Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Hi-Sorry for the long email. This is my first time here. I have a 4 year old verbal, but speech delayed autistic girl, who has been diagnosed with gastritis, severe constipation and small bowel disease. I have tried her on the SCD diet since the end of July. Before, she was GF,CF, Soy free for 9 months and on the low oxalate diet for about 3 months. She is currently eating only meat, chicken soup, baked veggies including cauliflower which she freakishly craves all the time (p.s. do I need to deseed zucchini when I cook it), organic sugar free pear juice (only for supplements), avocado, water and I just started her on raw lettuce. I am scared to take away her meds, Pentasa, Zantac, Valtrex, ketokonazole (anti-yeast RX), singulair and her supplements, some of which I'm sure is not SCD (some have soybean oil in them and xylitol/mannitol/stevia). Can I still get the benefit of the SCD if I keep her on the meds and supplements, which may be helping her? I plan on switching to an SCD legal probiotic and trying the goat yogurt soon. I've noticed better pooping since being on the diet. Before, she needed 2 capfuls of Miralax daily to poop every other day. Now, with HBOT, her GI meds and the diet, she is pooping almost daily without any laxatives. However, she is bloated and she seems out of it, perseverative and sensory seeking sometimes (i.e. she like to screech and run in circles). Is that a die off reaction or am I doing the diet wrong by keeping her on the meds and supps? Do I have to start the diet all over again if I have to take away her meds and supps?Also, can I progress in the diet guidelines to a more advanced level if she is pooping normally after eating a certain food? Is normal poop generally the guideline? Any input is appreciated! Thank you, Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 Sally, My son takes Pentasa and Zantac, too. I think the Pentasa is legal if you open the capsule and sprinkle out the contents, but I'm not sure about the Zantac. I'm also scared to take away these medicines. The SCD diet has helped my son but he craves foods high in oxalates such as spinach. I'm not sure if the oxalates negatively affect him. I do know spinach is an alkaline food which I think is good. I'm also concerned that Pentasa is a salicylate and those can be problematic as well. Sorry I'm raising more questions than answering them. Anyone have any input on their experiences with Pentasa and Zantac? If they're not SCD legal any other alternatives? Thanks, Flo mom to Mike, 10 SCD since 2005 ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Hi Flo, Thanks so much for your response. It's comforting to know that someone else has the same concerns. I think I'm going to keep the Pentasa although who knows if it is really doing anything. Chloe has quite a bit of inflammation in the stomach and small bowels. I discontinued the Zantac (the pink tablet) for now. Chloe has reflux, which comes and goes. I haven't heard any excessive swallowing from her and I was afraid that the Zantac had an illegal binding agent/starch in the tablet. Chloe is still on the low oxalate diet-she was found to have extremely high oxalate levels-although I don't give her the calcium citrate tablets any longer since they were not SCD legal. In any event, I appreciate your feedback. Thanks so much! Sally (mom to Chloe, 4 ASD, SCD since 7/07) --- frb1304@... wrote: > Sally, > My son takes Pentasa and Zantac, too. I think > the Pentasa is legal if > you open the capsule and sprinkle out the contents, > but I'm not sure about the > Zantac. I'm also scared to take away these > medicines. The SCD diet has helped > my son but he craves foods high in oxalates such as > spinach. I'm not sure if > the oxalates negatively affect him. I do know > spinach is an alkaline food > which I think is good. > I'm also concerned that Pentasa is a salicylate > and those can be > problematic as well. Sorry I'm raising more > questions than answering them. Anyone > have any input on their experiences with Pentasa and > Zantac? If they're not SCD > legal any other alternatives? > Thanks, Flo > mom to Mike, 10 SCD since 2005 > > > > ************************************** > Get a sneak peek of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi, Sally, I can't really say if your dd's behaviors and bloating are die-off or something else. Zucchini with small seeds do not need to be deseeded. But really large zucchini (with large seeds do). The organic pear juice you are using is illegal. If you need pear juice you have to make your own. Legal store-bought juices are listed here: http://www.pecanbread.com/new/legalfoods1.html Try to replace the supplements with legal alternatives. If possible get the meds compounded to be SCD legal. If you can't get them compounded and she really needs them, then keep on them. Some people find that their acid reflux goes away with SCD. You might try tapering off on the Zantac and see how she does. There are natural anti-fungals for yeast as well as enzymes to deal with it: Candex, Candizyme, Candidase, etc. Also the probiotic S. Boulardi combats yeast. If you eliminate/replace supplements and Rx then it would be a good idea to do the intro again. It will get your dd off to a good start. Moving on is based on poops and on behavior. If you can't tell by behavior, then you have to go by the poops. mom to -12 SCD 4/23/04 > > Hi-Sorry for the long email. This is my first time here. > I have a 4 year old verbal, but speech delayed autistic girl, who has > been diagnosed with gastritis, severe constipation and small bowel > disease. I have tried her on the SCD diet since the end of July. > Before, she was GF,CF, Soy free for 9 months and on the low oxalate > diet for about 3 months. She is currently eating only meat, chicken > soup, baked veggies including cauliflower which she freakishly craves > all the time (p.s. do I need to deseed zucchini when I cook it), > organic sugar free pear juice (only for supplements), avocado, water > and I just started her on raw lettuce. > I am scared to take away her meds, Pentasa, Zantac, Valtrex, > ketokonazole (anti-yeast RX), singulair and her supplements, some of > which I'm sure is not SCD (some have soybean oil in them and > xylitol/mannitol/stevia). Can I still get the benefit of the SCD if > I keep her on the meds and supplements, which may be helping her? I > plan on switching to an SCD legal probiotic and trying the goat > yogurt soon. I've noticed better pooping since being on the diet. > Before, she needed 2 capfuls of Miralax daily to poop every other > day. Now, with HBOT, her GI meds and the diet, she is pooping almost > daily without any laxatives. However, she is bloated and she seems > out of it, perseverative and sensory seeking sometimes (i.e. she like > to screech and run in circles). Is that a die off reaction or am I > doing the diet wrong by keeping her on the meds and supps? Do I have > to start the diet all over again if I have to take away her meds and > supps?Also, can I progress in the diet guidelines to a more advanced > level if she is pooping normally after eating a certain food? Is > normal poop generally the guideline? Any input is appreciated! > Thank you, Sally > Quote Link to comment Share on other sites More sharing options...
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