Maybe I should take a sabbatical was: Mercury

[Guest guest]

Guys,

WE are all toxic....the world is a very sick place. Overwhelming to me too.

Our ASD children are truly the Canaries in the Mine....the ones that did not

miscarry, they are the messengers to world gone sick. The ones " gasping for

air " .... The native Americans tried to warn us...the Aborigines did

too......Einstein tried to warn us...many others have tried to warn us...but we

still continue to destroy our planet earth.

The very " civilization " that we are so proud of is slowly killing all of us to

some degree or another. Some of us faster than others. Much more than

food...much more than mercury.

A true silent war....that we still truly do not understand. It is like taming

the monster within forever...until we die. For all of us. Some older people on

the spectrum recent this movement to CURE autism. Yes, I know that every one of

them...if proven true...would grab for the chance. We suffer.

WE are the adults that are now living with the consequences of such treatments.

I am not bashing all treatments....I am just saying we need to be careful making

our children the guinea pigs. I have suffered miserably from medical treatment

that was said to help...because in my day....it was the " in " thing to do. It

was the " modern " research at the time. It was the best choice out there. I am

not alone. This is why on my adult ASD/AS group/list serves many of us feel

fear about what is happening with this DAN! movement. Many of us suffering from

iatrogenic (caused from medical treatment) harm from those who tried to " cure "

us back when we where kids. WE now see those from the DAN! movement have

regrets. Truly frightening. My parents did the best that they could do...they

listened to the " best " doctors in my day...and now I pay.

In our house we call it the " disease of civilization " . It is over whelming to

me at this time. I don't know how us mom's are suppose to deal with this

stress...when we see our children suffering like they are. Little Kiki is just

one more canary in a toxic mine.

I now can understand my own mother's tears when she would see me suffering. I

now understand why my parents agreed to do some of the intervention that was

done....they did not know it would harm me. Like me, like you, they where

desperate. Doctors said that it was OK. WE want to trust.

HOW do you cope...because...right now...my coping is coming difficult. All

this talk to help our children...when you have read what I have, all of it

contradicts one another. Who are we to believe???

Coming to acceptance that we just don't know ....and know enough to be dangerous

scars the bejesus out of me. I do not want my children to suffer like I

have....yet they are going down the same ASD road I did. SCD is the only thing

that has tamed the monster within, yet this has not " cured " us either ....and

now I even question it. So maybe I should take a sabbatical before I do harm.

Can anyone help me here?

The one that typically GIVES hope to others......now needs hope. Maybe it's

because unlike most NT parents on this list serve...I see this monster

differently.....I am on the spectrum. It's not like we grow up and it all

disappears. When even those who are said to be " cured " still suffer.

" The important thing is never to stop questioning. "

-Albert Einstein

Antoinette and family of ASD/MtD

[Guest guest]

Antoinette,

I view this a little differently, perhaps. I don't really look for a " cure " .

There has never been a cure for my mother, myself and my twin sister. I don't

look for a " cure " for my son. For me it is a journey to " functionality " . We

all have to decide where that line is for ourselves. I don't hope to " cure " him

as there are special gifts and qualities in my son that I would never want to

discard. Is it possible that whatever the root cause of all the ASD problems

also is the cause of the special math abilities, vocal abilities, artistic

abilities, special humor, special ability to have compassion and caring? I

don't know. I do know that most of the best things in my life have come at a

high price, but they have been worth it. I can't tell my son that he is not

broken but special and can do things others cannot if I am trying to " fix " him

and take all the ASD traits away. I have to view myself as not broken, but

different if I try to teach him that. Now this is NOT a condemnation of anyone

else and their theories by no means!! We all do our best and make our own

decisions for the welfare of our kids that we love and that's why we make those

tough decisions (we love them so). THEIR ARE NO RULE BOOKS!

I came to SCD exhausted from all my previous efforts - efforts that consequently

helped my son's behavior immensely but were not enough. I wasn't sure of all

this SCD and it's efforts and effects, but like your mom, I had to try to see if

it could help more. I think we always get those fearful times of doubt, but

love drives us forward. I don't expect my son to be normal, but my goal has

been to get him to a place where he can function better and some of the pressure

of who he is becomes less and bearable. I don't really expect him to overcome

his inability in social function (which is just HUGE). No one in my family ever

has, but the hyperactivity and mental fog, I feel, clouded the innate gifts he

had and held him back. The interventions have helped this much.

So, have I clouded this more? But, I think I said all this to say, it is normal

and advantageous to weigh out our options and our goals and go into

interventions cautiously. You have to figure out why you are satisfied and when

you need to continue on in interventions. Every person, situation, physical

effects are individual to the family, and we all make our decisions to the best

that we know how and have to give ourselves a break if things don't work like we

thought they would. So, keep up the good work in caring for your family. I

know you are facing more dire circumstances and health issues than my family and

that is a tremendous weight, but you are doing a wonderful job carrying it.

Bonita

just a newbie opinion for what it's worth:-]

Maybe I should take a sabbatical was: Mercury

Guys,

WE are all toxic....the world is a very sick place. Overwhelming to me too.

Our ASD children are truly the Canaries in the Mine....the ones that did not

miscarry, they are the messengers to world gone sick. The ones " gasping for

air " .... The native Americans tried to warn us...the Aborigines did

too......Einstein tried to warn us...many others have tried to warn us...but we

still continue to destroy our planet earth.

The very " civilization " that we are so proud of is slowly killing all of us to

some degree or another. Some of us faster than others. Much more than

food...much more than mercury.

A true silent war....that we still truly do not understand. It is like taming

the monster within forever...until we die. For all of us. Some older people on

the spectrum recent this movement to CURE autism. Yes, I know that every one of

them...if proven true...would grab for the chance. We suffer.

WE are the adults that are now living with the consequences of such

treatments. I am not bashing all treatments....I am just saying we need to be

careful making our children the guinea pigs. I have suffered miserably from

medical treatment that was said to help...because in my day....it was the " in "

thing to do. It was the " modern " research at the time. It was the best choice

out there. I am not alone. This is why on my adult ASD/AS group/list serves many

of us feel fear about what is happening with this DAN! movement. Many of us

suffering from iatrogenic (caused from medical treatment) harm from those who

tried to " cure " us back when we where kids. WE now see those from the DAN!

movement have regrets. Truly frightening. My parents did the best that they

could do...they listened to the " best " doctors in my day...and now I pay.

In our house we call it the " disease of civilization " . It is over whelming to

me at this time. I don't know how us mom's are suppose to deal with this

stress...when we see our children suffering like they are. Little Kiki is just

one more canary in a toxic mine.

I now can understand my own mother's tears when she would see me suffering. I

now understand why my parents agreed to do some of the intervention that was

done....they did not know it would harm me. Like me, like you, they where

desperate. Doctors said that it was OK. WE want to trust.

HOW do you cope...because...right now...my coping is coming difficult. All

this talk to help our children...when you have read what I have, all of it

contradicts one another. Who are we to believe???

Coming to acceptance that we just don't know ....and know enough to be

dangerous scars the bejesus out of me. I do not want my children to suffer like

I have....yet they are going down the same ASD road I did. SCD is the only thing

that has tamed the monster within, yet this has not " cured " us either ....and

now I even question it. So maybe I should take a sabbatical before I do harm.

Can anyone help me here?

The one that typically GIVES hope to others......now needs hope. Maybe it's

because unlike most NT parents on this list serve...I see this monster

differently.....I am on the spectrum. It's not like we grow up and it all

disappears. When even those who are said to be " cured " still suffer.

" The important thing is never to stop questioning. "

-Albert Einstein

Antoinette and family of ASD/MtD