To Chrissy: Re: Beth Isreal Deaconess to

[Guest guest]

Hi Chrissy: Thanks so much for your kind words and " vote of

confidence. " I slept almost all day today..my sleep is all out of

whack lately as well. I stayed up all night the night before last

despite taking my Remeron (which is an antidepressant but my pain

mgmt doc gave me a script for it when the Ambien did absolutely NADA

for me) and then slept all of last night and then all day today!!

When this first started happening I thought it was because the pain

doc bumped my Methadone up from 5 mgs to 10 mgs every 6 hrs and that

the Remeron was just too much in conjunction with that. So, I

started taking half the prescribed dosage and it worked for a few

days, didn't work at all for a few and then again today I'm asleep

all day. Guess a call to him is in order explaining all of this.

I just get paranoid because he might start talking about reducing my

patches and/or the Methadone and I am barely being covered for pain

even with the increased Meth dosage. The first 24 hrs I'm fine but

by the end of the second day (Which is when I change the patches as

prescribed, i.e., it's written for 24 hrs vs the usual 36) I'm

starting to climb the walls with pain.

Anyway, here I go again writing a small novel when I just wanted to

say thank you!! Hope you're feeling well today...it's now 2:10 am

on Wednesday the 5th and I'm not asleep yet so looks like since I

slept all day today I'll once again be up all night.....aaargh!!!

> Hi , I did read your post about trying. If the doc has been

out

> of town for a while he may have instructed the nurse to not accept

any

> appts until his return. her hands may be just tied and nothing

more.

> Call them back wednesday and be sure to get an appt.

>

> I did read your posts about Banks and I had heard other people say

the

> same thing about him. Its seems odd but he takes appts based on

his

> personal time or basis. I'm not sure but there does not seem to

be any

> rhyme or reason. Its like, ok I have time for one or two this

month

> and everybody else I will just blow off. What a jerk! Like I

said

> earlier, your notes from Dr. L should be more then enough to get

you

> into the pancreatic clinic at BIDH. Have you called them?

>

> I used to have that horrible burning as well. I never blew a

whole in

> my panc but I think it finally went away after the 2nd surgery. I

felt

> like I was about to spontaneously combust. I always ran a low

grade

> temp and the docs didn't believe it was from the inflamed panc

until

> after it was removed and my temps miraculously returned to its

normal

> 97ish. I dont know how to tell you to help it out. Its seems

like a

> drainage issue or maybe from the inflamed panc putting everything

else

> out of whack. It certainly should be addressed by your doc tho,

the GI

> with the scheduling issues.

>

> I do hope you feel better soon and can find a doc that wil listen

and

> understand. If there is anything I can help you with, just let me

> know. Oh and rant all you want, we all do at some time or another.

> Warmly,

>