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Hi all!

I was diagnosed last week as having polyps in the nasal passages. I

have been losing my sense of smell for some time and have been

experiencing an " under water " feeling in the ears, dizziness as well.

Well, I am on a fortnight's course of steroid tablets and three months

of steroid nasal drops. I am on the steroid tablets now. I CANNOT

BELIEVE HOW WELL I FEEL!

Not only is my sense of smell already just beginning to come back,

even if much attenuated, but everything else feels wonderful too! No

abdominal pain. I can eat without fear. My rheumaticky knees are like

a 20 years old's.....well, not to look at, OK! I'm not crawling

downstairs in the morning but running down as I did when I was

young!....or even like I did three or four years ago! I realise how

under the weather I have felt for years, even when I thought I was

well, ie. when I wasn't actually going through a panc attack as such.

Pity I can't stay on the things but I expect, like so much else, there

are undesirable side effects and/or they stop working so well after a

time!

I'm having second thoughts about whether or not my CP has an autoimmune

element, though. Certainly, coeliac disease does.

Well, off to pop another steroid before bed! (Don't worry...not the

sort athletes are tempted to take! Mind you, I feel as if I could run

a marathon!)

Love to all,

Fliss (UK)

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Fliss,

It sounds as though those steroids have turned you in to a 14 year

old filly again!!! Well, I guess a filly can't be 14, can she, but

lets just say that you're frolicky as a filly, eh? It's amazing what

some steriods can do. I've never had them, and never will, (a no-no

for diabetics), but imagine they can really make a big difference in

one's stamina.

I'm writing about the pollups in your nose. Are the steriods

supposed to help the pollups resolve, or what happens? The reason I

ask is because when my Dad was in his early 40's he had pollups in

his nose that were bothering him so badly that he had to have them

surgically removed. After the surgery was over, Dad found out that

he had lost his sense of smell....totally, and also he could not

taste anything, since he'd also lost all sense of taste!! He never

regained either sense, and I've always felt so sorry that he's missed

out on so much by not having those senses, especially that of

taste..... He would sit at the dinner table after finishing his

evening dinner and always commented loudly, " Jayne, that meal was

DELICOUS!!, " and my mother would laugh, knowing full well that he

couldn't taste a bit of it. She was such a superb cook that it was

a shame he couldn't taste it. We were grateful that she still put all

her talent into the meals just for us kids, because you could have

fed him burnt, crusty hot dogs and he would have been happy!

His lost sense of taste enabled him to play some hilarious jokes on

some people, but the stories are much too long for me to post here.

You can just imagine the types/combinations of horrible food he could

consume with a smile on his face in front of unsuspecting people.

Imagine a lovely lemon meringe pie.....with half a shaker full of

black pepper on the top!!!

I'm sure that whatever they do to correct this problem now, is much

more sophisticated and less drastic as the surgery he had done over

40 years ago! Hopefully your pollups will go away and you'll regain

your smell, and then you'll just have to learn to modify your

behavior and pace back to that which it has been normally...in other

words, you'll have to start acting your age again, haha!

Take care and heal well, and do take in consideration that even

though you can run up and down the stairs today, your muscles may not

be accustomed to that frolicky pace and you're apt to " feel " the

effects after a short while. Reality can be brutal some times!

With love, hope and prayers,

Heidi

Heidi H. Griffeth

Bluffton, SC

SC State & SE Regional Representative

Pancreatitis Association, International

Note: All comments or advice are based on personal experience or

opinion only, and should not be substituted for professional medical

consultation.

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