RE: Re: Apraxia and Slow Processing & NACD

[Guest guest]

Hi Janice,

You have put it so well. The system has tried to fail our kids. But our

kids are strugglers.

Thank you for guiding me to NACD. I just received the set of CD's from

them, and I am looking forward to hearing them. Our kids are brilliant;

there is so much locked wisdom in there. I yet have to find that key to

unlock it. I am hoping NACD will be it. I pray to God that it is. Having

said that I see some parents on this group are from NJ, and seem to be

working with NACD. Can you please share your experience with the PA office?

I will really appreciate it.

Before I end this e-mail, I just have to add a tad bit to the discussion of

how some professionals don't understand our kids. One of the doctors who

our son sees mentioned the other day in a much generalized fashion that with

autism comes the disability of not being able to understand any physical,

mental, and emotional changes. Just a few minutes later after this comment

from her, our son just turned around and said Dr. your new haircut looks

cool, it looks like you got an tan, and why are you so happy today while you

were so sad the last time I was here. THEY STILL DON " T GET IT. I used to

cry when professionals made comments like this earlier, underestimating our

child. But now I just know that they don't know enough. And while they

think my child needs work, they need it more.

Regards,

Ambika

_____

From:

[mailto: ] On Behalf Of Janice

Sent: Monday, February 04, 2008 8:39 PM

Subject: Re:[ ] Re: Apraxia and Slow Processing

,

Because we have older children and have experienced the 'stupidity' of the

'system', we have a better understanding of the word 'slow' and the

insidious nature to which many of the professionals out there use it..... It

is a one way ticket to special education..... and 'opportunities' class....

I say... Run Forest, RUN! Yes, I do jokingly call my boy Forest Gump.... but

I have to run myself for he gives me a chase & a threat at my joke. (yes, he

does get it!)

In the educational system, SLOW processing is not used in a nice way....

Usually people use the word 'slow' to mean mental retardation of some sort.

In actuality, Marks original IQ tests in grade 2, described him as being

borderline mentally handicapped with regards to non-verbal persuits. I have

it in black and white.... Unbelievable!

Now, once they state this about your child at the tender age of 8, it is

assumed to be never-changing and a testament to that childs abilities....

FOREVER!!! That is your child's life-promise as per the educational system.

This is a BAAAAAAD thing for it forever limits your child within the system.

This is sooooo wrong!

I listened to these people who encouraged me to do 'nothing' for my child

and so my child did not improve. As soon as I researched and found help for

my child, everything turned around and he got better. His IQ has definately

changed and someday (when I have extra $$$), I shall have him retested to

prove it!

So.... Liz and all of you with little ones..... if you wonder why ,

myself and others 'react' so reflexively to the word slow as though we have

been back-handed across the face.... this is the reason. We have had such

aweful experiences with the system and with others (usually complete idiots)

who assume that our kids are stupid. They only see what is in front of them

and perform the 'easy' diagnosis. They do not look beneath the surface to

the diamond that sparkles and glows beneath the rough exterior.... our

children are truly.... diamonds in the rough!

Janice

Mother of Mark, 13

[sPAM][ ] Re: Apraxia and Slow Processing

Liz there is much in the archives and in research about self-

fulfilling prophecies and the research of Dr. Rosenthal. Please

don't assume that it's OK because your child is younger to say your

child is " slow " in three areas! There is a huge problem with many

here assuming that apraxia and processing disorders co exist or that

children with apraxia have slow receptive/cognitive processing skills

which is also a sign of mental retardation. And the fact so many

today are accepting this is very sad. Perhaps unlike the children

here from over the years like my son Tanner -the children in the

group today won't be mainstreamed. Is that the belief? Because

belief becomes reality and you get to choose now. Your child's

future depends in some part on your belief. Isn't it a mother and

father's instinct to raise our child up?

And to answer the question about therapy for another diagnosis

working. Many here with autistic children found some of the methods

used for apraxia to work as well. The Kaufman Kit can be used by any

late talker- even one that isn't apraxic.

We tried various therapies for Tanner that are used for deaf children

including learning sign -that doesn't mean Tanner is deaf. Just

because a therapy helps doesn't mean a child has the diagnosis that

therapy was originally designed for.

Please do some homework on the awesome Dr. Rosenthal and the

work he has done. You will also find much about him in the

archives. Sadly if you believe your child to be slow..in three areas

no less -you 'are' probably going to find out you are right. When

nobody else believed in Tanner Glenn and I did and guess who proved

everyone but us wrong -not us -but Tanner did! I loved sharing the whole

story with Dr. Rosenthal because he is brilliant and he is the one

that inspired me. And I saw it work. They could have been right and

Tanner would have been in special ed today.

http://www.cherab.

<http://www.cherab.org/information/familiesrelate/letter.html>

org/information/familiesrelate/letter.html

I know some of you don't understand this -but again don't assume the

worst and don't underestimate those that can't verbally prove you

wrong...yet. Sometimes it's best to be wrong and if you believe

apraxia and slow processing of receptive or cognitive skills go hand

in hand -then you 'are' wrong. Apraxia is not a cognitive disorder.

And even if in your child's case you were right and for example one's

child has co existing mental retardation with the apraxia -you are

still best to believe in your child and give the benefit of the

doubt. Look at Robin's daughter -it's a hard pill to swallow

to be wrong -or assume others are right with bogus diagnosis about

your child - years down the road.

http://www.cherab. <http://www.cherab.org/news/.html>

org/news/.html

And while for ethical reasons Dr. Rosenthal's research was done in

the positive -in speaking with him he agrees that it works both

ways. If that's the case why think anything but the positive?

http://www.facultyd

<http://www.facultydirectory.ucr.edu/cgi-bin/pub/public_individual.pl?facult

y=534> irectory.ucr.edu/cgi-bin/pub/public_individual.pl?faculty=534

http://www.pineforg

<http://www.pineforge.com/newman4study/resources/rosenthal1.htm>

e.com/newman4study/resources/rosenthal1.htm

http://www.psichi. <http://www.psichi.org/pubs/articles/article_121.asp>

org/pubs/articles/article_121.asp

http://www.accel- <http://www.accel-team.com/pygmalion/prophecy_01.html>

team.com/pygmalion/prophecy_01.html

http://www.musicedm

<http://www.musicedmagic.com/class-management/classroom-vision-and-the-self-

fulfilling-prophecy.html>

agic.com/class-management/classroom-vision-and-the-self-fulfilling-prophecy.

html

http://www.motivati

<http://www.motivation-tools.com/workplace/social_prejudice.htm>

on-tools.com/workplace/social_prejudice.htm

tons more -just google it or search the archives here

=====

[Guest guest]

Ambika,

I don't go to the PA office since we are from Canada. We fly straight to Ogden,

UT. Lots of other moms on this list go to the PA office and I am sure they can

give you some feedback on their experiences... I love NACD! Just love it!

Hard work.... YES!!! Well child..... YES!!! The therapy programs they have

designed for Mark have been spot on and they have really changed his life and

his future. I cannot thank them enough!

NACD PA moms..... Can you help Ambika with feedback?

Janice

[sPAM][ ] Re: Apraxia and Slow Processing

>

> Liz there is much in the archives and in research about self-

> fulfilling prophecies and the research of Dr. Rosenthal. Please

> don't assume that it's OK because your child is younger to say your

> child is " slow " in three areas! There is a huge problem with many

> here assuming that apraxia and processing disorders co exist or

that

> children with apraxia have slow receptive/cognitive processing

skills

> which is also a sign of mental retardation. And the fact so many

> today are accepting this is very sad. Perhaps unlike the children

> here from over the years like my son Tanner -the children in the

> group today won't be mainstreamed. Is that the belief? Because

> belief becomes reality and you get to choose now. Your child's

> future depends in some part on your belief. Isn't it a mother and

> father's instinct to raise our child up?

>

> And to answer the question about therapy for another diagnosis

> working. Many here with autistic children found some of the methods

> used for apraxia to work as well. The Kaufman Kit can be used by

any

> late talker- even one that isn't apraxic.

>

> We tried various therapies for Tanner that are used for deaf

children

> including learning sign -that doesn't mean Tanner is deaf. Just

> because a therapy helps doesn't mean a child has the diagnosis that

> therapy was originally designed for.

>

> Please do some homework on the awesome Dr. Rosenthal and the

> work he has done. You will also find much about him in the

> archives. Sadly if you believe your child to be slow..in three

areas

> no less -you 'are' probably going to find out you are right. When

> nobody else believed in Tanner Glenn and I did and guess who proved

> everyone but us wrong -not us -but Tanner did! I loved sharing the

whole

> story with Dr. Rosenthal because he is brilliant and he is the one

> that inspired me. And I saw it work. They could have been right and

> Tanner would have been in special ed today.

> http://www.cherab.

> <http://www.cherab.org/information/familiesrelate/letter.html>

> org/information/familiesrelate/letter.html

>

> I know some of you don't understand this -but again don't assume

the

> worst and don't underestimate those that can't verbally prove you

> wrong...yet. Sometimes it's best to be wrong and if you believe

> apraxia and slow processing of receptive or cognitive skills go

hand

> in hand -then you 'are' wrong. Apraxia is not a cognitive disorder.

>

> And even if in your child's case you were right and for example

one's

> child has co existing mental retardation with the apraxia -you are

> still best to believe in your child and give the benefit of the

> doubt. Look at Robin's daughter -it's a hard pill to

swallow

> to be wrong -or assume others are right with bogus diagnosis about

> your child - years down the road.

> http://www.cherab. <http://www.cherab.org/news/.html>

> org/news/.html

>

> And while for ethical reasons Dr. Rosenthal's research was done in

> the positive -in speaking with him he agrees that it works both

> ways. If that's the case why think anything but the positive?

>

> http://www.facultyd

> <http://www.facultydirectory.ucr.edu/cgi-

bin/pub/public_individual.pl?facult

> y=534> irectory.ucr.edu/cgi-bin/pub/public_individual.pl?faculty=534

> http://www.pineforg

> <http://www.pineforge.com/newman4study/resources/rosenthal1.htm>

> e.com/newman4study/resources/rosenthal1.htm

> http://www.psichi.

<http://www.psichi.org/pubs/articles/article_121.asp>

> org/pubs/articles/article_121.asp

> http://www.accel- <http://www.accel-

team.com/pygmalion/prophecy_01.html>

> team.com/pygmalion/prophecy_01.html

> http://www.musicedm

> <http://www.musicedmagic.com/class-management/classroom-vision-and-

the-self-

> fulfilling-prophecy.html>

> agic.com/class-management/classroom-vision-and-the-self-fulfilling-

prophecy.

> html

> http://www.motivati

> <http://www.motivation-tools.com/workplace/social_prejudice.htm>

> on-tools.com/workplace/social_prejudice.htm

>

> tons more -just google it or search the archives here

>

> =====

>

[Guest guest]

Janice,

Thank you for replying. HARD WORK, not a problem. WELL CHILD, will give my

life for it. Because I know he can and will make it! Wishing you continued

success.

Regards,

Ambika

_____

From:

[mailto: ] On Behalf Of Janice

Sent: Wednesday, February 06, 2008 1:21 PM

Subject: Re: [ ] Re: Apraxia and Slow Processing & NACD

Ambika,

I don't go to the PA office since we are from Canada. We fly straight to

Ogden, UT. Lots of other moms on this list go to the PA office and I am sure

they can give you some feedback on their experiences... I love NACD! Just

love it! Hard work.... YES!!! Well child..... YES!!! The therapy programs

they have designed for Mark have been spot on and they have really changed

his life and his future. I cannot thank them enough!

NACD PA moms..... Can you help Ambika with feedback?

Janice

[sPAM][ ] Re: Apraxia and Slow Processing

>

> Liz there is much in the archives and in research about self-

> fulfilling prophecies and the research of Dr. Rosenthal. Please

> don't assume that it's OK because your child is younger to say your

> child is " slow " in three areas! There is a huge problem with many

> here assuming that apraxia and processing disorders co exist or

that

> children with apraxia have slow receptive/cognitive processing

skills

> which is also a sign of mental retardation. And the fact so many

> today are accepting this is very sad. Perhaps unlike the children

> here from over the years like my son Tanner -the children in the

> group today won't be mainstreamed. Is that the belief? Because

> belief becomes reality and you get to choose now. Your child's

> future depends in some part on your belief. Isn't it a mother and

> father's instinct to raise our child up?

>

> And to answer the question about therapy for another diagnosis

> working. Many here with autistic children found some of the methods

> used for apraxia to work as well. The Kaufman Kit can be used by

any

> late talker- even one that isn't apraxic.

>

> We tried various therapies for Tanner that are used for deaf

children

> including learning sign -that doesn't mean Tanner is deaf. Just

> because a therapy helps doesn't mean a child has the diagnosis that

> therapy was originally designed for.

>

> Please do some homework on the awesome Dr. Rosenthal and the

> work he has done. You will also find much about him in the

> archives. Sadly if you believe your child to be slow..in three

areas

> no less -you 'are' probably going to find out you are right. When

> nobody else believed in Tanner Glenn and I did and guess who proved

> everyone but us wrong -not us -but Tanner did! I loved sharing the

whole

> story with Dr. Rosenthal because he is brilliant and he is the one

> that inspired me. And I saw it work. They could have been right and

> Tanner would have been in special ed today.

> http://www.cherab.

> <http://www.cherab.

<http://www.cherab.org/information/familiesrelate/letter.html>

org/information/familiesrelate/letter.html>

> org/information/familiesrelate/letter.html

>

> I know some of you don't understand this -but again don't assume

the

> worst and don't underestimate those that can't verbally prove you

> wrong...yet. Sometimes it's best to be wrong and if you believe

> apraxia and slow processing of receptive or cognitive skills go

hand

> in hand -then you 'are' wrong. Apraxia is not a cognitive disorder.

>

> And even if in your child's case you were right and for example

one's

> child has co existing mental retardation with the apraxia -you are

> still best to believe in your child and give the benefit of the

> doubt. Look at Robin's daughter -it's a hard pill to

swallow

> to be wrong -or assume others are right with bogus diagnosis about

> your child - years down the road.

> http://www.cherab. <http://www.cherab.

<http://www.cherab.org/news/.html> org/news/.html>

> org/news/.html

>

> And while for ethical reasons Dr. Rosenthal's research was done in

> the positive -in speaking with him he agrees that it works both

> ways. If that's the case why think anything but the positive?

>

> http://www.facultyd

> <http://www.facultyd <http://www.facultydirectory.ucr.edu/cgi->

irectory.ucr.edu/cgi-

bin/pub/public_individual.pl?facult

> y=534> irectory.ucr.edu/cgi-bin/pub/public_individual.pl?faculty=534

> http://www.pineforg

> <http://www.pineforg

<http://www.pineforge.com/newman4study/resources/rosenthal1.htm>

e.com/newman4study/resources/rosenthal1.htm>

> e.com/newman4study/resources/rosenthal1.htm

> http://www.psichi.

<http://www.psichi. <http://www.psichi.org/pubs/articles/article_121.asp>

org/pubs/articles/article_121.asp>

> org/pubs/articles/article_121.asp

> http://www.accel- <http://www.accel-

team.com/pygmalion/prophecy_01.html>

> team.com/pygmalion/prophecy_01.html

> http://www.musicedm

> <http://www.musicedm

<http://www.musicedmagic.com/class-management/classroom-vision-and->

agic.com/class-management/classroom-vision-and-

the-self-

> fulfilling-prophecy.html>

> agic.com/class-management/classroom-vision-and-the-self-fulfilling-

prophecy.

> html

> http://www.motivati

> <http://www.motivati

<http://www.motivation-tools.com/workplace/social_prejudice.htm>

on-tools.com/workplace/social_prejudice.htm>

> on-tools.com/workplace/social_prejudice.htm

>

> tons more -just google it or search the archives here

>

> =====

>