Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 I talked to a new doc today. He says the only thing that will help me is to remove my pancreases. I really want to talk to everyone who has had this done. Thanks-Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Hi Kathleen, I had my pancreas removed in August, 2000, in UK, so, therefore didn't have the islet cell transplant, and am now diabetic. Even so, it was absolutely the right decision for me, and my quality of life is much improved. My advice to you would be to find out as much as possible about the procedure that is proposed for you, and all the options available, before you make your decision. It is really major surgery, and takes quite a while to recover from, so you need to be sure it is the right option for you. If you want any more information you can contact me personally. I do not mind answering any questions you may have. Good luck. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 > how did it go? > > Well about 2 weeks post op I was eating real food. Steak, cheesecake, french fries. By 20 days post op I was shopping in Cincy. Felt better then I had in years. I would be doing great now if it hadn't been for that stupid hernia repair that ripped open 2 weeks later. but that was just because I had 3 major pancreatic surgeries in 11 months and my abdominal muscles were shot and I am the least luckiest person on earth. Blood sugars were perfect until the second hernia repair. They are leveling off now. I had 610K islets transplanted so that was fab. I have an incision from my sternum to below my belly button. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 I dont know about going back to work so soon post op. I just meandered through some shops getting my kids a few cChristmas presents. Besides I had a driver. I was pretty weak for a good 10 weeks. At 12 weeks post op I went back to the gym and was able to do some cardio. That was pretty cool. By FEb I was working on going back to work. Until that stupid hernia. Anyway I had it done at the Univerity of OH in Cincinatti. s was the panc surgeon and Horatio Rilos was the doc who harvested and isloated the islets. I was in Cincy for a good month but had made a couple of trips there prior to. I ws in the ICU for 6 days then another 6 on the floor. but I understand the ICU stay is usually more like 2 days. Yes I would do it all over again. Well except for that stupid hernia. that muscle reconstruction was far more painful then the total, I still feel like crap and its been 9 weeks. I eat whatever I want, I do take enzymes (unless I forget) my BS are fine but if I eat a heavy carb meal or alot of sweets I need to cover it. I take very little insulin. If you think of anything else just ask. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 My name is Sheila Ialso have been told, there is nothing more they can do for me. I live in Niagara Falls Ontario, Canada. Two weeks ago i went to a hospital in Hamilton Ontario where the Doc there has suggested to remove my pancreas. So now I'm to see the surgeon on August2. I already take insuline have been for 3 years now, and have been taking the enzymes for 1 year.I have chronic idiopathic pancreatitis. So I to am very interested in what maybe instore for me. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Kathleen, I hope they can do that for you. If my doc told me that I would jump for joy! I know it is a rough surgery but to see the light at the end of the tunnel would be wonderful! God bless ya'! Let me know when you find out if you are going to have it done. Angie in SC " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 Hi Kathleen, I was in hospital for a total of 5 weeks after my TP w/o ICT and back at work after 15 weeks. I eat more or less what i want, although, with the diabetes, i have to watch the carbohydrate content of my food. so, i try to eat a healthy diet, but i do have occasional treats. Of course, i need to take the pancreatic enzymes, and insulin. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 > WOW! That's a long to time to be in the hospital and a long time to be out of work! dang! > Kathleen I was in the hospital for 2 weeks after the tp-auto ict. I remained in Ohio for another 2 weeks. Had I not gotten that horrible hernia I would have been back to work a lot sooner. However, when I became extremely ill I resigned from my position so I had no job to return to. I am looking now for another position as a RN. Nursing is a physically demanding job. You had said that you have a desk job. I would think that you could return part time in 6-8 weeks with no complications. At least that is what I was told. Quote Link to comment Share on other sites More sharing options...
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