To Laurie re: - worms But also questions on edema and weight gain

July 30, 2005

Hi Laurie: Long time,no hear!! Or however you'd say it I guess.

Thanks for the info....and there is NO way that I would be able to

undergo that kind of therapy..just the thought of it makes me

nauseous...blech!!

I have an app't. on 5 August with the physical therapy part of the

hospital that my pain clinic is affiliated with as I guess the

protocol is to go there for the first treatment with the TENS unit

and if it seems to help they send you home with one or at least the

recommendation for one. So, I'm hoping that it helps...anything at

this point.

I put the question out there (to this group)regarding edema because

I've been having a terrible problem with it for the past two months

or so but have only seen a couple of responses. It is SO bad that

my feet feel like they're going to explode - I can literally feel

the skin stretching. The ankles and calves are bad as well...so

much for the capris this summer!! My PCP has me on a diuretic that

supposedly doesn't cause pancreatitis (interesting that he never

quite wanted to dx me with pancreatitis except in the beginning when

my enzymes went up for the first and only time but now is giving me

a diuretic that he says " won't cause pancreatitis " )....oh well, you

and I have discussed the signs and symptoms thing at great length

previously so guess that is why!! His thinking is that the

Neurontin that I'm on (initially prescribed for panic

attacks/anxiety) are the culprit so he's got me reducing those in

addition to taking the diuretic.

When I mentioned this to my pain mgmt doc he said " you've been on

the Neurontin for years so why would it be causing you trouble

now? " I'm thinking that it's all the drugs interacting... Is this

a common thing to expect with cp/SOD? Seems a few of people in this

group have been affected by it. Very uncomfortable and I also get

it in my abdomen which now looks like I'm about 5 months pregnant!!

Also, unlike so many on this group, instead of losing weight I'm

gaining weight (probably partly edema related)...I've actually put

on about 20 lbs since this time last year. Is this at all common as

well?

Oh well...if anyone has any answers to the above questions I'd sure

appreciate hearing from you!! And, Laurie, thanks again for

writing!!

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