Eileen

[Guest guest]

Eileen:

For some reason, my pancreas is very sensitive to drugs of any kind.

Its a nightmare. But, I had so much problem with my shoulder and was

getting physical therapy that I ahd to do something. It hurt so bad

that had I never had pancreatitis then my shoulder would have been the

worst pain I have ever had. That's just my pancreas being weird.

Just because it bothers one person, it might not bother another. Also

my stomach is supersensitive and I have had hemorrhagic gastritis just

from the stress. I am very very picky about what I put in my mouth!

Take care

Kaye

-- In pancreatitis , " whitefalconsgoddesswear "

<whitefalconsgoddesswear@y...> wrote:

> Kaye,

> Hi, I'm new here. Sorry for butting in, but I saw that you wrote

this;

> " If I were positively sure it was the Aleve that caused this

> pancreatitis I would not go "

>

> I am taking Aleve right now for after surgery swelling and pain.

>

> Eileen

[Guest guest]

I totally understand Kaye. I have fibromyalgia and it makes me

sensitive to all kinds of meds, over the counter or prescribed too.

I've been reading your posts, sorry your having it rough.

Eileen

> > Kaye,

> > Hi, I'm new here. Sorry for butting in, but I saw that you wrote

> this;

> > " If I were positively sure it was the Aleve that caused this

> > pancreatitis I would not go "

> >

> > I am taking Aleve right now for after surgery swelling and pain.

> >

> > Eileen

[Guest guest]

First let me say, I met with Dr Sutherland, considered to be the top

Transplantation doc in the US and one of the top in the world. He is at the

Univ. of MN at Fairview. The TP/ICT DOES NOT give you relief of SOD. The only

thing you will give up is the CP. You must know you may be trading it for Type 1

diabetis. You are not suddenly ok or healthy following the TP/ICT . it is a one

year recovery time and not without risk. When I went to see Dr Sutherland, it

was to discuss the TP/ICT. I had sent him my files in advance so he knew I was a

canidate. Because CP is not my only problem and I have a lot of pain from the

SOD, he advised me to the whipple first and the TP/ICT a year post whipple. The

whipple allows him to remove the biliary, thus, no more SOD. For me, everything

would be a direct dump. Because I was born with 2 pancreas and not all of my

duct work, drainage is a huge issue for me. The whiple can be moddified to meet

the need of the person. When he does the TP/ICT, all he

does is pop out the pancreas. So you will still have SOD and you could get

gastroparisis. (which I already has, so no biggie on that). However , doing the

whipple forst can also, potential " cure " my gastropariris because the part of my

stomach that is paralyzed, is the hump. My intake sits in the bottom until I

barf it up, it can't get over the hump to be processed. I highly recommed you

only seeing certain doc for this. In fact, my transplant patient advocate told

me that my ins. only covers certain ones, period ...I was going to do the

whipple and I still have it scheduled, howver, now I am thinking I don't wanna

do that (I have a bad kidney and some other stuff). You have to be healthy other

than the CP, it's a really hard surg. My nurse has seen some posstive results

come from it. You just gotta know going in, it;s not a fix. You trade one evil

for another. You have to know this. -Kathleen

whitefalconsgoddesswear wrote:Heidi,

You wrote;

" There are surgeries that can treat chronic pancreatitis. Some can

solve the problems in a temporary fashion, while others are a

permanent fix. A total pancreatectomy with auto islet transplant is

one surgery that can cure a person from chronic pancreatitis

completely. Everyone isn't eligible for this procedure, but a high

percentage is, and the surgery is becoming more popular and being

done more and more each day. "

This is interesting to me. Who are the surgeons that perform this?

Are there only a specialized few? And in order for the surgery to be

a success, does it have to be done in the early stages?

I am also interested in the surgeries and the outcome of those

surgeries for damaged ducts and SOD. (I feel in my gut this is my

issue)

I'm having a hard time getting a doctor to test me for it.

Eileen