Pray for us

[Guest guest]

Wayne-

Please know you are truly among others who understand exactly what you are

feeling and going through with this. You, your son & your family are in my

prayers.

Sheri

************************************** See what's free at http://www.aol.com.

[Guest guest]

I know some of you must be people of prayer. This is for you.

We've been doing the nut diet since about the turn of the year. I've

taken two weeks off from work to start this diet, in the hope that it

would help with Charlie's remaining symptoms. In the 3rd and 4th day

of the intro diet, I saw glimmers of what my boy might be if the veil

were lifted from his eyes. And things have turned sour since then.

My wife, though somewhat emotionally supportive of the diet, isn't

helping much to implement it; and she seems to consider my attempt at

real SCD as my experiment. I return to work on Tuesday, along with my

two hour round-trip commute, with little two show from that last 10

days but evidence of failure.

Pray that may boy may not be left like unpicked fruit to rot upon the

vine. Pray that the fog may lift from my own mind, and that I may

learn to help, not harm. Pray that my wife may may come to see, and

be more receptive to this discipline. Pray that I may have some time

for my little girl, whom I have sorely neglected because of the rigors

of this diet.

Wayne

[Guest guest]

Hello Wayne,

I'm so sorry to hear that you're having trouble implementing the diet and

that your wife is unsupportive of it. Have you asked her what her reasons

are for not supporting it? Does she somehow feel threatened by this

change? In my experience, when people are against change, they have some

sort of fear behind it. If this fear can be addressed, maybe she will

become a supportive partner in this big change.

It sounds like you started to see some improvement in your son. Don't give

up yet. Maybe, you have added too much too soon? Did you start with the

intro diet of soup and the cooked easily digestible foods? Have you already

added nut flour? If you have, this would be too soon to start it. Posting

what your son has eaten and how you have prepared it will help everyone see

what you have done and may give us an idea of what could be done to improve

the implementation.

I had a very difficult time implementing the diet too. It wasn't until I

joined this list that I realized what I was doing wrong. Once I figured

that out, the diet worked like a miracle. I have ulcerative colitis and no

longer have to take medication for it. I am free of the symptoms and

getting healthier every day.

Hang in there! You can do this!

--

Take care,

Mel

SCD since Jan 2007

UC since Apr 2004

[Guest guest]

Wayne, I agree with Mel, please post what your son is currently eating

and maybe we can help you tweak things a bit. The first time we tried

SCD it didn't work for my son because we tried advanced foods too fast

and weren't 100% strict. For example, we bought applesauce that

claimed to be unsweetened. The tiniest amount of illegal can prevent

progress! The second time around I followed advice from this group,

did the intro diet strictly and am SLOWLY introducing new foods to see

what my son can actually tolerate. It is slow but we are FINALLY

seeing real improvement in behavior and stools.

I'm sorry that your wife isn't that supportive. My husband wasn't at

first, but came around after seeing the progress my son's stools have

made recently. Hang in there, educate her all that you are able, and

maybe she will come around.

Keep posting for tips and advice, I know my family and I would never

have made it this far without the support from those further along on

the SCD path than we are.

I'll be keeping you and your family in my thoughts.....

K in Dayton, Ohio

Hashimoto's Thyroiditis, Fibro, CFS, yeast/candida, copper overload,

adrenal fatigue (mostly healed!!!)

Kids: son Rhowan 5 yrs old, chronic diarrhea/loose stools,

yeast/candida, ADHD, salicylate intolerance; daughter Willow 6.5 yrs

old, mild GI issues, salicylate intolerance

Started SCD June 2006, went slightly off for awhile in Nov 2006, back

on strict SCD starting May 2007. (Just redid intro diet the last week

of June 2007 and are taking it SLOW and we are finally seeing some

real progress!!!!!)

>

> Hello Wayne,

>

> I'm so sorry to hear that you're having trouble implementing the

diet and

> that your wife is unsupportive of it. Have you asked her what her

reasons

> are for not supporting it? Does she somehow feel threatened by this

> change? In my experience, when people are against change, they have

some

> sort of fear behind it. If this fear can be addressed, maybe she will

> become a supportive partner in this big change.

>

> It sounds like you started to see some improvement in your son.

Don't give

> up yet. Maybe, you have added too much too soon? Did you start

with the

> intro diet of soup and the cooked easily digestible foods? Have you

already

> added nut flour? If you have, this would be too soon to start it.

Posting

> what your son has eaten and how you have prepared it will help

everyone see

> what you have done and may give us an idea of what could be done to

improve

> the implementation.

>

> I had a very difficult time implementing the diet too. It wasn't

until I

> joined this list that I realized what I was doing wrong. Once I figured

> that out, the diet worked like a miracle. I have ulcerative colitis

and no

> longer have to take medication for it. I am free of the symptoms and

> getting healthier every day.

>

> Hang in there! You can do this!

>

> --

> Take care,

> Mel

> SCD since Jan 2007

> UC since Apr 2004

>

>

>

[Guest guest]

Wayne-

I feel your pain and frustration, and am putting a post-it on my computer to

remember to pray for your family every time I sit down at it. Hang in there

and my God bless your family.

Teena

[Guest guest]

I'll keep you guys in my thoughts and prayers also.

I keep index cards with recipes written on them in an envelope that I use a

lot. Can go from computer to kitchen easily. (Will get a real recipe box

sometime.)

Maybe you could jot down easy to do recipes from the BTVC and pecanbread.

Write up a daily menu from what he eats/tolerates/can try from the

pecanbread stages for daily use during the week. Leave room for notes

also...tolerance, behavior, etc.

Maybe make Saturday or Sunday cooking day since it is time consuming in the

beginning especially if you make mayo, baked goods, etc. I shop one day and

have one cooking day. Sometimes it spills over but...

Keep a well maintained grocery list with all supplements so you know where

you are with everything.

I don't know if any of the above will help with during the week to make

things easier for you guys. Shopping/cooking/preparing/cleaning up is time

consuming . I'm sure once everything is streamlined it will be easier.

As things progress or if anyone has questions, you could leave this list

bookmarked and one of you could ask questions.

It can be overwhelming at first. I also keep a folder of bookmarks with

links to legal supplies/recipes when/if I ever need them. Like mail order

nut flours or vitamins. Different articles.

Make sure you say Gay's Friday email of all the recipes posted for the

week. That way you can go through them and save for later or use now for

something new.

Just some ideas,

Debbie 38 crohn's

pentasa

scd 1/07

>

> Wayne-

>

> I feel your pain and frustration, and am putting a post-it on my computer

> to

> remember to pray for your family every time I sit down at it. Hang in

> there

> and my God bless your family.

>

> Teena

>

>

[Guest guest]

Thanks for your encouragement. My wife has been supportive, but she

isn't convinced that it can work. Her preference is the therapy, and

she expects SCD to fail.

I've been adding things faster than I should, and his stools look good

when he has them. I think his behavioral issues are possibly a yeast

flare-up. There's more information in my post from 7/4. I've

included it below.

Thanks again.

Wayne

Charlie's Dad, ASD with yeast problems, nut diet 6 mos, scd 11 days

Hi,

This post is mostly for Sheila (mom of and ), but I'd

appreciate any feedback.

We had Charlie tested for organic acids at Great Plains about 9 months

ago and he showed high for tartaric acid which they indicated was

probably a yeast problem. We've been giving him S. Boulardii

regularly since then (3B CFU per day). I stopped the S. Boulardii

during the intro diet, and re-started it today, two days after

starting the honey. (I'm not the sharpest knife in the drawer. Maybe

I have yeast issues, too.)

Aside from spotty periods of irritability during the intro, he seemed

to be progressing nicely. Now he's having behavioral regressions (not

bad really, he's like he was two or three weeks ago), and I'm guessing

he may be having a yeast flare up. His stools, when he has them every

two or three days, have been quit firm.

Do you think I'm making sense? If so, I read this link

(http://www.pecanbread.com/new/yeastsheila.html) and would like some

additional pointers. Should I use the natural anti-fungals, or do you

think S. Boulardii and Candizyme are enough? If/when I start the

anti-yeast regimen in earnest, how limited should the sugars be?

Right now we're probably getting less than 6 tablespoons of honey a

day between the two of us. Is that too much? How about fruit juice?

Do we need to go totally low-carb or are fruit juices less trouble

than honey?

You may want to know what he's eating so here it is:

Intro Foods

-----------

Fried eggs w/coconut oil

Dilute grape juice

Chicken soup with pureed carrots

Broiled Bison burger

Grape gelatin

Glycerin/Baking Soda/Salt toothpaste

Hard Boiled Eggs

Chicken Pancakes

Add-ons

-----------

Goat Yogurt

Honey

Vitamin supplements (Freeda SCD B-complex & Calcium Citrate)

S. Boulardii

Thanks,

Wayne

Charlie's dad, ASD, high tartaric acid (yeast probably)

Nut diet, 6 months; SCD 8 days.

[Guest guest]

I'm sorry it's taken so long to respond. Thanks to you all (Sheri,

Mel, Teena, Debbie and Sheila) for your encouragement and advice.

I spoke to my wife, and she is (rightly) concerned about the large

amount of protein I've been giving Charlie. She's OK with my going

forward, and trying to fix what I believe to be a yeast problem. She

is mostly supportive of the diet, but she does have periods of

negativity about it, and those are always pretty frightening for me.

Here is what he's been eating

Intro Foods

-----------

Fried eggs w/coconut oil

Dilute grape juice

Chicken soup with pureed carrots

Broiled Bison burger

Grape gelatin

Glycerin/Baking Soda/Salt/Saccharine toothpaste

Hard Boiled Eggs

Chicken Pancakes

Add-ons

-----------

Goat Yogurt

Honey

Vitamin supplements (Freeda SCD B-complex & Calcium Citrate)

S. Boulardii

Unsweetend applesauce

Tomato Sauce

He was on the nut diet for about 6 months prior to the intro diet.

The only thing on this list that he didn't have during the nut diet

was the toothpaste and the B-complex. Everything is home-made except

the supplements and probiotics. The Yogurt is made from the GI

ProHealth starter. My impression is that the wheels really started to

come off when I added the honey, and my intent is to proceed under the

assumption that the issue is a yeast flare up.

Any advice you can provide about dealing with yeast would be appreciated.

Thank you all again,

Wayne

[Guest guest]

Wayne,

I'm praying for your son's health and the SCD, and also for you and your wife to

have oneness of heart and mind in this. Has she read any of the success stories

through this list or on any of the internet sites? Or would she be willing to

post her concerns to the list to get input about them?

Becky

Re: Pray for us

I'm sorry it's taken so long to respond. Thanks to you all (Sheri,

Mel, Teena, Debbie and Sheila) for your encouragement and advice.

I spoke to my wife, and she is (rightly) concerned about the large

amount of protein I've been giving Charlie. She's OK with my going

forward, and trying to fix what I believe to be a yeast problem. She

is mostly supportive of the diet, but she does have periods of

negativity about it, and those are always pretty frightening for me.

Here is what he's been eating

Intro Foods

-----------

Fried eggs w/coconut oil

Dilute grape juice

Chicken soup with pureed carrots

Broiled Bison burger

Grape gelatin

Glycerin/Baking Soda/Salt/Saccharine toothpaste

Hard Boiled Eggs

Chicken Pancakes

Add-ons

-----------

Goat Yogurt

Honey

Vitamin supplements (Freeda SCD B-complex & Calcium Citrate)

S. Boulardii

Unsweetend applesauce

Tomato Sauce

He was on the nut diet for about 6 months prior to the intro diet.

The only thing on this list that he didn't have during the nut diet

was the toothpaste and the B-complex. Everything is home-made except

the supplements and probiotics. The Yogurt is made from the GI

ProHealth starter. My impression is that the wheels really started to

come off when I added the honey, and my intent is to proceed under the

assumption that the issue is a yeast flare up.

Any advice you can provide about dealing with yeast would be appreciated.

Thank you all again,

Wayne

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11:54 PM

[Guest guest]

Hi Becky,

<<Has she read any of the success stories through this list or on any

of the internet sites? Or would she be willing to post her concerns

to the list to get input about them?>>

No she hasn't read the success stories, though I believe I've

encouraged her to read them. I didn't occur to me to have her post

her questions to this group. That's a very good idea.

Thank you very much.

Wayne