SCD diet and Remicade- a question?

[Guest guest]

Dear SCD veterans. Has anyone out there with Crohn's disease had to

use Remicade? My child is still having flare ups and we have been very

careful with food. She had prednisone in July which I was told has

sorbitol in it. Then after a month off of prednisone is having a flare

again and her doctor is considering Remicade. Would using Remicade be

a problem for this SCD diet? We intend to stay on the diet because we

believe it in. She is on Pentassa, folic acid and cod liver oil. SCD

since Feb.-07. - Also, why would getting prednisone made with dextrose

and frutose be better then sorbitol? - Should I be adding acidophilus

to her yogurt to boost the healing?

[Guest guest]

Hi eacgetwell,

<<Dear SCD veterans. Has anyone out there with Crohn's disease had to

> use Remicade? My child is still having flare ups and we have been

very > careful with food.>>

What foods is she eating and how are they prepared?

What happens with her flares? Did she have good bm's while on the

steroids? What was the frequency? What is the frequency now? Any

bleeding? Diarrhea, constipation etc..?

<< She had prednisone in July which I was told has > sorbitol in it.

Then after a month off of prednisone is having a flare > again and her

doctor is considering Remicade. Would using Remicade be > a problem

for this SCD diet?>>

Some do use Remicade. You may get more feedback on it from the Long

Island SCD list (more people with crohn's on that list).

Regarding the Pentasa please see http://www.scdiet.org/4faq/asacol.html

When did she start the Pentasa? Any chance she is now having a bad

reaction to it.

<< We intend to stay on the diet because we

> believe it in. She is on Pentassa, folic acid and cod liver oil.

SCD since Feb.-07. - Also, why would getting prednisone made with

dextrose and frutose be better then sorbitol?>>

Sorbitol is indigestible by humans and may feed nasty microbes. The

dextrose or fructose should not feed microbes, but be readily digested

by the body.

Re: the prednisone she took: was it in the liquid form?

<<-Should I be adding acidophilus to her yogurt to boost the healing?>>

Some people do find that adding the acidophilus to yogurt (after

fermentation) beneficial. Which yogurt starter are you using?

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

[Guest guest]

Dear Sheila and Group:

Thank you for your response. She eats only SCD approved foods and

lately we has gone back to soft mild foods almost like the beginning

foods, -eggs, cheese, bananas, baked chicken. When she flares she

has mild to moderte pain after meals and still just one bm a day.

When this first started she had two loose BMs following a cold with

one day of light bleeding. I will also look in the Long Island SCD

list, do I just go online to find it?

She started the Pentasa right after her diagnosis in December o6.

The prednisone was in a small tablet form. For yogurt starter I use

Dannon All Natural Plain yogurt.

I appreciate your help.

EACgetwell

have a child with Crohns

SCD since Feb. 07

>

> Hi eacgetwell,

>

> <<Dear SCD veterans. Has anyone out there with Crohn's disease had

to

> > use Remicade? My child is still having flare ups and we have

been

> very > careful with food.>>

>

> What foods is she eating and how are they prepared?

>

> What happens with her flares? Did she have good bm's while on the

> steroids? What was the frequency? What is the frequency now? Any

> bleeding? Diarrhea, constipation etc..?

>

> << She had prednisone in July which I was told has > sorbitol in

it.

> Then after a month off of prednisone is having a flare > again and

her

> doctor is considering Remicade. Would using Remicade be > a

problem

> for this SCD diet?>>

>

> Some do use Remicade. You may get more feedback on it from the

Long

> Island SCD list (more people with crohn's on that list).

>

> Regarding the Pentasa please see

http://www.scdiet.org/4faq/asacol.html

> When did she start the Pentasa? Any chance she is now having a bad

> reaction to it.

>

>

> << We intend to stay on the diet because we

> > believe it in. She is on Pentassa, folic acid and cod liver

oil.

> SCD since Feb.-07. - Also, why would getting prednisone made with

> dextrose and frutose be better then sorbitol?>>

>

> Sorbitol is indigestible by humans and may feed nasty microbes.

The

> dextrose or fructose should not feed microbes, but be readily

digested

> by the body.

>

> Re: the prednisone she took: was it in the liquid form?

>

> <<-Should I be adding acidophilus to her yogurt to boost the

healing?>>

>

> Some people do find that adding the acidophilus to yogurt (after

> fermentation) beneficial. Which yogurt starter are you using?

>

> Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

> mom of and

>

[Guest guest]

Hi EACgetwell,

<<Dear Sheila and Group:

> Thank you for your response. She eats only SCD approved foods and

> lately we has gone back to soft mild foods almost like the

beginning

> foods, -eggs, cheese, bananas, baked chicken. When she flares she

> has mild to moderte pain after meals and still just one bm a day. >>

When she has this pain is she having loose or soft stools or is it

firm stools?

What kind of cheese?

How are her bowel movements now? Is she still having pain?

<<When this first started she had two loose BMs following a cold with

> one day of light bleeding.>>

Is she still having any blood?

<<I will also look in the Long Island SCD list, do I just go online

to find it?>>

Scroll down on this list:

http://www.breakingtheviciouscycle.info/support/support.htm

<<She started the Pentasa right after her diagnosis in December o6.

> The prednisone was in a small tablet form. For yogurt starter I

use

> Dannon All Natural Plain yogurt.>>

The dannon sounds like the correct version.

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and