Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 Guys, I have some information that might help some of your kids, I noticed that some of you are scrambling for proof to take to your doctors to have your autistic children checked for Pancreatic Insufficiency. Here is the name of the doctor who now realizes that MOST ASD CHILDREN have PANCREATIC INSUFFICIENCY....if it is obvious he will not even test them any more. THIS test is very painful and has to be done under anesthesia. He said that this explains why their poop stinks so bad~ Explaining why they ferment carbs foods...and putrefy proteins and fats. NOW THAT is a vicious cycle~ This explaining the bad gut flora many of us who are ASD have. He is the one who diagnosed our autistic daughter and now treats her. We have to drive a ways, but well worth it~! Here is his name: Theodore H. Stathos M.D., 9224 Teddy Lane Suite 200, Lone Tree, Co 80124 Phone: HE was recommended to us by the AUTISM SOCIETY OF COLORADO. HE IS WONDERFUL~! Might be worth a flight, a care drive...or maybe one your doctors could consult with him. HE knows his stuff for these autistic kids, and understands why so many have slow growth, and are not fairing well with different foods, and have symptoms that are related to gut disbiosis (bad gut bugs). Along with the SCD solution he has been a God send to my family~ He has never told us to eat any other way, and respects the diet. I don't know if he promotes it...I don't know if he understands it that well. But he certainly did not argue it~! My daughter almost ended up on a G-tube folks...thanks to him she is not~ I asked him if I could refer him in such a way and he said that it is more than fine. He is helping me to write an article as we speak~ Good luck guys. Antoinette and family of Five Silly Yaks (SCD 2/06) (List of family problems we cam with: IBD, IBS, CD, Pancreatic insufficiency, Malabsorption, Candida, Bad Gut Flora, Leaky Gut, Food Intolerances, Allergies, Heavy Metals, ADHD, Autism/PDD, Seizures, Sensory Integration Dysfunction, Mental Illness, Slow Growth, Hyperekplexia and more....SCD has helped all of us!) " Be the change you want to see in the world " Mohandas Gandhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 Antoinette, Does he recommend a certain type of prescription pancreatic supplement or does he use over the counter supplements. I' just curious to see what the treatment protocol involves. Thanks, a > > Guys, I have some information that might help some of your kids, > > I noticed that some of you are scrambling for proof to take to your doctors to have your autistic children checked for Pancreatic Insufficiency. > > Here is the name of the doctor who now realizes that MOST ASD CHILDREN have PANCREATIC INSUFFICIENCY....if it is obvious he will not even test them any more. THIS test is very painful and has to be done under anesthesia. He said that this explains why their poop stinks so bad~ Explaining why they ferment carbs foods...and putrefy proteins and fats. NOW THAT is a vicious cycle~ This explaining the bad gut flora many of us who are ASD have. He is the one who diagnosed our autistic daughter and now treats her. We have to drive a ways, but well worth it~! > > Here is his name: > > Theodore H. Stathos M.D., 9224 Teddy Lane Suite 200, Lone Tree, Co 80124 Phone: > > HE was recommended to us by the AUTISM SOCIETY OF COLORADO. HE IS WONDERFUL~! Might be worth a flight, a care drive...or maybe one your doctors could consult with him. > > HE knows his stuff for these autistic kids, and understands why so many have slow growth, and are not fairing well with different foods, and have symptoms that are related to gut disbiosis (bad gut bugs). Along with the SCD solution he has been a God send to my family~ He has never told us to eat any other way, and respects the diet. I don't know if he promotes it...I don't know if he understands it that well. But he certainly did not argue it~! My daughter almost ended up on a G-tube folks...thanks to him she is not~ > > I asked him if I could refer him in such a way and he said that it is more than fine. He is helping me to write an article as we speak~ > > Good luck guys. > > Antoinette and family of Five Silly Yaks (SCD 2/06) > > (List of family problems we cam with: IBD, IBS, CD, Pancreatic insufficiency, Malabsorption, Candida, Bad Gut Flora, Leaky Gut, Food Intolerances, Allergies, Heavy Metals, ADHD, Autism/PDD, Seizures, Sensory Integration Dysfunction, Mental Illness, Slow Growth, Hyperekplexia and more....SCD has helped all of us!) > > " Be the change you want to see in the world " Mohandas Gandhi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 Antoinette, Does he recommend a certain type of prescription pancreatic supplement or does he use over the counter supplements. I' just curious to see what the treatment protocol involves. Thanks, a > > Guys, I have some information that might help some of your kids, > > I noticed that some of you are scrambling for proof to take to your doctors to have your autistic children checked for Pancreatic Insufficiency. > > Here is the name of the doctor who now realizes that MOST ASD CHILDREN have PANCREATIC INSUFFICIENCY....if it is obvious he will not even test them any more. THIS test is very painful and has to be done under anesthesia. He said that this explains why their poop stinks so bad~ Explaining why they ferment carbs foods...and putrefy proteins and fats. NOW THAT is a vicious cycle~ This explaining the bad gut flora many of us who are ASD have. He is the one who diagnosed our autistic daughter and now treats her. We have to drive a ways, but well worth it~! > > Here is his name: > > Theodore H. Stathos M.D., 9224 Teddy Lane Suite 200, Lone Tree, Co 80124 Phone: > > HE was recommended to us by the AUTISM SOCIETY OF COLORADO. HE IS WONDERFUL~! Might be worth a flight, a care drive...or maybe one your doctors could consult with him. > > HE knows his stuff for these autistic kids, and understands why so many have slow growth, and are not fairing well with different foods, and have symptoms that are related to gut disbiosis (bad gut bugs). Along with the SCD solution he has been a God send to my family~ He has never told us to eat any other way, and respects the diet. I don't know if he promotes it...I don't know if he understands it that well. But he certainly did not argue it~! My daughter almost ended up on a G-tube folks...thanks to him she is not~ > > I asked him if I could refer him in such a way and he said that it is more than fine. He is helping me to write an article as we speak~ > > Good luck guys. > > Antoinette and family of Five Silly Yaks (SCD 2/06) > > (List of family problems we cam with: IBD, IBS, CD, Pancreatic insufficiency, Malabsorption, Candida, Bad Gut Flora, Leaky Gut, Food Intolerances, Allergies, Heavy Metals, ADHD, Autism/PDD, Seizures, Sensory Integration Dysfunction, Mental Illness, Slow Growth, Hyperekplexia and more....SCD has helped all of us!) > > " Be the change you want to see in the world " Mohandas Gandhi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Dr. Stathos prescribes the pancreatic enzymes because they are much better for irritated tummies. The over the counter ones open in the stomach. If they touch the mucosa of the mouth they can burn...and the stomach is not where enzyme action naturally occurs. They can be very irritating for some of us. If you can persuade a doctor to do so, I would try the Creon or Ultrase first. They come in different sizes, for different size people and different problems. It might be more wise to see a GI doctor who will comply. The Autism Society in your area might be able to direct you to one. That is how we found ours. He has been such a blessing. He knows that these ASD kids are biomedicaly sick~ After being taken orraly, the prescription strength enzymes open in the duodenum/small intestines. These capsules are full of tiny micro capsules that pass through the stomach and open where enzymatic digestion happens and the body can deal with the protease better. All protease containing enzymes should not be taken if The person has ulcerations. The thing is, how many of us know the condition of our children's guts? Over a year ago the powder/over the counter ones backed fired on us. They caused severe distress and a hospital stay. It could have been because of her IBD/ ulcerations/ erosion...or it could have been the powders disagreeing with her. WE do not know. Regardless, I was told by Lucy R (from Lucy's Kitchen/she said that it is OK for me to quote her) that " Elaine feared the protease " in these enzymes. We need to be careful and listen to our children carefully when starting these without a doctor helping us. Some have success with Houston, Kirkman and Enzymatica. All three have SCD compliant ones. www.pecanbread.com<http://www.pecanbread.com/> has a list of legal supplements. But all three come with a warning not to take if you have ulcerations. So assuming your child does not have IBD or ulcerations, you could try and see. With any of them we are told to build up to the desired dosage slowly. They can cause " die off " and the body is not use to getting the nutrients it needs, so this in itself causes some adverse " transitioning " symptoms. The slower you go the easier it is. BURNING should not be a symptom. These enzymes help to starve out all the bad gut bugs....because there is less for the bad gut bugs to digest...because the enzymes are making the food more available for the body to absorb. They should not be digesting a already damaged gut lining, which would indicate burning. Enzymes are great for those of us who don't digest proteins and fats...the putrefy the nastiest resistant gut bugs....that release toxins that create some ASD issues. Next to fanatical SCD prescription enzymes where our biggest blessing. SCD helped our daughter greatly, but she had some protein eating bad gut bugs...SCD could not starve them out. Short of starving our daughter...nothing would have got rid of them. Our daughter's pancreatic insufficiency caused her to not be able to break down fats and proteins too...the bad gut bugs that result had a hay day~ With enzymes she has started to talk better...she is not as " foggy " or sleepy. As wonderful as SCD is, it only starves out the carbohydrate eating gut bugs, not the protein and fat putrefying ones. A CDSA showed that our daughter had some bad gut bugs that the SCDiet could not handle...prescriptions and supplements where never a permanent solution.....they always came back. Enzymes took care of this...but her " die off " was not pleasant. Her EGD and biopsy and CDSA are normal now. And my once screaming and un-talkative autistic daughter is now talking all the time...we joke that she is turning Asberger...we can not shut her up. LOL And this is just fine with us~ Better than what we started with... " moderately severe autism " deliriums and no talking. God Bless your healing journey~ Antoinette and family of Five Silly Yaks (SCD 2/06) Quote Link to comment Share on other sites More sharing options...
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