Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Hi. My name is . I have a 5 yo daughter and a 4 yo son with ASD. My son has been GFCFSF, nitrate, and color and flavor free for 2 years and is doing wonderful. Not only does he have the behavioral reactions to these foods but like many of the other kiddos, he has significant GI changes. He used to be able to handle small quantities of phenols (spaghetti sauce with pasta, or a box of raisins), but his phenol sensivitity has since skyrocketed. Over the course of 2 days he was given a box of raisins at school. Boy, have I paid the price at home. I have never seen the child so out of control. He is running around the house, making these awful backthroat sounds, laughing like a drunk sailor, and is constantly spitting up and swishing. In SEptember he got some type of virus and I literally watched it migrate up his body. It was really weird. The little guy has not been the same since. Now he has horrible yeast and I feel this has created his extreme sensitivity to phenols. His diet is so limited right now. I bought BTVC over a year ago and read but was advised by my sons chiro that it was extremely difficult to implement and more children react positively to the GFCF diet. I am currently reading Pangborn and Bakers Biomedical book and they recommend the SCD diet. With Jacks yeast issues I am considering changing. The diet sounds difficult to implement but that does not bother me, being GFCFSF and everything else feel has been pretty hard too. I just want to make sure I am doing the diet correctly from the beginning. YOu moms that switched from GFCF to SCD, did you do the SCD while maintaining GFCF? Did you eventually transition to only SCD? How did you handle school snacks? My sons school is a nut free zone and they don't bend. That is a stickler, huh? WE also do probiotics, enzymes, licorice root for immune support, and currently THreelac for yeast die-off. Do you maintain supplements? What kind of reactions did you see in your children? Since you are still doing the diet, I assume they are favorable. What behaviors did you see this diet to be the most effective with? My son is verbal, has good eye contact, and pretty high-functioning. He has a lot of sensory problems, auditory processing issues, hyperactivity, and tends to gets very panicked very quickly. I guess I can get longwinded in my posts. Sorry! I would love to hear your stories and advice about transitioning to this diet. I want to be well versed in SCD before I make the change so that it can be a smooth change for everyone. Thanks! from Delaware Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Hi , Hi , Welcome to the group! Your chiropractor was wrong, more children react positively to the SCD diet than to the GFCF diet. GFCF leader Karyn Seroussi once made a study to compare the two diets and SCD won! I am too busy this morning to find the link to the post that proves this but I am willing to send the link this afternoon anyone who asks for it in private email. I want to explain why Dairy Free SCD is better than GFCFSF or GFCF for children with ASD. When a child does Dairy Free SCD, he is following a diet that is gluten free, casein free, soy free. He is therefore getting all the advantages of GFCFSF or GFCF. I do agree that gluten, soy and casein from cow milk do have an adverse effect on children with ASD. This was proven by a research paper written by Jyanouchi. What was most interesting was that it was found that these reactions might be due to LPS, a very common bacterial toxin. This bacterial toxin (LPS) is capable of inducing most of the symptoms of autism. All these research articles about LPS and ASD are found in the following website: www.microbialinfluence.com Since most of the symptoms of ASD are due to bacterial toxins, it makes sense to do a diet that starves the pathogenic bacteria. Eliminating gluten, casein and soy only eliminates some of the symptoms. We usually recommend that children who did GFCF prior to SCD wait for a few months prior to trying the SCD goat dairy. Elaine believed in waiting for about a month....others believe in 3 months. The goal is to start the dairy after the die off reaction to dairy free SCD has gone away so that you can assess the reaction from the goat yogurt. Doing the SCD yogurt doubles the speed of healing on SCD. The yogurt making process changes the structure of the casein and makes it harmless. Please read the yogurt section of our website: www.pecanbread.com Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Hi, , Here is a post about nut-free school snacks: http://health.groups.yahoo.com/group/pecanbread/message/69274 Yes, many of us give our kids supplements. You'll have to look over your probiotics, enzymes, and supplements and see if they are legal on th SCD. I know Threelac and licorice are illegal. Here is a list of some legal supplements: http://www.pecanbread.com/new/Sup1.html mom to -12 SCd 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Hi, , If you go to the archives and read old posts, you will learn a lot. I did a search for the word " update " which people sometimes use to tell us of their progress. Here's one example posted by Alana after two weeks. Keep in mind that not everyone has dramatic results after two weeks. My son 's progress, for example, has simply been slow and steady (except for a severe setback of about a year due to a chelation challenge ordered by the doctor because my husband wanted to know if we could stop SCD.) http://health.groups.yahoo.com/group/pecanbread/message/70641 mom to -12 SCD 4/23/04 Quote Link to comment Share on other sites More sharing options...
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