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Without getting into too much detail I wanted to say one thing:

Mimi, had said, " Antoinette's children seem to have classical mitochondrial

disease rather than MtD. I do not know enough about Antoinette's family's

medical situation to give any type of recommendation. Please understand that I

am only discussing MtD and

not classical mitochondrial diseases. Classical mitochondrial disease might need

special medical attention. "

I would like to add...that SCD works when the pancreatic insufficiency is not

detected. It is a monosaccharide diet, and this by nature makes it easy to

digest for a ASD child. You see, Dr. Stathos and many " up on it " GI doctors now

realize that most ASD children have pancreatic insufficiency. This causes even

some of the bad gut bugs...that SCD can not starve out...caused by putrefying

and undigested proteins and fats. Many ASD kids have this too. MtD can be the

cause for pancreatic dysfunction.

Mitochondrial disease is very complex. There are over forty known diseases.

Some are hereditary, some caused by toxins and insult...and some caused by both.

It is not as simple as " classical and un classical types. THey can affect any

part of the body. www.umdf.org<http://www.umdf.org/> will tell you more. Some

are sicker than others....some can live a life time (like me) suffer...but never

know they have it.

I completely agree with Mimi in that some forms of Mtd are caused by

environmental toxins. She said: " MtD is likely precipitated by environmental

toxins, and could contribute to a number of diagnostic symptoms and

comorbidities observed in autism including: cognitive impairment, language

deficits, abnormal energy metabolism, chronic gastrointestinal problems,

abnormalities in fatty acid oxidation, and increased oxidative stress. "

Among other things that go alone with BAD gut bugs...and heavy metals...that

result when the intestines are damaged and digestion is altered by mitochondrial

disease. They are still trying to figure out why this happens. It could be

genetic predisposition. Since obviously not all children end up with the type

of Mtd that causes autism.

To mitochondrial specialist...any of it " classical or not " is a medical

condition. Autism is just a very sad symptom...no longer looked at as " the

diagnosis " once a child is detected with any form of MtD. All these kids need

medical attention, regardless of the cause for mitochondrial dysfunction and

damage. It is just going to be time before the medical community catches up.

SCD is a God send until then! It allows our undiagnosed children to digest

foods that would ferment otherwise...and make the vicious cycle worse.

We are waiting to find out which MtD our autistic daughter has. Thank God SCD

healed her gut and got rid of her gut bugs! Now to discover... " where do we go

now " ...Guns and Roses. SCD is always there if we need to fall back on it....we

are truly pioneers...no one has gone before us.

SCD no doubt and undeniably saved our daughter when we did not know the bases of

her autism. But now that we have healed with fanatical SCD her intestines have

proven to be recovered and CDSA shows no bad gut bugs...and she is now being

medically treated with prescription enzymes and will be given " mito cocktail "

soon....with new diagnosis...and new techonology...it is time to move on.

Elaine never said that SCD had to be for life...but without this diagnosis of

MtD she surely would have had to eat it for life.

BUT, Now that we are getting medical intervention, she might not have to. But

one thing is for certain...we will always be 85% SCD regardless... it is

healthier eating this way...no doubt!

My suggestion...and only suggestion....until an ASD child knows that this is

them......if you do not know that your child has MtD and has not yet healed

completely with fanatical SCD, and does not have medical intervention that

understands what is happening...please stay " fanatical " SCd. it is the only

thing that works. It saved her...before we had these new doctors.

Sincerely, Antoinette and the MtD silly yaks at the zooo.

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Hi Antoinette,

I am so behind here! I helped out with the ASA conference over the weekend &

one of my kids got really sick on Sunday, so I have only had time to glance at

your posts.

I am confused about the pancreatic insufficiency part. I understand the

implications if mito is the underlying cause, but isn't the simple solution to

the insufficiency a prescription enzyme? My kids are awaiting results of the PI

test, which is why I wonder. I also didn't understand where you said at the

beginning of the post that SCD won't help with gut bugs if there is PI, then at

the bottom you said that SCD got rid of the gut bugs. Can you explain this a

little more?

I asked a metabolic specialist to test for mito last year and he said the

tests were normal. How do I know the proper tests were run? I don't want to do

a muscle biopsy unless it is really warranted.

-

Bunce wrote:

Without getting into too much detail I wanted to say one thing:

Mimi, had said, " Antoinette's children seem to have classical mitochondrial

disease rather than MtD. I do not know enough about Antoinette's family's

medical situation to give any type of recommendation. Please understand that I

am only discussing MtD and

not classical mitochondrial diseases. Classical mitochondrial disease might need

special medical attention. "

I would like to add...that SCD works when the pancreatic insufficiency is not

detected. It is a monosaccharide diet, and this by nature makes it easy to

digest for a ASD child. You see, Dr. Stathos and many " up on it " GI doctors now

realize that most ASD children have pancreatic insufficiency. This causes even

some of the bad gut bugs...that SCD can not starve out...caused by putrefying

and undigested proteins and fats. Many ASD kids have this too. MtD can be the

cause for pancreatic dysfunction.

Mitochondrial disease is very complex. There are over forty known diseases. Some

are hereditary, some caused by toxins and insult...and some caused by both. It

is not as simple as " classical and un classical types. THey can affect any part

of the body. www.umdf.org<http://www.umdf.org/> will tell you more. Some are

sicker than others....some can live a life time (like me) suffer...but never

know they have it.

I completely agree with Mimi in that some forms of Mtd are caused by

environmental toxins. She said: " MtD is likely precipitated by environmental

toxins, and could contribute to a number of diagnostic symptoms and

comorbidities observed in autism including: cognitive impairment, language

deficits, abnormal energy metabolism, chronic gastrointestinal problems,

abnormalities in fatty acid oxidation, and increased oxidative stress. "

Among other things that go alone with BAD gut bugs...and heavy metals...that

result when the intestines are damaged and digestion is altered by mitochondrial

disease. They are still trying to figure out why this happens. It could be

genetic predisposition. Since obviously not all children end up with the type of

Mtd that causes autism.

To mitochondrial specialist...any of it " classical or not " is a medical

condition. Autism is just a very sad symptom...no longer looked at as " the

diagnosis " once a child is detected with any form of MtD. All these kids need

medical attention, regardless of the cause for mitochondrial dysfunction and

damage. It is just going to be time before the medical community catches up. SCD

is a God send until then! It allows our undiagnosed children to digest foods

that would ferment otherwise...and make the vicious cycle worse.

We are waiting to find out which MtD our autistic daughter has. Thank God SCD

healed her gut and got rid of her gut bugs! Now to discover... " where do we go

now " ...Guns and Roses. SCD is always there if we need to fall back on it....we

are truly pioneers...no one has gone before us.

SCD no doubt and undeniably saved our daughter when we did not know the bases of

her autism. But now that we have healed with fanatical SCD her intestines have

proven to be recovered and CDSA shows no bad gut bugs...and she is now being

medically treated with prescription enzymes and will be given " mito cocktail "

soon....with new diagnosis...and new techonology...it is time to move on.

Elaine never said that SCD had to be for life...but without this diagnosis of

MtD she surely would have had to eat it for life.

BUT, Now that we are getting medical intervention, she might not have to. But

one thing is for certain...we will always be 85% SCD regardless... it is

healthier eating this way...no doubt!

My suggestion...and only suggestion....until an ASD child knows that this is

them......if you do not know that your child has MtD and has not yet healed

completely with fanatical SCD, and does not have medical intervention that

understands what is happening...please stay " fanatical " SCd. it is the only

thing that works. It saved her...before we had these new doctors.

Sincerely, Antoinette and the MtD silly yaks at the zooo.

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Posted
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HI ,

The only way to test for mitochondrial diseases accurately is to do a muscle

biopsy, arterial blood draws and spinal tap. It can not be done by just

anyone...these tests are so advanced that there are only six in the country that

know how to do them accurately. I am sorry...for us mom's this is not

cool....but for us we had to finally give in and do it.

The other tests miss many of these conditions. Many reasons to why...to many to

mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

They know to test for all FORTY, plus look into mitochondrial problems that are

not classical in origin. You truly do not know if your child doesn't have this

if they where not the ones testing. Sadly to say...there have even been

children that have to have a second muscle biopsy because home town doctors did

not do them right!

THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

With PI a child does not digest foods properly. A child can be " allergic " or

" intolerant " to lots of things...the gut gets full of bad gut bugs...of every

kind and variety...causing ASD symptoms. They can not digest Carbohydrates,

FATS and Proteins...the ferment...they putrefy....a mess....LPS causes havoc on

the body....a true " vicious cycle " . My daughter once was " allergic " to food.

AS you know Foods are made up of Carbohydrates, Fats and proteins.

a.. SCDIET deals with the carbohydrate problem excellently! It is all

monosaccharide...making it easy for a child with PI to be able to handle foods

better, because very little needs to be done to the food to absorb it. Although

harder to digest SCD foods will remain a problem, even after significant time on

" fanatical " SCD. (THIS is a RED FLAG that a child has PI!)

b.. SCD does not help with putrefying proteins and fats that are not digested.

It does not restrict them (nor should it, the developing child/human body needs

them ). Yet with PI, some of the bad gut bugs that result from putrefying

proteins can not be starved out by eating the monosaccharide....they do not

thrive on carbohydrates.....they EAT PROTEINS And FATS that are left behind in

the gut thanks to PI. Keeping a vicious cycle of another variety

alive...causing some of the remaining issues of ASD. Even Elaine knew that some

bad gut bugs could not be starved out by SCD alone.

c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

This causes " food jags " ...and pain when a child eats things that they can not

digest.......constipation....diarrhea......making some of the strange food jags

they kids have. I call it " self preservation " ....eventhough it drives us

parents crazy. With proper treatment...a ASD child can learn to be able to

trust foods better and can EAT everything on the SCDiet! Takes time...but she

is now learning to TRUST food.

So.....SCD is going to help....but not completely when a child has PI.

***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE BATTLE!

The results to just ending this...where amazing. Her seizures stopped....and

her deliriums stopped.....so much more. Mimi, is finding out that this is

related to LPS. You see...when the bad gut bugs ferment...they ferment LPS that

can cause autistic symptoms...among other things.

WE had grand success with SCD.....this is why....but she still was not digesting

fats and proteins.....therefore explaining the remaining problems we have with

SCD. She never was able to advanced to harder to digest SCD foods either. I

thought I was doing SCD wrong....this is when I turned to be a SCD

" fanatic " .....after 17 months of SCD fanatic...she still could not digest a raw

carrot....her poops remained to stink...and there was undigested fats and

proteins. A gross icky stench...a vomitous poopy smell. We decided to look

into this. This is when Dr. Stathos here in Denver discovered her PI (worth a

flight...if you can not find a GI doctor near that knows this). With

prescription strength and very powerful enzymes she now can digest all of her

food better. It ends up that her pancreas was only doing 70% of it's job. She

is taking the same enzymes as a Cystic Fibrosis child and now having her second

level of success!

Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

parents start to feed their child " Vegan " alternatives (to control the

symptoms)....the last thing a child needs to grow healthy and well! Or throw in

the towel on SCd...saying it " will not work " .

When treated properly....PI is no longer a problem. When it originates from

mitochondrial disease...the mitochondrial disease truly needs to be addressed

too. Beware of simple tests that claim that a child does not have PI or Mito.

PI has to be accurately accessed with anesthesia and testing of the pancreas

(unless you can find a doctor that is willing to just treat the child " as if "

and when they improve...they know what it is!) .

Last note: None of these test can be done by a typical doctor. ONLY a GI

specialist that knows about PI and autism and a mito specialist that knows all

forty conditions can truly help your child, if they have this. Call your AUTISM

SOCIETY for referrals for good GI doc....go to

www.umdf.org<http://www.umdf.org/> To find a mito specialist.

" The important thing is never to stop questioning. "

-Albert Einstein

Sincerely and God bless your healing journey,

Antoinette and the zoo!

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Posted
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The prescription enzymes must be swallowed. I am wondering how I will get my

child to do this if he does have a problem with his pancreas. My 3 YO daughter

can swallow, but not my son. Our GI is doing autism research with the doctors

at the Thoughtful House, so she knows autism, but shouldn't any decent GI know

when to test for PI (you would think!)?

Also, you said that your daughter has a mito disese, but you don't yet know

which one. Which test is definitive for having one and which one tells you the

type?

-

Bunce wrote:

HI ,

The only way to test for mitochondrial diseases accurately is to do a muscle

biopsy, arterial blood draws and spinal tap. It can not be done by just

anyone...these tests are so advanced that there are only six in the country that

know how to do them accurately. I am sorry...for us mom's this is not

cool....but for us we had to finally give in and do it.

The other tests miss many of these conditions. Many reasons to why...to many to

mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best. They

know to test for all FORTY, plus look into mitochondrial problems that are not

classical in origin. You truly do not know if your child doesn't have this if

they where not the ones testing. Sadly to say...there have even been children

that have to have a second muscle biopsy because home town doctors did not do

them right!

THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

With PI a child does not digest foods properly. A child can be " allergic " or

" intolerant " to lots of things...the gut gets full of bad gut bugs...of every

kind and variety...causing ASD symptoms. They can not digest Carbohydrates, FATS

and Proteins...the ferment...they putrefy....a mess....LPS causes havoc on the

body....a true " vicious cycle " . My daughter once was " allergic " to food. AS you

know Foods are made up of Carbohydrates, Fats and proteins.

a.. SCDIET deals with the carbohydrate problem excellently! It is all

monosaccharide...making it easy for a child with PI to be able to handle foods

better, because very little needs to be done to the food to absorb it. Although

harder to digest SCD foods will remain a problem, even after significant time on

" fanatical " SCD. (THIS is a RED FLAG that a child has PI!)

b.. SCD does not help with putrefying proteins and fats that are not digested.

It does not restrict them (nor should it, the developing child/human body needs

them ). Yet with PI, some of the bad gut bugs that result from putrefying

proteins can not be starved out by eating the monosaccharide....they do not

thrive on carbohydrates.....they EAT PROTEINS And FATS that are left behind in

the gut thanks to PI. Keeping a vicious cycle of another variety alive...causing

some of the remaining issues of ASD. Even Elaine knew that some bad gut bugs

could not be starved out by SCD alone.

c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

This causes " food jags " ...and pain when a child eats things that they can not

digest.......constipation....diarrhea......making some of the strange food jags

they kids have. I call it " self preservation " ....eventhough it drives us parents

crazy. With proper treatment...a ASD child can learn to be able to trust foods

better and can EAT everything on the SCDiet! Takes time...but she is now

learning to TRUST food.

So.....SCD is going to help....but not completely when a child has PI.

***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE BATTLE!

The results to just ending this...where amazing. Her seizures stopped....and her

deliriums stopped.....so much more. Mimi, is finding out that this is related to

LPS. You see...when the bad gut bugs ferment...they ferment LPS that can cause

autistic symptoms...among other things.

WE had grand success with SCD.....this is why....but she still was not digesting

fats and proteins.....therefore explaining the remaining problems we have with

SCD. She never was able to advanced to harder to digest SCD foods either. I

thought I was doing SCD wrong....this is when I turned to be a SCD

" fanatic " .....after 17 months of SCD fanatic...she still could not digest a raw

carrot....her poops remained to stink...and there was undigested fats and

proteins. A gross icky stench...a vomitous poopy smell. We decided to look into

this. This is when Dr. Stathos here in Denver discovered her PI (worth a

flight...if you can not find a GI doctor near that knows this). With

prescription strength and very powerful enzymes she now can digest all of her

food better. It ends up that her pancreas was only doing 70% of it's job. She is

taking the same enzymes as a Cystic Fibrosis child and now having her second

level of success!

Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

parents start to feed their child " Vegan " alternatives (to control the

symptoms)....the last thing a child needs to grow healthy and well! Or throw in

the towel on SCd...saying it " will not work " .

When treated properly....PI is no longer a problem. When it originates from

mitochondrial disease...the mitochondrial disease truly needs to be addressed

too. Beware of simple tests that claim that a child does not have PI or Mito. PI

has to be accurately accessed with anesthesia and testing of the pancreas

(unless you can find a doctor that is willing to just treat the child " as if "

and when they improve...they know what it is!) .

Last note: None of these test can be done by a typical doctor. ONLY a GI

specialist that knows about PI and autism and a mito specialist that knows all

forty conditions can truly help your child, if they have this. Call your AUTISM

SOCIETY for referrals for good GI doc....go to

www.umdf.org<http://www.umdf.org/> To find a mito specialist.

" The important thing is never to stop questioning. "

-Albert Einstein

Sincerely and God bless your healing journey,

Antoinette and the zoo!

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Posted
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An afterthought question...

Whenever mito comes up on the more general lists, it always ends with a bunch

articles/quotes from doctors about how mercury causes mito damage and that's why

chelation is the answer. Is this your belief also?

-

Rob or Sunseri wrote:

The prescription enzymes must be swallowed. I am wondering how I will

get my child to do this if he does have a problem with his pancreas. My 3 YO

daughter can swallow, but not my son. Our GI is doing autism research with the

doctors at the Thoughtful House, so she knows autism, but shouldn't any decent

GI know when to test for PI (you would think!)?

Also, you said that your daughter has a mito disese, but you don't yet know

which one. Which test is definitive for having one and which one tells you the

type?

-

Bunce wrote:

HI ,

The only way to test for mitochondrial diseases accurately is to do a muscle

biopsy, arterial blood draws and spinal tap. It can not be done by just

anyone...these tests are so advanced that there are only six in the country that

know how to do them accurately. I am sorry...for us mom's this is not

cool....but for us we had to finally give in and do it.

The other tests miss many of these conditions. Many reasons to why...to many to

mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best. They

know to test for all FORTY, plus look into mitochondrial problems that are not

classical in origin. You truly do not know if your child doesn't have this if

they where not the ones testing. Sadly to say...there have even been children

that have to have a second muscle biopsy because home town doctors did not do

them right!

THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

With PI a child does not digest foods properly. A child can be " allergic " or

" intolerant " to lots of things...the gut gets full of bad gut bugs...of every

kind and variety...causing ASD symptoms. They can not digest Carbohydrates, FATS

and Proteins...the ferment...they putrefy....a mess....LPS causes havoc on the

body....a true " vicious cycle " . My daughter once was " allergic " to food. AS you

know Foods are made up of Carbohydrates, Fats and proteins.

a.. SCDIET deals with the carbohydrate problem excellently! It is all

monosaccharide...making it easy for a child with PI to be able to handle foods

better, because very little needs to be done to the food to absorb it. Although

harder to digest SCD foods will remain a problem, even after significant time on

" fanatical " SCD. (THIS is a RED FLAG that a child has PI!)

b.. SCD does not help with putrefying proteins and fats that are not digested.

It does not restrict them (nor should it, the developing child/human body needs

them ). Yet with PI, some of the bad gut bugs that result from putrefying

proteins can not be starved out by eating the monosaccharide....they do not

thrive on carbohydrates.....they EAT PROTEINS And FATS that are left behind in

the gut thanks to PI. Keeping a vicious cycle of another variety alive...causing

some of the remaining issues of ASD. Even Elaine knew that some bad gut bugs

could not be starved out by SCD alone.

c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

This causes " food jags " ...and pain when a child eats things that they can not

digest.......constipation....diarrhea......making some of the strange food jags

they kids have. I call it " self preservation " ....eventhough it drives us parents

crazy. With proper treatment...a ASD child can learn to be able to trust foods

better and can EAT everything on the SCDiet! Takes time...but she is now

learning to TRUST food.

So.....SCD is going to help....but not completely when a child has PI.

***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE BATTLE!

The results to just ending this...where amazing. Her seizures stopped....and her

deliriums stopped.....so much more. Mimi, is finding out that this is related to

LPS. You see...when the bad gut bugs ferment...they ferment LPS that can cause

autistic symptoms...among other things.

WE had grand success with SCD.....this is why....but she still was not digesting

fats and proteins.....therefore explaining the remaining problems we have with

SCD. She never was able to advanced to harder to digest SCD foods either. I

thought I was doing SCD wrong....this is when I turned to be a SCD

" fanatic " .....after 17 months of SCD fanatic...she still could not digest a raw

carrot....her poops remained to stink...and there was undigested fats and

proteins. A gross icky stench...a vomitous poopy smell. We decided to look into

this. This is when Dr. Stathos here in Denver discovered her PI (worth a

flight...if you can not find a GI doctor near that knows this). With

prescription strength and very powerful enzymes she now can digest all of her

food better. It ends up that her pancreas was only doing 70% of it's job. She is

taking the same enzymes as a Cystic Fibrosis child and now having her second

level of success!

Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

parents start to feed their child " Vegan " alternatives (to control the

symptoms)....the last thing a child needs to grow healthy and well! Or throw in

the towel on SCd...saying it " will not work " .

When treated properly....PI is no longer a problem. When it originates from

mitochondrial disease...the mitochondrial disease truly needs to be addressed

too. Beware of simple tests that claim that a child does not have PI or Mito. PI

has to be accurately accessed with anesthesia and testing of the pancreas

(unless you can find a doctor that is willing to just treat the child " as if "

and when they improve...they know what it is!) .

Last note: None of these test can be done by a typical doctor. ONLY a GI

specialist that knows about PI and autism and a mito specialist that knows all

forty conditions can truly help your child, if they have this. Call your AUTISM

SOCIETY for referrals for good GI doc....go to

www.umdf.org<http://www.umdf.org/> To find a mito specialist.

" The important thing is never to stop questioning. "

-Albert Einstein

Sincerely and God bless your healing journey,

Antoinette and the zoo!

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Posted
Posted

,

What about the Oralflo cup that is used to help those with swallowing disorders

or just an aversion to swallwing pills?

Meleah

Re: Re: Article on mitochondrial disease more info on

Kiki

The prescription enzymes must be swallowed. I am wondering how I will get my

child to do this if he does have a problem with his pancreas. My 3 YO daughter

can swallow, but not my son. Our GI is doing autism research with the doctors at

the Thoughtful House, so she knows autism, but shouldn't any decent GI know when

to test for PI (you would think!)?

Also, you said that your daughter has a mito disese, but you don't yet know

which one. Which test is definitive for having one and which one tells you the

type?

-

Bunce wrote:

HI ,

The only way to test for mitochondrial diseases accurately is to do a muscle

biopsy, arterial blood draws and spinal tap. It can not be done by just

anyone...these tests are so advanced that there are only six in the country that

know how to do them accurately. I am sorry...for us mom's this is not

cool....but for us we had to finally give in and do it.

The other tests miss many of these conditions. Many reasons to why...to many

to mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

They know to test for all FORTY, plus look into mitochondrial problems that are

not classical in origin. You truly do not know if your child doesn't have this

if they where not the ones testing. Sadly to say...there have even been children

that have to have a second muscle biopsy because home town doctors did not do

them right!

THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

With PI a child does not digest foods properly. A child can be " allergic " or

" intolerant " to lots of things...the gut gets full of bad gut bugs...of every

kind and variety...causing ASD symptoms. They can not digest Carbohydrates, FATS

and Proteins...the ferment...they putrefy....a mess....LPS causes havoc on the

body....a true " vicious cycle " . My daughter once was " allergic " to food. AS you

know Foods are made up of Carbohydrates, Fats and proteins.

a.. SCDIET deals with the carbohydrate problem excellently! It is all

monosaccharide...making it easy for a child with PI to be able to handle foods

better, because very little needs to be done to the food to absorb it. Although

harder to digest SCD foods will remain a problem, even after significant time on

" fanatical " SCD. (THIS is a RED FLAG that a child has PI!)

b.. SCD does not help with putrefying proteins and fats that are not digested.

It does not restrict them (nor should it, the developing child/human body needs

them ). Yet with PI, some of the bad gut bugs that result from putrefying

proteins can not be starved out by eating the monosaccharide....they do not

thrive on carbohydrates.....they EAT PROTEINS And FATS that are left behind in

the gut thanks to PI. Keeping a vicious cycle of another variety alive...causing

some of the remaining issues of ASD. Even Elaine knew that some bad gut bugs

could not be starved out by SCD alone.

c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

This causes " food jags " ...and pain when a child eats things that they can not

digest.......constipation....diarrhea......making some of the strange food jags

they kids have. I call it " self preservation " ....eventhough it drives us parents

crazy. With proper treatment...a ASD child can learn to be able to trust foods

better and can EAT everything on the SCDiet! Takes time...but she is now

learning to TRUST food.

So.....SCD is going to help....but not completely when a child has PI.

***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE

BATTLE! The results to just ending this...where amazing. Her seizures

stopped....and her deliriums stopped.....so much more. Mimi, is finding out that

this is related to LPS. You see...when the bad gut bugs ferment...they ferment

LPS that can cause autistic symptoms...among other things.

WE had grand success with SCD.....this is why....but she still was not

digesting fats and proteins.....therefore explaining the remaining problems we

have with SCD. She never was able to advanced to harder to digest SCD foods

either. I thought I was doing SCD wrong....this is when I turned to be a SCD

" fanatic " .....after 17 months of SCD fanatic...she still could not digest a raw

carrot....her poops remained to stink...and there was undigested fats and

proteins. A gross icky stench...a vomitous poopy smell. We decided to look into

this. This is when Dr. Stathos here in Denver discovered her PI (worth a

flight...if you can not find a GI doctor near that knows this). With

prescription strength and very powerful enzymes she now can digest all of her

food better. It ends up that her pancreas was only doing 70% of it's job. She is

taking the same enzymes as a Cystic Fibrosis child and now having her second

level of success!

Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

parents start to feed their child " Vegan " alternatives (to control the

symptoms)....the last thing a child needs to grow healthy and well! Or throw in

the towel on SCd...saying it " will not work " .

When treated properly....PI is no longer a problem. When it originates from

mitochondrial disease...the mitochondrial disease truly needs to be addressed

too. Beware of simple tests that claim that a child does not have PI or Mito. PI

has to be accurately accessed with anesthesia and testing of the pancreas

(unless you can find a doctor that is willing to just treat the child " as if "

and when they improve...they know what it is!) .

Last note: None of these test can be done by a typical doctor. ONLY a GI

specialist that knows about PI and autism and a mito specialist that knows all

forty conditions can truly help your child, if they have this. Call your AUTISM

SOCIETY for referrals for good GI doc....go to

www.umdf.org<http://www.umdf.org/> To find a mito specialist.

" The important thing is never to stop questioning. "

-Albert Einstein

Sincerely and God bless your healing journey,

Antoinette and the zoo!

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Posted

Hello Antoinette!

I've been reading your posts and have always found them very informative.

All this about MtD makes me a little nervous because I know it can be

something even more serious than we think. My little one has been ok on the diet

but I know there's something missing. I just don't know any more what to look

for since many problems seem to be the " root of Autism " (I know it's just a too

complicated condition to think in an " only one answer " for all our children).

Lately I have been reading about things that most doctors miss when evaluating

our kids, even DAN doctors, so, what to do?

About MtD, if I'm not wrong, one of the symptoms is that kids don't gain

weight easily, right?

My has always been the opposite, and she LOVES eating... is this a clear

reason to not worry about she having MtD? what else should I look for? I'm sorry

if my questions sound confusing... I am actually a little confused with all the

information my brain is processing right now... not to mention I have to write

this in a language that is not my native language.

I thank you sooooo very much for taking the time to answer my questions. You

are in my prayers and I know God is with you and all your family,

Blessings,

Ximena

's mom. 3.7 yo, PDD-NOS, SCD 5 months

Bunce wrote:

Without getting into too much detail I wanted to say one thing:

Mimi, had said, " Antoinette's children seem to have classical mitochondrial

disease rather than MtD. I do not know enough about Antoinette's family's

medical situation to give any type of recommendation. Please understand that I

am only discussing MtD and

not classical mitochondrial diseases. Classical mitochondrial disease might need

special medical attention. "

I would like to add...that SCD works when the pancreatic insufficiency is not

detected. It is a monosaccharide diet, and this by nature makes it easy to

digest for a ASD child. You see, Dr. Stathos and many " up on it " GI doctors now

realize that most ASD children have pancreatic insufficiency. This causes even

some of the bad gut bugs...that SCD can not starve out...caused by putrefying

and undigested proteins and fats. Many ASD kids have this too. MtD can be the

cause for pancreatic dysfunction.

Mitochondrial disease is very complex. There are over forty known diseases. Some

are hereditary, some caused by toxins and insult...and some caused by both. It

is not as simple as " classical and un classical types. THey can affect any part

of the body. www.umdf.org<http://www.umdf.org/> will tell you more. Some are

sicker than others....some can live a life time (like me) suffer...but never

know they have it.

I completely agree with Mimi in that some forms of Mtd are caused by

environmental toxins. She said: " MtD is likely precipitated by environmental

toxins, and could contribute to a number of diagnostic symptoms and

comorbidities observed in autism including: cognitive impairment, language

deficits, abnormal energy metabolism, chronic gastrointestinal problems,

abnormalities in fatty acid oxidation, and increased oxidative stress. "

Among other things that go alone with BAD gut bugs...and heavy metals...that

result when the intestines are damaged and digestion is altered by mitochondrial

disease. They are still trying to figure out why this happens. It could be

genetic predisposition. Since obviously not all children end up with the type of

Mtd that causes autism.

To mitochondrial specialist...any of it " classical or not " is a medical

condition. Autism is just a very sad symptom...no longer looked at as " the

diagnosis " once a child is detected with any form of MtD. All these kids need

medical attention, regardless of the cause for mitochondrial dysfunction and

damage. It is just going to be time before the medical community catches up. SCD

is a God send until then! It allows our undiagnosed children to digest foods

that would ferment otherwise...and make the vicious cycle worse.

We are waiting to find out which MtD our autistic daughter has. Thank God SCD

healed her gut and got rid of her gut bugs! Now to discover... " where do we go

now " ...Guns and Roses. SCD is always there if we need to fall back on it....we

are truly pioneers...no one has gone before us.

SCD no doubt and undeniably saved our daughter when we did not know the bases of

her autism. But now that we have healed with fanatical SCD her intestines have

proven to be recovered and CDSA shows no bad gut bugs...and she is now being

medically treated with prescription enzymes and will be given " mito cocktail "

soon....with new diagnosis...and new techonology...it is time to move on.

Elaine never said that SCD had to be for life...but without this diagnosis of

MtD she surely would have had to eat it for life.

BUT, Now that we are getting medical intervention, she might not have to. But

one thing is for certain...we will always be 85% SCD regardless... it is

healthier eating this way...no doubt!

My suggestion...and only suggestion....until an ASD child knows that this is

them......if you do not know that your child has MtD and has not yet healed

completely with fanatical SCD, and does not have medical intervention that

understands what is happening...please stay " fanatical " SCd. it is the only

thing that works. It saved her...before we had these new doctors.

Sincerely, Antoinette and the MtD silly yaks at the zooo.

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Posted

,

There is a relation between gut bugs and mercury. Mercury impairs the

digestive system, thus allowing pathogen overgrowth. The gut bugs then

emit bacterial toxins that impair detoxification. The bacterial toxins

then cause mitochondrial damage.

The most facsinating bacterial toxin is called LPS. There are many

research articles that show that LPS causes mitochondrial damage in

different parts of the body.

Tomorrow morning I will post research articles that will show that

bacterial toxins impair the mitochondria if list members ask for it.

Mimi

> An afterthought question...

>

> Whenever mito comes up on the more general lists, it always ends with a

> bunch articles/quotes from doctors about how mercury causes mito damage and

> that's why chelation is the answer. Is this your belief also?

>

> -

>

>

>

> Rob or Sunseri wrote:

> The prescription enzymes must be swallowed. I am wondering how I

> will get my child to do this if he does have a problem with his pancreas. My

> 3 YO daughter can swallow, but not my son. Our GI is doing autism research

> with the doctors at the Thoughtful House, so she knows autism, but shouldn't

> any decent GI know when to test for PI (you would think!)?

>

> Also, you said that your daughter has a mito disese, but you don't yet know

> which one. Which test is definitive for having one and which one tells you

> the type?

>

> -

>

> Bunce wrote:

> HI ,

>

> The only way to test for mitochondrial diseases accurately is to do a muscle

> biopsy, arterial blood draws and spinal tap. It can not be done by just

> anyone...these tests are so advanced that there are only six in the country

> that know how to do them accurately. I am sorry...for us mom's this is not

> cool....but for us we had to finally give in and do it.

>

> The other tests miss many of these conditions. Many reasons to why...to many

> to mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

>

> Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

> They know to test for all FORTY, plus look into mitochondrial problems that

> are not classical in origin. You truly do not know if your child doesn't

> have this if they where not the ones testing. Sadly to say...there have even

> been children that have to have a second muscle biopsy because home town

> doctors did not do them right!

>

> THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

>

> With PI a child does not digest foods properly. A child can be " allergic " or

> " intolerant " to lots of things...the gut gets full of bad gut bugs...of

> every kind and variety...causing ASD symptoms. They can not digest

> Carbohydrates, FATS and Proteins...the ferment...they putrefy....a

> mess....LPS causes havoc on the body....a true " vicious cycle " . My daughter

> once was " allergic " to food. AS you know Foods are made up of Carbohydrates,

> Fats and proteins.

>

> a.. SCDIET deals with the carbohydrate problem excellently! It is all

> monosaccharide...making it easy for a child with PI to be able to handle

> foods better, because very little needs to be done to the food to absorb it.

> Although harder to digest SCD foods will remain a problem, even after

> significant time on " fanatical " SCD. (THIS is a RED FLAG that a child has

> PI!)

> b.. SCD does not help with putrefying proteins and fats that are not

> digested. It does not restrict them (nor should it, the developing

> child/human body needs them ). Yet with PI, some of the bad gut bugs that

> result from putrefying proteins can not be starved out by eating the

> monosaccharide....they do not thrive on carbohydrates.....they EAT PROTEINS

> And FATS that are left behind in the gut thanks to PI. Keeping a vicious

> cycle of another variety alive...causing some of the remaining issues of

> ASD. Even Elaine knew that some bad gut bugs could not be starved out by SCD

> alone.

> c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

> This causes " food jags " ...and pain when a child eats things that they can

> not digest.......constipation....diarrhea......making some of the strange

> food jags they kids have. I call it " self preservation " ....eventhough it

> drives us parents crazy. With proper treatment...a ASD child can learn to be

> able to trust foods better and can EAT everything on the SCDiet! Takes

> time...but she is now learning to TRUST food.

> So.....SCD is going to help....but not completely when a child has PI.

>

> ***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE

> BATTLE! The results to just ending this...where amazing. Her seizures

> stopped....and her deliriums stopped.....so much more. Mimi, is finding out

> that this is related to LPS. You see...when the bad gut bugs ferment...they

> ferment LPS that can cause autistic symptoms...among other things.

>

> WE had grand success with SCD.....this is why....but she still was not

> digesting fats and proteins.....therefore explaining the remaining problems

> we have with SCD. She never was able to advanced to harder to digest SCD

> foods either. I thought I was doing SCD wrong....this is when I turned to be

> a SCD " fanatic " .....after 17 months of SCD fanatic...she still could not

> digest a raw carrot....her poops remained to stink...and there was

> undigested fats and proteins. A gross icky stench...a vomitous poopy smell.

> We decided to look into this. This is when Dr. Stathos here in Denver

> discovered her PI (worth a flight...if you can not find a GI doctor near

> that knows this). With prescription strength and very powerful enzymes she

> now can digest all of her food better. It ends up that her pancreas was only

> doing 70% of it's job. She is taking the same enzymes as a Cystic Fibrosis

> child and now having her second level of success!

>

> Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

> parents start to feed their child " Vegan " alternatives (to control the

> symptoms)....the last thing a child needs to grow healthy and well! Or throw

> in the towel on SCd...saying it " will not work " .

>

> When treated properly....PI is no longer a problem. When it originates from

> mitochondrial disease...the mitochondrial disease truly needs to be

> addressed too. Beware of simple tests that claim that a child does not have

> PI or Mito. PI has to be accurately accessed with anesthesia and testing of

> the pancreas (unless you can find a doctor that is willing to just treat the

> child " as if " and when they improve...they know what it is!) .

>

> Last note: None of these test can be done by a typical doctor. ONLY a GI

> specialist that knows about PI and autism and a mito specialist that knows

> all forty conditions can truly help your child, if they have this. Call your

> AUTISM SOCIETY for referrals for good GI doc....go to

> www.umdf.org<http://www.umdf.org/> To find a mito specialist.

>

> " The important thing is never to stop questioning. "

> -Albert Einstein

>

> Sincerely and God bless your healing journey,

> Antoinette and the zoo!

>

>

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Posted
Posted

Okay, a question about this...

For the explanation you gave, that would or could mean that SCD cures/improves

mito disease, yet Kiki is needing to come off SCD because she has mito. So if

Kiki has pancreatic insufficiency that is managed by her prescription enzymes

and SCD has killed off all the bugs, then why isn't the mito improving (or maybe

it is -- just not enough)?

I'm not bringing into question her individual treatment, just using it as an

example for the handful of us on the list who are having similar issues as Kiki!

The opposing theories on SCD/heavy metals/mito/immune system errors/auto-immune

conditions, etc. make my head spin! In the past year we have 2 different

nationally known doctors tell us the following...

university/mainstream doctor:

your child has a primary immune deficiency that is causing small bowel

overgrowth (plan of action: treat his immune system and his gut will heal)

MD turned alternative doctor:

your child's small bowel overgrowth is causing his immune deficiency (plan of

action: heal his gut and his immune system will function)

university/mainstream doctor:

your child's immune deficiency makes his body so overwhelmed that the

excretion of heavy metals has shut down (ie: treat his immune system and the

body will be ble to rid itself of metals)

MD turned alternative doctor:

heavy metals have suppressed your child's immune system (ie: remove the metals

and his immune system will function)

I could add to the confusion if I were to throw in what his GI doctor has

suggested, but that's probably not necessary! Now as we are in the process of

dx-ing (or ruling out) pancreatic insuffienciency and thinking about further

exploring mito (which was suggested last year), I am really going nuts over this

chicken/egg scenerio!!!

You know what I mean?

-

pecan post wrote:

,

There is a relation between gut bugs and mercury. Mercury impairs the

digestive system, thus allowing pathogen overgrowth. The gut bugs then

emit bacterial toxins that impair detoxification. The bacterial toxins

then cause mitochondrial damage.

The most facsinating bacterial toxin is called LPS. There are many

research articles that show that LPS causes mitochondrial damage in

different parts of the body.

Tomorrow morning I will post research articles that will show that

bacterial toxins impair the mitochondria if list members ask for it.

Mimi

> An afterthought question...

>

> Whenever mito comes up on the more general lists, it always ends with a

> bunch articles/quotes from doctors about how mercury causes mito damage and

> that's why chelation is the answer. Is this your belief also?

>

> -

>

>

>

> Rob or Sunseri wrote:

> The prescription enzymes must be swallowed. I am wondering how I

> will get my child to do this if he does have a problem with his pancreas. My

> 3 YO daughter can swallow, but not my son. Our GI is doing autism research

> with the doctors at the Thoughtful House, so she knows autism, but shouldn't

> any decent GI know when to test for PI (you would think!)?

>

> Also, you said that your daughter has a mito disese, but you don't yet know

> which one. Which test is definitive for having one and which one tells you

> the type?

>

> -

>

> Bunce wrote:

> HI ,

>

> The only way to test for mitochondrial diseases accurately is to do a muscle

> biopsy, arterial blood draws and spinal tap. It can not be done by just

> anyone...these tests are so advanced that there are only six in the country

> that know how to do them accurately. I am sorry...for us mom's this is not

> cool....but for us we had to finally give in and do it.

>

> The other tests miss many of these conditions. Many reasons to why...to many

> to mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

>

> Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

> They know to test for all FORTY, plus look into mitochondrial problems that

> are not classical in origin. You truly do not know if your child doesn't

> have this if they where not the ones testing. Sadly to say...there have even

> been children that have to have a second muscle biopsy because home town

> doctors did not do them right!

>

> THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

>

> With PI a child does not digest foods properly. A child can be " allergic " or

> " intolerant " to lots of things...the gut gets full of bad gut bugs...of

> every kind and variety...causing ASD symptoms. They can not digest

> Carbohydrates, FATS and Proteins...the ferment...they putrefy....a

> mess....LPS causes havoc on the body....a true " vicious cycle " . My daughter

> once was " allergic " to food. AS you know Foods are made up of Carbohydrates,

> Fats and proteins.

>

> a.. SCDIET deals with the carbohydrate problem excellently! It is all

> monosaccharide...making it easy for a child with PI to be able to handle

> foods better, because very little needs to be done to the food to absorb it.

> Although harder to digest SCD foods will remain a problem, even after

> significant time on " fanatical " SCD. (THIS is a RED FLAG that a child has

> PI!)

> b.. SCD does not help with putrefying proteins and fats that are not

> digested. It does not restrict them (nor should it, the developing

> child/human body needs them ). Yet with PI, some of the bad gut bugs that

> result from putrefying proteins can not be starved out by eating the

> monosaccharide....they do not thrive on carbohydrates.....they EAT PROTEINS

> And FATS that are left behind in the gut thanks to PI. Keeping a vicious

> cycle of another variety alive...causing some of the remaining issues of

> ASD. Even Elaine knew that some bad gut bugs could not be starved out by SCD

> alone.

> c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

> This causes " food jags " ...and pain when a child eats things that they can

> not digest.......constipation....diarrhea......making some of the strange

> food jags they kids have. I call it " self preservation " ....eventhough it

> drives us parents crazy. With proper treatment...a ASD child can learn to be

> able to trust foods better and can EAT everything on the SCDiet! Takes

> time...but she is now learning to TRUST food.

> So.....SCD is going to help....but not completely when a child has PI.

>

> ***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE

> BATTLE! The results to just ending this...where amazing. Her seizures

> stopped....and her deliriums stopped.....so much more. Mimi, is finding out

> that this is related to LPS. You see...when the bad gut bugs ferment...they

> ferment LPS that can cause autistic symptoms...among other things.

>

> WE had grand success with SCD.....this is why....but she still was not

> digesting fats and proteins.....therefore explaining the remaining problems

> we have with SCD. She never was able to advanced to harder to digest SCD

> foods either. I thought I was doing SCD wrong....this is when I turned to be

> a SCD " fanatic " .....after 17 months of SCD fanatic...she still could not

> digest a raw carrot....her poops remained to stink...and there was

> undigested fats and proteins. A gross icky stench...a vomitous poopy smell.

> We decided to look into this. This is when Dr. Stathos here in Denver

> discovered her PI (worth a flight...if you can not find a GI doctor near

> that knows this). With prescription strength and very powerful enzymes she

> now can digest all of her food better. It ends up that her pancreas was only

> doing 70% of it's job. She is taking the same enzymes as a Cystic Fibrosis

> child and now having her second level of success!

>

> Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

> parents start to feed their child " Vegan " alternatives (to control the

> symptoms)....the last thing a child needs to grow healthy and well! Or throw

> in the towel on SCd...saying it " will not work " .

>

> When treated properly....PI is no longer a problem. When it originates from

> mitochondrial disease...the mitochondrial disease truly needs to be

> addressed too. Beware of simple tests that claim that a child does not have

> PI or Mito. PI has to be accurately accessed with anesthesia and testing of

> the pancreas (unless you can find a doctor that is willing to just treat the

> child " as if " and when they improve...they know what it is!) .

>

> Last note: None of these test can be done by a typical doctor. ONLY a GI

> specialist that knows about PI and autism and a mito specialist that knows

> all forty conditions can truly help your child, if they have this. Call your

> AUTISM SOCIETY for referrals for good GI doc....go to

> www.umdf.org<http://www.umdf.org/> To find a mito specialist.

>

> " The important thing is never to stop questioning. "

> -Albert Einstein

>

> Sincerely and God bless your healing journey,

> Antoinette and the zoo!

>

>

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Posted
Posted

Mimi,

Forgive me for sounding so stupid but what causes the mercury build-up and what

can we do to prevent it from happening again? I know about the big debate over

mercury in immunizations, but are there other common sources that would cause a

harmful buildup?

Bonita

son - SCD maybe a month, Asperger's, ADHD,OCD, dyslexic problems,

Re: Re: Article on mitochondrial disease more info on

Kiki

,

There is a relation between gut bugs and mercury. Mercury impairs the

digestive system, thus allowing pathogen overgrowth. The gut bugs then

emit bacterial toxins that impair detoxification. The bacterial toxins

then cause mitochondrial damage.

The most facsinating bacterial toxin is called LPS. There are many

research articles that show that LPS causes mitochondrial damage in

different parts of the body.

Tomorrow morning I will post research articles that will show that

bacterial toxins impair the mitochondria if list members ask for it.

Mimi

> An afterthought question...

>

> Whenever mito comes up on the more general lists, it always ends with a

> bunch articles/quotes from doctors about how mercury causes mito damage and

> that's why chelation is the answer. Is this your belief also?

>

> -

>

>

>

> Rob or Sunseri wrote:

> The prescription enzymes must be swallowed. I am wondering how I

> will get my child to do this if he does have a problem with his pancreas. My

> 3 YO daughter can swallow, but not my son. Our GI is doing autism research

> with the doctors at the Thoughtful House, so she knows autism, but shouldn't

> any decent GI know when to test for PI (you would think!)?

>

> Also, you said that your daughter has a mito disese, but you don't yet know

> which one. Which test is definitive for having one and which one tells you

> the type?

>

> -

>

> Bunce wrote:

> HI ,

>

> The only way to test for mitochondrial diseases accurately is to do a muscle

> biopsy, arterial blood draws and spinal tap. It can not be done by just

> anyone...these tests are so advanced that there are only six in the country

> that know how to do them accurately. I am sorry...for us mom's this is not

> cool....but for us we had to finally give in and do it.

>

> The other tests miss many of these conditions. Many reasons to why...to many

> to mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

>

> Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

> They know to test for all FORTY, plus look into mitochondrial problems that

> are not classical in origin. You truly do not know if your child doesn't

> have this if they where not the ones testing. Sadly to say...there have even

> been children that have to have a second muscle biopsy because home town

> doctors did not do them right!

>

> THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

>

> With PI a child does not digest foods properly. A child can be " allergic " or

> " intolerant " to lots of things...the gut gets full of bad gut bugs...of

> every kind and variety...causing ASD symptoms. They can not digest

> Carbohydrates, FATS and Proteins...the ferment...they putrefy....a

> mess....LPS causes havoc on the body....a true " vicious cycle " . My daughter

> once was " allergic " to food. AS you know Foods are made up of Carbohydrates,

> Fats and proteins.

>

> a.. SCDIET deals with the carbohydrate problem excellently! It is all

> monosaccharide...making it easy for a child with PI to be able to handle

> foods better, because very little needs to be done to the food to absorb it.

> Although harder to digest SCD foods will remain a problem, even after

> significant time on " fanatical " SCD. (THIS is a RED FLAG that a child has

> PI!)

> b.. SCD does not help with putrefying proteins and fats that are not

> digested. It does not restrict them (nor should it, the developing

> child/human body needs them ). Yet with PI, some of the bad gut bugs that

> result from putrefying proteins can not be starved out by eating the

> monosaccharide....they do not thrive on carbohydrates.....they EAT PROTEINS

> And FATS that are left behind in the gut thanks to PI. Keeping a vicious

> cycle of another variety alive...causing some of the remaining issues of

> ASD. Even Elaine knew that some bad gut bugs could not be starved out by SCD

> alone.

> c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

> This causes " food jags " ...and pain when a child eats things that they can

> not digest.......constipation....diarrhea......making some of the strange

> food jags they kids have. I call it " self preservation " ....eventhough it

> drives us parents crazy. With proper treatment...a ASD child can learn to be

> able to trust foods better and can EAT everything on the SCDiet! Takes

> time...but she is now learning to TRUST food.

> So.....SCD is going to help....but not completely when a child has PI.

>

> ***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE

> BATTLE! The results to just ending this...where amazing. Her seizures

> stopped....and her deliriums stopped.....so much more. Mimi, is finding out

> that this is related to LPS. You see...when the bad gut bugs ferment...they

> ferment LPS that can cause autistic symptoms...among other things.

>

> WE had grand success with SCD.....this is why....but she still was not

> digesting fats and proteins.....therefore explaining the remaining problems

> we have with SCD. She never was able to advanced to harder to digest SCD

> foods either. I thought I was doing SCD wrong....this is when I turned to be

> a SCD " fanatic " .....after 17 months of SCD fanatic...she still could not

> digest a raw carrot....her poops remained to stink...and there was

> undigested fats and proteins. A gross icky stench...a vomitous poopy smell.

> We decided to look into this. This is when Dr. Stathos here in Denver

> discovered her PI (worth a flight...if you can not find a GI doctor near

> that knows this). With prescription strength and very powerful enzymes she

> now can digest all of her food better. It ends up that her pancreas was only

> doing 70% of it's job. She is taking the same enzymes as a Cystic Fibrosis

> child and now having her second level of success!

>

> Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

> parents start to feed their child " Vegan " alternatives (to control the

> symptoms)....the last thing a child needs to grow healthy and well! Or throw

> in the towel on SCd...saying it " will not work " .

>

> When treated properly....PI is no longer a problem. When it originates from

> mitochondrial disease...the mitochondrial disease truly needs to be

> addressed too. Beware of simple tests that claim that a child does not have

> PI or Mito. PI has to be accurately accessed with anesthesia and testing of

> the pancreas (unless you can find a doctor that is willing to just treat the

> child " as if " and when they improve...they know what it is!) .

>

> Last note: None of these test can be done by a typical doctor. ONLY a GI

> specialist that knows about PI and autism and a mito specialist that knows

> all forty conditions can truly help your child, if they have this. Call your

> AUTISM SOCIETY for referrals for good GI doc....go to

> www.umdf.org<http://www.umdf.org/> To find a mito specialist.

>

> " The important thing is never to stop questioning. "

> -Albert Einstein

>

> Sincerely and God bless your healing journey,

> Antoinette and the zoo!

>

>

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Posted
Posted

We tried that. The problem is that he doesn't really have an aversion to

swallowing pills, it's that he likes/loves to chew: fish oil caps, candex, s.

boulardii and a few mineral caps. So then when you try to get him to swallow,

he immediately chews it and if it tastes horrible he of course spits it out and

looks at you like " why did you put that horrible stuff in my yummy capsule? " We

can't seem to get past this preference of chewing the caps. Since he's willing

to chew some pretty wierd tasting capsules, he continues to think of capsules as

chewables.

-

robin wrote:

,

What about the Oralflo cup that is used to help those with swallowing disorders

or just an aversion to swallwing pills?

Meleah

Re: Re: Article on mitochondrial disease more info on Kiki

The prescription enzymes must be swallowed. I am wondering how I will get my

child to do this if he does have a problem with his pancreas. My 3 YO daughter

can swallow, but not my son. Our GI is doing autism research with the doctors at

the Thoughtful House, so she knows autism, but shouldn't any decent GI know when

to test for PI (you would think!)?

Also, you said that your daughter has a mito disese, but you don't yet know

which one. Which test is definitive for having one and which one tells you the

type?

-

Bunce wrote:

HI ,

The only way to test for mitochondrial diseases accurately is to do a muscle

biopsy, arterial blood draws and spinal tap. It can not be done by just

anyone...these tests are so advanced that there are only six in the country that

know how to do them accurately. I am sorry...for us mom's this is not

cool....but for us we had to finally give in and do it.

The other tests miss many of these conditions. Many reasons to why...to many to

mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best. They

know to test for all FORTY, plus look into mitochondrial problems that are not

classical in origin. You truly do not know if your child doesn't have this if

they where not the ones testing. Sadly to say...there have even been children

that have to have a second muscle biopsy because home town doctors did not do

them right!

THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

With PI a child does not digest foods properly. A child can be " allergic " or

" intolerant " to lots of things...the gut gets full of bad gut bugs...of every

kind and variety...causing ASD symptoms. They can not digest Carbohydrates, FATS

and Proteins...the ferment...they putrefy....a mess....LPS causes havoc on the

body....a true " vicious cycle " . My daughter once was " allergic " to food. AS you

know Foods are made up of Carbohydrates, Fats and proteins.

a.. SCDIET deals with the carbohydrate problem excellently! It is all

monosaccharide...making it easy for a child with PI to be able to handle foods

better, because very little needs to be done to the food to absorb it. Although

harder to digest SCD foods will remain a problem, even after significant time on

" fanatical " SCD. (THIS is a RED FLAG that a child has PI!)

b.. SCD does not help with putrefying proteins and fats that are not digested.

It does not restrict them (nor should it, the developing child/human body needs

them ). Yet with PI, some of the bad gut bugs that result from putrefying

proteins can not be starved out by eating the monosaccharide....they do not

thrive on carbohydrates.....they EAT PROTEINS And FATS that are left behind in

the gut thanks to PI. Keeping a vicious cycle of another variety alive...causing

some of the remaining issues of ASD. Even Elaine knew that some bad gut bugs

could not be starved out by SCD alone.

c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

This causes " food jags " ...and pain when a child eats things that they can not

digest.......constipation....diarrhea......making some of the strange food jags

they kids have. I call it " self preservation " ....eventhough it drives us parents

crazy. With proper treatment...a ASD child can learn to be able to trust foods

better and can EAT everything on the SCDiet! Takes time...but she is now

learning to TRUST food.

So.....SCD is going to help....but not completely when a child has PI.

***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE BATTLE!

The results to just ending this...where amazing. Her seizures stopped....and her

deliriums stopped.....so much more. Mimi, is finding out that this is related to

LPS. You see...when the bad gut bugs ferment...they ferment LPS that can cause

autistic symptoms...among other things.

WE had grand success with SCD.....this is why....but she still was not digesting

fats and proteins.....therefore explaining the remaining problems we have with

SCD. She never was able to advanced to harder to digest SCD foods either. I

thought I was doing SCD wrong....this is when I turned to be a SCD

" fanatic " .....after 17 months of SCD fanatic...she still could not digest a raw

carrot....her poops remained to stink...and there was undigested fats and

proteins. A gross icky stench...a vomitous poopy smell. We decided to look into

this. This is when Dr. Stathos here in Denver discovered her PI (worth a

flight...if you can not find a GI doctor near that knows this). With

prescription strength and very powerful enzymes she now can digest all of her

food better. It ends up that her pancreas was only doing 70% of it's job. She is

taking the same enzymes as a Cystic Fibrosis child and now having her second

level of success!

Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

parents start to feed their child " Vegan " alternatives (to control the

symptoms)....the last thing a child needs to grow healthy and well! Or throw in

the towel on SCd...saying it " will not work " .

When treated properly....PI is no longer a problem. When it originates from

mitochondrial disease...the mitochondrial disease truly needs to be addressed

too. Beware of simple tests that claim that a child does not have PI or Mito. PI

has to be accurately accessed with anesthesia and testing of the pancreas

(unless you can find a doctor that is willing to just treat the child " as if "

and when they improve...they know what it is!) .

Last note: None of these test can be done by a typical doctor. ONLY a GI

specialist that knows about PI and autism and a mito specialist that knows all

forty conditions can truly help your child, if they have this. Call your AUTISM

SOCIETY for referrals for good GI doc....go to

www.umdf.org<http://www.umdf.org/> To find a mito specialist.

" The important thing is never to stop questioning. "

-Albert Einstein

Sincerely and God bless your healing journey,

Antoinette and the zoo!

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Posted
Posted

This was just discussed at ASA last weekend...

Major sources are:

Volcanoes (Oregan has the fastest increase in autism in the US -- connection

possibly due to erruption to Mt. St. Helen's)

Coal-burning plants (eastern half of the US more-so than west)

Amalgams (also living close to a crematorium, since they cremate bodies with

the amalgams still intact)

Fish

-

Bonita Todd wrote:

Mimi,

Forgive me for sounding so stupid but what causes the mercury build-up and what

can we do to prevent it from happening again? I know about the big debate over

mercury in immunizations, but are there other common sources that would cause a

harmful buildup?

Bonita

son - SCD maybe a month, Asperger's, ADHD,OCD, dyslexic problems,

Re: Re: Article on mitochondrial disease more info on Kiki

,

There is a relation between gut bugs and mercury. Mercury impairs the

digestive system, thus allowing pathogen overgrowth. The gut bugs then

emit bacterial toxins that impair detoxification. The bacterial toxins

then cause mitochondrial damage.

The most facsinating bacterial toxin is called LPS. There are many

research articles that show that LPS causes mitochondrial damage in

different parts of the body.

Tomorrow morning I will post research articles that will show that

bacterial toxins impair the mitochondria if list members ask for it.

Mimi

> An afterthought question...

>

> Whenever mito comes up on the more general lists, it always ends with a

> bunch articles/quotes from doctors about how mercury causes mito damage and

> that's why chelation is the answer. Is this your belief also?

>

> -

>

>

>

> Rob or Sunseri wrote:

> The prescription enzymes must be swallowed. I am wondering how I

> will get my child to do this if he does have a problem with his pancreas. My

> 3 YO daughter can swallow, but not my son. Our GI is doing autism research

> with the doctors at the Thoughtful House, so she knows autism, but shouldn't

> any decent GI know when to test for PI (you would think!)?

>

> Also, you said that your daughter has a mito disese, but you don't yet know

> which one. Which test is definitive for having one and which one tells you

> the type?

>

> -

>

> Bunce wrote:

> HI ,

>

> The only way to test for mitochondrial diseases accurately is to do a muscle

> biopsy, arterial blood draws and spinal tap. It can not be done by just

> anyone...these tests are so advanced that there are only six in the country

> that know how to do them accurately. I am sorry...for us mom's this is not

> cool....but for us we had to finally give in and do it.

>

> The other tests miss many of these conditions. Many reasons to why...to many

> to mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

>

> Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

> They know to test for all FORTY, plus look into mitochondrial problems that

> are not classical in origin. You truly do not know if your child doesn't

> have this if they where not the ones testing. Sadly to say...there have even

> been children that have to have a second muscle biopsy because home town

> doctors did not do them right!

>

> THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

>

> With PI a child does not digest foods properly. A child can be " allergic " or

> " intolerant " to lots of things...the gut gets full of bad gut bugs...of

> every kind and variety...causing ASD symptoms. They can not digest

> Carbohydrates, FATS and Proteins...the ferment...they putrefy....a

> mess....LPS causes havoc on the body....a true " vicious cycle " . My daughter

> once was " allergic " to food. AS you know Foods are made up of Carbohydrates,

> Fats and proteins.

>

> a.. SCDIET deals with the carbohydrate problem excellently! It is all

> monosaccharide...making it easy for a child with PI to be able to handle

> foods better, because very little needs to be done to the food to absorb it.

> Although harder to digest SCD foods will remain a problem, even after

> significant time on " fanatical " SCD. (THIS is a RED FLAG that a child has

> PI!)

> b.. SCD does not help with putrefying proteins and fats that are not

> digested. It does not restrict them (nor should it, the developing

> child/human body needs them ). Yet with PI, some of the bad gut bugs that

> result from putrefying proteins can not be starved out by eating the

> monosaccharide....they do not thrive on carbohydrates.....they EAT PROTEINS

> And FATS that are left behind in the gut thanks to PI. Keeping a vicious

> cycle of another variety alive...causing some of the remaining issues of

> ASD. Even Elaine knew that some bad gut bugs could not be starved out by SCD

> alone.

> c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

> This causes " food jags " ...and pain when a child eats things that they can

> not digest.......constipation....diarrhea......making some of the strange

> food jags they kids have. I call it " self preservation " ....eventhough it

> drives us parents crazy. With proper treatment...a ASD child can learn to be

> able to trust foods better and can EAT everything on the SCDiet! Takes

> time...but she is now learning to TRUST food.

> So.....SCD is going to help....but not completely when a child has PI.

>

> ***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE

> BATTLE! The results to just ending this...where amazing. Her seizures

> stopped....and her deliriums stopped.....so much more. Mimi, is finding out

> that this is related to LPS. You see...when the bad gut bugs ferment...they

> ferment LPS that can cause autistic symptoms...among other things.

>

> WE had grand success with SCD.....this is why....but she still was not

> digesting fats and proteins.....therefore explaining the remaining problems

> we have with SCD. She never was able to advanced to harder to digest SCD

> foods either. I thought I was doing SCD wrong....this is when I turned to be

> a SCD " fanatic " .....after 17 months of SCD fanatic...she still could not

> digest a raw carrot....her poops remained to stink...and there was

> undigested fats and proteins. A gross icky stench...a vomitous poopy smell.

> We decided to look into this. This is when Dr. Stathos here in Denver

> discovered her PI (worth a flight...if you can not find a GI doctor near

> that knows this). With prescription strength and very powerful enzymes she

> now can digest all of her food better. It ends up that her pancreas was only

> doing 70% of it's job. She is taking the same enzymes as a Cystic Fibrosis

> child and now having her second level of success!

>

> Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

> parents start to feed their child " Vegan " alternatives (to control the

> symptoms)....the last thing a child needs to grow healthy and well! Or throw

> in the towel on SCd...saying it " will not work " .

>

> When treated properly....PI is no longer a problem. When it originates from

> mitochondrial disease...the mitochondrial disease truly needs to be

> addressed too. Beware of simple tests that claim that a child does not have

> PI or Mito. PI has to be accurately accessed with anesthesia and testing of

> the pancreas (unless you can find a doctor that is willing to just treat the

> child " as if " and when they improve...they know what it is!) .

>

> Last note: None of these test can be done by a typical doctor. ONLY a GI

> specialist that knows about PI and autism and a mito specialist that knows

> all forty conditions can truly help your child, if they have this. Call your

> AUTISM SOCIETY for referrals for good GI doc....go to

> www.umdf.org<http://www.umdf.org/> To find a mito specialist.

>

> " The important thing is never to stop questioning. "

> -Albert Einstein

>

> Sincerely and God bless your healing journey,

> Antoinette and the zoo!

>

>

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Posted
Posted

Interesting. . .I have lived right by (maybe 3 blocks as the bird flies) from a

coal burning electric plant for 15 years.

Bonita

Re: Re: Article on mitochondrial disease more info on

Kiki

,

There is a relation between gut bugs and mercury. Mercury impairs the

digestive system, thus allowing pathogen overgrowth. The gut bugs then

emit bacterial toxins that impair detoxification. The bacterial toxins

then cause mitochondrial damage.

The most facsinating bacterial toxin is called LPS. There are many

research articles that show that LPS causes mitochondrial damage in

different parts of the body.

Tomorrow morning I will post research articles that will show that

bacterial toxins impair the mitochondria if list members ask for it.

Mimi

> An afterthought question...

>

> Whenever mito comes up on the more general lists, it always ends with a

> bunch articles/quotes from doctors about how mercury causes mito damage and

> that's why chelation is the answer. Is this your belief also?

>

> -

>

>

>

> Rob or Sunseri wrote:

> The prescription enzymes must be swallowed. I am wondering how I

> will get my child to do this if he does have a problem with his pancreas. My

> 3 YO daughter can swallow, but not my son. Our GI is doing autism research

> with the doctors at the Thoughtful House, so she knows autism, but shouldn't

> any decent GI know when to test for PI (you would think!)?

>

> Also, you said that your daughter has a mito disese, but you don't yet know

> which one. Which test is definitive for having one and which one tells you

> the type?

>

> -

>

> Bunce wrote:

> HI ,

>

> The only way to test for mitochondrial diseases accurately is to do a muscle

> biopsy, arterial blood draws and spinal tap. It can not be done by just

> anyone...these tests are so advanced that there are only six in the country

> that know how to do them accurately. I am sorry...for us mom's this is not

> cool....but for us we had to finally give in and do it.

>

> The other tests miss many of these conditions. Many reasons to why...to many

> to mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

>

> Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

> They know to test for all FORTY, plus look into mitochondrial problems that

> are not classical in origin. You truly do not know if your child doesn't

> have this if they where not the ones testing. Sadly to say...there have even

> been children that have to have a second muscle biopsy because home town

> doctors did not do them right!

>

> THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

>

> With PI a child does not digest foods properly. A child can be " allergic " or

> " intolerant " to lots of things...the gut gets full of bad gut bugs...of

> every kind and variety...causing ASD symptoms. They can not digest

> Carbohydrates, FATS and Proteins...the ferment...they putrefy....a

> mess....LPS causes havoc on the body....a true " vicious cycle " . My daughter

> once was " allergic " to food. AS you know Foods are made up of Carbohydrates,

> Fats and proteins.

>

> a.. SCDIET deals with the carbohydrate problem excellently! It is all

> monosaccharide...making it easy for a child with PI to be able to handle

> foods better, because very little needs to be done to the food to absorb it.

> Although harder to digest SCD foods will remain a problem, even after

> significant time on " fanatical " SCD. (THIS is a RED FLAG that a child has

> PI!)

> b.. SCD does not help with putrefying proteins and fats that are not

> digested. It does not restrict them (nor should it, the developing

> child/human body needs them ). Yet with PI, some of the bad gut bugs that

> result from putrefying proteins can not be starved out by eating the

> monosaccharide....they do not thrive on carbohydrates.....they EAT PROTEINS

> And FATS that are left behind in the gut thanks to PI. Keeping a vicious

> cycle of another variety alive...causing some of the remaining issues of

> ASD. Even Elaine knew that some bad gut bugs could not be starved out by SCD

> alone.

> c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

> This causes " food jags " ...and pain when a child eats things that they can

> not digest.......constipation....diarrhea......making some of the strange

> food jags they kids have. I call it " self preservation " ....eventhough it

> drives us parents crazy. With proper treatment...a ASD child can learn to be

> able to trust foods better and can EAT everything on the SCDiet! Takes

> time...but she is now learning to TRUST food.

> So.....SCD is going to help....but not completely when a child has PI.

>

> ***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE

> BATTLE! The results to just ending this...where amazing. Her seizures

> stopped....and her deliriums stopped.....so much more. Mimi, is finding out

> that this is related to LPS. You see...when the bad gut bugs ferment...they

> ferment LPS that can cause autistic symptoms...among other things.

>

> WE had grand success with SCD.....this is why....but she still was not

> digesting fats and proteins.....therefore explaining the remaining problems

> we have with SCD. She never was able to advanced to harder to digest SCD

> foods either. I thought I was doing SCD wrong....this is when I turned to be

> a SCD " fanatic " .....after 17 months of SCD fanatic...she still could not

> digest a raw carrot....her poops remained to stink...and there was

> undigested fats and proteins. A gross icky stench...a vomitous poopy smell.

> We decided to look into this. This is when Dr. Stathos here in Denver

> discovered her PI (worth a flight...if you can not find a GI doctor near

> that knows this). With prescription strength and very powerful enzymes she

> now can digest all of her food better. It ends up that her pancreas was only

> doing 70% of it's job. She is taking the same enzymes as a Cystic Fibrosis

> child and now having her second level of success!

>

> Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

> parents start to feed their child " Vegan " alternatives (to control the

> symptoms)....the last thing a child needs to grow healthy and well! Or throw

> in the towel on SCd...saying it " will not work " .

>

> When treated properly....PI is no longer a problem. When it originates from

> mitochondrial disease...the mitochondrial disease truly needs to be

> addressed too. Beware of simple tests that claim that a child does not have

> PI or Mito. PI has to be accurately accessed with anesthesia and testing of

> the pancreas (unless you can find a doctor that is willing to just treat the

> child " as if " and when they improve...they know what it is!) .

>

> Last note: None of these test can be done by a typical doctor. ONLY a GI

> specialist that knows about PI and autism and a mito specialist that knows

> all forty conditions can truly help your child, if they have this. Call your

> AUTISM SOCIETY for referrals for good GI doc....go to

> www.umdf.org<http://www.umdf.org/> To find a mito specialist.

>

> " The important thing is never to stop questioning. "

> -Albert Einstein

>

> Sincerely and God bless your healing journey,

> Antoinette and the zoo!

>

>

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Posted
Posted

Hi ,

Kiki, Antoinete's daughter, was one of the most difficult children

that we had on our list. SCD has helped many of her Mito symptoms

(poor digestion, seizures, brain disfunction...etc..). Unfortunately,

Kiki gets very hungry at night and needs a food like a potato in order

to sleep all night. It is very important for a child to sleep at night

and that is the only reason that Kiki is adding potaotes to her diet.

I will answer your other questions a little later.

Mimi

..

>

> For the explanation you gave, that would or could mean that SCD

> cures/improves mito disease, yet Kiki is needing to come off SCD because she

> has mito. So if Kiki has pancreatic insufficiency that is managed by her

> prescription enzymes and SCD has killed off all the bugs, then why isn't the

> mito improving (or maybe it is -- just not enough)?

>

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Posted
Posted

I hope that the following webpages are helpful.

http://www.microbialinfluence.com/

One explanation for why symptoms of mercury are so similar to the

symptoms of LPS could be the fact that mercury inhibits carbohydrate

absorption in the gut. Unabsorbed food does not get into the blood

stream quickly; when it remains in the gut, it becomes available as a

food supply for bacteria. Consequently, gram negative bacteria

multiply and produce LPS. [3] This raises a strong suspicion that some

of the symptoms commonly attributed to mercury could be directly

caused by LPS and only indirectly by mercury.

LPS also renders toxins from Candida Albicans more damaging.[4] The

poisonous effects of LPS are so potent that they produce symptoms of

autism even without the help of Candida Albicans and heavy metals.

LPS and detoxification:

http://www.microbialinfluence.com/det.html

I want to clarify that it is the high amount of calories in the

potatoes that is helping Kiki sleep, not any nutritional value.

> Hi ,

>

> Kiki, Antoinete's daughter, was one of the most difficult children

> that we had on our list. SCD has helped many of her Mito symptoms

> (poor digestion, seizures, brain disfunction...etc..). Unfortunately,

> Kiki gets very hungry at night and needs a food like a potato in order

> to sleep all night. It is very important for a child to sleep at night

> and that is the only reason that Kiki is adding potaotes to her diet.

>

> I will answer your other questions a little later.

>

> Mimi

>

> .

>

> >

> > For the explanation you gave, that would or could mean that SCD

> > cures/improves mito disease, yet Kiki is needing to come off SCD because

> she

> > has mito. So if Kiki has pancreatic insufficiency that is managed by her

> > prescription enzymes and SCD has killed off all the bugs, then why isn't

> the

> > mito improving (or maybe it is -- just not enough)?

> >

>

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Posted
Posted

Hi ,

The central problem of your child might be an excess of bacterial

toxins. Bacterial toxins create problems with the immune,

mitochondrial, gut, detoxification and many other systems. One

bacterial toxin, LPS. is especially harmful.

The bacterial toxin seems to induce just about every symptom of ASD.

Here are some

of them:

Here is a webpage about mitochondria and LPS, the bacterial toxin:

:http://microbialinfluence.com/mito.html

LPS and heavy metals:

http://www.microbialinfluence.com/HG.html

LPS and the Immune System:

http://www.microbialinfluence.com/Immune.html

LPS and ASD and SCD:

http://www.microbialinfluence.com/SCD.html

Can SCD heal people who are affected by LPS? I think that it would be

a great help. However, there is a possibility that extreme cases might

need additional medical help. People who are not recovering should get

a consultation with a SCD counselor or expert to make sure that the

diet is being done correctly. If the " correct SCD " is not bringing

relief then medical care should be used.

Mimi

> I hope that the following webpages are helpful.

>

> http://www.microbialinfluence.com/

>

> One explanation for why symptoms of mercury are so similar to the

> symptoms of LPS could be the fact that mercury inhibits carbohydrate

> absorption in the gut. Unabsorbed food does not get into the blood

> stream quickly; when it remains in the gut, it becomes available as a

> food supply for bacteria. Consequently, gram negative bacteria

> multiply and produce LPS. [3] This raises a strong suspicion that some

> of the symptoms commonly attributed to mercury could be directly

> caused by LPS and only indirectly by mercury.

>

> LPS also renders toxins from Candida Albicans more damaging.[4] The

> poisonous effects of LPS are so potent that they produce symptoms of

> autism even without the help of Candida Albicans and heavy metals.

>

> LPS and detoxification:

> http://www.microbialinfluence.com/det.html

> I want to clarify that it is the high amount of calories in the

> potatoes that is helping Kiki sleep, not any nutritional value.

>

>

> > Hi ,

> >

> > Kiki, Antoinete's daughter, was one of the most difficult children

> > that we had on our list. SCD has helped many of her Mito symptoms

> > (poor digestion, seizures, brain disfunction...etc..). Unfortunately,

> > Kiki gets very hungry at night and needs a food like a potato in order

> > to sleep all night. It is very important for a child to sleep at night

> > and that is the only reason that Kiki is adding potaotes to her diet.

> >

> > I will answer your other questions a little later.

> >

> > Mimi

> >

> > .

> >

> > >

> > > For the explanation you gave, that would or could mean that SCD

> > > cures/improves mito disease, yet Kiki is needing to come off SCD because

> > she

> > > has mito. So if Kiki has pancreatic insufficiency that is managed by

> her

> > > prescription enzymes and SCD has killed off all the bugs, then why isn't

> > the

> > > mito improving (or maybe it is -- just not enough)?

> > >

> >

>

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Posted
Posted

How does one know if they are suffering from LPS, and need additional medical

care aside from SCD? Is there testing that can be done? What kind of treatment

is available to remove one's body of LPS aside from SCD?

Meleah

Re: Re: Article on mitochondrial disease more info on

Kiki

Hi ,

The central problem of your child might be an excess of bacterial

toxins. Bacterial toxins create problems with the immune,

mitochondrial, gut, detoxification and many other systems. One

bacterial toxin, LPS. is especially harmful.

The bacterial toxin seems to induce just about every symptom of ASD.

Here are some

of them:

Here is a webpage about mitochondria and LPS, the bacterial toxin:

:http://microbialinfluence.com/mito.html

LPS and heavy metals:

http://www.microbialinfluence.com/HG.html

LPS and the Immune System:

http://www.microbialinfluence.com/Immune.html

LPS and ASD and SCD:

http://www.microbialinfluence.com/SCD.html

Can SCD heal people who are affected by LPS? I think that it would be

a great help. However, there is a possibility that extreme cases might

need additional medical help. People who are not recovering should get

a consultation with a SCD counselor or expert to make sure that the

diet is being done correctly. If the " correct SCD " is not bringing

relief then medical care should be used.

Mimi

> I hope that the following webpages are helpful.

>

> http://www.microbialinfluence.com/

>

> One explanation for why symptoms of mercury are so similar to the

> symptoms of LPS could be the fact that mercury inhibits carbohydrate

> absorption in the gut. Unabsorbed food does not get into the blood

> stream quickly; when it remains in the gut, it becomes available as a

> food supply for bacteria. Consequently, gram negative bacteria

> multiply and produce LPS. [3] This raises a strong suspicion that some

> of the symptoms commonly attributed to mercury could be directly

> caused by LPS and only indirectly by mercury.

>

> LPS also renders toxins from Candida Albicans more damaging.[4] The

> poisonous effects of LPS are so potent that they produce symptoms of

> autism even without the help of Candida Albicans and heavy metals.

>

> LPS and detoxification:

> http://www.microbialinfluence.com/det.html

> I want to clarify that it is the high amount of calories in the

> potatoes that is helping Kiki sleep, not any nutritional value.

>

>

> > Hi ,

> >

> > Kiki, Antoinete's daughter, was one of the most difficult children

> > that we had on our list. SCD has helped many of her Mito symptoms

> > (poor digestion, seizures, brain disfunction...etc..). Unfortunately,

> > Kiki gets very hungry at night and needs a food like a potato in order

> > to sleep all night. It is very important for a child to sleep at night

> > and that is the only reason that Kiki is adding potaotes to her diet.

> >

> > I will answer your other questions a little later.

> >

> > Mimi

> >

> > .

> >

> > >

> > > For the explanation you gave, that would or could mean that SCD

> > > cures/improves mito disease, yet Kiki is needing to come off SCD because

> > she

> > > has mito. So if Kiki has pancreatic insufficiency that is managed by

> her

> > > prescription enzymes and SCD has killed off all the bugs, then why isn't

> > the

> > > mito improving (or maybe it is -- just not enough)?

> > >

> >

>

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Posted
Posted

How does one know if they are suffering from LPS, and need additional medical

care aside from SCD? Is there testing that can be done? What kind of treatment

is available to remove one's body of LPS aside from SCD?

Meleah

Re: Re: Article on mitochondrial disease more info on

Kiki

Hi ,

The central problem of your child might be an excess of bacterial

toxins. Bacterial toxins create problems with the immune,

mitochondrial, gut, detoxification and many other systems. One

bacterial toxin, LPS. is especially harmful.

The bacterial toxin seems to induce just about every symptom of ASD.

Here are some

of them:

Here is a webpage about mitochondria and LPS, the bacterial toxin:

:http://microbialinfluence.com/mito.html

LPS and heavy metals:

http://www.microbialinfluence.com/HG.html

LPS and the Immune System:

http://www.microbialinfluence.com/Immune.html

LPS and ASD and SCD:

http://www.microbialinfluence.com/SCD.html

Can SCD heal people who are affected by LPS? I think that it would be

a great help. However, there is a possibility that extreme cases might

need additional medical help. People who are not recovering should get

a consultation with a SCD counselor or expert to make sure that the

diet is being done correctly. If the " correct SCD " is not bringing

relief then medical care should be used.

Mimi

> I hope that the following webpages are helpful.

>

> http://www.microbialinfluence.com/

>

> One explanation for why symptoms of mercury are so similar to the

> symptoms of LPS could be the fact that mercury inhibits carbohydrate

> absorption in the gut. Unabsorbed food does not get into the blood

> stream quickly; when it remains in the gut, it becomes available as a

> food supply for bacteria. Consequently, gram negative bacteria

> multiply and produce LPS. [3] This raises a strong suspicion that some

> of the symptoms commonly attributed to mercury could be directly

> caused by LPS and only indirectly by mercury.

>

> LPS also renders toxins from Candida Albicans more damaging.[4] The

> poisonous effects of LPS are so potent that they produce symptoms of

> autism even without the help of Candida Albicans and heavy metals.

>

> LPS and detoxification:

> http://www.microbialinfluence.com/det.html

> I want to clarify that it is the high amount of calories in the

> potatoes that is helping Kiki sleep, not any nutritional value.

>

>

> > Hi ,

> >

> > Kiki, Antoinete's daughter, was one of the most difficult children

> > that we had on our list. SCD has helped many of her Mito symptoms

> > (poor digestion, seizures, brain disfunction...etc..). Unfortunately,

> > Kiki gets very hungry at night and needs a food like a potato in order

> > to sleep all night. It is very important for a child to sleep at night

> > and that is the only reason that Kiki is adding potaotes to her diet.

> >

> > I will answer your other questions a little later.

> >

> > Mimi

> >

> > .

> >

> > >

> > > For the explanation you gave, that would or could mean that SCD

> > > cures/improves mito disease, yet Kiki is needing to come off SCD because

> > she

> > > has mito. So if Kiki has pancreatic insufficiency that is managed by

> her

> > > prescription enzymes and SCD has killed off all the bugs, then why isn't

> > the

> > > mito improving (or maybe it is -- just not enough)?

> > >

> >

>

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Posted
Posted

Please understand that we FIRST had to heal KIKI with fanatical SCDiet. Or we

would never be at this cross roads. IT would not be an option to stray a bit

from SCD, because she would still be so sick. SHE CAME INTOLERANT TO FOOD

people. The SCDIET saved her life.

YOU see...SCD chelates gently, it heals the severe gut disbiosis...and it

lowered the toxins....it healed her intolerance....it helped her to heal. With

pancreatic enzymes this would have been much better....but one can not replace

the magic of SCD with enzymes.

WE will never stray more than 15% guys. WE WILL NEVER eat the Sadiet (standard

American Diet) ever. THIS would not have been an option before. We have been

healing this child for over 2.5 years with diet. 18 months of this SCD. We

have yet to see where this is going to take us.

WE HAVE YET to know if this entire experiment is going to BLOW UP in our face.

WE know SCD works....so don't think one can experiment with us with out healing

significantly on SCD FIRST.

It is so hard to say which came first...the mercury or the egg....or the chicken

and the mercury.....lol.....we will know soon though. Many are doing research

on this as we speak. One thing is for certain...this is much more than mercury.

And SCD will help with the mercury anways....enough said.

Antoinette Mom to Kiki-3 healing from autism caused by MtD

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Posted
Posted

Hi Meleah,

It was found that children with autism have 10,000 times as many gram

negative bacterias as typical children. Since gram negative bacterias

contain LPS, I am not sure how one can test. Fanatical SCD is needed

because even tiny amounts of LPS can be harmful for children who have

an extreme reaction to LPS.

I am not sure about other treatment methods. Please share any new info

that you find.

Mimi

> How does one know if they are suffering from LPS, and need additional

> medical care aside from SCD? Is there testing that can be done? What kind

> of treatment is available to remove one's body of LPS aside from SCD?

> Meleah

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Posted
Posted

We see Dr. O'Hara on Wednesday for iel's IV glutathion, so I will ask her

if she knows anything about all of this...along with pancreatic insufficiency

and mitochondrial diseases. iel does fanatical SCD, but still has a lot

of issues that have only seemed to improve with other biomedical interventions

such as IV glutathion, B12 injections, HBOT, and chelation. We have been on a

chelation break for almost two months now because we had been battling a yeast

flare up since his round of HBOT in February. It was the only thing that

changed, and we noticed gradual regression over the coarse of the time. He had

been doing soo well with his strict SCD and biomedicals, but this regression has

made me wonder about these other discussions that have been brought up in recent

weeks. Perhaps it has been good to see the regression because maybe there is a

missing piece to iel's puzzle that we can discover with my new awareness

from these discussions. As all parents with our kids, I must leave no stone

unturned. I know the cure for iel's recovery is out there. I just have

to pray that God leads me to it...or them if it is multiple things(which is

usually the case with our kids).

Meleah

Re: Re: Article on mitochondrial disease more info on

Kiki

Hi Meleah,

It was found that children with autism have 10,000 times as many gram

negative bacterias as typical children. Since gram negative bacterias

contain LPS, I am not sure how one can test. Fanatical SCD is needed

because even tiny amounts of LPS can be harmful for children who have

an extreme reaction to LPS.

I am not sure about other treatment methods. Please share any new info

that you find.

Mimi

> How does one know if they are suffering from LPS, and need additional

> medical care aside from SCD? Is there testing that can be done? What kind

> of treatment is available to remove one's body of LPS aside from SCD?

> Meleah

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Posted
Posted

The medical focus of the ASA conference this past weekend was the gut. Most of

the discussion was among the physicians themselves and not shared with the

parents (it was structured as a cme class). The only practitioner who lectured

to the parents was Bradstreet, and he is finding that if diet, plus cultured

vegetables 5-6 times/day don't do it he needs to use vanomyacin and diflucan to

wipe the slate clean and start over. He feels the OAT is the best indicator for

bacteria, but he always compares it with other tests he orders depending on the

child's symptoms.

-

robin wrote:

How does one know if they are suffering from LPS, and need additional

medical care aside from SCD? Is there testing that can be done? What kind of

treatment is available to remove one's body of LPS aside from SCD?

Meleah

Re: Re: Article on mitochondrial disease more info on Kiki

Hi ,

The central problem of your child might be an excess of bacterial

toxins. Bacterial toxins create problems with the immune,

mitochondrial, gut, detoxification and many other systems. One

bacterial toxin, LPS. is especially harmful.

The bacterial toxin seems to induce just about every symptom of ASD.

Here are some

of them:

Here is a webpage about mitochondria and LPS, the bacterial toxin:

:http://microbialinfluence.com/mito.html

LPS and heavy metals:

http://www.microbialinfluence.com/HG.html

LPS and the Immune System:

http://www.microbialinfluence.com/Immune.html

LPS and ASD and SCD:

http://www.microbialinfluence.com/SCD.html

Can SCD heal people who are affected by LPS? I think that it would be

a great help. However, there is a possibility that extreme cases might

need additional medical help. People who are not recovering should get

a consultation with a SCD counselor or expert to make sure that the

diet is being done correctly. If the " correct SCD " is not bringing

relief then medical care should be used.

Mimi

> I hope that the following webpages are helpful.

>

> http://www.microbialinfluence.com/

>

> One explanation for why symptoms of mercury are so similar to the

> symptoms of LPS could be the fact that mercury inhibits carbohydrate

> absorption in the gut. Unabsorbed food does not get into the blood

> stream quickly; when it remains in the gut, it becomes available as a

> food supply for bacteria. Consequently, gram negative bacteria

> multiply and produce LPS. [3] This raises a strong suspicion that some

> of the symptoms commonly attributed to mercury could be directly

> caused by LPS and only indirectly by mercury.

>

> LPS also renders toxins from Candida Albicans more damaging.[4] The

> poisonous effects of LPS are so potent that they produce symptoms of

> autism even without the help of Candida Albicans and heavy metals.

>

> LPS and detoxification:

> http://www.microbialinfluence.com/det.html

> I want to clarify that it is the high amount of calories in the

> potatoes that is helping Kiki sleep, not any nutritional value.

>

>

> > Hi ,

> >

> > Kiki, Antoinete's daughter, was one of the most difficult children

> > that we had on our list. SCD has helped many of her Mito symptoms

> > (poor digestion, seizures, brain disfunction...etc..). Unfortunately,

> > Kiki gets very hungry at night and needs a food like a potato in order

> > to sleep all night. It is very important for a child to sleep at night

> > and that is the only reason that Kiki is adding potaotes to her diet.

> >

> > I will answer your other questions a little later.

> >

> > Mimi

> >

> > .

> >

> > >

> > > For the explanation you gave, that would or could mean that SCD

> > > cures/improves mito disease, yet Kiki is needing to come off SCD because

> > she

> > > has mito. So if Kiki has pancreatic insufficiency that is managed by

> her

> > > prescription enzymes and SCD has killed off all the bugs, then why isn't

> > the

> > > mito improving (or maybe it is -- just not enough)?

> > >

> >

>

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Posted
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Meleah,

I hear ya. This is not an easy road for any of us.

If I could have a cure I would jumpt for it.

WE do have to leave no stone unturned, but at the same time not believe

everything that is said to us...we all need to question everything that

is shared and we also can not make doctors our Gods.

Time has proven doctors wrong in history. Iatrogenic Harm is not

joking matter. Iatrogenic = caused by medical treatment I have been

the victim of iatrogenic harm. This is not fun.

This is why it was easeir for me to trust SCD. What harm could it

do...and when it helped...when we did nothing else...it proved to me

that we might not need much else.

Not everyone is going to be like us. But this is our experience

strength and hope. We all healed significantly eating SCd. If we are

to get sick again, or have regressions...we would go back to it

fanaticaly no doubt.

Antoinette and house of ASD/MtD.

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Posted
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Mimi,

We have always thought my son's problems originate with his immune system &

inability to handle bacteria/viruses. I don't have the $ right now to do the

fancy labs to see if he has any markers of pathogenic bacteria (stool tests are

negative -- his bacterial overgrowth is considered " non-pathogenic. " ), but I

wish I did. My kid is so atypical, that it would be ideal to run labs every

step of the way with him.

-

pecan post wrote:

Hi ,

The central problem of your child might be an excess of bacterial

toxins. Bacterial toxins create problems with the immune,

mitochondrial, gut, detoxification and many other systems. One

bacterial toxin, LPS. is especially harmful.

The bacterial toxin seems to induce just about every symptom of ASD.

Here are some

of them:

Here is a webpage about mitochondria and LPS, the bacterial toxin:

:http://microbialinfluence.com/mito.html

LPS and heavy metals:

http://www.microbialinfluence.com/HG.html

LPS and the Immune System:

http://www.microbialinfluence.com/Immune.html

LPS and ASD and SCD:

http://www.microbialinfluence.com/SCD.html

Can SCD heal people who are affected by LPS? I think that it would be

a great help. However, there is a possibility that extreme cases might

need additional medical help. People who are not recovering should get

a consultation with a SCD counselor or expert to make sure that the

diet is being done correctly. If the " correct SCD " is not bringing

relief then medical care should be used.

Mimi

> I hope that the following webpages are helpful.

>

> http://www.microbialinfluence.com/

>

> One explanation for why symptoms of mercury are so similar to the

> symptoms of LPS could be the fact that mercury inhibits carbohydrate

> absorption in the gut. Unabsorbed food does not get into the blood

> stream quickly; when it remains in the gut, it becomes available as a

> food supply for bacteria. Consequently, gram negative bacteria

> multiply and produce LPS. [3] This raises a strong suspicion that some

> of the symptoms commonly attributed to mercury could be directly

> caused by LPS and only indirectly by mercury.

>

> LPS also renders toxins from Candida Albicans more damaging.[4] The

> poisonous effects of LPS are so potent that they produce symptoms of

> autism even without the help of Candida Albicans and heavy metals.

>

> LPS and detoxification:

> http://www.microbialinfluence.com/det.html

> I want to clarify that it is the high amount of calories in the

> potatoes that is helping Kiki sleep, not any nutritional value.

>

>

> > Hi ,

> >

> > Kiki, Antoinete's daughter, was one of the most difficult children

> > that we had on our list. SCD has helped many of her Mito symptoms

> > (poor digestion, seizures, brain disfunction...etc..). Unfortunately,

> > Kiki gets very hungry at night and needs a food like a potato in order

> > to sleep all night. It is very important for a child to sleep at night

> > and that is the only reason that Kiki is adding potaotes to her diet.

> >

> > I will answer your other questions a little later.

> >

> > Mimi

> >

> > .

> >

> > >

> > > For the explanation you gave, that would or could mean that SCD

> > > cures/improves mito disease, yet Kiki is needing to come off SCD because

> > she

> > > has mito. So if Kiki has pancreatic insufficiency that is managed by

> her

> > > prescription enzymes and SCD has killed off all the bugs, then why isn't

> > the

> > > mito improving (or maybe it is -- just not enough)?

> > >

> >

>

---------------------------------

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Posted
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Living so close, you may actually have detectable mercury in your blood. That

might be worth a blood draw to find out.

-

Bonita Todd wrote:

Interesting. . .I have lived right by (maybe 3 blocks as the bird

flies) from a coal burning electric plant for 15 years.

Bonita

Re: Re: Article on mitochondrial disease more info on Kiki

,

There is a relation between gut bugs and mercury. Mercury impairs the

digestive system, thus allowing pathogen overgrowth. The gut bugs then

emit bacterial toxins that impair detoxification. The bacterial toxins

then cause mitochondrial damage.

The most facsinating bacterial toxin is called LPS. There are many

research articles that show that LPS causes mitochondrial damage in

different parts of the body.

Tomorrow morning I will post research articles that will show that

bacterial toxins impair the mitochondria if list members ask for it.

Mimi

> An afterthought question...

>

> Whenever mito comes up on the more general lists, it always ends with a

> bunch articles/quotes from doctors about how mercury causes mito damage and

> that's why chelation is the answer. Is this your belief also?

>

> -

>

>

>

> Rob or Sunseri wrote:

> The prescription enzymes must be swallowed. I am wondering how I

> will get my child to do this if he does have a problem with his pancreas. My

> 3 YO daughter can swallow, but not my son. Our GI is doing autism research

> with the doctors at the Thoughtful House, so she knows autism, but shouldn't

> any decent GI know when to test for PI (you would think!)?

>

> Also, you said that your daughter has a mito disese, but you don't yet know

> which one. Which test is definitive for having one and which one tells you

> the type?

>

> -

>

> Bunce wrote:

> HI ,

>

> The only way to test for mitochondrial diseases accurately is to do a muscle

> biopsy, arterial blood draws and spinal tap. It can not be done by just

> anyone...these tests are so advanced that there are only six in the country

> that know how to do them accurately. I am sorry...for us mom's this is not

> cool....but for us we had to finally give in and do it.

>

> The other tests miss many of these conditions. Many reasons to why...to many

> to mention here. www.umdf.org<http://www.umdf.org/> can tell you. Call them!

>

> Dr. Cohen (Cleveland Ohio) and Dr. Shoffner (Atlanta Georgia) are the best.

> They know to test for all FORTY, plus look into mitochondrial problems that

> are not classical in origin. You truly do not know if your child doesn't

> have this if they where not the ones testing. Sadly to say...there have even

> been children that have to have a second muscle biopsy because home town

> doctors did not do them right!

>

> THIS IS WHAT I meant about SCDiet and Pancreatic Insufficiency or PI:

>

> With PI a child does not digest foods properly. A child can be " allergic " or

> " intolerant " to lots of things...the gut gets full of bad gut bugs...of

> every kind and variety...causing ASD symptoms. They can not digest

> Carbohydrates, FATS and Proteins...the ferment...they putrefy....a

> mess....LPS causes havoc on the body....a true " vicious cycle " . My daughter

> once was " allergic " to food. AS you know Foods are made up of Carbohydrates,

> Fats and proteins.

>

> a.. SCDIET deals with the carbohydrate problem excellently! It is all

> monosaccharide...making it easy for a child with PI to be able to handle

> foods better, because very little needs to be done to the food to absorb it.

> Although harder to digest SCD foods will remain a problem, even after

> significant time on " fanatical " SCD. (THIS is a RED FLAG that a child has

> PI!)

> b.. SCD does not help with putrefying proteins and fats that are not

> digested. It does not restrict them (nor should it, the developing

> child/human body needs them ). Yet with PI, some of the bad gut bugs that

> result from putrefying proteins can not be starved out by eating the

> monosaccharide....they do not thrive on carbohydrates.....they EAT PROTEINS

> And FATS that are left behind in the gut thanks to PI. Keeping a vicious

> cycle of another variety alive...causing some of the remaining issues of

> ASD. Even Elaine knew that some bad gut bugs could not be starved out by SCD

> alone.

> c.. Many of these ASD kids have PI....we just have not had it diagnosed yet.

> This causes " food jags " ...and pain when a child eats things that they can

> not digest.......constipation....diarrhea......making some of the strange

> food jags they kids have. I call it " self preservation " ....eventhough it

> drives us parents crazy. With proper treatment...a ASD child can learn to be

> able to trust foods better and can EAT everything on the SCDiet! Takes

> time...but she is now learning to TRUST food.

> So.....SCD is going to help....but not completely when a child has PI.

>

> ***But just dealing with the carbohydrate gut bugs is MORE THAN HALF THE

> BATTLE! The results to just ending this...where amazing. Her seizures

> stopped....and her deliriums stopped.....so much more. Mimi, is finding out

> that this is related to LPS. You see...when the bad gut bugs ferment...they

> ferment LPS that can cause autistic symptoms...among other things.

>

> WE had grand success with SCD.....this is why....but she still was not

> digesting fats and proteins.....therefore explaining the remaining problems

> we have with SCD. She never was able to advanced to harder to digest SCD

> foods either. I thought I was doing SCD wrong....this is when I turned to be

> a SCD " fanatic " .....after 17 months of SCD fanatic...she still could not

> digest a raw carrot....her poops remained to stink...and there was

> undigested fats and proteins. A gross icky stench...a vomitous poopy smell.

> We decided to look into this. This is when Dr. Stathos here in Denver

> discovered her PI (worth a flight...if you can not find a GI doctor near

> that knows this). With prescription strength and very powerful enzymes she

> now can digest all of her food better. It ends up that her pancreas was only

> doing 70% of it's job. She is taking the same enzymes as a Cystic Fibrosis

> child and now having her second level of success!

>

> Undiagnosed PI makes a person prisoner to the SCDiet....and worse....some

> parents start to feed their child " Vegan " alternatives (to control the

> symptoms)....the last thing a child needs to grow healthy and well! Or throw

> in the towel on SCd...saying it " will not work " .

>

> When treated properly....PI is no longer a problem. When it originates from

> mitochondrial disease...the mitochondrial disease truly needs to be

> addressed too. Beware of simple tests that claim that a child does not have

> PI or Mito. PI has to be accurately accessed with anesthesia and testing of

> the pancreas (unless you can find a doctor that is willing to just treat the

> child " as if " and when they improve...they know what it is!) .

>

> Last note: None of these test can be done by a typical doctor. ONLY a GI

> specialist that knows about PI and autism and a mito specialist that knows

> all forty conditions can truly help your child, if they have this. Call your

> AUTISM SOCIETY for referrals for good GI doc....go to

> www.umdf.org<http://www.umdf.org/> To find a mito specialist.

>

> " The important thing is never to stop questioning. "

> -Albert Einstein

>

> Sincerely and God bless your healing journey,

> Antoinette and the zoo!

>

>

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