is right for your child. What worked best for my son was to do SCD gradually. First we reduced carbs over the course of a month, then we were starch/sugar free except for a few items that contained possible hidden illegals until I figured out how to cook them from scratch, then we did only legal foods (but some that were too advanced), then we did the intro. I don't apoligize for not starving him initially, I didn't think it was necessary. I knew we would get there & didn't really care about taking an extra 3 months to get to the intro, since I considered the diet to be something we would do for years. Since that time, I have starved him here and there when he refuses to eat what is served -- which amounts to him missing half of a meal since he will eat any vegetable (only refuses protein). HTH, jdhyorkman@... wrote: Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Hmm -- every SCD pancake sticks to my stainless steel and burns -- I think the heating unit is bad and I need a new pan. - Lake wrote: I use stainless steel frying pans and put olive oil first. Rob or Sunseri wrote: Does this only work on tephlon? I am afraid to try it on iron or stainless steel. I have an enamel coated iron dutch oven and I wonder if the bottom of that would work best. - Lake wrote: That's a good idea too, I also use cashew butter and beat together with egg and baking soda to make a pancake, then drizzle with honey. What other foods does he like? I was lucky that my son actually loves chicken soup, avocadoes, applesauce, etc. robin wrote: What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. Meleah Re: Decisions re:food striker, NEW please HELP!! Yes, we have been offering stage 1 foods since the third day and he is refusing them. I am very worried about him. Eileen actually lives near me and I know her. Her son went 9 days but I am pretty sure even though he was refusing to eat, he was drinking the juice. How long can we go on just water? He is so lethargic, it scares me? He was my bread/carb addict, is it too early to offer something with the nut flour to get a baked product? --------------------------------- Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Try making the bone broth and mixing it with the juice. My son wouldn't eat at first either, but he would drink the bone broth and juice. Could somebody post that recipe? I don't have it. Teena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Hi , I find oil works for some things whereas only butter will work for others. SCD tortilla only work for me with butter and low heat. Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs mom of and > > Hmm -- every SCD pancake sticks to my stainless steel and burns -- I think the heating unit is bad and I need a new pan. > > - > > Lake wrote: > I use stainless steel frying pans and put olive oil first. > > > Rob or Sunseri wrote: > Does this only work on tephlon? I am afraid to try it on iron or stainless steel. I have an enamel coated iron dutch oven and I wonder if the bottom of that would work best. > > - > > Lake wrote: > That's a good idea too, I also use cashew butter and beat together with egg and baking soda to make a pancake, then drizzle with honey. What other foods does he like? I was lucky that my son actually loves chicken soup, avocadoes, applesauce, etc. > > robin wrote: What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. > Meleah > Re: Decisions re:food striker, NEW please HELP!! > > Yes, we have been offering stage 1 foods since the third day and he is > refusing them. I am very worried about him. Eileen actually lives near me and I > know her. Her son went 9 days but I am pretty sure even though he was > refusing to eat, he was drinking the juice. How long can we go on just water? He > is so lethargic, it scares me? He was my bread/carb addict, is it too early > to offer something with the nut flour to get a baked product? > > --------------------------------- > Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 I didn't know there was a tortilla recipe -- do you use a tortilla press? - Sheila Trenholm wrote: Hi , I find oil works for some things whereas only butter will work for others. SCD tortilla only work for me with butter and low heat. Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs mom of and > > Hmm -- every SCD pancake sticks to my stainless steel and burns -- I think the heating unit is bad and I need a new pan. > > - > > Lake wrote: > I use stainless steel frying pans and put olive oil first. > > > Rob or Sunseri wrote: > Does this only work on tephlon? I am afraid to try it on iron or stainless steel. I have an enamel coated iron dutch oven and I wonder if the bottom of that would work best. > > - > > Lake wrote: > That's a good idea too, I also use cashew butter and beat together with egg and baking soda to make a pancake, then drizzle with honey. What other foods does he like? I was lucky that my son actually loves chicken soup, avocadoes, applesauce, etc. > > robin wrote: What about trying something with the nut butter instead of nut flour. You could make the peanutbutter brownies from pecanbread.com, but use almond butter(or some other nut butter) in place of peanutbutter. Legal peanutbutter is an advanced food since peanuts are actually a legume, but you could buy some almond, hazelnut, or macadamia butter to use instead. I like the idea that someone posted about using some of the legal juices along with sacrin or honey to concoct a fruit punch that he might drink. Ilene's son did at least drink the juice, so I understand your concern. I'd be freiking out, too, if my son had done this. We'll help you figure something out. > Meleah > Re: Decisions re:food striker, NEW please HELP!! > > Yes, we have been offering stage 1 foods since the third day and he is > refusing them. I am very worried about him. Eileen actually lives near me and I > know her. Her son went 9 days but I am pretty sure even though he was > refusing to eat, he was drinking the juice. How long can we go on just water? He > is so lethargic, it scares me? He was my bread/carb addict, is it too early > to offer something with the nut flour to get a baked product? > > --------------------------------- > Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Hi , Tortilla recipe: http://www.pecanbread.com/new/recipes/tortilla.html I only use butter when making these (they burned with oil) I don't own/use a tortilla press I make them in either my large stainless steel or the nonstick. Sheila What about trying something with the > nut butter instead of nut flour. You could make the peanutbutter > brownies from pecanbread.com, but use almond butter(or some other nut > butter) in place of peanutbutter. Legal peanutbutter is an advanced > food since peanuts are actually a legume, but you could buy some > almond, hazelnut, or macadamia butter to use instead. I like the idea > that someone posted about using some of the legal juices along with > sacrin or honey to concoct a fruit punch that he might drink. Ilene's > son did at least drink the juice, so I understand your concern. I'd > be freiking out, too, if my son had done this. We'll help you figure > something out. > > Meleah > > Re: Decisions re:food striker, NEW please > HELP!! > > > > Yes, we have been offering stage 1 foods since the third day and he > is > > refusing them. I am very worried about him. Eileen actually lives > near me and I > > know her. Her son went 9 days but I am pretty sure even though he > was > > refusing to eat, he was drinking the juice. How long can we go on > just water? He > > is so lethargic, it scares me? He was my bread/carb addict, is it > too early > > to offer something with the nut flour to get a baked product? > > > > --------------------------------- > > Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: > mail, news, photos & more. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 , I find that if I make sure the stainless steel pan is up to temperature and the oil is hot (but of course not smoking) before the pancake hits the pan, and then cook on medium heat, that it won't stick. If I pour the pancake batter in too soon before the oil is hot and coating the pan, then the pancake sticks. If the oil is up to temperature, then the batter starts to solidify as soon as it hits the pan, and the oil stays between the pancake and the pan. But if the oil is too low in temperature, when the batter is poured on, the batter doesn't solidify immediately and so it mixes with the oil and comes in direct contact with the pan, causing it to stick. That's my hypothesis anyway. Hope this helps. Sheila Trenholm wrote: Recent Activity 11 New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
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