Pain Pills and the whole she bang....

[Guest guest]

Hey everyone I hope this reaches everyone in good health and no

pain. I hate to be the downer of the group...but I have had

pancreatits since I was 10 yrs old. I was stupid enough to play

football in elem school and coach threw me the ball and it hit my

pancreas. For the past 19 yrs now I have lived with this illness.

I have been on almost every drug (pain and enzymes) known to

man...and many a time I have been a guinea pig for docs to figure

out how bad my pancreas is working and what test's help to

diganose.

When I tell ppl what I have they usually say " You look so healthy " I

am writing this to make sure everyone makes sure that everyone's

tummies are in working order. When I was on pure morphine 300mlg's

every 3-4 hrs. I was admitted twice for a " Mega Colon " and trust me

you don't want to go in with that diagnose's. I was very lucky that

I had someone near me that helped me get past that bad time.

My pain is still going on and the no sleeping at nite is getting

really old. Sonata is a lot better then ambien. When I took ambien

I tended to want to cook stuff (bacon mostly) and if it wasn't for

my ex I would have burned down the whole apt complex.

A good alternative to the patch is something called Avinza I am up

to 60 mgs a day....it is a long lasting morphine...you don't get

that fuzzy headed kind of thing and you can fuction on it very

well.

I did finally get disablity after getting turned down three times

and I did get it with the diagnosis of Pancreatits...which I have

heard is the hardest to prove to the GOV that you actually are

sick. If anyone is in Tennessee and has questions about disablity

or TennCare...please feel free to post here or send me email....

Hope that everyone is having a good nite and take care all...

[Guest guest]

I had Avinza prescribed to me when I got in to see a pain management

doctor...I couldn't take it as I was at home during the day alone with

my daughter and the last 8 hours of taking the 24 hour release, I

couldn't keep my eyes open. I had to get my husband to call me from

work every hour to check if I was awake....I realise that I would have

gotten used to it eventually, but I couldn't take the risk with how

long it would have taken...also had the same problem with

Neurontin....couldn't keep awake with that stuff, even the lowest

dosage...

Yet Morphine, Dilaudid & Percocet & Fentanyl keep me wide awake...

I'm just glad I don't need them on a regular basis anymore..

ward

[Guest guest]

Please sign your name in your posts so we can know who to address.

I'm very interested in finding out more about this med called Avinza.

I've never heard of this and am very glad to hear that it's working

so well for you.

I also got my disability with chronic pancreatitis listed as my

disability. There were several other conditions listed that also came

into play, but it was the chronic pancreatitis that made the

determination of disability.

Thanks for your offer of help, I'm sure someone will post about it.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

hhessgriffeth@...

SC and SE Regional Rep

Pancreatitis Association, Intl.

Note: All comments or advice are based on personal experience or

opinions only, and should not be substituted for consultation with

your medical professional.