re: Please Look at Diet/SCD for seizure control

[Guest guest]

We are able to control our daughter's seizures with SCD. But in order to get

them under control, it did not happen until we followed SCD by the book and gave

her the SCD yogurt. This took much trust. Believe me.

She came very allergic/sensitive to most foods. Elaine suggested that if it did

not cause an anaphylactic reaction that we might want to give it any way. WE

tried to rotate her foods as much as possible. It was not easy. If I had taken

everything away that she " could not eat " ...she would have been eating very few

things, and at the risk of becoming even more deficient...ONE OF THE CAUSES OF

SEIZURES...along with the toxins of bad gut bugs...this becomes a TRUE vicious

cycle. Please be careful taking out foods. Not always the way to deal with

this problem. You see...the fermenting bad gut bugs...cause toxins that cause

seizures too. One can Starve them out without starving your child....Elaine

created SCD for just this problem.

With the yogurt, I found that this worked best in getting the gut bugs can get

under control... This stuff is very powerful! More powerful that any probity

out there. While eating SCD legal foods, this will heal the leaky gut that

causes some of this " intolerances " and your child might be able to eat more,

plus have seizure control.

If you know that he does not have ulcerations in his gut, enzymes might be

helpful too. Some of the bad gut bugs can be caused by putrefying proteins that

are not digesting...adding to the toxic load....that can lead to seizures.

I wish you well! I know that not all of us are the same...but we are similar.

Antoinette

[Guest guest]

Bonita,

The answer for us was to get the bad gut bugs under control. We ate paleo ONE

YEAR before SCD, and this does not allow diary...and this GUT HEALING never

happened. When we arrived to SCD we still had gut disbiosis (bad gut bugs).

Better....but still bad. So man are trying to do this without the yogurt. I

worry, that this is why they too are not having success.

SCD yogurt that is fermented for 24 hours will have an average concentration of

3 billion cfu/mL of yoghurt.

For those who are used to using teaspoons not mL...there are 5mL per teaspoon.

So, based on this information, 1 tsp of yogurt has 15 billion cfus! That is

POWERFUL STUFF.

Can you imagine the good gut bugs in ONE BOWL FULL?? Elaine said that children

can eat up to two cups of this healing stuff a day. NO probiotic can even come

close to this. Not even close.

Elaine wanted us to use the yogurt and acidophilus....this is one of the reason

her diet is trade marked... I truly feel that this is why it worked for us so

well. Yet so many of us arrive terrified of the yogurt. I know we did not

trust it at first; until I learned that the molecular structure of the casein is

denatured and changed with fermentation. I knew then, that the reaction that we

where originally getting from the yogurt was part of the transition that Elaine

says that we might need support for...and not something that we should try to

avoid.

Yet, because it is so powerful....this is why some build up slowly with this

stuff....starting as low as 1/8th of a teaspoon and building up slow.

We didn't do this...because I didn't know to...but our " die off " was painful

too. Not something I would recommend. If I had known, we might have gone MUCH

slower. I do know one thing....once my daughter had her first big die off...her

deliriums vanished....and her seizures lessened. This is fact. BUT WE TRUSTED

THIS YOGURT.

Remember that some are confusing " die off " as food intolerance to the yogurt.

When it is not.

For us, when the gut healed using the yogurt and acidophilus...many of these

strange intolerances lessened or vanished....this included tantrums and violent

out bursts. My home was not always this peaceful. The biggest blessing was

stopping those delirium seizures. My daughter was once diagnosed with

moderately seizure autism....my son, threw fits that resulted in us having to

plaster holes in the walls. This simply is not the case today. They are not

" cured " ...but SCD no doubt saved them from a life time of prison with pain.

I don't know if this will work for you too or not. It is not easy for some of

us. Not all of us may be as fortunate as we where with SCD.

God Bless your healing journey! Antoinette

[Guest guest]

>

> We are able to control our daughter's seizures with SCD. But in

order to get them under control, it did not happen until we followed

SCD by the book and gave her the SCD yogurt. This took much trust.

Believe me.

>

> She came very allergic/sensitive to most foods. Elaine suggested

that if it did not cause an anaphylactic reaction that we might want

to give it any way. WE tried to rotate her foods as much as

possible. It was not easy. If I had taken everything away that

she " could not eat " ...she would have been eating very few things, and

at the risk of becoming even more deficient...ONE OF THE CAUSES OF

SEIZURES...along with the toxins of bad gut bugs...this becomes a

TRUE vicious cycle. Please be careful taking out foods. Not always

the way to deal with this problem. You see...the fermenting bad gut

bugs...cause toxins that cause seizures too. One can Starve them out

without starving your child....Elaine created SCD for just this

problem.

>

> With the yogurt, I found that this worked best in getting the gut

bugs can get under control... This stuff is very powerful! More

powerful that any probiotic out there. While eating SCD legal foods,

this will heal the leaky gut that causes some of this " intolerances "

and your child might be able to eat more, plus have seizure control.

>

> If you know that he does not have ulcerations in his gut, enzymes

might be helpful too. Some of the bad gut bugs can be caused by

putrefying proteins that are not digesting...adding to the toxic

load....that can lead to seizures.

>

> I wish you well! I know that not all of us are the same...but we

are similar. Antoinette

>

>

>

[Guest guest]

Antoinette,

I see the point about if there is not an anaphlylactic reaction, give the food

anyway. Herein lies my problem. My son is highly intolerant of so many foods

and his reactions have never been anaphalytic but behavioral. He gets

completely and totally out of control - DEFIANT, tics, hyper, totally clouded

thinking, bizarre spacey behaviors. So, as a result I have to keep him on a

very limited diet and hope the intolerances get better. I don't have enough to

rotate and don't see that coming in the next year or more; in fact I barely have

enough to keep him full. So, if there are reactions(non-anaphylactic), how can

you keep giving them? On the other hand, the more limited their diet, the more

limited yet still it becomes. And the answer?

Bonita

re: Please Look at Diet/SCD for seizure control

We are able to control our daughter's seizures with SCD. But in order to get

them under control, it did not happen until we followed SCD by the book and gave

her the SCD yogurt. This took much trust. Believe me.

She came very allergic/sensitive to most foods. Elaine suggested that if it

did not cause an anaphylactic reaction that we might want to give it any way. WE

tried to rotate her foods as much as possible. It was not easy. If I had taken

everything away that she " could not eat " ...she would have been eating very few

things, and at the risk of becoming even more deficient...ONE OF THE CAUSES OF

SEIZURES...along with the toxins of bad gut bugs...this becomes a TRUE vicious

cycle. Please be careful taking out foods. Not always the way to deal with this

problem. You see...the fermenting bad gut bugs...cause toxins that cause

seizures too. One can Starve them out without starving your child....Elaine

created SCD for just this problem.

With the yogurt, I found that this worked best in getting the gut bugs can get

under control... This stuff is very powerful! More powerful that any probity out

there. While eating SCD legal foods, this will heal the leaky gut that causes

some of this " intolerances " and your child might be able to eat more, plus have

seizure control.

If you know that he does not have ulcerations in his gut, enzymes might be

helpful too. Some of the bad gut bugs can be caused by putrefying proteins that

are not digesting...adding to the toxic load....that can lead to seizures.

I wish you well! I know that not all of us are the same...but we are similar.

Antoinette