7 month on SCD: two steps forward/one back?

[Guest guest]

My daughter is in her 7th month on SCD. Although we didn't know if SCD

would work, and indeed it seemed it would not, she is better. Her weight is

up, her vomiting stopped, rarely does she bleed, her blood work is the best

in 4 years, she grew a bit and she is on less medicine.

However, right now, her appetite is a bit less and she lost a pound or two.

She is making " burps " ... the unusual kind that I noticed before she was

diagnosised with Crohns. The book: We Band of Mothers mentions that at

the 7th month many do " burp " , but I think this is meant for autistic

children. Any experience with the two steps forward...and one step back

for a severe case of Crohns? I'm assuming go back to early stages or

starter diet.

Also, I thought I read that apple cider vinegar and honey is a good drink

for reflux?....................

JT

Mother of 15 year old teen w/ Crohns SCD 1/07

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3:50 PM

[Guest guest]

Hi JT,

<<My daughter is in her 7th month on SCD. Although we didn't know if

SCD would work, and indeed it seemed it would not, she is better.

Her weight is> up, her vomiting stopped, rarely does she bleed, her

blood work is the best> in 4 years, she grew a bit and she is on less

medicine.

>

> However, right now, her appetite is a bit less and she lost a pound

or two.> She is making " burps " ... the unusual kind that I noticed

before she was> diagnosised with Crohns.... I'm assuming go back to

early stages or

> starter diet.

Has she had any new foods, meds, supplements in the last couple of

weeks?

Has she changed the amounts of foods that she eats (eg. more carrots

than normal or a lot of extra bananas) or has she stopped eating any

food, stopped a supplement etc..

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and daniel

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and daniel

[Guest guest]

Hi Sheila..... I am a bit afraid. I don't want to go back to days

(years) of illness. Have faith...

Answers below..........

JT

Re: 7 month on SCD: two steps forward/one back?

Hi JT,

<<My daughter is in her 7th month on SCD. Although we didn't know if

SCD would work, and indeed it seemed it would not, she is better.

Her weight is> up, her vomiting stopped, rarely does she bleed, her

blood work is the best> in 4 years, she grew a bit and she is on less

medicine.

>

> However, right now, her appetite is a bit less and she lost a pound

or two.> She is making " burps " ... the unusual kind that I noticed

before she was> diagnosised with Crohns.... I'm assuming go back to

early stages or

> starter diet.

Has she had any new foods, meds, supplements in the last couple of

weeks?

She did have a Lara bar that she thinks did not

agree with her a week ago. (SCD friendly...but advanced).

Has she changed the amounts of foods that she eats (eg. more carrots

than normal or a lot of extra bananas) or has she stopped eating any

food, stopped a supplement etc..

Lowered/stopped the calcium/d pill. But got more

today.

I'll keep thinking about this. She is sleeping now.

She has also been more active and making herself

wake up before noon. (seriously).

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and daniel

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11:14 PM

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11:14 PM

[Guest guest]

Hi JT,

<<Hi Sheila..... I am a bit afraid. I don't want to go back to

days> (years) of illness. Have faith...

I can understand wanting to " nip this in the bud " before it

progresses.

> Answers below..........

> JT

>

> Hi JT,

>

> <<My daughter is in her 7th month on SCD. Although we didn't know

if

> SCD would work, and indeed it seemed it would not, she is better.

> Her weight is> up, her vomiting stopped, rarely does she bleed, her

> blood work is the best> in 4 years, she grew a bit and she is on

less

> medicine.

> >

> > However, right now, her appetite is a bit less and she lost a

pound

> or two.> She is making " burps " ... the unusual kind that I noticed

> before she was> diagnosised with Crohns.... I'm assuming go back to

> early stages or

> > starter diet.

>

<<Has she had any new foods, meds, supplements in the last couple of

> weeks?

She did have a Lara bar that she thinks did

not> agree with her a week ago. (SCD friendly...but advanced).>>

The Lara bars are not approved, but may be legal. You're right they

are very advanced because they are dried fruits, whole nuts etc.

Some of them are more advanced then the others.

It most likely was the Lara bar, unless there were other new foods,

supplements also.

It may be best to either do the intro for a day or two or very basic

diet for 2-3 days and then ramp up again to the foods she was okay

with before the burping etc.. started. She may want to take it a

little easier until she is feeling better again.

Sheila