Is this a crohn's flare?????

[Guest guest]

I am not sure what is going on with my son ethan. He has been on

SCD since January and has been medication free since then. For the

past 2 and a half weeks he complains of a stinging or burning

sensation, with occasional cramping in his stomach and this has been

bad enough that he hasn't been able to go to school. GI took blood

and his sed rate is 12 which is in the normal range. He put us back

on pentasa and flagyl while we await results from Calprotectin test

( a stool test that should see if there is any inflammation in his

small or large bowel). He has not had any D or blood this whole

time. In the past our flares always involved D. Any suggestions

would be appreciated, he is in so much pain and I haven't been able

to give him anything that seems to help. Should we go back to intro

diet or start a clear liquid diet? I should mention that I

inadvertantly gave him a probiotic which contained FOS which i now

know is an illegal. I began this about a week and a half after his

symptoms started so I know that this isn't the root cause but I am

sure it didn't help things any. Again any advice would be

appreciated, It is really hard watching him in so much pain.

thanks very much,

Jill and Ethan 9yo, CD 9/05,SCD 1/07

[Guest guest]

Hi Jill and Ethan,

<<I am not sure what is going on with my son ethan. He has been on

> SCD since January and has been medication free since then. For the

> past 2 and a half weeks he complains of a stinging or burning

> sensation, with occasional cramping in his stomach and this has

been > bad enough that he hasn't been able to go to school. GI took

blood> and his sed rate is 12 which is in the normal range. He put

us back > on pentasa and flagyl while we await results from

Calprotectin test > ( a stool test that should see if there is any

inflammation in his > small or large bowel). He has not had any D or

blood this whole > time.>>

Where is the pain and cramping?

Is his stool getting drier (constipated)?

In the past our flares always involved D. Any suggestions

> would be appreciated, he is in so much pain and I haven't been

able to give him anything that seems to help. Should we go back to

intro> diet or start a clear liquid diet? I should mention that I

> inadvertantly gave him a probiotic which contained FOS which i now

> know is an illegal. I began this about a week and a half after his

> symptoms started so I know that this isn't the root cause but I am

> sure it didn't help things any. Again any advice would be

> appreciated, It is really hard watching him in so much pain.

> thanks very much,

> Jill and Ethan 9yo, CD 9/05,SCD 1/07>>

It may help to go back to the intro for a couple of days.

Please keep us updated.

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

[Guest guest]

Sheila, The pain is in the area around his navel. At the start he was

constipated but I gave him magnesium citrate and his stools look normal to me.

Is it possible to be in a flare without D and with a normal sed rate? Thanks

for your help, Jill and Ethan

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

[Guest guest]

Hi Jill and Ethan,

<<Sheila, The pain is in the area around his navel.>> At the start

he was constipated but I gave him magnesium citrate and his stools

look normal to me. Is it possible to be in a flare without D and

with a normal sed rate? Thanks for your help, Jill and Ethan

I don't want to freak you out with these links but thought they may

trigger some thought as to what it could be and give you ideas to

discuss with his doctor:

http://www.nlm.nih.gov/medlineplus/ency/article/003120.htm#top

http://www.cnn.com/HEALTH/library/DG/00013.html

This link speaks of burning pain around the navel

http://www.doctorslounge.com/gastroenterology/forums/backup/topic-

10839.html

Please let me know how he is doing.

Sheila, SCD Feb. 2001, Uc 23yrs, PCOD 22yrs

mom of and

[Guest guest]

--- In pecanbread

>Thank you Sheila, those articles were helpful. He still feels

lousy with the same stinging pain so we will probably go back to the

GI doctor on Monday. We have begun the inro diet. Thanks again,

jill and ethan.

> Hi Jill and Ethan,

>

> <<Sheila, The pain is in the area around his navel.>> At the

start

> he was constipated but I gave him magnesium citrate and his stools

> look normal to me. Is it possible to be in a flare without D and

> with a normal sed rate? Thanks for your help, Jill and Ethan

>

> I don't want to freak you out with these links but thought they

may

> trigger some thought as to what it could be and give you ideas to

> discuss with his doctor:

>

> http://www.nlm.nih.gov/medlineplus/ency/article/003120.htm#top

> http://www.cnn.com/HEALTH/library/DG/00013.html

>

> This link speaks of burning pain around the navel

> http://www.doctorslounge.com/gastroenterology/forums/backup/topic-

> 10839.html

>

> Please let me know how he is doing.

>

> Sheila, SCD Feb. 2001, Uc 23yrs, PCOD 22yrs

> mom of and

>

[Guest guest]

I was really surprised that, when my dd had a Crohn's flare, it took several

*weeks* for the lab work to correlate with what we were seeing. For us, over a

weekend she got very tired and lethargic and had stomach pain. We went back to

the intro diet. I took her in on Monday and, although the labs were fine, she

started on Pentasa. I think it was two weeks later that her SED rate was

finally out of whack. I was stunned.

Good luck getting through this.

Ellen in Boston

10 year-old (today!) dd SCD since 5/06 for Crohn's

[Guest guest]

Just curious - Have they had a 90 Food IGG (delayed reaction) allergy

test yet. I know allergy doctors don't like to order it but DAN! docs

do. I have a moms group and it is amazing the IGG sensitivites these

children have, and I've seen huge things when they were removed. Just a

thought.

My son is SCD and has been for about a year. His stools improved

initially, then started to get worse and didn't come back. We found out

he had a Clostridia problem, which, if I'm correct can not be starved

out using SCD. It's also possible that since SCD works so well on yeast

and bacteria, but not Clostridia, it oopens up pandoras box and

Clostridia is allowed to thrive in the absence of the other competing

yeast and bacteria. Were taking Flagyl now, Jury is out on if it is

helping. I see you are also taking Flagyl. We will be moving on to HBOT

ASAP because I have heard some reports about various HBOT pressures

killing off Clostridia. (P.S. we are still SCD and will be for years to

come)

Good Luck, I hate to see hurting bellies, it breaks my heart, my

prayers are with you.

[Guest guest]

Hi sarah,

Have you looked into S. boulardii? It seems to help some with

clostridium overgrowth (one thing it does is it inhibits the

bacteria toxins effect on the colon). The S. boulardii also help

promote a healthier microflora.

http://ndt.oxfordjournals.org/cgi/content/full/15/5/571

http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=96311

http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=174512

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

>

> Just curious - Have they had a 90 Food IGG (delayed reaction)

allergy

> test yet. I know allergy doctors don't like to order it but DAN!

docs

> do. I have a moms group and it is amazing the IGG sensitivites

these

> children have, and I've seen huge things when they were removed.

Just a

> thought.

> My son is SCD and has been for about a year. His stools improved

> initially, then started to get worse and didn't come back. We found

out

> he had a Clostridia problem, which, if I'm correct can not be

starved

> out using SCD. It's also possible that since SCD works so well on

yeast

> and bacteria, but not Clostridia, it oopens up pandoras box and

> Clostridia is allowed to thrive in the absence of the other

competing

> yeast and bacteria. Were taking Flagyl now, Jury is out on if it is

> helping. I see you are also taking Flagyl. We will be moving on to

HBOT

> ASAP because I have heard some reports about various HBOT pressures

> killing off Clostridia. (P.S. we are still SCD and will be for

years to

> come)

> Good Luck, I hate to see hurting bellies, it breaks my heart, my

> prayers are with you.

>