Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 I actually have thought of writing a book. I even have the title thought up: " Chasing the TIGAR-O " (after that mnemonic for the causes of pancreatitis) and some chapter titles like " DINKs " Doctors In Need of Knowledge, " In the Clink " (for hospital stays " ), " CP Funk " - for that not just right feeling. I think it would be a doable task but fairly daunting. I would obsess over getting the details right and would need to have a open minded doctor who is an expert on pancreatitis read over the medical explanations to make sure I was presenting the facts as accurately as medical science can be. I am still stifled by that one professor that I had in graduate school that belittled and bemeaned my ability to explain things so that non-PhD candidates could understand the concepts. He said that I would never be a success and that I shouldn't even be in graduate level classes if I was unwilling to " talk the talk " . I ended up finishing that class in tears never to return to school again. I have found that I mull over ideas and then have brainstorm sessions where the information just flows. Who knows? I just might start jotting down chapter ideas and outlines someday........ But if I do, I would need all the help I could get from everyone here. Like what chapters are needed, what types of personal stories would work (I am thinking of opening the chapters with a brief true life story that would introduce the subject matter being covered) and proof readers for accuracy, readability and grammer, and someone to tone me down as well as edit my tendencies to ramble (LOL).....but it could work. Any ideas? Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Laurie, You could put in special chapters for docs that don't have a clue as to what pain meds to give panc patients. Also, different methods of easing pain and what to eat daily as well as during a liquids phase. What to expect from emergency room visits. What tests to have, and personal things that you have learned that help with attacks that doctor's won't or don't try. A good one would be to have some mention of cp and how children relate to it. How to deal with family issues that arise because of chronic illness. How to educate your family on what to do for you when you have an attack. I could think of bunches but you probably already have thought of those! I think it is a great idea. There are too many people out there with this illness who don't have a clue and don't know where to turn. That would be such a wonderful thing for them. I know when I first found out I had cp I searched high and low for info. I would have bought a book for sure! Angie in SC " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
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