Vindicated!!!!!

[Guest guest]

My family Dr. had called on Tuesday night to see how my visit went

with the pain management Dr. on Monday after I left his office. I

told him all that was said and how he talked to us and how my

husband had melted down and I had to get him taken care of first.

After 7 years together and life, I have never seen this man do this.

I think was just so shocked to hear someone talk to me like this.

And also angry but knew that if he said too much would make work

life unbearable. He is a suck it up and take it kinda guy at work

anyway.

Anyway to the point. I am vindicated, the test proved that I do have

what he said I didn't have, and the Drs. at IU MED were right. I am

not glad to have this problem, but relieved that I am not crazy.

When people say these things to you, you begin to doubt what you are

feeling and why you are feeling them.

I am to return to Indianpolis at Methodist to see the ordering

gastroenterologist who has already done the endoscope once on me. In

the office he said " If you truely do have these things lady you

have got some awful serious problems " Duh????? That is why I haven't

been able to work for the last 5 years and could barely work the 4

prior to that.

I refuse to take the liquid morphine, it doesn't help and it makes

it worse. I remember in nursing school and from our nursing drug

books don't give people with biliary problems morphine it causes

spasms in this area. I spoke with my primary care Dr. and he knows

what works it is what I have used for the past 5 years, I can't help

it that it is expensive, I do have insurance, I know they just don't

want to pay for it well to bad. I have had to take pain meds 3 times

this week and I used what was left of what I had that worked I had a

small amount left from when they orginally refused to fill the RX. I

went from taking 9 doses of the liquid morphine down to nothing for

3 days until that evening I couldn't take it anymore. I promised the

primary care Dr. that I wouldn't let myself suffer to bad and that

if it got to bad I would take something ( he didn't recommend the

cold turkey) I did it. Yesterday morning I took a half and then this

morning the other half, as I can't hardly walk without it. I have

alot of pain after I eat as usual. Limit the intake is all I can do,

as I can't take meds after that I don't have. I did get a refill

from him and took it to a local pharmacy as I am not fighting with

the one at husbands work, if they yell at me I WILL yell back and

thow one heck of a fit. I worked there and they treated me like a

dog and it WON'T happen again. I don't care who I have to go to.

I have reported them to my state representative before and may do it

again, if I have to. The little pharmacy had to order it and it

won't be in until Tuesday. I wonder if they are going to jerk me

around too? I had gotten it from them before when the hospital

didn't have it, but the Dr. I had at that time would give me voucher

to get either 4-6 free from the manufacturer. I did not know this

Dr. was doing illegal things, and he went to jail, and is currently

in prison. Every Dr. I saw after that thought I was involved with

what he did I had no idea I would have reported him.

The main thing I wanted to say is that the Dr. who told me there was

never anything wrong with me, and he never believed there was

anything wrong. Has been proved WRONG again. He got a copy of the

results I don't guess it will make much difference. If I were rich I

would take him to court, but then if I were rich this would have

never happened. Just an average person, that he can't do high ticket

proceedures on anymore so he didn't want to bother with me anymore.

Atwell LPN

[Guest guest]

Dear ,

I am glad to hear that you are getting on the correct track with

your doctors and working with you to make a correct diagnosis.

I wanted to comment that whenever I list my drug allergies (and

there are many of them) I list Morphine, strictly because it makes

the Spincter of Oddi spasm, thus causing more pain and misery in the

realm of pancreas issues. I am really surprised that more doctors

and PA's don't really think about this connect (i.e. in the ER, when

things are so rushed). I have also seen that some people do still

take it. One can never tell what works for one, doesn't mean it

works for the other.

I hope things continue to work in your favor and you find some

doctors who take the time to understand you and your problems.

Feel well,

> it that there was

> never anything wrong with me, and he never believed there was

> anything wrong. Has been proved WRONG again. He got a copy of the

> results I don't guess it will make much difference. If I were rich

I

> would take him to court, but then if I were rich this would have

> never happened. Just an average person, that he can't do high

ticket

> proceedures on anymore so he didn't want to bother with me anymore.

>

> Atwell LPN

[Guest guest]

Dear ,

I hope you can make it through until Tuesday, and that the little

pharmacy doesn't give you the run around. It sounds as though they

don't intend to, or they wouldn't have even agreed to order more of

the medication. You didn't say what it was that they ordered - what

medication is it that DOES work for you?

You must feel some satisfaction that the doctor was proven wrong.

There is vindication in that. What many doctor's don't understand is

that only WE know our bodies, and when something's wrong, we're the

first to know. Take care and have as a quiet weekend as you can.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

www.pancassociation.org/anthology#Heidi.html

SC State & SE Regional Representative

Pancreatitis Association, International

Note: All comments or advice are based on personal experience or

opinion only, and should not be substituted for professional medical

consultation.

[Guest guest]

I have an intrathcal pump with morphine in it, can you believe that!

You would think that a PAIN MANANGEMENT Dr. would know this stuff,

but I can tell you he didn't care. It was about charging over

$80,000 for just the surgery and not the hospital stay. It also has

pseufentanyl in it also and I still hurt. Fentanyl transmucosally

has been the ONLY thing that has ever helped with the break thru

pain, with the assistance of this medication, I can do just about

anything I need to expect lift real heavy stuff. The issue I know is

price. I am soon going to start a letter writting campaign to my

elected officials.

Atwell LPN

> Dear ,

>

> I am glad to hear that you are getting on the correct track with

> your doctors and working with you to make a correct diagnosis.

>

> I wanted to comment that whenever I list my drug allergies (and

> there are many of them) I list Morphine, strictly because it makes

> the Spincter of Oddi spasm, thus causing more pain and misery in

the

> realm of pancreas issues. I am really surprised that more doctors

> and PA's don't really think about this connect (i.e. in the ER,

when

> things are so rushed). I have also seen that some people do

still

> take it. One can never tell what works for one, doesn't mean it

> works for the other.

>

> I hope things continue to work in your favor and you find some

> doctors who take the time to understand you and your problems.

>

> Feel well,

>

> > it that there was

> > never anything wrong with me, and he never believed there was

> > anything wrong. Has been proved WRONG again. He got a copy of the

> > results I don't guess it will make much difference. If I were

rich

> I

> > would take him to court, but then if I were rich this would have

> > never happened. Just an average person, that he can't do high

> ticket

> > proceedures on anymore so he didn't want to bother with me

anymore.

> >

> > Atwell LPN

[Guest guest]

Actiq 800mcgs. Is the only thing that helps I have had 3 that I had

used over a period of weeks, that I suck on until I can stand it and

then put it up. I opened my last one today so I can go to church, it

took about 1/4 of it before the pounding stopped, so I have the rest

of it for tomorrow. The worst part is at noc, when sitting with my

husband. As long as I keep moving I don't think about it as much or

can get so busy doing what needs to be done, I only think about how

hungry I am. I eat bites because if I eat a meal it hurts too bad

and I would need medication that I don't have. It still hurts after

I eat I just put heat behind me and infront of me and tough it out.

As I said the worst part is trying to sit and spend time with my

husband I jump and jerk, as thought being hit, stabbed and such.

Facial grimace and you all know what I mean. It is very hard to pay

attention. I have one 1600 mcg left out of the 3 they gave me when

the pharmacy started giving trouble telling me they didn't have the

60 800mcg. We knew they were lying when a lady from pharmacy that

works with my husband in the OR over the narcotic said hang on

I think we have 23 of the 800's I'll get them for you. Then

the pharmacist went off on my husband, and accused him and me of

what ever his statement was " I know what you people are doing here "

We have done nothing wrong, and requested drug screens from the Dr.

to which we were denied. They have even protected this pharmacist by

not provding his name to us, I know it is but they won't give

us his last name. The know that I will turn him in. I am by far NOT

done. I have been running a low grade temp since June, and underwent

all of the blood testing for lupus, west nile and such and they came

back negative, after the temp the pain increased, I have nightsweats

and chills prior to the withdrawl I put myself through because the

liquid morphine makes me hurt worse,(but it is $8.10 a bottle). My

family Dr. feels it is my pancreas. I tried to explain this to the

pain management Dr. I even told him I was running fevers sometimes

100.7 with Advil on board, he didn't care said " I have never had a

pump infection,never " How can I make up a temperature???????When the

Dr office is the one taking it??????

Atwell LPN

>

> Dear ,

>

> I hope you can make it through until Tuesday, and that the little

> pharmacy doesn't give you the run around. It sounds as though they

> don't intend to, or they wouldn't have even agreed to order more of

> the medication. You didn't say what it was that they ordered -

what

> medication is it that DOES work for you?

>

> You must feel some satisfaction that the doctor was proven wrong.

> There is vindication in that. What many doctor's don't understand

is

> that only WE know our bodies, and when something's wrong, we're the

> first to know. Take care and have as a quiet weekend as you can.

>

> With love, hope and prayers,

> Heidi

>

> Heidi H. Griffeth

> www.pancassociation.org/anthology#Heidi.html

> SC State & SE Regional Representative

> Pancreatitis Association, International

>

>

> Note: All comments or advice are based on personal experience or

> opinion only, and should not be substituted for professional

medical

> consultation.