To : Re: ERCP August 15th @ IU

[Guest guest]

: I know you're not around to see this just yet but hopefully

you will when you get back home. I'm wishing you all the luck in

the world for today's procedure (it's 7:43 EST now) and please post

how things went when you get back ok?

I'm reading your post with great interest as it seems we have quite

similar things going on with respect to where we are in

this " journey. " I had a dual sphincterotomy performed by Dr. Lehman

in August of 2004 and it's been a steady decline in my health ever

since (thru no fault of Dr. Lehman...in fact, he's the only doctor

that I've seen that seems to know anything regarding this illness.)

I'm scared to death of having another ERCP and my husband doesn't

even want to hear it (!!) but I may have to call Dr. Lehman and see

what he thinks I should do at this point. I haven't yet gotten a

good GI doc....and like you, the only thing I have is the pain

management doctor that can only " offer me " another celiac block.

That is scheduled for Sept. 24th.

Please let me know if this second ERCP helps you at all ok? I'm

very curious as maybe it's just a fluke that the first one didn't

help me but maybe a second one would....I'd be very scared now to do

one though but if that is what it takes so be it I guess. Also, I'm

curious about these wedge pillows?? Do they help? My sleep is

awful lately as well. I take something called Remeron and yes it

knocks me out but leaves me so groggy the next day and with the

other meds I'm just a walking zombie basically..and I'm not liking

it!!

Thanks and I hope you did well today and that this procedure will

leave you totally pain free!!

(in RI)