Re: Re: Article on Miotochondrial disease OT (for Antoinette)

[Guest guest]

Dear Antoinette --

Please forgive the delay in writing to thank you -- I

haven't been able to log on in a couple of days.

THANK YOU VERY MUCH for this information -- all

evidence from what tests we have done (as well as his

particular profile -- hypotonia, dyspraxia, apraxia)

points to it.

I will most certainly go to the website you suggested

I look at, and I would LOVE to get more info from you

about this, so thank you for your kind offer of that,

too.

We are relatively new to the whole biomedical approach

-- I'd been giving my son fish oil, carnosine, DMG,

and a bunch of other supplements for a year, but only

started with a DAN! doctor in November. My son is

3-1/2, gets daily MB12 shots, a slew of supplements

tailored to him (and we are now upping the amounts of

most of the " mito cocktail " stuff), we're treating

yeast/bad gut bugs (and will be taking him to Arthur

Krigsman, because we're not getting on top of the

dysbiosis), and, since my little one has tested

positive for lead and mercury toxicity (plus some

aluminum and arsenic) we're about to begin

chelation/glutathione IVs in August. Oh, yes, plus

HBOT!

I want to leave no stone unturned. I am VERY keen to

learn more about the mitochondria piece of Jack's

puzzle and to do whatever I can to help him with it.

How do I follow up with you on this? And again, I

can't thank you enough for your kindness in being

willing to help.

Warmest, best regards,

Rhona

--- Bunce wrote:

> Dear Rhonda,

>

> If this fits your son to a T, please go to

> www.umdf.org<http://www.umdf.org/> and find out what

> to do next. Your journey is not going to be an easy

> one. I will be there to support you off serve if

> you need it.

>

> I sent this to Pecan bread, because the AUTISM

> SOCIETY of America is realizing that MANY PDD/NOS

> and " High functioning " forms of " atypical " autism

> are mitochondrial disease (MtD) in origin. Plan

> FACT...We ARE BEING MISSED by ignorant doctors who

> do not know. This can be very " mild " to

> " fetal " ....the mild cases....are the worse to

> detect. Blood work is not always indicative of

> having it either. BEWARE of this. The specialist

> know it...but your doctors might not.

>

> The thing is, VERY few doctors realize what this is

> about...and you will have to go to mitochondria

> specialist either in Atlanta Georgia or Cleveland

> Ohio.. THE BEST in the COUNTRY. United WAY should

> be able to help you with the cost of the trip! Well

> worth it to get answers now. Children with

> diagnosis...will be first in line for new therapies

> (like stem cell etc...) that might be able to " cure "

> this when they find a cure. It is worth it to have

> your confirmed diagnosis! MILLIONS of dollars are

> being spent to find a cure for MtD. You never know

> when it will happen.

>

> Antoinette

>

> " The important thing is never to stop questioning. "

> -Albert Einstein

>

>

> [Non-text portions of this message have been

> removed]

>

>

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