Fentanyl patches to Rhonda

[Guest guest]

Rhonda,

You certainly did the right thing when you got rid of that first

doctor. Sometimes we get the ones who think they are God and they

aren't at all. I had one like that as my first GI and he really

messed everything up. I had all the symptoms of diabetes and he

totally missed it. He said my frequent urination, dry mouth, thirst,

drinking gallons of water a day, weight loss and blurred vision was

all due to something else....a new medication I was taking...HAH!!

Of course, he was wrong, and I went into DKA shock!!

So sometimes you have to put your foot down and find a real GI who

knows what he's doing, and really understands CP. That's quite a

story about the fentanyl patch removal. I'm surprised that you

didn't have an awful time with withdrawal.

What is the new medication that your new doctor put you on to replace

the fentanyl patch? I'm always interested to hear what works for

other people.

It sounds like you're doing much better now and things are looking

up. I hope this continues for you.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

hhessgriffeth@...

SC and Southeastern Regional Rep.

Pancreatitis Association, Intl.

Note: All comments or advice is based on personal experience or

opinion only, and should not be substituted for consultation with

your medical professional.

[Guest guest]

Hello Heidi,

Yes, I had horrible withdrawals when he just pulled it off without

weening me from the patch. The new Dr put me on Methadone.( I hate to

say that word. It always reminds me of a junky)anyway the new dr gave

them to me at a dosage of 3 tablets 3 times a day. I tried 3 but it

made me so sleepy. I went down to 2. I felt pretty good. No withdrawals

from the patch. So now I'm down to 4 or 5 a day. It feels about right.

It gives great pain relief without making me so woozie.

I'm still on the tpn but I'm down to 18 hours on 6 hrs off.

I've had a really hard time with constipation and stools that are

almost white (does anyone know why?) I hate bringing up these subjects

but who else do you ask? My tummy has been really bloated and tender.

Every time I get the slightest stabbing pain in my belly I start to

pray. Please don't let this be another attack. But, I'm sure you feel

the same way.

Anyway thanks for responding to my last post.

Rhonda

[Guest guest]

Rhonda,

Those white stools mean that you have malabsorption problems. Most of us

do. Are you taking pancreas enzyme supplements?

With love, hope and prayers,

Heidi

Heidi H. Griffeth

hhessgriffeth@...

SC and Southeastern Regional Rep.

Pancreatitis Association, Intl.

Note: All comments or advice is based on personal experience or

opinion only, and should not be substituted for consultation with

your medical professional.