Crystal - celiac disease

[Guest guest]

Hi Crystal !!

I was just going to post and see if you got your results to see if

you had celiac or not. And yes you do! I was diagnosed in March

2004 by Dr. Lehman in Indiana. I was there to have a sphincterotomy

on my panc duct because of high pressures. He just happened to look

alittle further into my small intestine and decided to take 6

biopsies. When I woke up he told me that he thought I might have

celiac. I said that I had heard of it (from the medical boards),

but that I never had a problem eating wheat products. It never made

me sick or anything. Well, they also did the blood tests too, and

sure enough I was positive on both tests (blood and biopsy). It

sure has been a learning experience , with all the wheat-free/gluten-

free foods etc. But I am used to it now. How have you been doing

with the GF diet? If you ever want to email me about celiac (or

anything else), please do! I know that Fliss and Suzi have it oo.

I just feel bad for all the people in the US who are being told (for

years) that they have IBS, when in actuality they have celiac. I

look forward to hearing from you, and I hope you are feeling better.

Take care

Kris in TN

ps. I also have osteoporosis from the celiac.

[Guest guest]

The GF diet isn't bad now that I found a local store that sales the

flours that I need to make things from scratch. They only problem is

that my grocery has significantly increased. I feel better on the

diet, and I didn't even think I felt bad when they placed me on it. I

have cheated a couple of times. After having things with gluten I

swell up and smell bad. My IgG and IgA came back positive. I haven't

had a biopsy. I see the GI on Aug 3. Perhaps he'll want to do one to

confirm the diagnosis, but I don't see the point if I feel better on

the diet.

Crystal Galloway

[Guest guest]

Crystal-

I was diagnosed with Celiac Disease...like you I didn't really feel bad

when diagnosed, but went on the diet to see if it would help. I also

cheat on occasion, and I find I get bloated from eating what I

shouldn't...but the pain from the pancreas is totally seperate kind of

pain. The bloat has nothing on the pancreas pain, and vice versa. I

buy the bread mixes and baking mixes, because it really hard to find

some of the flours that recipes call for...things like garbonzo bean

flour...hard to find AND expensive! I make myself extra servings of

glutten free pancakes, pasta, cookies, etc...and I freeze the extra. I

make the regular things with flour for my family...it saves lots of

money if I am the only that eats glutten-FREE. There are some

wonderful mixes out there...if you would like some names of what I use

and like, please feel free to e-mail me and I would be happy to share!

Also, check to see if there is a Celiac support group in your area.

The one in my area meets at different restaurants to make them aware of

celiac. Only wish there was a pancreas group that did that! Mix the

two problems together and it severely limits what one can

eat...anywhere!

Like I said feel free to ask questions...I would be happy to try to

help!

Hugs,

Suzi B.

Colorado

[Guest guest]

Thanks Suzi,

The stuff is very expensive. Luckily for me I can save money using

the flours that recipes call for because there is a local health food

store that sales all of them. I guess celiac is pretty common in

Utah. There is even a website with some good recipes at

www.gfutah.org

Love,

Crystal