Family has ruined my son's progress!!!!!!!

[Guest guest]

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[Guest guest]

I understand-have been there. I don't think anyone tries to be negative,

they just don't get it!!

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[Guest guest]

After 1 year of scd i have learned that Grandma and son have been

sabotaging the scd. My son has been eating lots of raw fruit, skin,

seeds and all...during his visits. A child who could eat almost

nothing a the start of scd ...who couldn't eat honey, eggs, yogurt

until months into the scd....finally started to progress well...then he

ate lots of peaches,oranges, strawberries, melons a number of times at

grandma during his visits this summer. I was pulling my hair out

wondering why he was regressing...the stuttering, behav., reacting to

c. veges i thought he tolerated. Now i know why he was stuck at stage

1 & 2 cooked food, no cheese, no pecan butter etc,

This really sucks..........

Cathy

celiac kiddos...scd aug 2006

[Guest guest]

I would be livid. You have my sympathies, and I wish healing for

your son.

alana

> After 1 year of scd i have learned that Grandma and son have been

> sabotaging the scd. My son has been eating lots of raw fruit, skin,

> seeds and all...during his visits. A child who could eat almost

> nothing a the start of scd ...who couldn't eat honey, eggs, yogurt

> until months into the scd....finally started to progress

> well...then he

> ate lots of peaches,oranges, strawberries, melons a number of times at

> grandma during his visits this summer. I was pulling my hair out

> wondering why he was regressing...the stuttering, behav., reacting to

> c. veges i thought he tolerated. Now i know why he was stuck at stage

> 1 & 2 cooked food, no cheese, no pecan butter etc,

>

> This really sucks..........

>

> Cathy

> celiac kiddos...scd aug 2006

>

>

>

[Guest guest]

I really feel your anger. I'm so sorry.

There are some great recovery by SCD videos on the web, maybe you could make

sure they see them, read the book and understand that if they are to be a part

of his life, they have to support the program.

cjb202207 wrote:

After 1 year of scd i have learned that Grandma and son have been

sabotaging the scd. My son has been eating lots of raw fruit, skin,

seeds and all...during his visits. A child who could eat almost

nothing a the start of scd ...who couldn't eat honey, eggs, yogurt

until months into the scd....finally started to progress well...then he

ate lots of peaches,oranges, strawberries, melons a number of times at

grandma during his visits this summer. I was pulling my hair out

wondering why he was regressing...the stuttering, behav., reacting to

c. veges i thought he tolerated. Now i know why he was stuck at stage

1 & 2 cooked food, no cheese, no pecan butter etc,

This really sucks..........

Cathy

celiac kiddos...scd aug 2006

__________________________________________________

[Guest guest]

Thank you...they don't want to understand..won't read or listen..i

have tried..the miracle hasn't happened quick enough for them...

> After 1 year of scd i have learned that Grandma and son

have been

> sabotaging the scd. My son has been eating lots of raw fruit, skin,

> seeds and all...during his visits. A child who could eat almost

> nothing a the start of scd ...who couldn't eat honey, eggs, yogurt

> until months into the scd....finally started to progress

well...then he

> ate lots of peaches,oranges, strawberries, melons a number of times

at

> grandma during his visits this summer. I was pulling my hair out

> wondering why he was regressing...the stuttering, behav., reacting

to

> c. veges i thought he tolerated. Now i know why he was stuck at

stage

> 1 & 2 cooked food, no cheese, no pecan butter etc,

>

> This really sucks..........

>

> Cathy

> celiac kiddos...scd aug 2006

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Cathy,

I'm so sorry to hear that. My son only has 1 functional grandparent left and he

rarely gets to see her because she would not (I think just could not) get it

together and follow my wishes to the letter. We had to stop letting him go over

there except when we are there. We gave her chance after chance. So, there is

no one to watch him overnight ever anymore because of that. But, absence makes

the heart grow fonder. . .She has finally begun to see progress in his behavior.

Before she couldn't handle him and she is beginning to see the light. I still

won't trust her though. She's betrayed our wishes too many times. It's a tough

decision, but one we HAD to make for our son's sake. I so understand your anger.

You can make the tough decisions and it will be okay.

Bonita

Family has ruined my son's progress!!!!!!!

After 1 year of scd i have learned that Grandma and son have been

sabotaging the scd. My son has been eating lots of raw fruit, skin,

seeds and all...during his visits. A child who could eat almost

nothing a the start of scd ...who couldn't eat honey, eggs, yogurt

until months into the scd....finally started to progress well...then he

ate lots of peaches,oranges, strawberries, melons a number of times at

grandma during his visits this summer. I was pulling my hair out

wondering why he was regressing...the stuttering, behav., reacting to

c. veges i thought he tolerated. Now i know why he was stuck at stage

1 & 2 cooked food, no cheese, no pecan butter etc,

This really sucks..........

Cathy

celiac kiddos...scd aug 2006

[Guest guest]

Cathy,

I absolutely feel for you. We have had very similar expreiences.

What you need to do is tell Grandma that if she wants to spend time

with your son, she needs to obey the rules. Those are the conditions,

and she can't get away with sneaking, because you can tell the difference.

I had to come right out and tell my mother that since the illegal food

create

a morphene like reaction in my son, she was like a drug pusher, and not

welcome in our home. Visiting summers and newyears made things easier.

grandparents could see the efforts we were going to to prepare meals, clean

pots and pans, keep other siblings' food away etc. and that helped show them

how dedicated we were to succeed.

We once visited a friend's house for

an hour, and when asked if she could get anything for our boy, told her

that Gen was, " 'allergic' to all dairy, grains, soy, processed foods,

most carbo-

hydrates, etc....its very complicated, so please don't feed him

anything-- anything at all. "

" Not even water? " she asked. I said, " well only water is OK, but in a

well cleaned

glass. " About 15 minutes later, she came out and said, " Its OK for him to

eat Cap'n Crunch, isn't it? " I ran into the kitchen, and saw he had already

eaten about a quarter of a bowl. We had no enzymes, nothing. We have

never visited their house again. I can only imagine what would happen if

someone had told them their son had a peanut allergy. They'd probably

say, " I'm sorry your son died, we didn't give him peanuts, we gave him

Nutter Butters, I don't understand what could have happened.... "

Vigilance! -Allan.

[Guest guest]

Thank you all for your support.

I am very happy to tell you all what Hubby said " would she give him a

loaded gun if he asked her?? "

I really needed to hear these strong words from him .

This is the first time i have felt he was 100% on board with the diet.

Cathy

scd kids: 7,10