New to list and pre-diet stage

[Guest guest]

Hello everyone,

I want to start by saying " WOW! " I have been reviewing the archives for,

literally, hours now and you are all AMAZING people! Reading how difficult and

trying some times were broke my heart and instilled real fear into me, but then

reading later on how much progress came about from sticking it out made me

realize I had to make another attempt at this.

I'm Jean, 30, single mom to Diego, 4, Autism. When he was 2 I tried going SCD

with no prior experience with any special diets. He was and still is VERY

underweight and not even on the charts for both weight and height. After 1 week

I stopped the diet, caved in since he didn't eat anything and stopped sleeping

as well, lots of tummy troubles. I didn't know any better and I didn't have much

support lined up for myself. Last October tried GFCF. Failed miserably at that,

same thing, after 3 weeks he had lost so many precious pounds, I was afraid he

was headed for the E.R. Now, one year later, I again attempted the GFCF. I had

no support from family because they remember what happened before. His school

was making comments about him being malnourished, pale, and very weak. I didn't

know what else to do so after another 3 weeks, I caved in again.

Now I've been investigating the Feingold as a place to start again but for

some reason was re-directed by fate to an SCD website. I really want to do this

for my little boy. It reallyi s his only chance to transcend his autism. I know

it and have always known it.

I AM TERRIFIED and I don't know where to begin because he is 4, 37.5 inches,

and weighs 27 pounds at this moment. Still in 24 month old clothing, just

unhealthy and always sick. eats nothing but chicken nuggets, bologna,

pizza,french toast stix, raisins, and teddy grahams. NOTHING ELSE! How does one

begin to prepare for this? What are the most important things I need to do RIGHT

NOW before beginning this again?

Thank you in advance, I am so eager to hear what any of you might have to say.

Sincerely, and thrilled to join this group,

Jean

__________________________________________________

[Guest guest]

Hi, Jeannie,

The archives are a great place to learn--keep reading them when you

have the time. Also read all the great info on www.pecanbread.com.

This link really does walk you through it, but if you read it and have

specific questions, please do post them.

http://www.pecanbread.com/new/scdfoods1.html

Also go to the archives and search for the recent thread " ready to

quit " . The advice given to will help you prepare to start

SCD, too.

mom to -12

SCD 4/23/04

>

> Hello everyone,

> I want to start by saying " WOW! " I have been reviewing the

archives for, literally, hours now and you are all AMAZING people!

Reading how difficult and trying some times were broke my heart and

instilled real fear into me, but then reading later on how much

progress came about from sticking it out made me realize I had to make

another attempt at this.

> I'm Jean, 30, single mom to Diego, 4, Autism. When he was 2 I

tried going SCD with no prior experience with any special diets. He

was and still is VERY underweight and not even on the charts for both

weight and height. After 1 week I stopped the diet, caved in since he

didn't eat anything and stopped sleeping as well, lots of tummy

troubles. I didn't know any better and I didn't have much support

lined up for myself. Last October tried GFCF. Failed miserably at

that, same thing, after 3 weeks he had lost so many precious pounds, I

was afraid he was headed for the E.R. Now, one year later, I again

attempted the GFCF. I had no support from family because they remember

what happened before. His school was making comments about him being

malnourished, pale, and very weak. I didn't know what else to do so

after another 3 weeks, I caved in again.

> Now I've been investigating the Feingold as a place to start again

but for some reason was re-directed by fate to an SCD website. I

really want to do this for my little boy. It reallyi s his only chance

to transcend his autism. I know it and have always known it.

> I AM TERRIFIED and I don't know where to begin because he is 4,

37.5 inches, and weighs 27 pounds at this moment. Still in 24 month

old clothing, just unhealthy and always sick. eats nothing but chicken

nuggets, bologna, pizza,french toast stix, raisins, and teddy grahams.

NOTHING ELSE! How does one begin to prepare for this? What are the

most important things I need to do RIGHT NOW before beginning this again?

>

> Thank you in advance, I am so eager to hear what any of you might

have to say.

> Sincerely, and thrilled to join this group,

> Jean

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

I do not know who your doctor is at this time....my little guy is 2

and 3 mo. and he weighs what your little man does. We have snagged

an appointment to see Dr. Goldberg in Los Angeles in January,

as he is taking new patients, but there is always at least a 2 month

waiting list to see him. He is not a DAN. He would probably tell

you not, not, not to go the DAN route with a kiddo so underweight as

your wee one. He has strong ideas about kids on the spectrum who

present as not thriving and as sickly. There may be answers to your

child's inability to thrive and get nutrition from anything her eats

that you have not considered yet or been told about. He may have a

neuro immune disfunction that is causing/is part of all the " other

stuff " . Write me if you want more info - but think about trying to

get in to have Dr. Goldberg help your son...it could be a match and

answered prayer. There is something about your description of your

son that makes lights flash in my head....who has addressed the

possibility that he might have a serious neuroimmune disfunction and

not just " gut issues " ....Dr. Goldberg is covered on insurance, and he

works with tests, specialists, and medical interventions that are as

well, and not just supplements, vitamins, and dietary interventions

and the DAN protocol -0 great for some kids, but perhaps not yours.

If your child has a serious immune disfunction with neurological

consequences that go beyond a desparately injured gut that can be

healed through the SCD, you need to find that out, and proceed

accordingly. We are going to Dr. G to find out and rule out many

things...and our little guy is a diet responder, but we are certain

that there are other things going on with him having to do with

viruses as well as systemic yeast issues. Remember this diet was

originally designed to assist and heal persons with serious and

DIAGNOSABLE GI diseases. Though a godsend for those of us with

autism injured kids....some of our kids also have other stuff....your

baby sounds not thriving and tiny even for a child on the spectrum.

We are heading to Tarzana in January, that is when our appointment

is.. We live near Malibu. If you need a place to stay if/when you

get an appointment, call me and you can stay at our place. He is in

Tarzana about 25 minutes from where we live. Best of luck.

diatplay@...

- Diane mum to Terra 3 1/2, Matt 2 and 3 mo ASD diagnosis and not

thriving, and Emma 6 mo

>

> Hello everyone,

> I want to start by saying " WOW! " I have been reviewing the

archives for, literally, hours now and you are all AMAZING people!

Reading how difficult and trying some times were broke my heart and

instilled real fear into me, but then reading later on how much

progress came about from sticking it out made me realize I had to

make another attempt at this.

> I'm Jean, 30, single mom to Diego, 4, Autism. When he was 2 I

tried going SCD with no prior experience with any special diets. He

was and still is VERY underweight and not even on the charts for both

weight and height. After 1 week I stopped the diet, caved in since he

didn't eat anything and stopped sleeping as well, lots of tummy

troubles. I didn't know any better and I didn't have much support

lined up for myself. Last October tried GFCF. Failed miserably at

that, same thing, after 3 weeks he had lost so many precious pounds,

I was afraid he was headed for the E.R. Now, one year later, I again

attempted the GFCF. I had no support from family because they

remember what happened before. His school was making comments about

him being malnourished, pale, and very weak. I didn't know what else

to do so after another 3 weeks, I caved in again.

> Now I've been investigating the Feingold as a place to start

again but for some reason was re-directed by fate to an SCD website.

I really want to do this for my little boy. It reallyi s his only

chance to transcend his autism. I know it and have always known it.

> I AM TERRIFIED and I don't know where to begin because he is 4,

37.5 inches, and weighs 27 pounds at this moment. Still in 24 month

old clothing, just unhealthy and always sick. eats nothing but

chicken nuggets, bologna, pizza,french toast stix, raisins, and teddy

grahams. NOTHING ELSE! How does one begin to prepare for this? What

are the most important things I need to do RIGHT NOW before beginning

this again?

>

> Thank you in advance, I am so eager to hear what any of you might

have to say.

> Sincerely, and thrilled to join this group,

> Jean

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Hi Jeannie,

Maybe you could try just gluten free for a while, leave the dairy in. You

can make gf chicken nuggets, pizza, etc. Maybe this might increase

his weight, and then when he is stronger, try SCD.

Kath (Mum to three beautiful boys, one ASD)

>

> Hello everyone,

> I want to start by saying " WOW! " I have been reviewing the

archives for, literally, hours now and you are all AMAZING people!

Reading how difficult and trying some times were broke my heart and

instilled real fear into me, but then reading later on how much progress

came about from sticking it out made me realize I had to make another

attempt at this.

> I'm Jean, 30, single mom to Diego, 4, Autism. When he was 2 I tried

going SCD with no prior experience with any special diets. He was and

still is VERY underweight and not even on the charts for both weight

and height. After 1 week I stopped the diet, caved in since he didn't eat

anything and stopped sleeping as well, lots of tummy troubles. I didn't

know any better and I didn't have much support lined up for myself.

Last October tried GFCF. Failed miserably at that, same thing, after 3

weeks he had lost so many precious pounds, I was afraid he was

headed for the E.R. Now, one year later, I again attempted the GFCF. I

had no support from family because they remember what happened

before. His school was making comments about him being

malnourished, pale, and very weak. I didn't know what else to do so

after another 3 weeks, I caved in again.

> Now I've been investigating the Feingold as a place to start again

but for some reason was re-directed by fate to an SCD website. I really

want to do this for my little boy. It reallyi s his only chance to transcend

his autism. I know it and have always known it.

> I AM TERRIFIED and I don't know where to begin because he is 4,

37.5 inches, and weighs 27 pounds at this moment. Still in 24 month

old clothing, just unhealthy and always sick. eats nothing but chicken

nuggets, bologna, pizza,french toast stix, raisins, and teddy grahams.

NOTHING ELSE! How does one begin to prepare for this? What are the

most important things I need to do RIGHT NOW before beginning this

again?

>

> Thank you in advance, I am so eager to hear what any of you might

have to say.

> Sincerely, and thrilled to join this group,

> Jean

>

>

>

>

>

> __________________________________________________

>