Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 Kris, You wrote, " About learning that GOD doesn't give us more than we can handle. I don't know, I sure am having lots of trouble dealing with this stuff (after 7 years of pain, nausea, rude docs, loosing friends, etc.) I feel kind of hopeless right now. " I am sorry you are having such a rough time right now. I remember when I was first diagnosed. I met with Dr. , pancreatic surgeon, and the first thing he said to me was that we needed to take care of my pain and my depression. I said, " I am not depressed. " He said, " Well, unfortunately, you will be. " I thought that was kind of odd, as he just met me. He then explained that depression is not always situational, that for some reason in addition to pancreatitis being a bum deal, there are certain biochemical pathways that are interrupted in this disease process and depression is common. In addition, of course, it wasn't until later that I realized that I was not going to die. I know, that is what I said. For the longest time, I thought that pancreatic burn out meant that when that occurred, and my pancreas was gone, then I would die. Since I was in so much pain, nauseated, etc., death was certainly something I was ready for. At that time, I was engulfed by my church, friends, family, etc. As the years went by, and I did not die, all the love and support was replaced with intense loneliness, hopelessness, and more depression. People just do not know how to deal with this disease. Regardless of what I explain to people when I see them, that, " Yes, I am still sick, I still require lots of pain medication, cannot do much, certainly cannot plan anything, etc. " when I see them again, they act surprised. They say, " Gosh, since I have not seen you around, I thought you were doing great and just too busy to get together with me. " " No, " I say, " I have been pretty much homebound, most the time I am bed bound. " " Hmmm. " they say, as they fidget uncomfortable and walk away. It is unimaginable. Somedays I cannot believe that this is my reality. Yet, the hours run into days, days into weeks, weeks into months, months into years, etc. You know what my biggest coping mechanism is? Impaired memory recall. Long term narcotic use, lack of interaction with " life, " lack of routine, etc., result in not being able to remember much. And, for some reason, and I thank God for this, but I tend to remember the good things. So, when I suggest wanting to do something or try a 'new' medication, Tull will say, " You are kidding, right? You had a horrible experience with that. " I will say, " Really? " There is one thing that I know and that I remember - Depression is toxic. I believe that our bodies follow what our minds believe. Therefore, I practice meditations, mantras, affirmations, etc., that reinforce those things that bring me joy, happiness, peace, etc. I also needed to redefine my relationship to the world around me. Lastly, I needed to understand in my heart how I was to be that person God intended for me to be. About learning that GOD doesn't give us more than we can handle. I don't think God gave me any of this. What God does give me is the strength and courage to deal with the challenges of life. Karyn E. , RN Executive Director, PAI Indianapolis, Indiana Quote Link to comment Share on other sites More sharing options...
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