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Hi All,

Thought I would check in and tell of my experience with Sandostatin.

Perhaps my experience can help someone else.

I have been NPO since October 2004. I have Idiopathic CP and SOD.

Started on Sandostatin about 10 days ago. 3 subq's daily 200 mcg each

dose. Depot form may be possible after trialing the 3/daily dose.

For the first 2 days, I felt terrible--headache, nausea, achey. Used

Demerol to go me over the hump. I haven't had any real pain to speak

up since using the drug. Still have problems with overwhelming

nausea, but use Zofran to help with it. Headaches are still a problem

but they are mild and are probably related to hypoglycemia.

So, what would I say so far about this treatment. I actually think I

have a lot more energy. Pain is minimal.

I am hoping it works.

Pat

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One of the side effect of Sandostatin is pancreatitis.....Mark

catching up

> Hi All,

>

> Thought I would check in and tell of my experience with Sandostatin.

> Perhaps my experience can help someone else.

>

> I have been NPO since October 2004. I have Idiopathic CP and SOD.

> Started on Sandostatin about 10 days ago. 3 subq's daily 200 mcg each

> dose. Depot form may be possible after trialing the 3/daily dose.

>

> For the first 2 days, I felt terrible--headache, nausea, achey. Used

> Demerol to go me over the hump. I haven't had any real pain to speak

> up since using the drug. Still have problems with overwhelming

> nausea, but use Zofran to help with it. Headaches are still a problem

> but they are mild and are probably related to hypoglycemia.

>

> So, what would I say so far about this treatment. I actually think I

> have a lot more energy. Pain is minimal.

>

> I am hoping it works.

>

> Pat

>

>

>

>

>

>

>

>

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