Group Meeting Results/DAN Info.

[Guest guest]

Went to the group meeting in my town tonight. My town is 1/4 square

mile, Mayberry, everyone knows everyone elses beeswax so we signed

confidentiality agreements but are allowed to do what I am doing now

so long as we say, " Someone in my group. "

The group is made up of parents of the following types of kids but

not all have just speech issues and one, the only one exposed to

fluoride in large doses, is diagnosed with dyspraxia.

1) PDD Nos, sensory issues pretty severe.

2) Nonverbal, PDD Nos, older sibling possible Aspergers. Going to

Neubrander, slightly leary about him.

3) Me, with one kid with shiners and, off GFCF diet she is whiney,

has focus issues, food strikes and less unprovoked speech. The other

kid is undiagnosed but had signs of apraxia and ASD. Low tone,

initial trouble producing speech, poor receptive, fine and gross

motor issues. Those things improved and some resolved on GFCF diet

and removal of bad water. Articulation issues pend.

The mom of the sensory kid went GFCF in Sept and has seen major

changes. She went to a DAN (A PhD not MD), Dr. King who operates in

conjunction with an MD, Dr. Podell, in Springfield, NJ. The mom is

healing the kid on diet but wanted to know where the kids gut was at,

if she was getting the right vitamins and minerals, using the right

probiotic, etc. She was not interested in chelation. She also wanted

alternative remedies to things that have plagued her kid in the past,

like ear stuff.

She did poop and pee tests via Drs Data and vitamin measurements via

Bioreference. She also did an IGE test. What she discovered was that

milk and wheat are an issue and some other things as well, mostly she

realized but a few, like soy and rice, must leave the diet. The

metals testing showed the worst of her stuff was actually, at this

point " high normal. " The two big things that need addressing were

aluminum and nickel. Neither are a surprise. We live in a town where

aluminum frame windows are made and then there are the vaccines.

Several industries have operated in this town so nickel is also not a

surprise.

The interesting thing was the poop test and what it told her about

what the kid was and was not getting from the current probiotic and

how to address it as well as a panel showing bacterial

susceptibilities and natural agents that could be used to address

these.

Despite giving calmag every day the kid is low in calcium.

So for $500 for the first visit, $350 paid by insurance, and another

$1500 for poop, pee, minerals, vitamin and bacterial susceptibility

tests and IGG food sensitivity testing and maybe some more for a

second visit this woman has a blueprint to treat her child. A new

probiotic was ordered, she is starting CLO, flax seed and some other

stuff tailored to her child.

So here I sit, one month shy of my son's EI age out date. There are

no preschools to take him because I waited. The town preschool that I

waived because I thought they would not abide by diet, is actually

asking the parents I was sitting with to present the GFCF diet to the

school parents as it has helped NT siblings with behavioral stuff and

parents. I can get him in there in 2 months. After what I have seen

in that meeting, where AP kids go GFCF and there problems leave

whereas my kid has aticulation stuff makes me wonder if what is left

in my guy is fluoride and lead. I need the testing. I see that now.

None of these tests seem to address fluoride which concerns me. I

will test the baby water though. At least I'll have a gauge of what

went in. I need to know the minerals, the vitamins, the flora info.

and the remedies. This is the testing we should be able to get when

we go to a mainstream dr. with a child with delays. I am scared. I am

mad. This should not have taken this long.

Hubby is on board. We are behind the 8 ball now and it is time to

catch up. Janice was right. You have to do it all:

The therapy

The diet/vitamin and mineral regimen

and

the DAN testing

You have to know what is in front of you and how to fix it. My DAN

knows the tests. Beyond that I don't know if he can give me a

blueprint like this woman got or if hers is even correct. What I do

know is I need the tests and I trust my own instincts to find someone

knowledgable and trustworthy to help me find a map from there.