Intro diet going AWFUL! Long Post-SORRY!

[Guest guest]

Hello!

We are on day 3 of intro diet. My 5 yr old ASD son will not eat or

drink:

chicken broth with or without chicken and carrots

chicken muffins

beef broth

white grape juice

electrolyte drink

white grape juice jello

Today we gave him applesauce and pearsauce and 1/4 of a ripe banana

which he ate each but not a lot of anything (maybe 1 cup total food).

He drank probably 24 oz of water both days 1 and 2. He is not

feverish.

My husband, my 3 yr old have all been easily eating the above items

and we removed all illegal items from the house. (My 3 yr old has

no GI issues and we do let him drink whole milk which my 5 yr old

does not or has not had a problem with ever.)

He did have a formed BM on day one--first one ever. His GI issue is

inflamation in his stomach and duodenum, but nothing severe in scope

or pathology. He has taken Pentasa (4 months) for the inflamation,

he has taken a course of Vancomycin since he has high Clostridia

markers, we have been GFCFSoyFree for 2.5 years, etc. In the recent

past we have used oxypowder to keep him regular. He has always gone

days without a BM yet when he would finally go it was never formed

and quite often explosive and mushy and he would strain so much to

pass them. He often has distension and lays over furniture and on

the floor and complains about his " ouchie belly " .

Now he is upstairs crying because he dosen't have his apple juice

(always diluted 50%)--this has been going on all weekend. We have

been mostly SCD for the last month but we were using advanced foods

and letting him drink his organic apple juice from Trader Joe's.

I guess my question is has anyone had a similar experience and how

long did it take your kids to eat anything? I am pretty tough and

desperate for my son to have some GI relief, but at what point do I

give in? (And when I mean give in, give him an SCD legal muffin

made with almond or cashew butter?)

Thanks in advance!

[Guest guest]

It takes different people different amounts of time to give in. And

some don't. If you can stand it, the ones who don't have better

results. You do realize the apple juice is illegal, right? Only apple

cider (the brown kind that needs to be refrigerated even in the store)

is legal.

I see that out of desperation, you added 3 new foods in one day.

You'll have a better idea of what your child can tolerate if you add

only one new food at a time.

Lots of people have been where you are. I hope some of them will

post. Keep hanging in there.

mom to -12

SCD 4/23/04

[Guest guest]

Hi ,

<<We are on day 3 of intro diet. My 5 yr old ASD son will not eat or

> drink:

>

> chicken broth with or without chicken and carrots

> chicken muffins

> beef broth

> white grape juice

> electrolyte drink

> white grape juice jello

>

> Today we gave him applesauce and pearsauce and 1/4 of a ripe banana

> which he ate each but not a lot of anything (maybe 1 cup total

food).

>

> He drank probably 24 oz of water both days 1 and 2. He is not

> feverish.

>

> My husband, my 3 yr old have all been easily eating the above items

> and we removed all illegal items from the house. (My 3 yr old has

> no GI issues and we do let him drink whole milk which my 5 yr old

> does not or has not had a problem with ever.)>>

Whole milk isn't legal with SCD, unless you make it into 24 hr yogurt.

<<He did have a formed BM on day one--first one ever.>>

That's fantastic!! Congratulations on your first trophy!!

<<His GI issue is > inflamation in his stomach and duodenum, but

nothing severe in scope

> or pathology. He has taken Pentasa (4 months) for the inflamation,

> he has taken a course of Vancomycin since he has high Clostridia

> markers, we have been GFCFSoyFree for 2.5 years, etc. In the

recent past we have used oxypowder to keep him regular. He has

always gone > days without a BM yet when he would finally go it was

never formed> and quite often explosive and mushy and he would strain

so much to > pass them. He often has distension and lays over

furniture and on > the floor and complains about his " ouchie belly " .>>

Did the intro diet help with the distension?

<<Now he is upstairs crying because he dosen't have his apple juice

> (always diluted 50%)--this has been going on all weekend. We have

> been mostly SCD for the last month but we were using advanced foods

> and letting him drink his organic apple juice from Trader Joe's. >>

Apple juice is not legal (possibility of hidden illegal sugar) but

some apple ciders are legal. Will he try some of that diluted? If

you can't find some let me know and I'll get you a homemade recipe.

<<I guess my question is has anyone had a similar experience and how

> long did it take your kids to eat anything? I am pretty tough and

> desperate for my son to have some GI relief, but at what point do I

> give in? (And when I mean give in, give him an SCD legal muffin

> made with almond or cashew butter?)>>

Since he did a couple of days of strict intro (just water) continue

to add new foods but try to stick with peeled cooked fruits and

veggies first. Since you tried a number of fruits it may be good to

look at veggies now if possible. If you can wait a while before the

nut goods it may help to continue firming up his stools.

Is he still taking vancomycin?

What foods was he eating before you redid the intro?

If he just won't eat anything and you decide to try the nut muffins

start with a small amount 1/4 muffin. Pecan or blanched almond nut

muffins are easiest to tolerate. Cashew are more advanced (starchier)

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

[Guest guest]

Hello!

Oh, your post is so similar to mine back in January when we started.

I remember, I did more crying than my daughter who was 19 months

old. I was so scared that I was killing her. She refused any food

or drink for at least 4 days. She drank from a bottle prior to the

diet so I ran around buying a million different cups to see if she'd

drink from any. No luck. I had to use a syringe to get her to take

any liquids by mouth.

Rest assured, this will not last. I'm sure your son will turn around

and eat. At 5 years old, I'm sure he's used to his routine and

breaking that is never easy. Some advise that I was given that

really helped was to try butternut squash. We also started avocado

really early since it's high in good fat. She eats that with just

about every meal!

I hope this helps!

Cheryl

Mother of Dorthia-Failure to Thrive, 29 months, SCD since Jan '07,

and Alysson-ADHD, 5.5 years, Sugar-Free/modified SCD.

>

> Hello!

>

> We are on day 3 of intro diet. My 5 yr old ASD son will not eat or

> drink:

>

> chicken broth with or without chicken and carrots

> chicken muffins

> beef broth

> white grape juice

> electrolyte drink

> white grape juice jello

>

> Today we gave him applesauce and pearsauce and 1/4 of a ripe banana

> which he ate each but not a lot of anything (maybe 1 cup total

food).

>

> He drank probably 24 oz of water both days 1 and 2. He is not

> feverish.

>

> My husband, my 3 yr old have all been easily eating the above items

> and we removed all illegal items from the house. (My 3 yr old has

> no GI issues and we do let him drink whole milk which my 5 yr old

> does not or has not had a problem with ever.)

>

> He did have a formed BM on day one--first one ever. His GI issue

is

> inflamation in his stomach and duodenum, but nothing severe in

scope

> or pathology. He has taken Pentasa (4 months) for the inflamation,

> he has taken a course of Vancomycin since he has high Clostridia

> markers, we have been GFCFSoyFree for 2.5 years, etc. In the

recent

> past we have used oxypowder to keep him regular. He has always

gone

> days without a BM yet when he would finally go it was never formed

> and quite often explosive and mushy and he would strain so much to

> pass them. He often has distension and lays over furniture and on

> the floor and complains about his " ouchie belly " .

>

> Now he is upstairs crying because he dosen't have his apple juice

> (always diluted 50%)--this has been going on all weekend. We have

> been mostly SCD for the last month but we were using advanced foods

> and letting him drink his organic apple juice from Trader Joe's.

>

> I guess my question is has anyone had a similar experience and how

> long did it take your kids to eat anything? I am pretty tough and

> desperate for my son to have some GI relief, but at what point do I

> give in? (And when I mean give in, give him an SCD legal muffin

> made with almond or cashew butter?)

>

> Thanks in advance!

>

>

[Guest guest]

Thanks for all your replies!!! Today, day 4, was much better. He

acually ate 5 bites of scrambled eggs(never ate before), water,

applesauce for breakfast and approx. 1.5 oz of chicken meatballs (I

cut them up and called them " mini nuggets " , applesauce (1/2 cup) and

water for lunch.

We are doing Thoughtful House's SCD guidelines and our dietician

recommended only 2-3 days max on intro and she included applesauce

and pear sauce on intro. But since I freaked out too late on Friday

afternoon that I could not find the fruit listed on the intro in

BTVC or pecanbread.com I held off on the fruit until day 3. He has

not had applejuice, but I will google a recipe for homemade--what a

great idea! I LOVE MESSAGE BOARDS!!!

I was also panicking since he will not drink the grape juice or eat

broth. I thought this was crucial to heal the gut.

OK, so how many folks on this board have carpal from peeling

everything? I'm only 4 days in and OUCH!!!!

Seriously, thanks again for your replies!!!!

pecanbread , " cherpod " wrote:

>

> Hello!

>

> Oh, your post is so similar to mine back in January when we

started.

> I remember, I did more crying than my daughter who was 19 months

> old. I was so scared that I was killing her. She refused any

food

> or drink for at least 4 days. She drank from a bottle prior to

the

> diet so I ran around buying a million different cups to see if

she'd

> drink from any. No luck. I had to use a syringe to get her to

take

> any liquids by mouth.

>

> Rest assured, this will not last. I'm sure your son will turn

around

> and eat. At 5 years old, I'm sure he's used to his routine and

> breaking that is never easy. Some advise that I was given that

> really helped was to try butternut squash. We also started

avocado

> really early since it's high in good fat. She eats that with just

> about every meal!

>

> I hope this helps!

>

> Cheryl

> Mother of Dorthia-Failure to Thrive, 29 months, SCD since Jan '07,

> and Alysson-ADHD, 5.5 years, Sugar-Free/modified SCD.

>

>

> >

> > Hello!

> >

> > We are on day 3 of intro diet. My 5 yr old ASD son will not eat

or

> > drink:

> >

> > chicken broth with or without chicken and carrots

> > chicken muffins

> > beef broth

> > white grape juice

> > electrolyte drink

> > white grape juice jello

> >

> > Today we gave him applesauce and pearsauce and 1/4 of a ripe

banana

> > which he ate each but not a lot of anything (maybe 1 cup total

> food).

> >

> > He drank probably 24 oz of water both days 1 and 2. He is not

> > feverish.

> >

> > My husband, my 3 yr old have all been easily eating the above

items

> > and we removed all illegal items from the house. (My 3 yr old

has

> > no GI issues and we do let him drink whole milk which my 5 yr

old

> > does not or has not had a problem with ever.)

> >

> > He did have a formed BM on day one--first one ever. His GI

issue

> is

> > inflamation in his stomach and duodenum, but nothing severe in

> scope

> > or pathology. He has taken Pentasa (4 months) for the

inflamation,

> > he has taken a course of Vancomycin since he has high Clostridia

> > markers, we have been GFCFSoyFree for 2.5 years, etc. In the

> recent

> > past we have used oxypowder to keep him regular. He has always

> gone

> > days without a BM yet when he would finally go it was never

formed

> > and quite often explosive and mushy and he would strain so much

to

> > pass them. He often has distension and lays over furniture and

on

> > the floor and complains about his " ouchie belly " .

> >

> > Now he is upstairs crying because he dosen't have his apple

juice

> > (always diluted 50%)--this has been going on all weekend. We

have

> > been mostly SCD for the last month but we were using advanced

foods

> > and letting him drink his organic apple juice from Trader

Joe's.

> >

> > I guess my question is has anyone had a similar experience and

how

> > long did it take your kids to eat anything? I am pretty tough

and

> > desperate for my son to have some GI relief, but at what point

do I

> > give in? (And when I mean give in, give him an SCD legal muffin

> > made with almond or cashew butter?)

> >

> > Thanks in advance!

> >

> >

>

[Guest guest]

Oh--I miswrote earlier--my 5 yr old has not had milk or any casein

in 2.5 years. We do let my 3 year old (NT, no apparent GI issues)

drink milk and what I meant is that my 5 yr old (autistic

enterocolitis, ASD, etc.) does not have a problem with his little

brother drinking milk.

Thanks!

>

> Hi ,

>

> <<We are on day 3 of intro diet. My 5 yr old ASD son will not eat

or

> > drink:

> >

> > chicken broth with or without chicken and carrots

> > chicken muffins

> > beef broth

> > white grape juice

> > electrolyte drink

> > white grape juice jello

> >

> > Today we gave him applesauce and pearsauce and 1/4 of a ripe

banana

> > which he ate each but not a lot of anything (maybe 1 cup total

> food).

> >

> > He drank probably 24 oz of water both days 1 and 2. He is not

> > feverish.

> >

> > My husband, my 3 yr old have all been easily eating the above

items

> > and we removed all illegal items from the house. (My 3 yr old

has

> > no GI issues and we do let him drink whole milk which my 5 yr

old

> > does not or has not had a problem with ever.)>>

>

> Whole milk isn't legal with SCD, unless you make it into 24 hr

yogurt.

>

>

> <<He did have a formed BM on day one--first one ever.>>

>

> That's fantastic!! Congratulations on your first trophy!!

>

>

> <<His GI issue is > inflamation in his stomach and duodenum, but

> nothing severe in scope

> > or pathology. He has taken Pentasa (4 months) for the

inflamation,

> > he has taken a course of Vancomycin since he has high Clostridia

> > markers, we have been GFCFSoyFree for 2.5 years, etc. In the

> recent past we have used oxypowder to keep him regular. He has

> always gone > days without a BM yet when he would finally go it

was

> never formed> and quite often explosive and mushy and he would

strain

> so much to > pass them. He often has distension and lays over

> furniture and on > the floor and complains about his " ouchie

belly " .>>

>

>

> Did the intro diet help with the distension?

>

> <<Now he is upstairs crying because he dosen't have his apple

juice

> > (always diluted 50%)--this has been going on all weekend. We

have

> > been mostly SCD for the last month but we were using advanced

foods

> > and letting him drink his organic apple juice from Trader

Joe's. >>

>

>

> Apple juice is not legal (possibility of hidden illegal sugar) but

> some apple ciders are legal. Will he try some of that diluted?

If

> you can't find some let me know and I'll get you a homemade recipe.

>

> <<I guess my question is has anyone had a similar experience and

how

> > long did it take your kids to eat anything? I am pretty tough

and

> > desperate for my son to have some GI relief, but at what point

do I

> > give in? (And when I mean give in, give him an SCD legal muffin

> > made with almond or cashew butter?)>>

>

> Since he did a couple of days of strict intro (just water)

continue

> to add new foods but try to stick with peeled cooked fruits and

> veggies first. Since you tried a number of fruits it may be good

to

> look at veggies now if possible. If you can wait a while before

the

> nut goods it may help to continue firming up his stools.

> Is he still taking vancomycin?

>

> What foods was he eating before you redid the intro?

>

> If he just won't eat anything and you decide to try the nut

muffins

> start with a small amount 1/4 muffin. Pecan or blanched almond

nut

> muffins are easiest to tolerate. Cashew are more advanced

(starchier)

>

> Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

> mom of and

>

[Guest guest]

> OK, so how many folks on this board have carpal from peeling

> everything? I'm only 4 days in and OUCH!!!!

I am raising my hand.

Although I'm picky about coring, I've really been thinking that I

should get one of these:

http://www.amazon.com/dp/B0000DZ16W/ref=nosim/?tag=yahoo-kitchen-

20&creative=380333&creativeASIN=B0000DZ16W&linkCode=asn

mom to --12

SCD 4/23/04

[Guest guest]

Yeah!!! Great idea!!! I think my kids would enjoy helping with

something like this!

>

> > OK, so how many folks on this board have carpal from peeling

> > everything? I'm only 4 days in and OUCH!!!!

>

> I am raising my hand.

>

> Although I'm picky about coring, I've really been thinking that I

> should get one of these:

> http://www.amazon.com/dp/B0000DZ16W/ref=nosim/?tag=yahoo-kitchen-

> 20&creative=380333&creativeASIN=B0000DZ16W&linkCode=asn

>

>

> mom to --12

> SCD 4/23/04

>

[Guest guest]

Hi ,

<<He has

> not had applejuice, but I will google a recipe for homemade--what a

> great idea! I LOVE MESSAGE BOARDS!!!>>

There is a mulled apple juice recipe at :

http://pecanbread.com/new/recipes/homemademulledapplejuice.html

If you leave out the spices and just stick to apples and water, it

will just make a juice. If you have a juicer then it is even easier.

> I was also panicking since he will not drink the grape juice or eat

> broth. I thought this was crucial to heal the gut.

Nice options, but not having them won't delay healing as long as he

has some legal carbs.

<<OK, so how many folks on this board have carpal from peeling

> everything? I'm only 4 days in and OUCH!!!!>>

Definitely invest in a good vegetable peeler - it will save

time...and your wrist. : )

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

[Guest guest]

Hi ,

<<Oh--I miswrote earlier--my 5 yr old has not had milk or any casein

> in 2.5 years. We do let my 3 year old (NT, no apparent GI issues)

> drink milk and what I meant is that my 5 yr old (autistic

> enterocolitis, ASD, etc.) does not have a problem with his little

> brother drinking milk.

>

> Thanks! >>

I figured that was what you meant I'd just wanted to make sure : )

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

[Guest guest]

Hi ,

<<OK, so how many folks on this board have carpal from peeling

> > everything? I'm only 4 days in and OUCH!!!!

>

> I am raising my hand.

>

> Although I'm picky about coring, I've really been thinking that I

> should get one of these:

> http://www.amazon.com/dp/B0000DZ16W/ref=nosim/?tag=yahoo-kitchen-

> 20&creative=380333&creativeASIN=B0000DZ16W&linkCode=asn >>

Santa brought one to me two years ago and it is fabulous. It peels,

cores and slices in seconds.

My kids who stopped eating apples for a while (sore loose teeth and

gums) will eat the apples when they get to spin them through the

peeler.

After almost two years of use (quite a bit of use!) the blades are

still wonderfully sharp.

Santa is very wise

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and