Maybe I should take a sabbatical /OT

[Guest guest]

Antoinette, I don't know you but know about you from these listserves. I

really think a sabbatical would be helpful to you. Sometimes we get so caught

up in things we can't see other things. Break away from everything on these

listserves for a specific amount of time. It comes across to me that you need

to refocus on accepting where you and your family are now and enjoy. be settled

in that area and then come back and help some more. It's not a question of

whether you help people or not because you say you got lots of affirmative

emails. Kids grow up so fast and life passes by, I just don't want you to look

back and say I missed so much. Your passion for your family has led you to find

a big part of your help with scd, if there is another healing way out there for

Kiki, you will find it, if there is not right now rest in who she is. I'm not

really good writing my thoughts but you asked for comments. Pearl

Bunce wrote: Guys,

WE are all toxic....the world is a very sick place. Overwhelming to me too.

Our ASD children are truly the Canaries in the Mine....the ones that did not

miscarry, they are the messengers to world gone sick. The ones " gasping for

air " .... The native Americans tried to warn us...the Aborigines did

too......Einstein tried to warn us...many others have tried to warn us...but we

still continue to destroy our planet earth.

The very " civilization " that we are so proud of is slowly killing all of us to

some degree or another. Some of us faster than others. Much more than

food...much more than mercury.

A true silent war....that we still truly do not understand. It is like taming

the monster within forever...until we die. For all of us. Some older people on

the spectrum recent this movement to CURE autism. Yes, I know that every one of

them...if proven true...would grab for the chance. We suffer.

WE are the adults that are now living with the consequences of such treatments.

I am not bashing all treatments....I am just saying we need to be careful making

our children the guinea pigs. I have suffered miserably from medical treatment

that was said to help...because in my day....it was the " in " thing to do. It was

the " modern " research at the time. It was the best choice out there. I am not

alone. This is why on my adult ASD/AS group/list serves many of us feel fear

about what is happening with this DAN! movement. Many of us suffering from

iatrogenic (caused from medical treatment) harm from those who tried to " cure "

us back when we where kids. WE now see those from the DAN! movement have

regrets. Truly frightening. My parents did the best that they could do...they

listened to the " best " doctors in my day...and now I pay.

In our house we call it the " disease of civilization " . It is over whelming to me

at this time. I don't know how us mom's are suppose to deal with this

stress...when we see our children suffering like they are. Little Kiki is just

one more canary in a toxic mine.

I now can understand my own mother's tears when she would see me suffering. I

now understand why my parents agreed to do some of the intervention that was

done....they did not know it would harm me. Like me, like you, they where

desperate. Doctors said that it was OK. WE want to trust.

HOW do you cope...because...right now...my coping is coming difficult. All this

talk to help our children...when you have read what I have, all of it

contradicts one another. Who are we to believe???

Coming to acceptance that we just don't know ....and know enough to be dangerous

scars the bejesus out of me. I do not want my children to suffer like I

have....yet they are going down the same ASD road I did. SCD is the only thing

that has tamed the monster within, yet this has not " cured " us either ....and

now I even question it. So maybe I should take a sabbatical before I do harm.

Can anyone help me here?

The one that typically GIVES hope to others......now needs hope. Maybe it's

because unlike most NT parents on this list serve...I see this monster

differently.....I am on the spectrum. It's not like we grow up and it all

disappears. When even those who are said to be " cured " still suffer.

" The important thing is never to stop questioning. "

-Albert Einstein

Antoinette and family of ASD/MtD

[Guest guest]

Pearl,

I am just so confused. The information is truly conflicting and often

contradicts itself. It worries me, as well as others out there.

Plus you are right...I need a break from PB....already...came back for

a look in...and all this talk about finding the fix for autism is

exhausting to me.

YOU are right...we all need to enjoy life a bit more and maybe accept

this thing a bit. Otherwise...we will get so stuck on fixing our

kids...that we will never see their gifts and what they have to offer

the world...just the way they are.

I will be at Long Island now. Where it is simple...and we just talk

about SCD on the most part. I like helping becasue it distracts me and

this is good for me. I only help when the kids are sleeping or

busy...it is good for me to help...just not get upset with this DAN!

movement. As we get answers, I truly worry that in 10 or 20 years we

are going to regret much of it.

Antoinette

[Guest guest]

I agree completely. Excellent writing of your thoughts! Sometimes we cannot

see the forrest because of the trees.

Bonita

Maybe I should take a sabbatical /OT

Antoinette, I don't know you but know about you from these listserves. I

really think a sabbatical would be helpful to you. Sometimes we get so caught up

in things we can't see other things. Break away from everything on these

listserves for a specific amount of time. It comes across to me that you need to

refocus on accepting where you and your family are now and enjoy. be settled in

that area and then come back and help some more. It's not a question of whether

you help people or not because you say you got lots of affirmative emails. Kids

grow up so fast and life passes by, I just don't want you to look back and say I

missed so much. Your passion for your family has led you to find a big part of

your help with scd, if there is another healing way out there for Kiki, you will

find it, if there is not right now rest in who she is. I'm not really good

writing my thoughts but you asked for comments. Pearl

Bunce wrote: Guys,

WE are all toxic....the world is a very sick place. Overwhelming to me too.

Our ASD children are truly the Canaries in the Mine....the ones that did not

miscarry, they are the messengers to world gone sick. The ones " gasping for

air " .... The native Americans tried to warn us...the Aborigines did

too......Einstein tried to warn us...many others have tried to warn us...but we

still continue to destroy our planet earth.

The very " civilization " that we are so proud of is slowly killing all of us to

some degree or another. Some of us faster than others. Much more than

food...much more than mercury.

A true silent war....that we still truly do not understand. It is like taming

the monster within forever...until we die. For all of us. Some older people on

the spectrum recent this movement to CURE autism. Yes, I know that every one of

them...if proven true...would grab for the chance. We suffer.

WE are the adults that are now living with the consequences of such

treatments. I am not bashing all treatments....I am just saying we need to be

careful making our children the guinea pigs. I have suffered miserably from

medical treatment that was said to help...because in my day....it was the " in "

thing to do. It was the " modern " research at the time. It was the best choice

out there. I am not alone. This is why on my adult ASD/AS group/list serves many

of us feel fear about what is happening with this DAN! movement. Many of us

suffering from iatrogenic (caused from medical treatment) harm from those who

tried to " cure " us back when we where kids. WE now see those from the DAN!

movement have regrets. Truly frightening. My parents did the best that they

could do...they listened to the " best " doctors in my day...and now I pay.

In our house we call it the " disease of civilization " . It is over whelming to

me at this time. I don't know how us mom's are suppose to deal with this

stress...when we see our children suffering like they are. Little Kiki is just

one more canary in a toxic mine.

I now can understand my own mother's tears when she would see me suffering. I

now understand why my parents agreed to do some of the intervention that was

done....they did not know it would harm me. Like me, like you, they where

desperate. Doctors said that it was OK. WE want to trust.

HOW do you cope...because...right now...my coping is coming difficult. All

this talk to help our children...when you have read what I have, all of it

contradicts one another. Who are we to believe???

Coming to acceptance that we just don't know ....and know enough to be

dangerous scars the bejesus out of me. I do not want my children to suffer like

I have....yet they are going down the same ASD road I did. SCD is the only thing

that has tamed the monster within, yet this has not " cured " us either ....and

now I even question it. So maybe I should take a sabbatical before I do harm.

Can anyone help me here?

The one that typically GIVES hope to others......now needs hope. Maybe it's

because unlike most NT parents on this list serve...I see this monster

differently.....I am on the spectrum. It's not like we grow up and it all

disappears. When even those who are said to be " cured " still suffer.

" The important thing is never to stop questioning. "

-Albert Einstein

Antoinette and family of ASD/MtD