son not drinking - worried

July 9, 2007

Hi

I was wondering if anyone has had an issue with their child not

wanting to drink when they start this diet. My son has been SCD for

2 1/2 weeks and is making miraculous progress, however he has

stopped drinking & forcing him to drink isn't really working. Pre-

scd he was drinking only water or goats milk, and was sometimes

drinking up to 1.5 litres of water a day. Now we would be getting

only a few mL's in per day! This has been the case pretty much from

day one when we stopped giving him the milk he loved so much. I

don't think it is a strike due to not getting what he wants,

although maybe it was to start with. Now he just pushes any drink

away and clamps his mouth shut & gets really distressed. We have

tried diluted grape juice, but he has never liked juice, so we had

no luck there either. He is still having wet nappies, due to the

fruit purees and soup, but it smells rather concentrated & of course

we are a bit worried. We are borrowing a juicer from my parents

today & will try other juices - any recommendations of the best ones

to try so early on in the diet? Any other tips or ideas would be

greatly appreciated.

Thanks again!

Nonni (Mum to 3 and Finn 1 SCD 2 1/2 weeks)

July 10, 2007

Hi Nonni!

Great that you are making such good progress on the diet! You ask about

getting more liquids into your child. I make water popsicles. My kids

love them. Some kids also like to suck and chew on ice cubes. You could

of course make these things from 1/2 juice and 1/2 water if your child

tolerates it. Jello is another way to increase liquid intake. Make it

the same as with the popsicles: 1/2 juice and 1/2 water.

Does your child like fizzy water? My kids love it! You could mix it

with juice to make it sweet.

Hope that this will help!

I also have slight problems with getting my 6 yr old to drink enough

water. He just prefers to eat but not drink... So I have to hand him

glasses of water throughout the day and insist on him drinking them.

Best of luck!

July 10, 2007

Hi ,

thanks so much for the tips! I have just made some pineapple

juice/water jello tonight, so fingers crossed he likes it, he didn't

take to it when I made it with grape juice . I'll also try the

fizzy water and see how that goes. Unfortunately we've never been

able to get him to have ice blocks etc - he is very sensitive to the

cold and won't eat it. Pity, cos that was a top idea! I guess we can

just keep trying these things in the hope one day he might take to

it eh?!

We've had a frantic day and I'm rather upset as we had to give him

goats milk as that was our last resort and he was getting puffy and

the doctor was worried about his kidneys & told us to give him

whatever it takes. Unfortunately that meant that tonight we had a

little boy crying for hours on end (so obviously he reacts to goats

milk - couldn't get a clearer picture of that!). Let's hope the

jello & fizzy water ideas work so we can get back on track.

So we've kinda mucked up our SCD journey for now, but we have seen

amazing results in this past 2.5 weeks, so I guess as disappointed

as I am, this is just a set back and once we get on top of the

drinking issue we can start over again.

Thanks again for your ideas!

Nonni

>

> Hi Nonni!

>

> Great that you are making such good progress on the diet! You ask

about

> getting more liquids into your child. I make water popsicles. My

kids

> love them. Some kids also like to suck and chew on ice cubes. You

could

> of course make these things from 1/2 juice and 1/2 water if your

child

> tolerates it. Jello is another way to increase liquid intake. Make

it

> the same as with the popsicles: 1/2 juice and 1/2 water.

>

> Does your child like fizzy water? My kids love it! You could mix

it

> with juice to make it sweet.

>

> Hope that this will help!

>

> I also have slight problems with getting my 6 yr old to drink

enough

> water. He just prefers to eat but not drink... So I have to hand

him

> glasses of water throughout the day and insist on him drinking

them.

>

> Best of luck!

>

July 11, 2007

Hi Nonni,

<<We've had a frantic day and I'm rather upset as we had to give him

> goats milk as that was our last resort and he was getting puffy and

> the doctor was worried about his kidneys & told us to give him

> whatever it takes. Unfortunately that meant that tonight we had a

> little boy crying for hours on end (so obviously he reacts to goats

> milk>>

How about goat milk yogurt smoothie (goat yogurt, fruit and/or honey

etc.)? Making the goat milk into SCD yogurt gets rid of the lactose

and changes the shape of the casein from the harder to digest 3-

dimensional milk protein to the easier to digest 2-dimensional milk

protein.

Another idea: homemade nut (almond, pecan etc..) milk.

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

July 15, 2007

Hi Sheila,

thank you for the ideas. We actually started almond milk on

Wednesday & he loves it - yay!! What a relief! We are planning on

trying the smoothies too, but we are just in the process of buying

the dehydrator/yogurt maker at the moment & I am a little worried

about the yogurt after the reaction he had to the milk last week.

Might try it with the nut yogurt recipe from the pecanbread website

first, until he's been scd for a bit longer. Or am I being

paranoid? Do you know if the benefits from the goat yogurt are the

same with nut yogurt, or is there something extra in the goats milk

which makes it the one to aim for?

We have been in the children's hospital this weekend and it seems

that he has a urinary tract infection (just when things were going

so well!) So at least we know why he hasn't been drinking and we

know it has nothing to do with the scd! His drinking is improving

and now we are investigating the cause of the infection. Hopefully

after this hiccup & now that we can get him to drink, we may have

smooth sailing for a while! )

Just as a btw...We saw our DAN doctor last week (before the reaction

to the milk)- he was the one who put us on to scd in the first place

& even he was amazed at our son's progress in such a short time

(I'll never forget the look on his face when our little boy

said " hello " to him!) I am just so grateful for this diet & to all

you wonderful people who are willing to help with a bit of advice -

thankyou so much!

Thanks again Sheila,

Nonni, Mum to and Finn (scd 3 weeks)

>

> Hi Nonni,

>

> <<We've had a frantic day and I'm rather upset as we had to give

him

> > goats milk as that was our last resort and he was getting puffy

and

> > the doctor was worried about his kidneys & told us to give him

> > whatever it takes. Unfortunately that meant that tonight we had

a

> > little boy crying for hours on end (so obviously he reacts to

goats

> > milk>>

>

> How about goat milk yogurt smoothie (goat yogurt, fruit and/or

honey

> etc.)? Making the goat milk into SCD yogurt gets rid of the

lactose

> and changes the shape of the casein from the harder to digest 3-

> dimensional milk protein to the easier to digest 2-dimensional

milk

> protein.

>

> Another idea: homemade nut (almond, pecan etc..) milk.

>

> Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

> mom of and

>

July 16, 2007

Hi Nonni,

<< thank you for the ideas. We actually started almond milk on

> Wednesday & he loves it - yay!! What a relief! We are planning on

> trying the smoothies too, but we are just in the process of buying

> the dehydrator/yogurt maker at the moment & I am a little worried

> about the yogurt after the reaction he had to the milk last week.

> Might try it with the nut yogurt recipe from the pecanbread website

> first, until he's been scd for a bit longer. Or am I being

> paranoid?>>

This may help alleviate your fears about the yogurt:

http://pecanbread.com/new/yogurt1.html#goatfaq

http://pecanbread.com/new/yogurt1.html#goatcow

<<Do you know if the benefits from the goat yogurt are the

> same with nut yogurt, or is there something extra in the goats milk

> which makes it the one to aim for? >>

Nut yogurt will have good bacteria but the good bacteria in dairy

(goat, cow etc..) are encapsulated by the milk proteins and can

travel farther in the body and do more healing.

<<We saw our DAN doctor last week (before the reaction

> to the milk)- he was the one who put us on to scd in the first

place > & even he was amazed at our son's progress in such a short

time > (I'll never forget the look on his face when our little boy

> said " hello " to him!)>>

Very cool! I am glad to hear he is already improving

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

July 18, 2007

The best information I can give you is this: 2 1/2 weeks is a very short time.

If he is eating soup, I wouldn't worry much. I'm sure he will go back to

drinking water again, just keep offering it.

Two things are in play here. One is that when we take out the milk we also

take out the sense-dulling opiods caused by casein. All of a sudden, your son

is not only tasting the food, but feeling it and smelling it too. For some

kids, ones who already have sensory issues, this is a little confusing, even

scary. It takes a few weeks for them to realize that these sensations will not

hurt them.

The other thing is more sad, but still true. Gut trouble hurts. Opiods are

pain killers. So when we take them out of the diet, our true feelings of

discomfort are felt. When I first went on SCD this was a real eye opener to me.

After a few weeks I started feeling better than I had felt in year (unless I

accidentally got some sugar or starch. Then, my goodness did it hurt!), but in

the begining I felt crummy. I can imagine that your son may feel pain in his

throat or belly when he drinks fluids. It won't last long and since he's

getting soup, I wouldn't be alarmed. The only step I think I'd take is in

giving him some diluted grape juice, frozen into a popcycle. The cold might

feel nice.

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