nervous re diet - question

[Guest guest]

Hearing some of the regressions is kind of scarey. I've been

struggling with scarey doubts about SCD. I haven't really worried

too much about other diets/personal interventions until now. I

think maybe hearing some of the bad regressions on the list in the

last day or so has been kind of scarey. It seems that more is at

stake with SCD than other interventions. Cleaning out bad guys and

repopulating with good guys could potentially be difficult and

problematic if you have special circumstances.

First question, (and maybe more experienced people could answer) I

read on the website that SCD works for 75% of the people. This is

more a devil's advocate question, but I'm the one who thinks of

every way something could go wrong so I will be ready for it. Also,

my family has a history of being the physical exception to

everything for some reason. What happens to that 25% that this

doesn't work for? Will they see some kind of permanent negative

behavioral changes if they go back to a regular, but healthy natural

diet?

Also, kids make their own choices. On some diets parents worry

about as kids age, they don't all choose this way of living/eating.

Do the kids grow up and usually continue this? If they choose not

too, could they potentially see terrible regressions permanently?

Are peoples lives alterred forever once they try this?

Maybe I shouldn't even be asking these questions. I have a habit of

asking what you should only ponder and not vocalize.

Bonita

son, on SCD day 2 of intro

OCD, Asperger's, ADHD

[Guest guest]

My son is one of the regressions, but please see my post on his

improvements. I cannot answer any of your questions, but I don't

think that regressions are necessarily a bad thing, I mean, they are

awful to go through, but they also might help find problems (banana in

our case) or be followed by great improvement. My feeling is that my

son has been doing a big detox the past few days due to changing

intestinal flora or something and that once he gets through that,

he'll be improved.

[Guest guest]

,

I guess the change in intestinal flora would make sense.

Bonita

>

> My son is one of the regressions, but please see my post on his

> improvements. I cannot answer any of your questions, but I don't

> think that regressions are necessarily a bad thing, I mean, they are

> awful to go through, but they also might help find problems (banana

in

> our case) or be followed by great improvement. My feeling is that

my

> son has been doing a big detox the past few days due to changing

> intestinal flora or something and that once he gets through that,

> he'll be improved.

>

>

>

[Guest guest]

Hi Bonita,

<<First question, (and maybe more experienced people could answer) I

> read on the website that SCD works for 75% of the people.>>

The site says " ...at least 75% of those who adhere rigidly to the

diet gain significant improvement " . from

http://www.breakingtheviciouscycle.info/beginners_guide/beginners.htm

For those who practice strict SCD the number is likely far higher

than 75%. After years on many of the listserves I'd say the number

is much and that the author of that article is being very

conservative. Depending on the type and location of disease in the

body it make take either longer for symptoms to start to improve

(more than 1 month) or it make tka elonger for all symptoms to

heal. For example: some people have done strict SCD but not seen

any positive changes until a full 3 months on the diet. Also People

whose intestines are damaged at the distal end may take longer until

their last symptoms disappear.

<< This is

> more a devil's advocate question, but I'm the one who thinks of

> every way something could go wrong so I will be ready for it.

Also,

> my family has a history of being the physical exception to

> everything for some reason. What happens to that 25% that this

> doesn't work for?>>

I have had a number of people contact me for whom the diet " wasn't

working " . In every case we found out what the problem was.

<<Will they see some kind of permanent negative

> behavioral changes if they go back to a regular, but healthy

natural diet?>>

Do you mean if they don't do the diet or ...?

<<Also, kids make their own choices. On some diets parents worry

> about as kids age, they don't all choose this way of

living/eating.

> Do the kids grow up and usually continue this? If they choose not

> too, could they potentially see terrible regressions permanently?>>

My kids (NT) were on the diet for a few years. They now eat foods

that aren't part of SCD and continue to have success, though we

mostly still eat SCD since I am still on the diet 100%.

<<Are peoples lives alterred forever once they try this?>>

My life has been altered forever, but it has all been positive. : )

Sheila, SCD Feb. 2001, UC 23yrs,

mom of Em and Dan

[Guest guest]

Hi Sheila:

How old are your kids now? Do they have any other restrictions, like

gluten-free, when

they make their own choices? How old were they when they were on the diet? Did

they ever

have digestive/health/behavioural issues?

I ask because my three kids are NT (ages 5, 10 and 12), though the 12yo girl has

OCD and

the 5yo girl has OCD tendencies. They are gluten-free right now (against my

husband's

" better judgement " ) and when I cook, it is SCD as I'm the only one on the diet.

I try to

educate them and have them make their own choices. The oldest is now consciously

gluten-free, the others will have it if it's offered (outside the home). It's

hardest for me as

dh keeps bringing in gluten-free snacks that I can't have (corn/potato chips,

popcorn) and

I sometimes find it hard to resist, can't imagine my kids having to do that.

The 5yo has a very bloated belly and I think I should work on her a bit.

Theresa (in Vancouver, Canada)

IBS whole life, SCD 2 years

> My kids (NT) were on the diet for a few years. They now eat foods

> that aren't part of SCD and continue to have success, though we

> mostly still eat SCD since I am still on the diet 100%.

>

> <<Are peoples lives alterred forever once they try this?>>

>

> My life has been altered forever, but it has all been positive. : )

>

> Sheila, SCD Feb. 2001, UC 23yrs,

> mom of Em and Dan

>

[Guest guest]

Sheila,

Thanks for all the info. It adds clarity and understanding, which

always helps.

Bonita

>

> Hi Bonita,

>

> <<First question, (and maybe more experienced people could answer)

I

> > read on the website that SCD works for 75% of the people.>>

>

> The site says " ...at least 75% of those who adhere rigidly to the

> diet gain significant improvement " . from

>

http://www.breakingtheviciouscycle.info/beginners_guide/beginners.htm

> For those who practice strict SCD the number is likely far higher

> than 75%. After years on many of the listserves I'd say the

number

> is much and that the author of that article is being very

> conservative. Depending on the type and location of disease in

the

> body it make take either longer for symptoms to start to improve

> (more than 1 month) or it make tka elonger for all symptoms to

> heal. For example: some people have done strict SCD but not seen

> any positive changes until a full 3 months on the diet. Also

People

> whose intestines are damaged at the distal end may take longer

until

> their last symptoms disappear.

>

> << This is

> > more a devil's advocate question, but I'm the one who thinks of

> > every way something could go wrong so I will be ready for it.

> Also,

> > my family has a history of being the physical exception to

> > everything for some reason. What happens to that 25% that this

> > doesn't work for?>>

>

> I have had a number of people contact me for whom the diet " wasn't

> working " . In every case we found out what the problem was.

>

>

> <<Will they see some kind of permanent negative

> > behavioral changes if they go back to a regular, but healthy

> natural diet?>>

>

> Do you mean if they don't do the diet or ...?

>

> <<Also, kids make their own choices. On some diets parents worry

> > about as kids age, they don't all choose this way of

> living/eating.

> > Do the kids grow up and usually continue this? If they choose

not

> > too, could they potentially see terrible regressions permanently?

>>

>

> My kids (NT) were on the diet for a few years. They now eat foods

> that aren't part of SCD and continue to have success, though we

> mostly still eat SCD since I am still on the diet 100%.

>

> <<Are peoples lives alterred forever once they try this?>>

>

> My life has been altered forever, but it has all been

positive. : )

>

> Sheila, SCD Feb. 2001, UC 23yrs,

> mom of Em and Dan

>

[Guest guest]

Hi Theresa,

<<> How old are your kids now?>>

Em is 9.5 and Dan is 7.5 .

<< Do they have any other restrictions, like gluten-free, when

> they make their own choices?>>

No, there are no restrictions now.

<< How old were they when they were on the diet?>>

I think Dan was 2.5 and was about 4.5

<< Did they ever

> have digestive/health/behavioural issues? >>

Em occasionally had constipation and excuse the gross-ness but too

wide stools that she couldn't get out. I'd have to " pull " them

out. was put on antibiotics (fluid on the lungs) right

after delivery and spent 10 days in NICU. (He was a huge 9 lbs 2

ounces compared to all the preemies) he never had good bowel

movements, they were either smelly runny stools or at the best a

mushy smelly mess. They were " almost " on the diet for about a year

before we put them on it 100%. But since they were not 100% it made

no change to their bowels. Shortly after starting Em's bowels

improved permenantly and now continues to have the great

stools.

Sheila

<<I ask because my three kids are NT (ages 5, 10 and 12), though the

12yo girl has OCD and

> the 5yo girl has OCD tendencies. They are gluten-free right now

(against my husband's

> " better judgement " ) and when I cook, it is SCD as I'm the only one

on the diet. I try to

> educate them and have them make their own choices. The oldest is

now consciously

> gluten-free, the others will have it if it's offered (outside the

home). It's hardest for me as

> dh keeps bringing in gluten-free snacks that I can't have

(corn/potato chips, popcorn) and

> I sometimes find it hard to resist, can't imagine my kids having

to do that.

>

> The 5yo has a very bloated belly and I think I should work on her

a bit.

>

> Theresa (in Vancouver, Canada)

> IBS whole life, SCD 2 years

> > My kids (NT) were on the diet for a few years. They now eat

foods

> > that aren't part of SCD and continue to have success, though we

> > mostly still eat SCD since I am still on the diet 100%.

> >

> > <<Are peoples lives alterred forever once they try this?>>

> >

> > My life has been altered forever, but it has all been

positive. : )

> >

> > Sheila, SCD Feb. 2001, UC 23yrs,

> > mom of Em and Dan

> >

>

[Guest guest]

Thanks Sheila. I guess it's a testament to the resiliency and variability

amongst children

that some have more problems than others given similar starts in life. My oldest

had

similar bowel problems (gross warning) I had to dig it out some times it was so

" impacted " . Ds continues to have bowel " backup " where an x-ray showed more than

half

his large intesting filled with feces. I work on it one day at a time.

We had strawberry shortcake last night using the Lois Lang bread baked as a

cake,

drizzled with warm butter/honey (to make it sweet), homemade SCD strawberry jam

and

SCD french cream (yogurt made with cream). I also made SCD lasagne for dinner.

They are

constantly asking " are you sure you can have this? " as they are very aware of my

diet and

its restrictions. When dh cooks, sometimes the answer is no. When I cook, the

answer is

always yes :-). I'm converting them to SCD bit by bit ;-)

Theresa

>

> Hi Theresa,

>

> <<> How old are your kids now?>>

>

> Em is 9.5 and Dan is 7.5 .

>

> << Do they have any other restrictions, like gluten-free, when

> > they make their own choices?>>

>

> No, there are no restrictions now.

>

> << How old were they when they were on the diet?>>

>

> I think Dan was 2.5 and was about 4.5

>

> << Did they ever

> > have digestive/health/behavioural issues? >>

>

> Em occasionally had constipation and excuse the gross-ness but too

> wide stools that she couldn't get out. I'd have to " pull " them

> out. was put on antibiotics (fluid on the lungs) right

> after delivery and spent 10 days in NICU. (He was a huge 9 lbs 2

> ounces compared to all the preemies) he never had good bowel

> movements, they were either smelly runny stools or at the best a

> mushy smelly mess. They were " almost " on the diet for about a year

> before we put them on it 100%. But since they were not 100% it made

> no change to their bowels. Shortly after starting Em's bowels

> improved permenantly and now continues to have the great

> stools.

>

> Sheila