Aloha from the Outside!

[Guest guest]

I wanted to share with the group at what seems a pivotal point in the last 5

days of

messaging. I joined the group only last week. I initially joined as I have

spent 10 years

trying to help my children with their

GI problems. We have all been gluten and dairy free for 3 years and improved

immensely.

We all have the gene for celiac disease.

My eldest daughter - who has a partial seizure disorder - still struggles with

a bowel that

does not perform well. I was so excited to find the pecanbread site, am reading

the book

and getting prepared to implement the first stage of the gut healing diet. We

do not have

ASD issues although I have an aunt who does. She has not had the luxury of

having diet

changes and is treated with drugs only. She is now 55years old and with no

dietary

intervention her life has just passed her by.

I have learned so much over the past fewe days from this List serve.

Antoinettes story

most certainly is gut wrenching. I had no idea about the existance of all these

enormous

complications for those with ASD. The sites that I have accessed from these

conversations

have taken my education in new directions and my somewhat complicated situation

with

my children now seems a little less complicated! Through this journey I too

have asked

the questions about CURE. It wasn't until I accepted with my duaghters partial

seizure

disorder that perhaps the CURE isn't the focus it is the journey in between.

In light of my journey ,although I am new to SCD, I identify with the issues

of the last 5

days. ASD is not an issue with my children but we deal with other gut wrenching

issues of

brain disfunction that could be improved with the SCDiet.

In saying this however I could see that the intensity of the last 5 days could

be of a

concern to those who are merely looking for simple answers to do with the

implementation of the SCDiet. They may be in a position to not cope with the

barrage of

self prognosis for themselves or their children. Perhaps at this point it might

be

appropriate to form another group/leg for people who are further into the

journey than

the newer more idealistic bunch. It really pays to be so positive and motivated

when

starting a new way of eating.

However issues for those who are veterans are essential to be addressed.

Antoinette,

Carol and are all an inspiration and I would love to see them have an

outlet for their

continued research. One cannot take a sabatical from your everyday life!! My

experience

is that when life is this intense it really pays to share and teach others who

may not have

the resources to investigate as fully as these incredibly passionate women do.

A list serve for Veterans and a list serve for newbies! That way everyones

needs will be

met and all those considering the SCDiet will stay focussed on the issues of

implementing

the diet and seeing if it will essentially work for them. After all we are all

coming to this

with a multitude of different experiences. Yet we are converging at this same

point for the

same reason - to help ourselves and loved ones MANAGE a condition more

effectivly -

regardless of what that condition may be! And yes some might find that the

SCDiet alone

is not going to CURE or even MANAGE the condition 100% and that is just fine.

As long as

our journey takes us in a positive direction we are making progress.

Margit

[Guest guest]

>

> I wanted to share with the group at what seems a pivotal point in the last 5

days of

> messaging. I joined the group only last week.

>>>>snipped for brevity

This truly beautiful post and went straight to my heart. Thank you for your keen

observation and clarity of expression.

Five years ago we had a sidebar of a group called SCD Close. I think there may

have been

eight of us, some moderators, some veterans and it was mostly to process

contentious

posts without doing it on the list and getting everyone stirred up. We spent so

much time

posting to each other on SCS Close that it began to supersede volume on

Pecanbread and

it's alter ego. " Elaine's Children. "

We decided there was no further need for that group. Besides, everything

changes some

people did not remain. We do see turnover on most lists, but also people return

after an

absence.

Mimi is our greatest cheerleader when it comes to creating specialized lists :-)

And doing

the most fabulous research behind the scenes. And her renewing and refurbishing

gave

us our really super SCD website that other groups use as reference.

If Mimi thinks a subject is worthy and will fill a need, she will create another

list even if

there are only two members LOL. I always beg her not to and compare her to Don

Quixote

who parried with windmills.

A former moderator may have actually belonged to as many as 25 autism lists.

It's a

wonder her kids didn't live on takeout.

Pecanbread is important. It has saved many little souls and brought them into

the

mainstream of life when parents had almost given up. SCD isn't simple and it

isn't easy AT

FIRST. But once you know the drill it's a treasure!.

Anyhow, please forgive me. I always have these acute oversimplification attacks

on

weekends. I need to get a life.

Carol F.

SCD 7 years