Re: Maybe I Should Just Take A Sabbatical

[Guest guest]

Is it SCD that is really so difficult, or all the intertwined

issues?

>

No, It's AUTISM that is so difficult! To think otherwise comes from

being naive or uninformed -- both of which you have 100% permission to

do since you don't have to live it, but neither of which some of us

have the luxury of.

I am so thankful we finally did the real SCD -- but not because we

have had glowing success. We first started SCD 3.5 years ago, but did

not do the stages properly due to my son's food aversions. I now

realize we still should have seen more GI gains than we did. The lack

of GI improvement was a sign that my son's system was more messed up

than I originally thought. I instead concluded it didn't help him

enough and moved on to another diet and eventually found ourselves

back here. This time around, we are realizing that when SCD cannot

fix everything, it can be used to pinpoint an underlying problem. In

our case, us bringing in the food journal of our SCD experience/lack

of progress was what made my son's GI doctor run tests for

malabsorption (including the pancreatic insufficiency tests that are

not yet in). If we had not strictly adhered this time around, I

would've concluded that this diet just wasn't working (or was too hard

to make work).

If the spirit of the conversation is aimed at helping people succeed

on SCD, I hope the occassional tangents aren't taken as directing

people away from SCD. The past thread was directed towards people who

are finding SCD is not enough because of a co-morbid condition. So

many of our kids have co-morbid conditions and I believe diet can

address so many of them, but it can also be used to identify what will

not respond to diet.

-

[Guest guest]

> to make work).

>

> If the spirit of the conversation is aimed at helping people succeed

> on SCD, I hope the occasional tangents aren't taken as directing

> people away from SCD.

>

> -

,

I have Latex Allergy, Multiple Chemical Sensitivities. Electro Magnetic

Sensitivities as well

as celiac disease. There is a connection through the immune system. I belong to

a non

SCD Canadaian list that deals with these other conditions and where a few

people are

also interested in SCD. The rules of those lists do not restrict wider

discussion. So, I have

tried not to muddy the waters by bringing my other illnesses to SCD lists often.

I just left a list that officially includes SCD among its topics but also

officially supports

" modified SCD, " Rather than argue I left the list and comforted myself with

words from one

of Elaine's closest friends:

" There will always be people who, after knowing about SCD for no more than about

10

minutes, suddenly think they know more than both Elaine and Dr Haas combined.

Anybody

spending time on a website focused on " Modified SCD " is getting just what they

want, so

don't worry about them. "

But I do worry about them!

What I have failed to realize over the years is that people on SCD support

groups are the

tip of the iceberg, just a microcosm of the thousands who have followed the diet

over the

years around the world and the over one million who have purchased BTVC.

I have encountered difficulties on every list because I try to keep grounded in

the " fanatical

adherence " requirement that Elaine said the diet demands.

It is so much easier to be selfish and just say, " Yippee, it works for me and I

worked hard

to understand it and learn to enjoy it. let others figure it out as best they

can. " But this

philosophy is not conducive to putting one's head on one's pillow at night :-)

Carol F.

SCD 7 years

[Guest guest]

Carol...that is exactly what I will do too....just pop in when a post

is SCD and not the confusing BS around fixing autism with

alternatives. Then I do not have to take a sabbatical at all...I just

need to put blinders on...or else I get sucked into the talk. LOL

Antoinette

[Guest guest]

I get what you are saying, but I don't recall anybody suggesting that SCD be

modified here.

-

carolfrilegh wrote:

> to make work).

>

> If the spirit of the conversation is aimed at helping people succeed

> on SCD, I hope the occasional tangents aren't taken as directing

> people away from SCD.

>

> -

,

I have Latex Allergy, Multiple Chemical Sensitivities. Electro Magnetic

Sensitivities as well

as celiac disease. There is a connection through the immune system. I belong to

a non

SCD Canadaian list that deals with these other conditions and where a few people

are

also interested in SCD. The rules of those lists do not restrict wider

discussion. So, I have

tried not to muddy the waters by bringing my other illnesses to SCD lists often.

I just left a list that officially includes SCD among its topics but also

officially supports

" modified SCD, " Rather than argue I left the list and comforted myself with

words from one

of Elaine's closest friends:

" There will always be people who, after knowing about SCD for no more than about

10

minutes, suddenly think they know more than both Elaine and Dr Haas combined.

Anybody

spending time on a website focused on " Modified SCD " is getting just what they

want, so

don't worry about them. "

But I do worry about them!

What I have failed to realize over the years is that people on SCD support

groups are the

tip of the iceberg, just a microcosm of the thousands who have followed the diet

over the

years around the world and the over one million who have purchased BTVC.

I have encountered difficulties on every list because I try to keep grounded in

the " fanatical

adherence " requirement that Elaine said the diet demands.

It is so much easier to be selfish and just say, " Yippee, it works for me and I

worked hard

to understand it and learn to enjoy it. let others figure it out as best they

can. " But this

philosophy is not conducive to putting one's head on one's pillow at night :-)

Carol F.

SCD 7 years

---------------------------------

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on,

when.

[Guest guest]

It isn't so much that it is being " modified " as things happening to

these kids that SCD could fix with SCD alone. There are many on the

list that depend on HBOT and chelation and DAN!. I am just saying that

if they knew how SCD worked to help ASD conditions...they may not need

to do these other therapies and treatments. Notice how I said " may

not " ....some still might.

WE all have a road to hoe....God knows I do.

Antoinette