Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Hello dear group, I am writing once again to request some help on the SCD. Three of our four family members are on it: me (39 yo mother, 6.5 yo ds, and 2 yo dd). We have been doing the SCD since September 2006. In April I had my kids stools tested and found out that they both had a parasite/bacteria blastocystitis hominus as well as yeast problems. We have treated the former with Parex/Oil of Oregano. The yeast we are currently treating. My son formerly had many ASD symptoms including: aggression, headbanging, lack of empathy, poor eyecontact, ect. He is now doing wonderfully. However, we are eating a pathetically unvaried diet... For months now we have subsisted on: meats, fish, peeled, seeded and cooked zucchini, garlic, sourkraut juice, avacado, green beans, coconut oil, olive oil, very small amounts of banana and supplements. Recently I decided to try to remove the green beans and garlic as another SCDer said they often cause problems. We all improved. My son and daughter have been suffering from constipation - up to 6 days without a bm. Upon removing the green beans they both returned to every day or every other day. My son's behaviour improved and he told me that he felt better now when off the green beans - admitting this was big because guess what his favorite food has been: green beans! He has now gone 3 days again without a bm. I wonder what I can do to increase the frequency? Maybe I should return to the intro diet again since we have obviously goofed up with the green beans? Or am I too picky? I find it hard to know what to do! We would have to do the intro without the carrots. It would then be just chicken soup/beef broth soup and hamburgerpatties. If we return to the intro diet can we take supplements or should we cut those out too? We grill a great deal of our food under the broiler in the oven. It often ends up quite crispy and my son loves to eat the pork rinds after they get crispy. I wonder though if this might be a problem too? I am also concerned about the huge amounts of meat we are eating. I feel pretty desperate to add in other things but when we previously tried carrots, spinach, onions, sourkraut, and cauliflower we had problems with all of these. Cooked apples were also a problem. I would like to try to make the yogurt. The only goat milk I have found is at the supermarket and is homoginized and pasturized. Is it ok to use that? Otherwise I could try to make the coconut milk yogurt. Please, where is a recipe for coconut milk yogurt? Today my husband gave my son some dried fish snacks. His behavior was worse again tonight and I wonder if the dried fish is too harsh for the digestive system? I am taking olive leaf extract for my own yeast issues. Yesterday was the second day and I only took 1 capsule. I wonder though if the die- off could have caused the very ill feeling I got in the evening followed by diarhea and vomiting? I sure am grateful to be able to get help from you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Have you tried butternut or acorn squash? Cooked pears? Cooked tomatoes? Stuck Hello dear group, I am writing once again to request some help on the SCD. Three of our four family members are on it: me (39 yo mother, 6.5 yo ds, and 2 yo dd). We have been doing the SCD since September 2006. In April I had my kids stools tested and found out that they both had a parasite/bacteria blastocystitis hominus as well as yeast problems. We have treated the former with Parex/Oil of Oregano. The yeast we are currently treating. My son formerly had many ASD symptoms including: aggression, headbanging, lack of empathy, poor eyecontact, ect. He is now doing wonderfully. However, we are eating a pathetically unvaried diet... For months now we have subsisted on: meats, fish, peeled, seeded and cooked zucchini, garlic, sourkraut juice, avacado, green beans, coconut oil, olive oil, very small amounts of banana and supplements. Recently I decided to try to remove the green beans and garlic as another SCDer said they often cause problems. We all improved. My son and daughter have been suffering from constipation - up to 6 days without a bm. Upon removing the green beans they both returned to every day or every other day. My son's behaviour improved and he told me that he felt better now when off the green beans - admitting this was big because guess what his favorite food has been: green beans! He has now gone 3 days again without a bm. I wonder what I can do to increase the frequency? Maybe I should return to the intro diet again since we have obviously goofed up with the green beans? Or am I too picky? I find it hard to know what to do! We would have to do the intro without the carrots. It would then be just chicken soup/beef broth soup and hamburgerpatties. If we return to the intro diet can we take supplements or should we cut those out too? We grill a great deal of our food under the broiler in the oven. It often ends up quite crispy and my son loves to eat the pork rinds after they get crispy. I wonder though if this might be a problem too? I am also concerned about the huge amounts of meat we are eating. I feel pretty desperate to add in other things but when we previously tried carrots, spinach, onions, sourkraut, and cauliflower we had problems with all of these. Cooked apples were also a problem. I would like to try to make the yogurt. The only goat milk I have found is at the supermarket and is homoginized and pasturized. Is it ok to use that? Otherwise I could try to make the coconut milk yogurt. Please, where is a recipe for coconut milk yogurt? Today my husband gave my son some dried fish snacks. His behavior was worse again tonight and I wonder if the dried fish is too harsh for the digestive system? I am taking olive leaf extract for my own yeast issues. Yesterday was the second day and I only took 1 capsule. I wonder though if the die- off could have caused the very ill feeling I got in the evening followed by diarhea and vomiting? I sure am grateful to be able to get help from you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 > > Have you tried butternut or acorn squash? Cooked pears? Cooked tomatoes? > Hi! Thanks for the reply! Yes, we have tried these things since starting the scd. They all seemed to cause problems. It has been several months since trying them though... My dd prior to scd when eating banana would get super silly and act drunk, and now is able to eat many pieces of banana a day! So we have made progress. Maybe I should retry the foods you recommend. I get so scared to try new things as I hate to deal with the bad behaviour connected with not tolerating it. And I hate to feel lousy myself when I try things that bother me! Really appreciate the help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Parex/Oil of Oregano is insufficient to kill blastocystitis hominus. Have you had them retested? The rest of your story sounds like what we are experiencing -- no tolerance of legal carbs. What exactly happens to your kids when they eat the carbs? - happypeony1 wrote: Hello dear group, I am writing once again to request some help on the SCD. Three of our four family members are on it: me (39 yo mother, 6.5 yo ds, and 2 yo dd). We have been doing the SCD since September 2006. In April I had my kids stools tested and found out that they both had a parasite/bacteria blastocystitis hominus as well as yeast problems. We have treated the former with Parex/Oil of Oregano. The yeast we are currently treating. My son formerly had many ASD symptoms including: aggression, headbanging, lack of empathy, poor eyecontact, ect. He is now doing wonderfully. However, we are eating a pathetically unvaried diet... For months now we have subsisted on: meats, fish, peeled, seeded and cooked zucchini, garlic, sourkraut juice, avacado, green beans, coconut oil, olive oil, very small amounts of banana and supplements. Recently I decided to try to remove the green beans and garlic as another SCDer said they often cause problems. We all improved. My son and daughter have been suffering from constipation - up to 6 days without a bm. Upon removing the green beans they both returned to every day or every other day. My son's behaviour improved and he told me that he felt better now when off the green beans - admitting this was big because guess what his favorite food has been: green beans! He has now gone 3 days again without a bm. I wonder what I can do to increase the frequency? Maybe I should return to the intro diet again since we have obviously goofed up with the green beans? Or am I too picky? I find it hard to know what to do! We would have to do the intro without the carrots. It would then be just chicken soup/beef broth soup and hamburgerpatties. If we return to the intro diet can we take supplements or should we cut those out too? We grill a great deal of our food under the broiler in the oven. It often ends up quite crispy and my son loves to eat the pork rinds after they get crispy. I wonder though if this might be a problem too? I am also concerned about the huge amounts of meat we are eating. I feel pretty desperate to add in other things but when we previously tried carrots, spinach, onions, sourkraut, and cauliflower we had problems with all of these. Cooked apples were also a problem. I would like to try to make the yogurt. The only goat milk I have found is at the supermarket and is homoginized and pasturized. Is it ok to use that? Otherwise I could try to make the coconut milk yogurt. Please, where is a recipe for coconut milk yogurt? Today my husband gave my son some dried fish snacks. His behavior was worse again tonight and I wonder if the dried fish is too harsh for the digestive system? I am taking olive leaf extract for my own yeast issues. Yesterday was the second day and I only took 1 capsule. I wonder though if the die- off could have caused the very ill feeling I got in the evening followed by diarhea and vomiting? I sure am grateful to be able to get help from you all! --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Hello , No, I haven't retested the kids for blastocystitis hominus - it is expensive! What takes care of it if parex/oil of oregano doesn't? Do you know of any research on this where I can read more about it. I have tried to find research on the net in vain. I have however read that it is extremely difficult to get rid of. It would be wonderful if you could shed more light on this for us! Has your family also suffered from it? What has bee your experience? When we eat carbs: Me- I get really " up " at first- hyper, restless, hard to sleep, and then later get a bad headache, shoulders and neck and shoulders hurt and I get really tired, plus soft bms.DS (6.5 yrs) gets happy and hyper then gas and soft poops. He becomes annoying with lots of pestering, won't listen, argues, cries a lot. My dd (2 yrs) can first get hyper and doesn't want to nap or sleep at night, can be really jolly /drunklike. Then she doesn't want to be touched, dressed, won't cooperate, cries a lot, has fits, before SCD she would scratch her head til it bled when she got any carbs/sugars. Please tell me what has been your family's experience with carbs? How long have you been on SCD? Have you been doing yeast treatments? I will be most appreciative to hear about your experience! I need to figure this out!!! I am getting really desperate to expand our diet! I feel it is so unhealthy eating mostly meats... THANKYOU!!! > Hello dear group, > > I am writing once again to request some help on the SCD. Three of our > four family members are on it: me (39 yo mother, 6.5 yo ds, and 2 yo > dd). We have been doing the SCD since September 2006. In April I had > my kids stools tested and found out that they both had a > parasite/bacteria blastocystitis hominus as well as yeast problems. > We have treated the former with Parex/Oil of Oregano. The yeast we > are currently treating. My son formerly had many ASD symptoms > including: aggression, headbanging, lack of empathy, poor eyecontact, > ect. He is now doing wonderfully. However, we are eating a > pathetically unvaried diet... > > For months now we have subsisted on: meats, fish, peeled, seeded and > cooked zucchini, garlic, sourkraut juice, avacado, green beans, > coconut oil, olive oil, very small amounts of banana and supplements. > Recently I decided to try to remove the green beans and garlic as > another SCDer said they often cause problems. We all improved. My son > and daughter have been suffering from constipation - up to 6 days > without a bm. Upon removing the green beans they both returned to > every day or every other day. My son's behaviour improved and he told > me that he felt better now when off the green beans - admitting this > was big because guess what his favorite food has been: green beans! > > He has now gone 3 days again without a bm. I wonder what I can do to > increase the frequency? > > Maybe I should return to the intro diet again since we have obviously > goofed up with the green beans? Or am I too picky? I find it hard to > know what to do! We would have to do the intro without the carrots. > It would then be just chicken soup/beef broth soup and > hamburgerpatties. If we return to the intro diet can we take > supplements or should we cut those out too? > > We grill a great deal of our food under the broiler in the oven. It > often ends up quite crispy and my son loves to eat the pork rinds > after they get crispy. I wonder though if this might be a problem > too? I am also concerned about the huge amounts of meat we are > eating. I feel pretty desperate to add in other things but when we > previously tried carrots, spinach, onions, sourkraut, and cauliflower > we had problems with all of these. Cooked apples were also a problem. > > I would like to try to make the yogurt. The only goat milk I have > found is at the supermarket and is homoginized and pasturized. Is it > ok to use that? Otherwise I could try to make the coconut milk > yogurt. Please, where is a recipe for coconut milk yogurt? > > Today my husband gave my son some dried fish snacks. His behavior was > worse again tonight and I wonder if the dried fish is too harsh for > the digestive system? > > I am taking olive leaf extract for my own yeast issues. Yesterday was > the second day and I only took 1 capsule. I wonder though if the die- > off could have caused the very ill feeling I got in the evening > followed by diarhea and vomiting? > > I sure am grateful to be able to get help from you all! > > > > > > > > > --------------------------------- > Shape Yahoo! in your own image. Join our Network Research Panel today! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Hello again! I looked at the store today and the goat milk they sell is homogenized and ultrapasteurized. Is that ok to use to make the yogurt? THANKS! I am so determined now to get us moving on healing so we can eat more foods. All the best! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 > > Hello again! > > I looked at the store today and the goat milk they sell is homogenized > and ultrapasteurized. Is that ok to use to make the yogurt? > > THANKS! I am so determined now to get us moving on healing so we can > eat more foods. > > All the best! > > , That milk is fine b/c we have to bring it to 1890 degrees in the yogurt making process and thatwill pasteurize it. Carol F. SCD 7 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2007 Report Share Posted July 11, 2007 Hi , <<I am writing once again to request some help on the SCD. Three of our four family members are on it: me (39 yo mother, 6.5 yo ds, and 2 yo dd). We have been doing the SCD since September 2006. In April I had > my kids stools tested and found out that they both had a > parasite/bacteria blastocystitis hominus as well as yeast problems. > We have treated the former with Parex/Oil of Oregano. The yeast we > are currently treating.>> There is some info on B. hominus at http://www.badbugs.org/Blastocystis_hominis/bh_treatment2.htm It seems the B. hominus is pretty difficult to clear out. There is mention of diet (incl SCD) helping somewhat as carbs seem to feed it. <<My son formerly had many ASD symptoms > including: aggression, headbanging, lack of empathy, poor eyecontact, > ect. He is now doing wonderfully. However, we are eating a pathetically unvaried diet... > > For months now we have subsisted on: meats, fish, peeled, seeded and cooked zucchini, garlic, sourkraut juice, avacado, green beans, > coconut oil, olive oil, very small amounts of banana and supplements. > Recently I decided to try to remove the green beans and garlic as > another SCDer said they often cause problems. We all improved. My son > and daughter have been suffering from constipation - up to 6 days > without a bm. Upon removing the green beans they both returned to > every day or every other day. My son's behaviour improved and he told > me that he felt better now when off the green beans - admitting this > was big because guess what his favorite food has been: green beans! > He has now gone 3 days again without a bm. I wonder what I can do to > increase the frequency?>> Have you tried introducing nut flour baked goods? You could go with breads, biscuits, crackers etc instead of cakes and muffins (since you are treating for yeast also). <<Maybe I should return to the intro diet again since we have obviously > goofed up with the green beans? Or am I too picky? I find it hard to> know what to do! We would have to do the intro without the carrots. > It would then be just chicken soup/beef broth soup and > hamburgerpatties. If we return to the intro diet can we take > supplements or should we cut those out too?>> I am not sure that the intro will help much if the problem is still B. hominis. But, if you did redo the intro you could see what kind of difference banana, avocado and the sauerkraut juice makes - if they are tolerated or not. This link says that B. hominis feeds on bacteria - but I don't know if this would be true for bacteria in yogurt since they are encapsulated. http://www.badbugs.org/parasite/diet.htm# Thie link also has a list of foods that seem to be okay for B. hominis. You'd have to weed out the SCD illegals out of the list as well; also some of these foods are legal but advanced so try carefully. <<We grill a great deal of our food under the broiler in the oven. It > often ends up quite crispy and my son loves to eat the pork rinds > after they get crispy. I wonder though if this might be a problem > too?>> Does his symptoms worsen with this? << I am also concerned about the huge amounts of meat we are > eating. I feel pretty desperate to add in other things but when we > previously tried carrots, spinach, onions, sourkraut, and cauliflower > we had problems with all of these. Cooked apples were also a problem. >> Were the onions fried or boiled (as in a stew)? Were the carrots cooked a long time and pureed? Sauerkraut is made with cabbage which is an advanced food item. << would like to try to make the yogurt. The only goat milk I have > found is at the supermarket and is homoginized and pasturized. Is it > ok to use that?>> Yes, that is okay. <<Otherwise I could try to make the coconut milk > yogurt.>> << Please, where is a recipe for coconut milk yogurt?>> You could try substituting coconut for cashews in this recipe http://pecanbread.com/new/recipes/cashewyogurt.html > Today my husband gave my son some dried fish snacks. His behavior was > worse again tonight and I wonder if the dried fish is too harsh for > the digestive system?>> Was it smoked and dried? <<I am taking olive leaf extract for my own yeast issues. Yesterday was > the second day and I only took 1 capsule. I wonder though if the die-> off could have caused the very ill feeling I got in the evening > followed by diarhea and vomiting?>> It may be die off. Have you tried epsom salt baths and/or activated charcoal? Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2007 Report Share Posted July 11, 2007 Hi Sheila! Thank you for your in-depth and thoughtful response. > Have you tried introducing nut flour baked goods? You could go with > breads, biscuits, crackers etc instead of cakes and muffins (since > you are treating for yeast also). No, not since the first month on the diet. We can give those a try again. Thanks for the links - they were most helpful. I am now in touch with Jackie who maintains the site and she is going to give advice on the blasto. is also going to help. Hopefully we will figure something out. I am still cautiously hopeful that we can all kick this thing. > > <<We grill a great deal of our food under the broiler in the oven. It > > often ends up quite crispy and my son loves to eat the pork rinds > > after they get crispy. I wonder though if this might be a problem > > too?>> > > Does his symptoms worsen with this? I am not sure. That is the thing we are not certain what is making his symptoms worse. > Were the onions fried or boiled (as in a stew)? Were the carrots > cooked a long time and pureed? > Sauerkraut is made with cabbage which is an advanced food item. I think we mainly fried the onions. I guess the frying increases the starch... Ok, we should try just cooked onions. Can you saute them until they are soft but not browned? No, the carrots weren't cooked a long time, but they were soft. We didn't mash them. I am getting the picture. Maybe we prepared the foods improperly. I will try again! We have actually been making mush out of the children's soup with the hand held mixer lately as that is the only way Sebastian will eat soup. Maybe we should give only pureed food for a time and see how they do?! I tried to make the goat milk yogurt but think I made a mistake. I put the culture in when the temp was 100 degrees fareinheit. Also I only made 1 liter and put 1 and 1 1/2 cups of water into my yogurt maker. It was over 110 degrees fareinheit. So I wonder if since I only had 1 liter of yogurt maybe I should have omitted the water? I have a yogurmet machine. Thanks for the recipe for the coconut milk yogurt! I could also try with macadamia nuts maybe? > Was it smoked and dried? The fish was dried but not smoked. My die-off issues with the olive leaf extract are improving. I have been taking epsom salt/baking soda baths and occasionally using the activated charcoal. Thankyou so very much for your help!!! Ever so gratefully yours, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 Hi , > > <<We grill a great deal of our food under the broiler in the oven. > It > > > often ends up quite crispy and my son loves to eat the pork rinds > > > after they get crispy. I wonder though if this might be a problem > > > too?>> > > > > Does his symptoms worsen with this? > > I am not sure. That is the thing we are not certain what is making > his symptoms worse. Since you aren't sure what is making his symptoms worse it is probably best to redo the intro for a day or two and then readd foods one by one. That should give you a clearer picture of what is tolerated now. > > Were the onions fried or boiled (as in a stew)? Were the carrots > > cooked a long time and pureed? > > Sauerkraut is made with cabbage which is an advanced food item. <<I think we mainly fried the onions. I guess the frying increases the > starch... Ok, we should try just cooked onions. Can you saute them > until they are soft but not browned? No, the carrots weren't cooked a > long time, but they were soft. We didn't mash them. I am getting the > picture. Maybe we prepared the foods improperly. I will try again! We > have actually been making mush out of the children's soup with the > hand held mixer lately as that is the only way Sebastian will eat > soup. Maybe we should give only pureed food for a time and see how > they do?! >> The well cooked and pureed foods is a good idea. Try without onions and later add them to see if there is a change - some have trouble with onions. The onions will be easier to eat if boiled, fried is a little harder to digest and if you brown them it can carmelize the natural sugars - something he may not be ready for. <<I tried to make the goat milk yogurt but think I made a mistake. I > put the culture in when the temp was 100 degrees fareinheit. Also I > only made 1 liter and put 1 and 1 1/2 cups of water into my yogurt > maker. It was over 110 degrees fareinheit. So I wonder if since I > only had 1 liter of yogurt maybe I should have omitted the water? I > have a yogurmet machine. > > Thanks for the recipe for the coconut milk yogurt! I could also try > with macadamia nuts maybe?>> Yes to the macadamian nuts. << Was it smoked and dried? > The fish was dried but not smoked.>> There may have been something added or he just doesn't tolerate it right now. Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
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