Guest guest Posted July 19, 2007 Report Share Posted July 19, 2007 , The muscle biopsy is the test that needs to be done, but only by mito specialist that is well qualified. This is the ONLY way to get definitive answers as of now. Not pleasant to here...but simple fact. Before Kiki could swallow the capsules...the doctor ok'd it to be put into apple sauce. She gagged...but this was ultimately what motivated her to learn how to swallow the capsules. I truly don't know what to suggest for you. Some mito kids have to have to be G-tube fed. Kiki is trying to avoid IV nutrition as we speak. NOT all KIDS have to be as sick with MtD as KIKI to have this condition. SCD heals the gut, so that the toxin loads DROP....and then the liver can detox and chelate the body naturally. The kidneys can finally excrete the heavy metals. Elaine had a gentleman prescribed SCD just for this purpose. He had heavy metal poisoning. SCD saved him with no dangerous chelation therapy. When a child has MtD, or just bad gut flora, chelation therapy is contraindicative. I read about Chelation in " Gut and Psychology Syndrome " . A must read for any parent wanting to go this route. http://www.breakingtheviciouscycle.info/elaine/dr_natasha_campbell_mcbride_and_s\ cd.htm<http://www.breakingtheviciouscycle.info/elaine/dr_natasha_campbell_mcbrid\ e_and_scd.htm> MOST if not all ASD children have bad gut bugs. This might be because most if not all ASD children could have Pancreatic Insufficiency and are not digesting their foods. This is why SCD helps so much. Before SCD these bad gut bugs add to the toxic systemic blood load. LPS is one of these bad things that happen that cause autistic symptoms. This is caused by fermenting and undigested starches and sugar. With toxic levels HIGH the liver and kidneys become OVER loaded. Unlike a healthy child, a ASD child has no choice but to hide these dangerous things like mercury in the tissues and fat of our body. Thus heavy metal accumulate among other horrible things.... To make things worse, one heavy metals get hidden in the brain, it is said by our DAN! chelation can't help anyway. In some cases causing permanent damage. The younger the child when treatment starts the better. The brain can make accommodations to this damage and create new pathways. But it is never too late for any of us...I am proof, and so are others who have done SCD at an older age. The Human body is amazing when it is no longer being bombarded with bad toxins. The heavy metals in the tissues can be excreted and got rid of with the natural chelating power of SCDiet. One of the most amazing things for us about fanatical SCD was that our daughter's heavy metal symptoms vanished. At nine months into the diet all the signs of severe heavy metal accumulation where gone as well as mine. NOTHING but pure and straight SCD did this for us. Ximena, A child can have mito issues and be big for there age. Truly, even adults can have late onset MtD and it can be mistaken as " chronic fatigue " and " depression " ....it is a vast amount of symptoms. Not just slow growth or failure to thrive. One does not have to have all the symptoms either. I will be next to be tested...as will my son (because of his vision loss). He is in the 97% and only had ADD and mild AS symptoms. On the most part he is healthy...even before SCD...but had constipation, and diarrhea often. The thing that is scary about mitochodrial disease is that it shows up in many different ways. Not one person is alike....similar.....but not alike. AS far as being nervous...we use to be. But this is what I said to my husband....we where living with this monster anyways...isn't it time that we know what name to call it? Think about that one. Truly...it is the unknown and undiagnosed that should worry. Hopefully in time it will become easier to diagnosed this monster, so more will realize the seriousness of this and doctors will help us better to improve our lives. God Bless everyone's healing journey. Antoinette Quote Link to comment Share on other sites More sharing options...
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