Re: Templin and C F

[Guest guest]

Jean,

The email from Debbie was just posted this morning. I think the subject was

about Glucophage, maybe. I am waiting to hear, hopefully from Debbie, about

CF.

When was diagnosed with it years ago where did she have the testing done?

What is the test " called? " How did Dr. Lehman know that she had CF? Did he

test her for that yesterday?

I really need to know how to get this testing done! There are many, many

reasons why I need to have this done.

Thanks!

T.

Templin and C F

,

I did not read the post from Debbie about CF. How far back is it?

Does she have C F?

was diagnosed with the C F gene 5 years ago and Tuesday when

Lehman saw her, she told her that she had Cystic Fibrosis and that it

was making her pancreatitis worse along with other things happening to

her.

I want my son to be tested for the gene but he wont go.

I do know that had stomach problems as a child and all her life.

I always thought it was a nervous stomach or spastic color as I have

that. I had her to Dr many times and they never said anything about C

F. Altho this was several years ago and things have changed

drastically now.....sometimes I think for the worse.

Let me know about the CF with you and what you have been told about it.

Jean

[Guest guest]

I'm not sure what you are referring to for testing for CF? There are

only two tests. The sweat chloride test and the genetic counseling blood

test. I was diagnosed by the genetic counseling blood test. Does this

Dr. Lehman have experience with CF patients? That was one of my

questions, because I have the CP now also and want to get another opinion

about things and was wondering if he has this experience with CF

patients. Because we are a whole group of different kind of patients

with different responses to therapies and medications. If you have any

input into this please let me know. I have had cf of course since birth

since it is genetic and struggled more so since the pancreatitis is

present. Pain free days to all Deb

[Guest guest]

Jean and , Not sure if I can post this way? Sorry if not

appropriate. I do have CF and severe CP My PFT's have dropped about 50%

over the last year and I have had to on disability after 34 years of

nursing. I loved my profession as a nurse consultant. I have my own

independent business now. I would like to converse with anyone on the

group that has CF. As your friend has been told, my CF and CP are much

worse as the CF increases. I have never had such problems until I had

the CP. Many exacerbations, malabsorption, loss of weight, and many

pulmonary infections. Although I am most thankful for every day. A year

ago with the CP I was in a wheelchair and I run three miles a day now and

like I said have been able to formulate a business as my disability

allows. God has been good to me. But as my husband says I work at it

too. I feel for all out there that afflicted with this disease be it CF

or CP, so today my prayers go out to all of you. Please write back and

let me know about yourselves. deb