Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Hi all, Just to update you, I saw a surgeon today, who was recommended by my NEW GI team. He was very nice, knowledgable and looked like Clooney. lol He asked me why there were no tests done on my pancreas while I was in the hospital? He also asked why did'nt they take my gallbladder out while I was there too? I told him these were good questions I asked myself! He shook his head and said " Why did they discharge you? That was 3 weeks ago " He said we could not wait on this as people die from pancreatitis. He will take my gallbladder out and also inject a dye into the pancreas to see if there are any obstructions, how the flow is, etc and he said if nessassary, do a ENCP or something that sounds like that. So I hope to god I have no permenant damage and all goes well. The Best to all of you as well Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Eileen, according to my specialist you should expect to have a pancreatic attack if dye is used when looking at the pancreas and it has a problem. He says the dye causes attacks BUT if you don't know if the pancreas has problems or not, then you kinda have to use it and take your chances. And the proceedure he will do is an ERCP. Pretty standard and definative in diagnosing pancreatitis. Sounds like you are on the right track finally. Good that the gallbladder will come out. You should have relief there. Just please remember to look for that pain and recognise it after the surgery. If it feels WRONG, then something probably is. I will keep you in my thoughts and prayers that all turns out GREAT with no problems! Sandy in Ca He said we could not wait on this as people die from pancreatitis. He will take my gallbladder out and also inject a dye into the pancreas to see if there are any obstructions, how the flow is, etc and he said if nessassary, do a ENCP or something that sounds like that. So I hope to god I have no permenant damage and all goes well. The Best to all of you as well Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Dear Sandy, Uh oh..... I was not bargaining on THAT! It sounds frightening. :-( When you say " if something feels WRONG " , may I ask what you mean by that? I have not had acute pancreatitis as many of you have. Just a nagging, throbbing, dull pain, so I'm not sure what kind of pan to expect and now am a bit scared. If that happens, guess I can expect more days of hospitization? Any advise is appreciated. Blessings, Eileen > > Eileen, > > according to my specialist you should expect to have a pancreatic attack if dye is used when looking at the pancreas and it has a problem. He says the dye causes attacks BUT if you don't know if the pancreas has problems or not, then you kinda have to use it and take your chances. And the proceedure he will do is an ERCP. Pretty standard and definative in diagnosing pancreatitis. Sounds like you are on the right track finally. > > Good that the gallbladder will come out. You should have relief there. Just please remember to look for that pain and recognise it after the surgery. If it feels WRONG, then something probably is. I will keep you in my thoughts and prayers that all turns out GREAT with no problems! > > Sandy in Ca > He said we could not wait on this as people die from pancreatitis. > He will take my gallbladder out and also inject a dye into the > pancreas to see if there are any obstructions, how the flow is, etc > and he said if nessassary, do a ENCP or something that sounds like > that. > > So I hope to god I have no permenant damage and all goes well. > > The Best to all of you as well > > Eileen > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hi Eileen thats my family name I am glad you found Clooney teh surgeon!!! Can i have him as well... I can give ou the postal adress to ship Good luck for your surgery? what are they goign to do? Debs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hehehe I was expecting the usual receding haorline and glasses to walk through the door and instead got a version of Clooney. LOL They are going to take out my gallbladder and also inject a dye into the pancreas to see how everything flows. If he feels the need to clean out the ducts, etc, he said he would do that. Praying I don't have an acute attack. I have a dull, nagging pain, and don't ever want to feel what most of you experience. It's sounds so horrible. Eileen > Hi Eileen > > > thats my family name > > I am glad you found Clooney teh surgeon!!! Can i have him as > well... I can give ou the postal adress to ship > > Good luck for your surgery? what are they goign to do? > > > Debs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Dear Eileen, I was also very curious why the doctors didn't do any of the usual tests to diagnose CP while you were in the hospital. Hearing that this replica of Clooney disguised as a surgeon thought the same validates my original thoughts. Or did I get that backwards... a surgeon that is a replica of Clooney, perhaps? Gee, I don't know if I could lay still with someone who looks like leaning down over me while I was lying on a table almost naked......whew!! What a vision!! Anyhowwww, it's great news that you're finally in the hands of someone who sounds like he knows what he's doing, and what's best for you. Too bad he's so unattractive to deal with....lol! I've never had to have an ERCP or the dye injected into my pancreas for that procedure, so I can't comment on ERCP's with any personal experience. But I have had dye injected each time I've had a CT-scan, and I've had 17 of those. Only one time of the 17 has that dye effected me - and it was enough of a side effect that it caused an acute attack, but I did not go to the ER. I doubled up on my pain meds and rode it out at home. In retrospect, this was a foolish thing to do, I should have gone to the ER and had professional care. Anything that severe needs to be treated at the hospital and needs to be recorded into a patient's history, especially if the patient later tries to apply for SSDI. The documentation of each acute attack helps establish the severity of the progression of CP that SSDI looks for. I wish you luck with the procedure and hope that having your gall bladder removed will be the answer to all your problems. With luck, once the pain from the surgery abates and you are in full recovery, you may be able to say good-bye to us. If it all settles down and you aren't feeling any pain, you may be free. I would imagine that it will take several weeks before you could determine that, since there must be some pain after the surgical removal of the gall bladder, yes? I also can't personally comment on that, either, since I'm one of the rare people in this group that still has their gall bladder! I think there are only a handfull of us in the entire group that still have theirs. Mine is fine, small, but clear and healthy, thank goodness! I'll be praying for the success of your surgery and a recovery that leaves you pain-free. Please keep us updated. Please, also, let us know what hospital you'll be having your surgery done at, in case you do end up staying a few additional days. That way we could send a card or give you a call of cheer, okay? With love, hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC SC State & SE Regional Representative Pancreatitis Association, International Note: All comments or advice are personal opinion only, and should not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Heidi, your a gem. You make me laugh and your also very kind as well as informative. You can contact and I at Riverview medical Center in Red Bank NJ. LOL Mr. Clooney told me he would keep me overnight, but hopefully I will be home after that. If by the answer to my prayers I am healed after this, I will defo update and say goodbye to you all before signing off. And I really appreciate the postitive energy sent my way, i believe in the power of it. Eileen > Dear Eileen, > > I was also very curious why the doctors didn't do any of the usual > tests to diagnose CP while you were in the hospital. Hearing that > this replica of Clooney disguised as a surgeon thought the > same validates my original thoughts. Or did I get that backwards... > a surgeon that is a replica of Clooney, perhaps? Gee, I don't > know if I could lay still with someone who looks like leaning > down over me while I was lying on a table almost naked......whew!! > What a vision!! > > Anyhowwww, it's great news that you're finally in the hands of > someone who sounds like he knows what he's doing, and what's best > for you. Too bad he's so unattractive to deal with....lol! I've > never had to have an ERCP or the dye injected into my pancreas for > that procedure, so I can't comment on ERCP's with any personal > experience. But I have had dye injected each time I've had a > CT-scan, and I've had 17 of those. Only one time of the 17 has that > dye effected me - and it was enough of a side effect that it caused > an acute attack, but I did not go to the ER. I doubled up on my > pain meds and rode it out at home. > > In retrospect, this was a foolish thing to do, I should have gone to > the ER and had professional care. Anything that severe needs to be > treated at the hospital and needs to be recorded into a patient's > history, especially if the patient later tries to apply for SSDI. > The documentation of each acute attack helps establish the severity > of the progression of CP that SSDI looks for. > > I wish you luck with the procedure and hope that having your gall > bladder removed will be the answer to all your problems. With luck, > once the pain from the surgery abates and you are in full recovery, > you may be able to say good-bye to us. If it all settles down and > you aren't feeling any pain, you may be free. I would imagine that > it will take several weeks before you could determine that, since > there must be some pain after the surgical removal of the gall > bladder, yes? I also can't personally comment on that, either, > since I'm one of the rare people in this group that still has their > gall bladder! I think there are only a handfull of us in the > entire group that still have theirs. Mine is fine, small, but clear > and healthy, thank goodness! > > I'll be praying for the success of your surgery and a recovery that > leaves you pain-free. Please keep us updated. Please, also, let us > know what hospital you'll be having your surgery done at, in case > you do end up staying a few additional days. That way we could send > a card or give you a call of cheer, okay? > > With love, hope and prayers, > Heidi > > Heidi H. Griffeth > Bluffton, SC > SC State & SE Regional Representative > Pancreatitis Association, International > > Note: All comments or advice are personal opinion only, and should > not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
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