Large amounts of Electrolyte drink vs. absence of thirst

[Guest guest]

Yesterday my daughter drank approx 80 oz of the electrolyte

drink...the one on the elaine website..

2 Tablespoon Honey

1/4 teaspoon baking soda

1/4 teaspoon salt (I use the " real salt " brand of sea salt)

1 Quart of boiling water

I also added a small squeeze of lemon

I stopped giving her the 1/8 scd legal juice, 7/8 water when it

seemed the fruit, even in that was getting to her. She can eat no

fruit at all without a reaction.

I just let her drink as much as she wanted, as there seems to have

been many times in the last few months where it is a struggle to get

her to drink 10 oz. It is a wierd phenomena...when she is having a

really bad day she will just refuse to drink. In fact, it is the

only common denominator of all the symptoms she experiences...a total

absence of thirst.

TOday I cut the honey in half and added no lemon. But, she has had a

pretty bad day, inflexible, sort of slurry speech and inability to

gather herself or her thoughts, insistence of sameness, etc..return

of the un-thirsty child as well. I am wondering if all the honey

from yesterday's drinking might be getting to her. SHe has also

pooped very little and there was tons of undigested food in her

small, quite hard poo.

Thanks to you all!

nah Hansen

mother to 3 yo undiagnosed Ella

SCD since 8/2/07

[Guest guest]

nah,

Lack of thirst is called adipsia. It can be induced by a bacterial toxin

called LPS. Melatonin can relieve it.

http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=103974\

06&dopt=AbstractPlus

Adipsia might also be caused by other factors. If you do not see

improvements from SCD then seek the help of an SCD counselor.

If you still see no improvements then seek medical help to rule out other

factors.

mimi

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