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To Chrissy: Re: Beth Isreal Deaconess to

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Thanks for the good thoughts and words Chrissy. As always, I

appreciate them.

Yes, I DID see Dr. Lehman in August of 2004 and he found high

pressure at the SO and at the common bile duct and performed a dual

sphincterotomy with temp stents put in. Unfortunately, I was not one

of the people that benefits from the procedure at least at the first

get go, and I've probably been about 60% worse than before going to

see him. Although I'm sure some of it can be chalked up to just the

fact that it is getting worse and perhaps some scar tissue buildup.

Also, unfortunately, his office doesn't seem to want to help me in

finding a doctor in my area. They DID give me the name of one when

I left IU, but he turned out to be (sorry!!) a horse's arse and

basically said he didn't know where my pain was coming from, didn't

believe that the numbers that he saw warranted the sphincterotomies

but please do come back next month so I can suck up your insurance

money. Sorry but I'm getting VERY jaded at this point...

From then on out it's been a battle with just about every doc that I

see. Unfortunately there isn't much " objective evidence " that

occurs with me, i.e., high enzyme levels, etc. and of course it's

(or at least last spring) too early to see anything on visual

imaging studies. So, I get sent up to Boston (Brigham and Women's

affiliated with Harvard University) see the " God-like " Dr.

Banks...referred to him by the GI that I'm about ready to get rid of

(see my post on Well, I Tried....) and since he also agreed with the

new GI that Dr. Lehman acted differently than he would have (even

though he claimed to not only know Dr. L professionally but

personally as well) given the numbers that I showed via

ERCP/manometry)....

Well, I could go on and on....but I won't. I have got to get the

fight back up within myself and not give up. Even though the docs

claim that this is a " pain management issue " and nothing

more...this " battery acid burning " symptom is something new and I'm

really getting concerned especially since Jerry told me that

something like this happened to him and it turned out that the SO

had completely closed up due to scar tissue and that the bile

basically blew a hole thru the back of his panc and out into his

abdominal cavity OR that I possibly have a pseudocyst or something.

Why, why, why don't these docs run another MRCP or CT scan? I

have't had one since the spring of 2004!!! Arrrgh....

Sorry to rant Chrissy that wasnt my intention. Thanks again for

your kind words and encouragement.

P.S. Heidi: If you happen to read this, yes I think I'll request a

copy of my files and get rid of the Dr. Banks stuff. Don't want

that to jinx me with every doc from here on out....

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