Looking for support/experience with very young child with UC.

[Guest guest]

Hi Everyone,

I am here because of my 31 month old daughter, Katelyn. She was dx'd

with UC in October of 2006, after being sick most of her life. She

was in remission from November of 2006 through May of 2007, when she

began having occasional " breakthrough " episodes. She was in a

full-blown flare-up by the beginning of August and is now very ill

because she isn't responding her to meds and has continued to

deteriorate. We changed GI docs this past week and while I've been

hopeful that we'll get some help now (via more responsive medical

care) I am beginning to think SCD is going to be her answer.

When I first read about the diet last year, I honestly just thought it

was crazy. I wasn't even slightly motivated to try it, but at the

time she was responding well to her meds and thriving. I did not

realize how quickly we would be back to this place! I've spend the

last several days researching and studying BTVC and I'm ready to

start, though I have reservations because currently the only things

she will eat are not legal on the diet. I don't want her to stop

eating completely (something she'd be perfectly happy to do as ill as

she is) so I'm not exactly sure if I should wait until she gets her

appetite back or not. I really don't want to wait because I think

this is going to key to her getting well.

I feel empowered now though, because before reading BTVC I felt

completely helpless just holding her all day long, watching her get

sicker and sicker and not being able to do anything to help her. I

shared that helpless feeling with our GI and he said that I *am* doing

something to help her by giving her medications and taking care of

her, but since the medications have not helped this time, that doesn't

console me.

We also have 3 other children (13 months, 8 years and 12 years) and I

am very interested in learning more about how to make sure that I

handle everything appropriately with my other children, so they don't

feel left out or resentful torward Katelyn. (And I know my 8yo and

12yo will not be very thrilled about their new diet! LOL)

Thanks for reading if you made it this far!

Michele in AZ

[Guest guest]

Hi Michele I am very sorry to hear about your daughter. Listen to this 13

minute talk with Elaine Gottschall The writer of the book you just read. I

found this after I started the diet, its very motivating talk.

http://www.childrenscornerschool.com/recoveries.htm Then scroll down to

the bottem and look for Elaine Gottschall I am sure you will get something

out of this talk.

Tara

www.wildcharmbengals.com

www.kentaraexcavating.com

Looking for support/experience with very young child

with UC.

> Hi Everyone,

>

> I am here because of my 31 month old daughter, Katelyn. She was dx'd

> with UC in October of 2006, after being sick most of her life. She

> was in remission from November of 2006 through May of 2007, when she

> began having occasional " breakthrough " episodes. She was in a

> full-blown flare-up by the beginning of August and is now very ill

> because she isn't responding her to meds and has continued to

> deteriorate. We changed GI docs this past week and while I've been

> hopeful that we'll get some help now (via more responsive medical

> care) I am beginning to think SCD is going to be her answer.

>

> When I first read about the diet last year, I honestly just thought it

> was crazy. I wasn't even slightly motivated to try it, but at the

> time she was responding well to her meds and thriving. I did not

> realize how quickly we would be back to this place! I've spend the

> last several days researching and studying BTVC and I'm ready to

> start, though I have reservations because currently the only things

> she will eat are not legal on the diet. I don't want her to stop

> eating completely (something she'd be perfectly happy to do as ill as

> she is) so I'm not exactly sure if I should wait until she gets her

> appetite back or not. I really don't want to wait because I think

> this is going to key to her getting well.

>

> I feel empowered now though, because before reading BTVC I felt

> completely helpless just holding her all day long, watching her get

> sicker and sicker and not being able to do anything to help her. I

> shared that helpless feeling with our GI and he said that I *am* doing

> something to help her by giving her medications and taking care of

> her, but since the medications have not helped this time, that doesn't

> console me.

>

> We also have 3 other children (13 months, 8 years and 12 years) and I

> am very interested in learning more about how to make sure that I

> handle everything appropriately with my other children, so they don't

> feel left out or resentful torward Katelyn. (And I know my 8yo and

> 12yo will not be very thrilled about their new diet! LOL)

>

> Thanks for reading if you made it this far!

> Michele in AZ

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Dear Michele,

I find it funny, how I don't typicaly go to Pecan Bread much anymore

to post. I felt a calling...and here it was your post about your

sick daughter.

My daughter was terribly sick with IBD, Celiac, that lead to seizures

and later a diagnosis of PDD and autism. To keep things simple SCD

saved her life.....restored her on the most part neurologicaly and

has even controled her siezures. She is still healing, but no where

from where we started.......we started our healing journey several

years ago. Without SCD I don't doubt for one minute that she may not

have made it....she surely would not be growing and glowing like she

is today.

I too, did not know what to think of this book. It was a bit of

a " God thing " the way we ran into this solution. It was after

praying at my pantry door... Like you, we hit bottome with orthodox

medical solution....I took my BTVC book and a yellow highlighter pen

and studied how to do it.... and prayed...and we followed Elaine's

directions...and it worked one more miracle....of the many out there.

The healing journey with SCD is not an easy one...but well worth it.

Seeing my little girl recover has brought back my life...and hers.

We are currently discovering how Mitochondrial Disease played/plays a

part in her health. Yet, Even with this issue special diet is

helping her condition that we now know is permanent...she will never

be able to eat the Standard American Diet....but after healing on SCD

we are able to stray a bit with no consequences.

SCD is a God send no doubt! Elaine suggested that ONE year after the

smptoms leave...a person might be able to eat more " typical " ....one

first has to heal though.

SCD has been working since the 1920's when Dr. Sydney Valentine Haas

invented it....it has saved so many children from dieing and from

suffering. You have much hope now! Embrace it and smile in relief.

If you want to talk off serve, I would love to share more experience

strength and hope. I know SCD inside and out. It ends up that my

entire family ate this way to heal our Celiac Disease. I am

currently writting our testimony on how well SCD heals the

body.....but love to help one on one occasionaly...if you want it.

Too keep my time helping out down...I typicaly do not write on the

serves anymore. I am glad I did tonight though. Wow...the way God

works is amazing to me sometimes. Antoher Godincidence....the power

of God...helping another angel. I have coached many back to

health....but all credit is Elaine's....people now call these little

survivors " Elaine's Children " . What a lady!

God Bless your daughter and you! Antoinette and my family of Silly

Yaks.

[Guest guest]

Hi Michele,

our son was older than your daughter when he was dx with UC, but in

hindsight we think he had it for much longer. I know how hard it is

and want to let you know there is hope for your daughter and SCD may

be able to help.

Our son (who is now 9) was dx with uc in spring of 05 when he was 6,

went into a terrible flare in fall of 05 that required

hospitalization and intravenous steroids and finally Remicade, did

better for a while and went into remission in spring 06, flared

again summer 06 and by fall was so sick he needed 2 transfusions and

dr was recommending surgery because remicade no longer worked. We

started SCD on Oct 30 06, and within a few weeks he was feeling

better. It's been a slow, steady recovery, he went back to school

finally in April, off the prednisolone in May, and his dr said he

had never thought we would be able to get him well without taking

out his colon, that he was surprised and thrilled at how much better

our son is. Dr was willing to say that SCD may have been what

helped, although he's skeptical he said he's never had a patient who

has stuck to the SCD so completely.

Since we stopped the pred he's had little flares on and off (summer

seems to be his most difficult time) and right now is having 2

formed bms/day with a little b and m. But his energy is good, and

his spirits are too, although he did tell me last night as he went

to sleep that he thought he was going to have a terrible flare

today, because for the past 2 years he's gone to school for 4 days,

and then been out for 6 months because he's been so sick -- I said I

think we're going to start a new pattern this year. I'm so happy

that he went off to school this morning without a problem.

I have no doubt that SCD is what has helped him turn the corner

toward health. He wasn't wild about the diet at first, but felt so

terrible that the chicken soup was really all he wanted. At the

beginning he also loved, and continues to love, raspberry gelatine

that we make for him from frozen raspberries (seeds carefully

strained out) and I'd be happy to send you the recipe if that would

be helpful. He also sees an acupuncturist, which has helped

tremendously as well, and a homeopath who has also helped.

My thoughts are with you. I know how wrenching it is to see your

child ill and in pain. And can just imagine how hard it is with

another baby in the house, and two older children who also need

their mom. We have an older son who eats SCD at family meals, but

gets his own food for lunches at school and breakfasts (although I

think SCD would be helpful for him too, but he's been very

resistant). My husband also eats other things outside of our family

meals, but I've been doing SCD with my son and it has been

tremendously helpful for my own gut issues (I was dx celiac as a

baby).

Good luck with trying this. I hope you have some help and can take

some time to care of yourself too -- when my son was extremely ill I

found that the only way to stay calm myself was to take a walk each

day, which helped me a little to be able to help him.

, mom to 9yo ds, dx UC spring 05, SCD 10/06, Azulfidine,

culturelle, vit d, iron, fish oil, folic acid, calcium, chinese

herbs, homeopathic remedies

>

> Hi Michele I am very sorry to hear about your daughter. Listen

to this 13

> minute talk with Elaine Gottschall The writer of the book you just

read. I

> found this after I started the diet, its very motivating talk.

> http://www.childrenscornerschool.com/recoveries.htm Then scroll

down to

> the bottem and look for Elaine Gottschall I am sure you will get

something

> out of this talk.

>

> Tara

> www.wildcharmbengals.com

> www.kentaraexcavating.com

> Looking for support/experience with very

young child

> with UC.

>

>

> > Hi Everyone,

> >

> > I am here because of my 31 month old daughter, Katelyn. She was

dx'd

> > with UC in October of 2006, after being sick most of her life.

She

> > was in remission from November of 2006 through May of 2007, when

she

> > began having occasional " breakthrough " episodes. She was in a

> > full-blown flare-up by the beginning of August and is now very

ill

> > because she isn't responding her to meds and has continued to

> > deteriorate. We changed GI docs this past week and while I've

been

> > hopeful that we'll get some help now (via more responsive medical

> > care) I am beginning to think SCD is going to be her answer.

> >

> > When I first read about the diet last year, I honestly just

thought it

> > was crazy. I wasn't even slightly motivated to try it, but at

the

> > time she was responding well to her meds and thriving. I did not

> > realize how quickly we would be back to this place! I've spend

the

> > last several days researching and studying BTVC and I'm ready to

> > start, though I have reservations because currently the only

things

> > she will eat are not legal on the diet. I don't want her to stop

> > eating completely (something she'd be perfectly happy to do as

ill as

> > she is) so I'm not exactly sure if I should wait until she gets

her

> > appetite back or not. I really don't want to wait because I

think

> > this is going to key to her getting well.

> >

> > I feel empowered now though, because before reading BTVC I felt

> > completely helpless just holding her all day long, watching her

get

> > sicker and sicker and not being able to do anything to help

her. I

> > shared that helpless feeling with our GI and he said that I *am*

doing

> > something to help her by giving her medications and taking care

of

> > her, but since the medications have not helped this time, that

doesn't

> > console me.

> >

> > We also have 3 other children (13 months, 8 years and 12 years)

and I

> > am very interested in learning more about how to make sure that I

> > handle everything appropriately with my other children, so they

don't

> > feel left out or resentful torward Katelyn. (And I know my 8yo

and

> > 12yo will not be very thrilled about their new diet! LOL)

> >

> > Thanks for reading if you made it this far!

> > Michele in AZ

> >

> >

> >

> > For information on the Specific Carbohydrate Diet, please read

the book

> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following

> > websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

> >

[Guest guest]

HI Michele,

my daughter was diagnosed with moderate UC when she

was 8 yo but I ams sure she had it since she was a

baby as she started to have d without blood as soon as

she had to stop breast feeding. She was growing well

in spite of the on and off D, she had eczema and slept

very badly. Since she was diagnosed with UC she was

flaring at least 4 times a year and I cannot remember

normal stools for longer then 2 weeks at the time. She

is now 16 and last May she became resistant to

steroids and had to go to hospital to try infliximab.

I got so scared because it would have been the last

resourse before surgery and because the long ( and

short) term effects are not known that I put her and

the rest of the family on SCD. She recovered within 4

days and got rid of steroids within one month without

having more than a bloated tummy ever again. She has

spent a wonderful summer and managed to stay with her

friends for one week eating barbequed chicken and

vegetables.I must say that she had non-SCD foods on 3

or 4 occasions without any problem. You must consider

that she is a teen ager and she was reacting against

the diet. She was feeling very tired and hungry all

the time for the the first 3 months on the diet. She

is back at school now and I make sure she has a good

SCD dinner and at school she manages with the SCD

foods she can find. Her gastroenterologist does not

think it was the diet that made the miracle, perhaps

because he did not prescribe it. I am now looking for

a doctor in Europe who knows about the diet because I

think she could benefit more from it if she took

supplements as well. She has a fungus on her skin

(just clearer spots on her arms) that is resistant to

topic treatments. D, cramps, blood and mucus belong to

the past. Please try the diet with your little

daughter and stick to it until she is old. I am sure

she will get better in a few weeks.

Be encouraged and let me know your news

Stefania

mother to UC, SCD 5 months

--- julieb801 ha scritto:

> Hi Michele,

>

> our son was older than your daughter when he was dx

> with UC, but in

> hindsight we think he had it for much longer. I

> know how hard it is

> and want to let you know there is hope for your

> daughter and SCD may

> be able to help.

>

> Our son (who is now 9) was dx with uc in spring of

> 05 when he was 6,

> went into a terrible flare in fall of 05 that

> required

> hospitalization and intravenous steroids and finally

> Remicade, did

> better for a while and went into remission in spring

> 06, flared

> again summer 06 and by fall was so sick he needed 2

> transfusions and

> dr was recommending surgery because remicade no

> longer worked. We

> started SCD on Oct 30 06, and within a few weeks he

> was feeling

> better. It's been a slow, steady recovery, he went

> back to school

> finally in April, off the prednisolone in May, and

> his dr said he

> had never thought we would be able to get him well

> without taking

> out his colon, that he was surprised and thrilled at

> how much better

> our son is. Dr was willing to say that SCD may have

> been what

> helped, although he's skeptical he said he's never

> had a patient who

> has stuck to the SCD so completely.

>

> Since we stopped the pred he's had little flares on

> and off (summer

> seems to be his most difficult time) and right now

> is having 2

> formed bms/day with a little b and m. But his

> energy is good, and

> his spirits are too, although he did tell me last

> night as he went

> to sleep that he thought he was going to have a

> terrible flare

> today, because for the past 2 years he's gone to

> school for 4 days,

> and then been out for 6 months because he's been so

> sick -- I said I

> think we're going to start a new pattern this year.

> I'm so happy

> that he went off to school this morning without a

> problem.

>

> I have no doubt that SCD is what has helped him turn

> the corner

> toward health. He wasn't wild about the diet at

> first, but felt so

> terrible that the chicken soup was really all he

> wanted. At the

> beginning he also loved, and continues to love,

> raspberry gelatine

> that we make for him from frozen raspberries (seeds

> carefully

> strained out) and I'd be happy to send you the

> recipe if that would

> be helpful. He also sees an acupuncturist, which has

> helped

> tremendously as well, and a homeopath who has also

> helped.

>

> My thoughts are with you. I know how wrenching it

> is to see your

> child ill and in pain. And can just imagine how

> hard it is with

> another baby in the house, and two older children

> who also need

> their mom. We have an older son who eats SCD at

> family meals, but

> gets his own food for lunches at school and

> breakfasts (although I

> think SCD would be helpful for him too, but he's

> been very

> resistant). My husband also eats other things

> outside of our family

> meals, but I've been doing SCD with my son and it

> has been

> tremendously helpful for my own gut issues (I was dx

> celiac as a

> baby).

>

> Good luck with trying this. I hope you have some

> help and can take

> some time to care of yourself too -- when my son was

> extremely ill I

> found that the only way to stay calm myself was to

> take a walk each

> day, which helped me a little to be able to help

> him.

>

> , mom to 9yo ds, dx UC spring 05, SCD 10/06,

> Azulfidine,

> culturelle, vit d, iron, fish oil, folic acid,

> calcium, chinese

> herbs, homeopathic remedies

>

>

> >

> > Hi Michele I am very sorry to hear about your

> daughter. Listen

> to this 13

> > minute talk with Elaine Gottschall The writer of

> the book you just

> read. I

> > found this after I started the diet, its very

> motivating talk.

> >

> http://www.childrenscornerschool.com/recoveries.htm

> Then scroll

> down to

> > the bottem and look for Elaine Gottschall I am

> sure you will get

> something

> > out of this talk.

> >

> > Tara

> > www.wildcharmbengals.com

> > www.kentaraexcavating.com

> > Looking for

> support/experience with very

> young child

> > with UC.

> >

> >

> > > Hi Everyone,

> > >

> > > I am here because of my 31 month old daughter,

> Katelyn. She was

> dx'd

> > > with UC in October of 2006, after being sick

> most of her life.

> She

> > > was in remission from November of 2006 through

> May of 2007, when

> she

> > > began having occasional " breakthrough " episodes.

> She was in a

> > > full-blown flare-up by the beginning of August

> and is now very

> ill

> > > because she isn't responding her to meds and has

> continued to

> > > deteriorate. We changed GI docs this past week

> and while I've

> been

> > > hopeful that we'll get some help now (via more

> responsive medical

> > > care) I am beginning to think SCD is going to be

> her answer.

> > >

> > > When I first read about the diet last year, I

> honestly just

> thought it

> > > was crazy. I wasn't even slightly motivated to

> try it, but at

> the

> > > time she was responding well to her meds and

> thriving. I did not

> > > realize how quickly we would be back to this

> place! I've spend

> the

> > > last several days researching and studying BTVC

> and I'm ready to

> > > start, though I have reservations because

> currently the only

> things

> > > she will eat are not legal on the diet. I don't

> want her to stop

> > > eating completely (something she'd be perfectly

> happy to do as

> ill as

> > > she is) so I'm not exactly sure if I should wait

> until she gets

> her

> > > appetite back or not. I really don't want to

> wait because I

> think

> > > this is going to key to her getting well.

> > >

> > > I feel empowered now though, because before

> reading BTVC I felt

> > > completely helpless just holding her all day

> long, watching her

>

=== message truncated ===

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