Fatigue & Venting to K

[Guest guest]

I know exactly what you mean about the fatigue. There came a point

in my disease where I was just falling asleep constantly. At work,

behind the wheel. Sometimes when I got home from work I was so tired

I could barely stay awake long enough to shower and often went to bed

with wet hair long before my kids had even eaten dinner. A dinner I

couldn't cook or eat. I found that the vitamins did help a lot with

the fatigue. Do you take any? I am extremely emphatic that anybody

with CP or any other conditions of malabsorbtion should be on

supplements.

I have gone round and round with my doc about just that and have

fussed at him for not recommending it to his other panc patients. I

gave him my list and he pooh-poohed med. No documented proof. I

have been seriously considering establishing a PAI support group to m

eet in person at MUSC so that I can encourage others along those

lines. Just need to get a little bit stronger. We'll see.

I understand entirely how you feel about the income. I have 3 kids.

One is a sophmore in college, one is a freshman in HS and the other

is in the 5th grade. My loss of income has been very difficult and I

never thought at 43 I would be living pay to pay. Do you think that

maybe your boss would let you shorten your daily hours? What kind of

work do you do? Iknow you have told me but I have forgotten, sorry.

We had a major hurricane here in '89. The little town I live in what

literally wiped off the face of the earth. We couldn't get off our

property for 3 days and I had no idea how my parents were for 5

days. Cell phones were a luxury of the rich back then. It destroyed

my inlaws home and gutted my parents home. The lowcountry of SC was

devasted and I had to rely on the kindness and generosity of

strangers and the Red Cross just for the basic needs of life. We had

no electricty for 5 weeks.

We donthave levi's here so we didn't have that horrible flooding like

in New Orleans but I can empathise with those folks in the bayou. I

didn't think we were going to live through the night. I still have

nightmares about it and now there is another storm churning off our

coast. This area has never been the same since. I have been in

tears watching these people on television and I have given what I

could. The government of NOLA should have done mnore to get those

poor people out. If you had money you got out, if you didn't, you

were screwed. Thats more then a shame, its a sin. FEMA did a

horrible job with us in '89 too. Oprah even came here too.

Vent all you want, its like you said, the exposure does bring it all

into a new prospective. You said it very well. I hope you feel

better soon.

Warmly,