Let child cheat and saw NO adverse affect- what's up?

[Guest guest]

Last Wed. was my son's 4th b-day and after much thought, I decided to

let him cheat and he had Pizza Inn pizza - 5 slices I might add (he

kept saying " mmmmm mama good pizza " :>). I told myself - let him

splurge and the next day we went back and redid intro (sorta of). I

saw NO adverse affect in his behavior - which I had anticipated that I

would. His poop was a little runny the next day, but it's been like

that on and off recently.

We'll the following Sunday the family had pizza at home and well lets

just say he wasn't going to eat that SCD pizza like he usually does

when we have pizza. I let him have a few pieces again - still no

adverse affect in behavior or poop.

Well 4th of July we had party here and I thought I'm really going to

see what will happen and he had 2 cookies and Sunchips- But NOTHING

out of the ordinary and had a normal POOP the next day.

Let me just add for the last month he has been eating peeled uncooked

apples, clementine oranges( he wants 6 or 7 a day) and peeled uncooked

grapes. He refuses ANYTHING else and for the sake of getting fruit in

him, and being on the diet since Nov. 06, I am not sweating it. In

relation to his behavior I have seen nothing different than the

typical. In fact we are going on two weeks of speech and OT reports

of excellent focus and interation.

I am trying to figure out why he would be doing so well despite my

recent experiments with him. I know some of you are freaking out about

my choices right now, but as we all say, we mothers know our kids best

and if I saw anthing thing adverse I wouldn't have continued with my

choices.

Now I am just trying to figure out why he's doing so well despite

this, is it possible the diet has done all it's going to do?

He is on s. boulardii, probiotic, CLO and just starting the K2 this

week (slowly).

Any thougts appreciated!!!

Becky, son SCD since 11/06--- correctly 1/07

[Guest guest]

>

> I am trying to figure out why he would be doing so well despite my

> recent experiments with him. I know some of you are freaking out about

> my choices right now, but as we all say, we mothers know our kids best

> and if I saw anthing thing adverse I wouldn't have continued with my

> choices.

>

> Now I am just trying to figure out why he's doing so well despite

> this, is it possible the diet has done all it's going to do?

> He is on s. boulardii, probiotic, CLO and just starting the K2 this

> week (slowly).

>

> Any thougts appreciated!!!

> Becky, son SCD since 11/06--- correctly 1/07

>

Lucky Becky!

And I am trying to figure out why you are doing these experiments?

SCD demands fanatical adherance. Maybe you feel you really don't need it. My

experience

is that consuming illegals can bring a delayed reaction as much as two weeks

later.

From your post I can't figure out whether:

A. You want approval for this

b. You plan to repeat it

c. Your objective of catering to your child's illegal cravings is of some

benefit to someone

in the family.

d. You have received a misdiagnosis.

In any case I am sure my response here will not endear me to the list, but I am

commited

to see that SCD does not have its integrity compromised. I hope others will now

not try to

imitate your behavior and risk regeression and gut damage before healing can

continue.

With all the variety SCD offers, including very good legal pizza, I can neither

find a reason

for your " good luck, " nor condone it if you plan to carry through with this

diet.

Carol F.

SCD 7 years, celiac

[Guest guest]

>

>

> Now I am just trying to figure out why he's doing so well despite

> this, is it possible the diet has done all it's going to do?

> He is on s. boulardii, probiotic, CLO and just starting the K2

this

> week (slowly).

>

> Any thougts appreciated!!!

> Becky, son SCD since 11/06--- correctly 1/07

>

Just a generic thought on this; prefaced by our exp. My son had a

couple of straight gluten infractions last winter (non-intentional).

He was fine (both behaviorally and gut-wise). Hoorah, right? ;-)

Oh, we also do enz, and I gave him 3 Pep's (houston's) after each

infraction. Like I said, they weren't intentional.

At any rate, my son was most definately a " gut " kid: likely an

undx celiac. However, after being GFCFSFCFYFSF (etc) AND Feingold

AND organic (for a year) THEN SCD less his IgG intolerences (nearly

forty) since wintertime 2005...well, let's just say that his gut is

no longer a sieve (accidental infractions in the past had been a

disaster - gut, skin and behaviorally).

So, here's my analogy: If I strip your skin off 5 or 6 times a day

with Brillo for three years (age Glenn was when we began " diet " ),

you are a horrible mess. However, if I DO NOT do that, and healing

occurs (diet, etc), then one or two swipes of Brillo probably won't

do too much damage...but continued applications of Brillo will.

I cannot give you any advice on continuing " off " scd, (as you

said, you know your kid), but personally, I would not deliberately

feed my son stuff I knew was problematic in the past. And if I did,

it likely wouldn't be commercially available fast food ;-). I am of

the opinion that NOone should eat that stuff; but I am a bit of a

food nazi, lol.

However, I AM happy that enough healing has occured for Glenn to

weather the occasional infraction (without mommy having an aneurysm

over it ;-) I am glad your child has tolerated his infractions as

well. Good luck!

FWIW,

-christine and Glenn

(scd etc, winter2005)

[Guest guest]

Becky,

My daughter has an amazing ability to find illegal foods. The whole

family is on SCD, even the cats. My daughter is homeschooled and

supervised when she goes out for outings.

For a while, I despaired as to why she no longer was making progress.

One day, she confessed to me that she has been sneaking junk foods.

Is it possible that your son is very resourceful at finding junk foods?

Mimi

[Guest guest]

I have 2 kids on the diet. One is ASD and the other is NT with GI issues caused

by a GI birth defect and corrective surgeries. When my NT daughter has an

infraction, the proof is in her poop and nowhere else -- no behaviors, no hyper,

nothing. When my son had a weekend off the diet, he did have therapists ask

" what happened to him?. " We have not yet conquered the diarrhea with SCD, so I

don't know if the poops were worse.

I have not been fanatical with myself, but feel very good eating SCD the

majority of the time & I plan to try the fanatical diet from the beginning

sometime in the near future. How the 90% diet has helped me is that I don't

need to eat as much to feel satisfied. I used to consider eating a burden as I

had to eat so much to keep up my weight and not feel hungry. I also no longer

get a bloated belly.

When I eat something not SCD, I don't feel anything bad happen -- but I really

look forward to the next meal being SCD. I know I would feel really yucky if I

ate 2 non-SCD meals in a row. It's a very subtle feeling (not one I think a kid

would be in touch with). It tells me that while once didn't do damage, twice

would not make me feel good and three times would probably make me get a bloated

belly.

Have you done the diet yourself? If not, you may want to try it yourself and

see how an infraction feels to you. Nobody else may notice anything, but you

may feel a bit " off. " This may give you motivation to be patient with your son

and give it more time & just be happy he might feel a little better.

Dr. Neubrander has a quote he uses in reference to success with MB-12 shots.

He compares ASD kids to grass (or some small plant), and he says the MB-12 will

make them grow, but he can't predict which kids will grow into a bush and which

ones will grow into a tree. Every parent wants a tree, but sometimes you have

to be happy when you get a bush. Maybe your child has grown into a bush on SCD,

but you don't notice as you are comparing him to the kids who grew into trees.

-

laytonandgavin wrote:

Last Wed. was my son's 4th b-day and after much thought, I decided to

let him cheat and he had Pizza Inn pizza - 5 slices I might add (he

kept saying " mmmmm mama good pizza " :>). I told myself - let him

splurge and the next day we went back and redid intro (sorta of). I

saw NO adverse affect in his behavior - which I had anticipated that I

would. His poop was a little runny the next day, but it's been like

that on and off recently.

We'll the following Sunday the family had pizza at home and well lets

just say he wasn't going to eat that SCD pizza like he usually does

when we have pizza. I let him have a few pieces again - still no

adverse affect in behavior or poop.

Well 4th of July we had party here and I thought I'm really going to

see what will happen and he had 2 cookies and Sunchips- But NOTHING

out of the ordinary and had a normal POOP the next day.

Let me just add for the last month he has been eating peeled uncooked

apples, clementine oranges( he wants 6 or 7 a day) and peeled uncooked

grapes. He refuses ANYTHING else and for the sake of getting fruit in

him, and being on the diet since Nov. 06, I am not sweating it. In

relation to his behavior I have seen nothing different than the

typical. In fact we are going on two weeks of speech and OT reports

of excellent focus and interation.

I am trying to figure out why he would be doing so well despite my

recent experiments with him. I know some of you are freaking out about

my choices right now, but as we all say, we mothers know our kids best

and if I saw anthing thing adverse I wouldn't have continued with my

choices.

Now I am just trying to figure out why he's doing so well despite

this, is it possible the diet has done all it's going to do?

He is on s. boulardii, probiotic, CLO and just starting the K2 this

week (slowly).

Any thougts appreciated!!!

Becky, son SCD since 11/06--- correctly 1/07

---------------------------------

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[Guest guest]

,

Thanks for the quote from the doctor. What as awesome word picture.

Bonita

Re: Let child cheat and saw NO adverse affect- what's

up?

I have 2 kids on the diet. One is ASD and the other is NT with GI issues

caused by a GI birth defect and corrective surgeries. When my NT daughter has an

infraction, the proof is in her poop and nowhere else -- no behaviors, no hyper,

nothing. When my son had a weekend off the diet, he did have therapists ask

" what happened to him?. " We have not yet conquered the diarrhea with SCD, so I

don't know if the poops were worse.

I have not been fanatical with myself, but feel very good eating SCD the

majority of the time & I plan to try the fanatical diet from the beginning

sometime in the near future. How the 90% diet has helped me is that I don't need

to eat as much to feel satisfied. I used to consider eating a burden as I had to

eat so much to keep up my weight and not feel hungry. I also no longer get a

bloated belly.

When I eat something not SCD, I don't feel anything bad happen -- but I really

look forward to the next meal being SCD. I know I would feel really yucky if I

ate 2 non-SCD meals in a row. It's a very subtle feeling (not one I think a kid

would be in touch with). It tells me that while once didn't do damage, twice

would not make me feel good and three times would probably make me get a bloated

belly.

Have you done the diet yourself? If not, you may want to try it yourself and

see how an infraction feels to you. Nobody else may notice anything, but you may

feel a bit " off. " This may give you motivation to be patient with your son and

give it more time & just be happy he might feel a little better.

Dr. Neubrander has a quote he uses in reference to success with MB-12 shots.

He compares ASD kids to grass (or some small plant), and he says the MB-12 will

make them grow, but he can't predict which kids will grow into a bush and which

ones will grow into a tree. Every parent wants a tree, but sometimes you have to

be happy when you get a bush. Maybe your child has grown into a bush on SCD, but

you don't notice as you are comparing him to the kids who grew into trees.

-

laytonandgavin wrote:

Last Wed. was my son's 4th b-day and after much thought, I decided to

let him cheat and he had Pizza Inn pizza - 5 slices I might add (he

kept saying " mmmmm mama good pizza " :>). I told myself - let him

splurge and the next day we went back and redid intro (sorta of). I

saw NO adverse affect in his behavior - which I had anticipated that I

would. His poop was a little runny the next day, but it's been like

that on and off recently.

We'll the following Sunday the family had pizza at home and well lets

just say he wasn't going to eat that SCD pizza like he usually does

when we have pizza. I let him have a few pieces again - still no

adverse affect in behavior or poop.

Well 4th of July we had party here and I thought I'm really going to

see what will happen and he had 2 cookies and Sunchips- But NOTHING

out of the ordinary and had a normal POOP the next day.

Let me just add for the last month he has been eating peeled uncooked

apples, clementine oranges( he wants 6 or 7 a day) and peeled uncooked

grapes. He refuses ANYTHING else and for the sake of getting fruit in

him, and being on the diet since Nov. 06, I am not sweating it. In

relation to his behavior I have seen nothing different than the

typical. In fact we are going on two weeks of speech and OT reports

of excellent focus and interation.

I am trying to figure out why he would be doing so well despite my

recent experiments with him. I know some of you are freaking out about

my choices right now, but as we all say, we mothers know our kids best

and if I saw anthing thing adverse I wouldn't have continued with my

choices.

Now I am just trying to figure out why he's doing so well despite

this, is it possible the diet has done all it's going to do?

He is on s. boulardii, probiotic, CLO and just starting the K2 this

week (slowly).

Any thougts appreciated!!!

Becky, son SCD since 11/06--- correctly 1/07

---------------------------------

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[Guest guest]

You welcome!

- (proud mom to a very sweet little bush)

Bonita Todd wrote:

,

Thanks for the quote from the doctor. What as awesome word picture.

Bonita

Re: Let child cheat and saw NO adverse affect- what's up?

I have 2 kids on the diet. One is ASD and the other is NT with GI issues caused

by a GI birth defect and corrective surgeries. When my NT daughter has an

infraction, the proof is in her poop and nowhere else -- no behaviors, no hyper,

nothing. When my son had a weekend off the diet, he did have therapists ask

" what happened to him?. " We have not yet conquered the diarrhea with SCD, so I

don't know if the poops were worse.

I have not been fanatical with myself, but feel very good eating SCD the

majority of the time & I plan to try the fanatical diet from the beginning

sometime in the near future. How the 90% diet has helped me is that I don't need

to eat as much to feel satisfied. I used to consider eating a burden as I had to

eat so much to keep up my weight and not feel hungry. I also no longer get a

bloated belly.

When I eat something not SCD, I don't feel anything bad happen -- but I really

look forward to the next meal being SCD. I know I would feel really yucky if I

ate 2 non-SCD meals in a row. It's a very subtle feeling (not one I think a kid

would be in touch with). It tells me that while once didn't do damage, twice

would not make me feel good and three times would probably make me get a bloated

belly.

Have you done the diet yourself? If not, you may want to try it yourself and see

how an infraction feels to you. Nobody else may notice anything, but you may

feel a bit " off. " This may give you motivation to be patient with your son and

give it more time & just be happy he might feel a little better.

Dr. Neubrander has a quote he uses in reference to success with MB-12 shots. He

compares ASD kids to grass (or some small plant), and he says the MB-12 will

make them grow, but he can't predict which kids will grow into a bush and which

ones will grow into a tree. Every parent wants a tree, but sometimes you have to

be happy when you get a bush. Maybe your child has grown into a bush on SCD, but

you don't notice as you are comparing him to the kids who grew into trees.

-

laytonandgavin wrote:

Last Wed. was my son's 4th b-day and after much thought, I decided to

let him cheat and he had Pizza Inn pizza - 5 slices I might add (he

kept saying " mmmmm mama good pizza " :>). I told myself - let him

splurge and the next day we went back and redid intro (sorta of). I

saw NO adverse affect in his behavior - which I had anticipated that I

would. His poop was a little runny the next day, but it's been like

that on and off recently.

We'll the following Sunday the family had pizza at home and well lets

just say he wasn't going to eat that SCD pizza like he usually does

when we have pizza. I let him have a few pieces again - still no

adverse affect in behavior or poop.

Well 4th of July we had party here and I thought I'm really going to

see what will happen and he had 2 cookies and Sunchips- But NOTHING

out of the ordinary and had a normal POOP the next day.

Let me just add for the last month he has been eating peeled uncooked

apples, clementine oranges( he wants 6 or 7 a day) and peeled uncooked

grapes. He refuses ANYTHING else and for the sake of getting fruit in

him, and being on the diet since Nov. 06, I am not sweating it. In

relation to his behavior I have seen nothing different than the

typical. In fact we are going on two weeks of speech and OT reports

of excellent focus and interation.

I am trying to figure out why he would be doing so well despite my

recent experiments with him. I know some of you are freaking out about

my choices right now, but as we all say, we mothers know our kids best

and if I saw anthing thing adverse I wouldn't have continued with my

choices.

Now I am just trying to figure out why he's doing so well despite

this, is it possible the diet has done all it's going to do?

He is on s. boulardii, probiotic, CLO and just starting the K2 this

week (slowly).

Any thougts appreciated!!!

Becky, son SCD since 11/06--- correctly 1/07

---------------------------------

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[Guest guest]

,

I just needed to say that I loved your Brillo analogy:

>So, here's my analogy: If I strip your skin off 5 or 6 times a day

with Brillo for three years (age Glenn was when we began " diet " ),

you are a horrible mess. However, if I DO NOT do that, and healing

occurs (diet, etc), then one or two swipes of Brillo probably won't

do too much damage...but continued applications of Brillo will.

I've always used the orthodontia analogy: I wore braces for 3 years to correct

the overbite I got from sucking my thumb for 9 years. My teeth look perfect

now, and if I start sucking my thumb occasionally, they will probably continue

to look perfect for some time. But give it another few years of sucking, and

I'm going to be handing another $5,000 to the orthodontist!

Mine is not as direct an analogy as yours (which is why I love yours), but it

does remind me that life " sucked " before SCD (:-) and I never want to be that

unhealthy again, even for real pizza and ice cream. I wish our kids on SCD

could be as rational about it, but pizza and ice cream are a lot bigger to a

life that's been much shorter.

Anyway, thanks for the new, easy analogy.

Nannette SCD 22 months for IBS

daughter, , SCD 22 months for autism and all the gut issues that go along

with it.